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Has anyone ever been eperienced MS intermittent double vision

5 replies

WhenTirednessWins · 22/09/2026 18:37

I’ve had MS for aged. In fact, my ex divorced me because living with MS was too much of a burden.
in a way I get it.

But as a single parent, with now half the income, I’m doing double the work. In some ways life is easier but physically it is much harder and it’s telling with my MS.

I used to get double vision in the evenings before bed, especially if I had a glass of wine. But now I get it on and off all day. I hate it. It’s so disorientating and I suppose with it comes that awful MS exhaustion where you honestly wonder if you should Google whether tiredness can kill.

But I wanted to talk to people who have experienced intermittent double vision. How did you cope? My optician joked that she could prescribed me 20 pairs of different glasses for each stage of double vision related to tiredness, but it would constant change because it’s intermittent, depending on how tired I am.

Single parenthood enters the chat again.

I just wanted to talk to someone else in the same situation really as I literally don’t know a single soul.

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Pericombobulations · 22/09/2026 22:25

I have MS, whilst I dont have double vision, I do have optic neuritis in my left eye, which changes depending on the day temperature & my temperature, my fatigue levels are also key which it sounds like yours too. Have you spoken to your MS nurse or consultant? They would be your best start for advice. They may be able to presribe something to take the edge of it?

Good luck!

WhenTirednessWins · 23/09/2026 09:33

Thank you for your reply. I’m sorry to hear that your eyesight was affected. Was it intermittent? I’m wondering how it works with driving when it’s intermittent.

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Pericombobulations · 23/09/2026 10:49

My eyesight is very much intermittent and even at worst I can still see to drive. As for me it’s a light Vaseline smear on my sight but have seen that it could be a lot worse.

does your optician see happy with you driving when’s it’s bad as that’s what the DVLA would ask?

Nutmuncher · 23/09/2026 11:13

Speak with your MS nurse or specialist if your symptoms have changed. I would also consider putting all of your bio stats and diagnosis into ChatGPT to see what it says too, you may be surprised with what it comes up with. A family member did this and it essentially said to avoid alcohol with MS as it can be more problematic than it’s worth, in your case you may be particularly sensitive to its effects.

WhenTirednessWins · 23/09/2026 13:50

The optician has never suggested I stop driving, neither has the neuro team. I wouldn’t want to if it’s that bad, it wouldn’t be safe. But I wondered how other people cope with it and how much in the way it all gets

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