I’ve got a daughter with a rare ‘orphan’ illness who is treated on the kids cancer ward (same treatments). So pleased we now have a proton zapper in Manchester - my friend’s daughter had to travel to Germany for treatment in the summer holidays (NHS funded, but very disruptive and expensive for the family, as they had to be there for quite a period).
Boys with ALL (one of the most common forms of Leukaemia) have to have a whole extra years worth of chemo, because biological sex differences are real, goddamnit!
There are a number of live studies for childhood cancers that U.K. kids can theoretically participate in (ie, experimental treatments) but they are incredibly carefully supervised and parents/home hospital consultants are well-informed and can pull kids at any time, returning to standard protocols.
These studies are only accessed through discussion with consultants and are only available to children who are carefully screened and considered likely to have benefits that outweigh the risks (meaning, children who are unlikely to achieve remission using approved protocols).
Parents of cancer kids are constantly fundraising for as much research as possible. The contrast is startling, really.
As the parent of a kid who has needed serious medical intervention to avoid a 100% fatal-if-untreated outcome, resulting in both my child and I having shaky post-traumatic mental health, I simply cannot fathom why you wouldn’t do all you could to avoid making your child into a life long medical patient. I don’t think my daughter will ever have her ears pierced, she’s so traumatised by anything vaguely needle like.
Puberty blockers are injections and/or implants - they aren’t strawberry flavoured and given off a spoon like calpol.