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Original poster

Gender neutral language for endometriosis support organisations

54 replies

2020Wumben · 26/06/2020 11:09

I have just seen an article from an Endometriosis support organisation for support groups to use gender neutral language to be more inclusive of trans men and non-binary people. I get that, if you have gender dysphoria having endometriosis and navigating treatment would be extra distressing and we must do something to help support people dealing with it. But again it is all about the removal of the world woman or female, not changing language to women, trans men and non-binary people.

This is a horrible disease with no cure and ridiculous diagnosis times as it's not taken seriously as a women's condition. It affects so much of affected women's daily lives, chronic pain, infertility etc all because we are women and mostly as we have periods. I appreciate that there have been a handful of men diagnosed with it but 1in10 women are affected. The suggestion of instead of saying "176 million women have the disease" you say "176 million people have the disease", just made me ShockConfused- it wipes out the significance of the number as that statement now includes men.

OP posts:
Original poster
2020Wumben · 26/06/2020 11:29

Yea I think my frustration is that so many people and I include a lot of women in this don't know very much about it. So by saying it affects people, you lose that link to it mainly relates to the fact that it is because you are a woman. Endo doesn't always present with heavy painful periods, mine are totally fine but I have a whole range of other Endo related symptoms. So you lose an opportunity to flag to a woman who thinks she has IBS that it isn't really IBS at all because she doesn't know about Endo, if you get what I'm trying to say. To summarise a major issue with the condition is lack of awareness among the population and healthcare professionals, not being able to saying woman is another barrier and that a support group advocating for that is Shock

OP posts:
Whatsnewpussyhat · 26/06/2020 11:19

As a woman who has suffered most of my adult life with endometriosis and ovarian cysts, then fibroids too just to add to the mix, they can FUCK RIGHT OFF.

If this TINY minority are so fucking triggered by THEIR own biology then then need mental health care to enable them to cope in society. This should be proof they can't fucking 'identify' out of woman/female.

stella47 · 26/06/2020 11:18

Just to be clear, I have never said "Endo sis", and I can't imagine that anyone doubled up in pain with endometriosis has really been focusing on the language. And what about people who genuinely have difficulty accessing health care. Why not this level of concern for e.g. women in some Asian communities, deaf people, disabled people etc.?

stella47 · 26/06/2020 11:15

From the article:
Instead of saying "Endo sis" try saying "FriEndo"
!!!!???WTF
It's so hard to tell what's parody these days, what with this, and the police announcing that they "stand with asexual people".
I'm using many of my WTFs today.

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