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Data breaches by Mermaids exposed in the Times

703 replies

truthisarevolutionaryact · 15/06/2019 18:46

Mermaids has apparently put lots of confidential data online including private emails, personal data and emails demonstrating the pressure they have put on the Tavistock.
Andrew Gilligan article - share token:

www.thetimes.co.uk/article/parents-anger-as-child-sex-change-charity-puts-private-emails-online-tl0g5hwcg?shareToken=2f8ddc23419c61360023562a62e74d13

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RedToothBrush · 17/06/2019 19:07

The Eight "data protection principles".

  1. Personal data shall be processed fairly and lawfully and, in particular, shall not be processed unless: a) at least one of the conditions in Schedule 2 is met, and b) in the case of sensitive personal data, at least one of the conditions in Schedule 3 is also met.
  2. Personal data shall be obtained only for one or more specified and lawful purposes, and shall not be further processed in any manner incompatible with that purpose or those purposes.
  3. Personal data shall be adequate, relevant and not excessive in relation to the purpose or purposes for which they are processed.
  4. Personal data shall be accurate and, where necessary, kept up to date.
  5. Personal data processed for any purpose or purposes shall not be kept for longer than is necessary for that purpose or those purposes.
  6. About the rights of individuals e.g. personal data shall be processed in accordance with the rights of data subjects (individuals).
  7. Appropriate technical and organisational measures shall be taken against unauthorised or unlawful processing of personal data and against accidental loss or destruction of, or damage to, personal data.
  8. Personal data shall not be transferred to a country or territory outside the European Economic Area unless that country or territory ensures an adequate level of protection for the rights and freedoms of data subjects in relation to the processing of personal data.

Apparently DH thinks there are clear breeches of 2, 3, 5, 6, 7 and 8. And you could argue 1 but its difficult to prove.

Gasp0deTheW0nderD0g · 17/06/2019 19:04

Thanks, Red. Not looking good, then.

LordProfFekkoThePenguinPhD · 17/06/2019 19:00

Anyone else getting a GDPR ad in this thread?😁

RedToothBrush · 17/06/2019 18:50

Will they still get the Lottery grant if it turns out it'd all go on fines?

DH thinks the ICO will throw the book at them, but he worries about the issue with fines because its a charity and the ICO will go through the accounts and not necessarily give one as big as they could because so much of their income is through charitable donation, and people have donated for a specific purpose not to pay off the charity's liabilities.

Where I wonder is if they will coordinate their findings with the charities commission because of the seriousness of the incident because of this though.

RedToothBrush · 17/06/2019 18:45

DH has just gone through the sections of the DPA and which sections they failed on. (If you fail on DPA you fail on GDPR).

He thinks they have failed on at least half of it and some of the breeches are extremely serious. And that's before you consider the sensitive nature of the data.

He says its probably the worst failing of the DPA he's ever seen.

LordProfFekkoThePenguinPhD · 17/06/2019 18:34

I knew those all those data protection and GDPR seminars I did for work would come in handy.

teawamutu · 17/06/2019 18:33

Will they still get the Lottery grant if it turns out it'd all go on fines?

RedToothBrush · 17/06/2019 18:32

Gasp0deTheW0nderD0g, DH has to know the law in this area professionally and advises on it.

The answer is yes and yes.

Gasp0deTheW0nderD0g · 17/06/2019 18:31

Thanks.

LordProfFekkoThePenguinPhD · 17/06/2019 18:30

Yes and yes.

Gasp0deTheW0nderD0g · 17/06/2019 18:27

Can someone who understands GDPR and the Data Protection Act clarify something?

The internet group was set up and used in 2016-7, as I understand it, but as it was never made private did it breach the Data Protection Act back then?

Also, when the GDPR came into force last year, did it apply to information that was already online, like this old group that was still available to anyone at all if they happened to make the right Google search? I would assume it did. So the much larger fines under the GDPR might apply here?

pombear · 17/06/2019 18:24

I'm not sure where to pop this is, as it isn't specifically related to the data issue, but I think it might be relevant in terms of demonstrating the clouded-boundaries and lack of critical thinking that drives some people to make poor choices.

I noticed recently that Helen, (mimmymum), who is closely related to Mermaids, was enthusiastically waving about the fact she'd bumped into a meeting of Leeds 'Furries' recently.

twitter.com/mimmymum/status/1139893697926094848

For some of us who have been around these boards for a while, you'll know how un-innocuous the 'furry-culture' is. There's only a whisper paper-thin line between pretty pictures of fluffy foxes, My Little Ponies and nappy-wearing 'age-play' fantasies and very concerning online personalities.

As much as 'furries' might want us to think they're just fluffy people wanting to put on costumes, the evidence points to blurred boundaries and linked fetishes.

'Leeds fetishmans' have links to 'leeds furries'. Which is fine, you do you. But when mimmymum is waving at you all like you're a disney parade, but when I know what I know about the 'furry scene' and can also see from the twitter links that a 13 year old girl is "proud to become a 'furry" the red flags are waving.

If I was strongly linked to Mermaids, and had a trans child, this is the last group I'd be cheering on.

(Awaits furry onslaught!)

RedToothBrush · 17/06/2019 17:49

That's a far cry from the Mermaids statement trying to make out it wasn't a big deal and the incident was now over....

ImGenderfree · 17/06/2019 17:48

I cannot understand why they shared this information. I work in a school and the information shared with Governors (similar responsibilities to Trustees) is anonymised. For instance performance data has no names at all, support for individual pupils is discussed at a high level only e.g. no names or details. There is no reason to share confidential information especially not medical information. It will be interesting to see how this is dealt with and how Mermaids try to justify it.

RedToothBrush · 17/06/2019 17:47

Ouch.

Good.

missedith01 · 17/06/2019 17:27

The Charities Commission, quoted in Civil Society News:

“The charity has submitted a serious incident report to the Commission regarding a data breach, in line with our guidance on reporting serious incidents.

"We have contacted the charity for further information so that we can assess this fully.

“More generally: charities hold important positions of trust and so it is vital that they take their responsibilities seriously, particularly when it comes to protecting people and sensitive information.”

www.civilsociety.co.uk/news/mermaids-uk-apologies-for-online-data-breach-over-weekend.html#sthash.vXaEWmFM.dpuf

ItsAllGoingToBeFine · 17/06/2019 16:41

Yep, two breaches have occured here, not just one. These details should never have been shared with trustees in the first place.

CaptainKirksSpookyghost · 17/06/2019 15:49

It's the bit that disturbes me the most too.

RoyalCorgi · 17/06/2019 15:46

this archive was basically set up so trustees could read intimate details about these children.

This is what bothers me. The data breach (ie making the emails publicly available) was appalling but it was unintentional. What I can't get my head around is that Green was sharing these private emails with trustees. There is absolutely no need to share those kinds of confidential emails with trustees. Indeed, I would imagine the parents involved would be horrified to know their emails were being shared in this way.

CaptainKirksSpookyghost · 17/06/2019 15:37

I think they don't know. I haven't seen anything in statements to suggest that they appreciate that transfer of personal client details to trustees (regardless of how securely done) could be a breach.

They are playing ignorant because frankly for them shouting loudly normally means reality bends for them, everything is always as they say it is.

R0wantrees · 17/06/2019 15:33

But they know better than experts at everything and instead have an arrogant institutional attitude that they know better than anyone else at absolutely everything regardless of their qualifications and level of professional experience.

Which hasn't been helped by all these other institutions using them without question as an expert authority.

Professionals who have close contact with Mermaids should have been able to identify the risks the organisation presented.
That they have either being unable to identify, unable to report or their whistleblown concerns dismissed is an even greater Safeguarding framework failure.

missedith01 · 17/06/2019 15:28

They know but they don't care, this archive was basically set up so trustees could read intimate details about these children.

I think they don't know. I haven't seen anything in statements to suggest that they appreciate that transfer of personal client details to trustees (regardless of how securely done) could be a breach. They seem to be thinking that it was an accident and an apology and calling anyone who demurs a bigot will allow them to tough it out.

RedToothBrush · 17/06/2019 15:00

Mermaids could have done a lot of things.

But they know better than experts at everything and instead have an arrogant institutional attitude that they know better than anyone else at absolutely everything regardless of their qualifications and level of professional experience.

Which hasn't been helped by all these other institutions using them without question as an expert authority.

They are a bunch of charlatans who recommended quacks.

SpartacusAutisticusAHF · 17/06/2019 14:57

This reply has been deleted

Message withdrawn at poster's request.

Needmoresleep · 17/06/2019 14:55

Mermaids could have used networks such as Stonewall and Lloyds Bank to find an IT expert as soon as they realised there was a problem. Instead they minimised it. Did they still not understand.

I helped run children's sports club. All volunteers and a limited budget. No way did I have access to information about children's medical needs (asthma mainly I assume) because I did not need it. I did have access to coaching and volunteers DBS, safeguarding and coaching certificates because I needed that, but even that information was restricted to a clear need to know.

And safe data storage was in our initial website spec a decade ago.

How come something like this was very obvious to a group of parents doing our bit to help our kids, yet the people running a significant children's charity, dealing with complex medical and emotional needs, have no idea.

Bloody obvious surely.