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Feminism: Sex and gender discussions

Women’s Health: please share stories of interactions with NHS Dr’s

61 replies

Pennydrew142 · 11/12/2018 08:04

I strongly believe the appalling way women’s health concerns are dealt with are down to ingrained sexism within the medical profession. I wanted to start a thread which shared women’s stories of trying to seek help and the way we are spoken to and treated. I’ll start.

I was an extremely fit and healthy woman in my 30’s. I’d had some issues since having children. After dealing with declining health for a year, extreme fatigue, sudden & dramatic weight gain despite a lot of exercise, pain in my muscles and bones, extreme coldness, breathlessness, painful ovulation with a lump on my right hip... and much more, I went to my doctors. He barely listened before declaring I had ‘chronic fatigue’. I told him this seemed to happen after I went on a particular contraceptive pill. He ordered a CBC but told me to ‘reduce my expectations of life’ and accept I was aging. At 39. I spent all my savings going private ( at this point I was bedridden ) and as it turned out, I had an endocrine collapse due to undiagnosed thyroid problems, likely endometriosis ( still haven’t been referred by NHS many years later ) and my endocrinologist believed it was caused by the pill I was on ( Yasmine ) and had come off ( he’d seen it a lot ). I barely made any hormones at all- he was surprised I could do anything, shower myself etc I had to do a lot of work but I did get better- now peri menopausal which complicates things! Definitely not going to my doctors about that!

Oh I forgot. They tried to put me on anti depressants. I got a copy of my records ( at a cost of £20 ) and they recorded nothing about my mood or mental health. I have since learnt that a lot of poorly managed thyroid conditions end up being treated with anti depressants.

Please share your stories. Chronic women’s conditions are complicated and don’t get a lot of research or funding. We need to talk about this and what we can do. I’m sick of suffering while certain other groups get a lot of support.

OP posts:
Pennydrew142 · 11/12/2018 09:54

NoseringGirl

Thank you for sharing. I had no idea there were private companies looking at referrals!

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Pennydrew142 · 11/12/2018 09:53

SwearyG

Oh Jesus Christ, that is horrendous. I wish I could say this was the first time I’ve heard that type of story. I find one of the most frustrating things, is the lack of safe options for us. You’ve got no decent option but to go private. Most women can’t afford to do that- the same with women who have thyroid problems, I was very fortunate I could. I had a support group for a while and I felt absolutely terrible that my advice to resolve thyroid and hormonal issues, meant paying a fair bit to go private. It broke my heart that most I tried to help couldn’t afford it. An online friend took their life because of it.

I’m actually contemplating asking for a hysterectomy as my period is just horrendous and peri menopause is fucking up my thyroid and adrenals again. But I don’t think I can afford it at the moment & doubt the NHS will offer it.

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SwearyG · 11/12/2018 09:28

I started having really heavy periods when I was recovering from anorexia - horribly heavy, painful and long in spite of still being underweight (normally women wouldn't menstruate at that BMI - I'm so lucky) and I was eventually diagnosed with fibroids and referred to gynae. Whilst waiting for the referral I started bleeding very heavily 2 days after my last period ended - soaking a super tampon an hour - so took myself off to A&E as 111 told me to, only to be told it was a period (it really wasn't) and prescribed tranexamic acid (didn't make a blind bit of difference).

I managed to see the gynaecologists on a cancellation and was put on norethisterone to stop the bleeding, which made me put on so much weight I ended up seeing the mental health crisis team as I was suicidal. The gynae team wouldn't treat me as a person with multiple health issues, they just treated me as a fibroid. The weight gain started me on a massive restriction spiral again because I couldn't cope with the change in my body. It was not a fun time.

I saw the gynae again and was told that they could give me mirena (I can't manage hormone treatments due to my MH) or gnrh antagonists (I think that's what they're called) which have horrible side effects, not least causing bone density issues - something you don't want to exacerbate in someone with a restrictive eating disorder. They would not consider surgical intervention, basically telling me that my choice was the drugs that made me fat, ones that made me crazy, or ones that would damage my bones. And if I wouldn't take any of these - with my significant reasons not to - they wouldn't help me.

I paid for a hysterectomy instead.

NoseringGirl · 11/12/2018 09:17

I bled for 3 months straight. Quite heavily at some points. On the heavy days I couldn't leave the house. To my GP's credit he put in a referral to the gynaecologist. In my area, all GP referrals are sent via a private company to review them and decide if they are necessary. This company decided that a 3 month long period wasn't some that warranted investigation and that I should just be left continuing to bleed for however long it lasted.
Luckily my GP appealed and got me the referral. I was diagnosed with PCOS.

Pennydrew142 · 11/12/2018 09:16

Orangesox

I am so very sorry to read your experience, you have been treated very disrespectfully. I hope you have good support around you. It’s just not right that you’re now going through something so serious, that could easily have been avoided if they had just done the most basic thing: listened to you.

You’re right too, it’s not just women’s health conditions that women experience poor care for. I went in for some anti anxiety meds for an upcoming holiday. I had got stuck on the tube for a very long time and since developed really bad anxiety and horrendous panic attacks when travelling. I was seeing a therapist for CBT ( at my own expense and with success ) but needed just 2 doses for a longer journey I hadn’t yet addressed through CBT. He was extremely rude to me and insisted repeatedly I should go on anti depressants ( again ). I said I don’t need anything daily, I just needed it for one journey and I would continue to have therapy to deal with it long term. He actually raised his voice. Wtf? Stop pushing Prozac on women!

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Pandamodium · 11/12/2018 08:57

My GP is brilliant and female obviously I'm in a small northeast village.

My husband was prescribed stronger pain killers after he had a toenail removed then I was first given after my third Caesarian.

Baby was in HDU so nothing to do with not being too doped up to look after him.

Orangesox · 11/12/2018 08:57

To be honest, I experience the same type of bias and judgement for conditions which affect both men and women, purely because I happen to be a woman. I’m a health professional myself so I try to be respectful of others input and clinical experience; equally so I’m not stupid and I know when something is not right!

Suffered a bout of post viral fatigue after pneumonia over Christmas 16, expected this to last around 6 months to some extent ... but it continued on. Began experiencing horrendous wide spread pain which seemed to stem from my lower back, extreme fatigue, irritability, etc. Was told likely type 2 diabetes as I’m fat... bloods came back all within normal range aside from Vitamin D and Vitamin B12, both deranged and extremely low. Treated until within “range”, likely cause: being fat, eating rubbish and not getting enough sunlight Hmm judgemental bastard didn’t even ask me about any of those things (incidentally up until recently I walked about 10 miles a day out in the sunlight and was in the gym with a personal trainer 3 times a week, I also eat a diet rich in fresh foods because I get migraines from most processed food ) Then diagnosed with Fibromyalgia because apparently there was nothing clinically wrong with my musculoskeletal system despite me having had no investigations.

Jan 18 began experiencing extreme hip pain, again, nothing wrong with me, take antiflammatories, see physio (already seeing works physio) - at this point I told the GP that I felt I had trochanteric bursitis and sciatica and I would like a referral to Orthopaedics as the two were making each other worse - GP refused. Carried on in pain and doddering around, again told Fibromyalgia, nothing they can do. Just take some antidepressants and it’ll all be okay.

Went back multiple times, same outcome.

September 18 - went to GP and refused to leave unless they referred me to Orthopaedic team as my mobility had tanked to the point of needing a walking stick at the age of 29! Also experiencing excruciating lower back pain, sciatica and altered sensation to feet. Told likely walking funny because of hip pain and probable type 2 diabetes as still fat - funnily enough bloods came back lower end of normal as usual.

13th October 2018 - ended up in A&E due to possible cauda equina (possible lower spinal cord compression) as extreme symptoms. Sent away with urgent (2 week) referral for MRI, emergency apparently not indicated.

26th October - finally seen by Ortho. Diagnosed with... Trochaneteric Bursitis as I suspected back in Jan. Told it had been left too long for conservative treatment; I would likely need surgery but could try steroids in the meantime whilst waiting for MRI.

11th November - MRI cancelled due to double booking. Told not urgent Confused

2nd December - MRI scan at last. Huuuuuge herniated and sequestrated L5:S1 disc. Probably been there over a year... Urgent 2 week referral to Neurosurgery as will require surgery to resolve. Told a big sneeze or a fall into my backside etc could cause complete compression so “be as careful as possible”.

No appointment in sight - well it is Christmas, you might have to wait a month to be seen... oh you’ll probably be okay at home because you know the signs of Cauda Equina and so it’s unlikely you’d leave it to the point you’re paralysed. What kind of get out clause is that?!?!?

Honestly I fucking give up now. I’m 30 years old, I have to use a walking stick all the time, and I’m waiting for the next big sneeze that paralyses me.

Complete juxtaposition. Male colleague of mine, seen at GP and respected for his opinion, immediately sent for MRI, seen by Neurosurgeons and had surgery in the space of about 6 weeks. His disc was barely even herniated and he was experiencing intermittent symptoms that were “annoying him”. Bastard Envy

Sorry that’s the most enormous post I’ve ever written Blush

Pennydrew142 · 11/12/2018 08:39

Mumfun

That I great news. If you don’t mind disclosing, what general area of the UK is that? I’m in London. I didn’t have great care when I had a termination either unfortunately.

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Mumfun · 11/12/2018 08:33

Have to say I have had great care at my GPs . They have been very careful about a number of medical concerns that I have had. They have sent me for tests and further professional help above what I would have expected.

Pennydrew142 · 11/12/2018 08:24

PerryPerryThePlatypus

Totally agree re contraception & anti depressants. I note that last year I think it was, possibly earlier this year, a report advised NHS doctors to ‘listen to women’ with regards to endometriosis taking so long to diagnose ( 11 years ). Really did not think any doctor would need to be told to listen to their patients 😐

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PerryPerryThePlatypus · 11/12/2018 08:12

I found that contraception and anti depressants are pushed As a "cure" for symptoms without investigating the cause. I also feel that doctors and society are far too eager to pump women full of hormones and ignore the side effects.

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