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Data breaches by Mermaids exposed in the Times

703 replies

truthisarevolutionaryact · 15/06/2019 18:46

Mermaids has apparently put lots of confidential data online including private emails, personal data and emails demonstrating the pressure they have put on the Tavistock.
Andrew Gilligan article - share token:

www.thetimes.co.uk/article/parents-anger-as-child-sex-change-charity-puts-private-emails-online-tl0g5hwcg?shareToken=2f8ddc23419c61360023562a62e74d13

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RedToothBrush · 17/06/2019 20:45

Note the word negligence in the above. Not just the word unlawful.

RedToothBrush · 17/06/2019 20:41

www.gov.uk/guidance/trustee-board-people-and-skills?step-by-step-nav=3dd66b86-ce29-4f31-bfa2-a5a18b877f11#check-prospective-trustees-are-eligible

Check prospective trustees are eligible
You must be at least 18 years old to be a charity trustee (16 if your charity is a company or charitable incorporated organisation (CIO)).

Some people are disqualified by law from acting as charity trustees. Subject to waiver provisions, this includes anyone who:

has an unspent conviction for an offence involving dishonesty or deception
is currently declared bankrupt (or is subject to bankruptcy restrictions or an interim order) or has an individual voluntary agreement (IVA) with creditors
is disqualified from being a company director
has previously been removed as a trustee by either the commission or the High Court due to misconduct or mismanagement

Trustee role and responsibilities
As trustees, you must:

always act in the best interests of the charity – you must not let your personal interests, views or prejudices affect your conduct as a trustee
act reasonably and responsibly in all matters relating to your charity – act with as much care as if you were dealing with your own affairs, taking advice if you need it
only use your charity’s income and property for the purposes set out in its governing document
make decisions in line with good practice and the rules set by your charity’s governing document, including excluding any trustee who has a conflict of interest from discussions or decision-making on the matter

Risks and trustee liability
You can be liable to your charity if you act unlawfully or negligently as a trustee.
Although your charity might run up debts or other liabilities as a result of decisions you make, you and the other trustees won’t be liable if you have:

1 acted lawfully, responsibly and reasonably
2 followed the rules in your charity’s governing document
3 taken reasonable steps to manage risks

But if you can’t prove this, you could be ‘in breach of trust’ to your own charity.
Trustees act jointly when running a charity, so the trustees as a group would be liable to repay any loss to the charity

This is where the charities commission comes in.

If the ICO put out a damning report saying trustees have broken the law in a big way, this puts pressure on the charities commission. Since they are now involved after its been raised as a serious incident, then you would expect them to follow the direction of the ICOs findings and ruling. It give the charities commission some weight to do something, and makes it harder for them to ignore other concerns in other areas about the governance of the charity.

Cwenthryth · 17/06/2019 20:35

That’s good to hear - and it shouldn’t be relevant, but we are apparently in an age when individuals can influence public policy according to their personal beliefs and get away with it (cf Edward Lord & Corporation of London), I do worry that personal opinions can influence decision making.

Although in this case, the issues at the forefront here are GDPR offences and safeguarding of vulnerable children - you’re quite right that opinion on gender ideology itself doesn’t actually come into play when assessing these concerns.

HumberElla · 17/06/2019 20:34

Someone on Twitter is asking why so many of Mermaids trustees have left and not been replaced over the last couple of years. If this is true they could be in a very weak position in terms of proper governance.

theOtherPamAyres · 17/06/2019 20:30

Can the ICO take action against the trustees?

I vaguely remember cases of trustees being disqualified for life and liable to fines for their own (mis)handling of data.

Presumably, trustees are insured or indemnified by their charity?

RedToothBrush · 17/06/2019 20:27

Plus as I said before, even if she did think trans kids were exceptionally vulnerable or transwomen are women, then that works AGAINST mermaids rather than for them, in this area of safeguarding. Its not an organisation full of art and social science types. Its an organisation of auditors, who do the facts in front of them not the feelz.

RedToothBrush · 17/06/2019 20:23

No.

And I don't think it relevant to her job tbh.

The report for Bounty was very very feminist in tone, and went beyond my expectations on that score.

Its a story I've followed and been passionate about for a long time.

She did what I've not seen anyone else do in government and formally recognised the vulnerability of women (and children) who have just given birth, in safeguarding in terms.

Her focus was 100% on those failed, not protection of the institutions around them.

Cwenthryth · 17/06/2019 20:18

Anyone have any inkling of what Elizabeth Denham considers a woman to be?

Lysistrataknowsherstuff · 17/06/2019 20:01

Red Elizabeth Denham is a fantastic public speaker - she takes no prisoners. One of the ICO's biggest problems is retention of staff as the private sector pays so much more.

(Also a fangirl)

RedToothBrush · 17/06/2019 19:57

Elizabeth Denham is a bloody brilliant.

Working for the ICO is something I aspire to and may well apply for at some point. I see our Rights being very much caught up in how we view and process data over the next decade or so.

(I am something of an ICO fangirl... you might notice).

RedToothBrush · 17/06/2019 19:55

They are like the equivalent of HMRC but for data.

Accountantlike.

This is why I like them! (And if you are familiar with my posting style and content especially over things like polling you'll get what I mean. This being a reflection of my sad fuckness!).

LordProfFekkoThePenguinPhD · 17/06/2019 19:54

Some people will just go whatever they want anyway and cry ...phobia!

Lysistrataknowsherstuff · 17/06/2019 19:52

The ICO also has a penalty that can be more serious than a monetary fine - an absolute ban on the processing of personal data. If an organisation isn't allowed to process personal data then there's not much it can do.

RedToothBrush · 17/06/2019 19:51

Do we know this?

Have you read an ICO report?

They are, how can I put this, 'very dry, blunt and to the point'...

LordProfFekkoThePenguinPhD · 17/06/2019 19:49

Look how far and how fast all the love-ins ran when kids company went tits up.

ItsAllGoingToBeFine · 17/06/2019 19:49

an organisation which hasn't been inflitrated by a load of people with a woke agenda

Do we know this?

RedToothBrush · 17/06/2019 19:46

The limits of power of the ICO are to issue fines. However they are highly respected and their influence huge. They are a very powerful body.

If they came out with a highly damning report (they do lengthy explanations point by point of their findings and each point of failure with references to attitude and culture of the organisation) it would be difficult for other public bodies to ignore. This is the important bit really, rather than the size of the fine.

The ICO reports directly to parliament (under the Department for Digital, Culture, Media and Sport), thus if their concerns were serious enough, this carries significant weight with other government departments.

Anyone who answers to another government department would have some serious questions to ask if they were involved with this charity because there would be concerns over the charities attitude and ability to govern itself full stop. This naturally would invite a lot more scrunity than Mermaids have been used to. Would they survive this in their current form?

On a corporate level would you want to go near a charity with a shitty reputation, if you are looking to virtue signal? Would you give a charity which had demonstrated poor governance a big grant? This could restrict their income to just personal donations. And if you've heard a scandal about a charity and they've had a big fine would you want your money to go to that charity?

Their whole reputation and brand is now under the spotlight by an organisation which hasn't been inflitrated by a load of people with a woke agenda. Their interest is purely to protect people on a data level.

BuzzShitbagBobbly · 17/06/2019 19:29

I bet Rubberman is bloody over the moon this has happened.

But don't fret little cub, we've not forgotten you either...

RedToothBrush · 17/06/2019 19:28

I don't think complaining about transphobia will get them very far with the ICO somehow.

This is such a high profile case, with so many breeches which clearly constitute a culture for a complete disregard and consideration of data protection, its going to be hard for the ICO to let them off the hook. Otherwise they will look completely useless and never being able to persue another case again, without other organisations being able to argue that they are been treated unfairly in comparison with Mermaids. The ICO have to be seen to be fair about data processing - that is all - this is their soul purpose and reason for existence. For this reason they won't be bothered about what the organisation does; its not their priority nor concern.

Where it does matter is the sheer sensitivity of the data they were holding, which is pretty much considered the most sensitive data type, meaning that the ICO would actually expect higher standards and compliance than perhaps another organisation. The protection of being a trans charity, actually has the opposite effect on them in this field of safeguarding - the organisation should have been shit hot on the risk of sensitive data leaking for the safety of their clients. The more Mermaids they stress that trans kids are the most vulnerable the worse it is for them at data protection level; because it makes their lack of regard for safeguarding data look appalling, because of the level of risk they have exposed service users to.

Lysistrataknowsherstuff · 17/06/2019 19:26

Just to add to Red's list of principles - the GDPR (and new DPA 2018) emphasise accountability: senior management can't just shrug their shoulders and say they didn't know. Data protection has to be from the top down, with all employees - including the CEO - undertaking mandatory training and being aware of what is happening with regards to data protection in the organisation.

Needmoresleep · 17/06/2019 19:26

Red, could they demand structural changes including appointments and resignations?

Thinking back how could anyone not know about GDPR at least in its broadest sense. Didn't everyone get a gazillion emails from any organisation they ever had dealings with, asking for confirmation that they could continue to hold, often very basic, data. Did Susie thing that this did not apply to her.

Ultimately how can we expect a mother who took her child to Thailand for surgery aged 16 to understand safeguarding.

OrchidInTheSun · 17/06/2019 19:24

TheBullshit - they're doing a £1/month for 3 months digital offer at the mo so well worth it

Thanks to your DH Red, that's v interesting.

Ironically, one of the emails is about confidentiality training post GDPR. Didn't have a lot of impact clearly

Lysistrataknowsherstuff · 17/06/2019 19:22

I've seen on Twitter people saying that as Mermaids is a charity, the ICO won't hit them hard. That's just not true. The most similar breach by a charity was back in 2014, when BPAS was hacked and vulnerable women's data stolen - BPAS tried the ignorance offence but it didn't help them then and it won't help Mermaids now. At the time, this was the biggest fine ever given out by the ICO. Since then the Information Commissioner has changed and the new one has demonstrated that she's not afraid to go after big players and levy big fines: I really don't expect her to let Mermaids off the hook for this at all.

This BBC report details the BPAS breach, and comparing the two it's easy to see certain similarities but also to see how much more serious Mermaids' breach is.
www.bbc.co.uk/news/health-26479985

TheBullshitGoesOn · 17/06/2019 19:12

LordProfFekko I'm getting a Times ad. Which is timely as I'm within a gnat's crotchet of subscribing in recognition of their amazing work in this area.

Red I wonder whether Mermaids has yet got an expert to give them a similar summary as your DH. Because surely they can't continue to minimise it and try to shout it away with accusations of transphobia.

Cwenthryth · 17/06/2019 19:09

Yup, GDPR ad. You could have got a free report Mermaids!

Data breaches by Mermaids exposed in the Times