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The Goose and Carrot Pub Thread

921 replies

roaringdragon · 30/08/2026 15:27

Everyone is welcome, and the thread disappears after 90 days.

Thank you for the last thread @lougle. I hope the doctor was helpful and DD2 isn’t feeling too rubbish this morning.

DS1 has used the last of his EOTAS hours today. There will be at least a few weeks before the EHCP is finalised and funding restarts. He will hopefully have his operation during that time, but it is still going to feel like a long time without that provision.

OP posts:
LathkillDale · Yesterday 16:41

PurringTiger · Yesterday 16:35

Does anyone else have timed medication? If it’s taken at 11am what time should it be taken once the clocks go back? And do you bother as it’s only an hour and just wing it?

Yes, we do just give the meds as per the clock, but we still expect a few wobbly days with DD1!

PurringTiger · Yesterday 17:00

@LathkillDale thank you. It’s the wobble I’m not sure if we should try and avoid but it will mess up other routine if we change it.

DH has mentioned it to DD and now she is worried. DH and I disagree on what time an 11am pill should be taken after the clocks go back. I don’t want to influence your answers but what does the pub think?

Lougle · Yesterday 17:11

Can you say what medication it is? The approach I would take would differ depending on whether it's timed because having too much in a 24 hour period is bad, or whether it needs to be given at timed intervals to prevent symptoms, etc.

E.g. paracetamol has a max dose of 4g/24 hours (assuming an adult over 50kg), so I'd delay the 11am dose until the clock said 12pm if taking it would go over 4g in the previous 24 hours.

If it's a drug that has a long half-life, so most antidepressants, then 1 hour won't make much difference, so I'd stick to the clock time.

roaringdragon · Yesterday 17:22

@PurringTiger most of DSs’ medication is just certain times of day e.g. morning, lunch, afternoon, night, with food rather than set times, but DS1 has some, such as some of his medications for his dystonia, that are at set times. We keep to the clock time and clock changes don’t alter that. When clocks go forward if e.g. his dystonia is bad we sometimes add a small top up rescue dose, but we sometimes add rescue medication even without clocks changing.

@Lougle I hope your drive to London and back wasn’t horrendous.

OP posts:
PurringTiger · Yesterday 17:30

Ah so 11 becomes clock 12 tomorrow? I thought 11 became clock 10.

roaringdragon · Yesterday 17:32

PurringTiger · Yesterday 17:30

Ah so 11 becomes clock 12 tomorrow? I thought 11 became clock 10.

Sorry, no, clocks go back tonight. I was just mentioning what we sometimes do when the clocks go forward.

OP posts:
PurringTiger · Yesterday 17:35

So if I give at clock 11 tomorrow it will be 1 hour later than usual?

roaringdragon · Yesterday 17:38

Yes, if you give it at the same time tomorrow there will be an extra hour between doses compared to a normal day.

Sorry I have really confused things. I shouldn’t multitask. When I said we give a top up dose when the clocks go forward, I mean we do that when necessary when the clocks go back. It isn’t necessary when the clocks go forward as there isn’t an extra hour between doses.

OP posts:
PurringTiger · Yesterday 17:41

we couldn’t get any more confused here than we are already 😆.

So to correct the hour tomorrow should we give at 10am or 12 noon? I think 10 DH thinks 12, DD is just worrying, as well, it’s the clocks changing full stop.

roaringdragon · Yesterday 17:45

10am.

Because the clocks go back.

It would be 12pm if the clocks went forward, but that is in the spring, not autumn.

If DH doesn’t believe you, you could show DH by writing out the hours then counting them.

I am really tired today.

OP posts:
PurringTiger · Yesterday 17:50

@roaringdragon thank you for putting it simply. Neither of us are adamant as both muddled and trust each other so now don’t believe our own selves. How is DS1 with the change? On the upside me and you get an extra hour.

roaringdragon · Yesterday 17:55

Apologies in advance for the long post.

So on a normal day there is:
11am - dose
12pm
1pm
2pm
3pm
4pm
5pm
6pm
7pm
8pm
9pm
10pm
11pm
12am
1am
2am
3am
4am
5am
6am
7am
8am
9am
10am
11am - dose

If you start at the first 11am and count on to the second 11am you can see 24hrs between doses.

When the clocks go back it looks like:
11am - dose
12pm
1pm
2pm
3pm
4pm
5pm
6pm
7pm
8pm
9pm
10pm
11pm
12am
1am
2am/back to 1am
2am
3am
4am
5am
6am
7am
8am
9am
10am
11am - dose

If you count on it shows 25hrs between doses, so to make it 24hrs you would need to take at 10am.

The clocks changing throws DS1. Not the time but the changes in light/darkness etc. He isn’t too well today. He has spent a lot of the day asleep.

We have carers tonight, so the extra hour will hopefully be spent in bed.

OP posts:
PurringTiger · Yesterday 17:59

Oh that is so helpful! Thank you. Sorry DS1 is not good today, yes the light is tricky here too. It’s freezing here hope you get tucked up in bed with tea, cake and book asap.

PurringTiger · Yesterday 18:04

thanks @Lougle i think I’m going to stick with clock times and hope there is enough in DD’s system to tide her over being an hour late.

roaringdragon · Yesterday 18:06

@PurringTiger we have the heating on. One positive of DSs disabilities. We have the heating on more for them. <ignores the ever increasing gas and electricity bill>

OP posts:
PurringTiger · Yesterday 18:11

@roaringdragon bizarrely DD is feeling the cold! That’s a first, I’ve taken it as a good sign that she is now potentially feeling a change in temperature. Our house is a balmy 19 degrees. Keep snug and have as restful of a Saturday night as possible as you can.

Lougle · Yesterday 19:07

@roaringdragon thank you, the drive wasn't terrible but we had to charge the car on the way home. Theoretically, we shouldn't have needed to, but the increased wind and rain reduces the efficiency.

Zzzzzs · Yesterday 19:18

It’s really stormy here. I do a half hour change when the clocks go back if ds is wobbly and just ignore if he’s stable and carry on with winter time hours. I once travelled mid IVF and had to stick to uk time for three days in the Middle East….challenging.

Violasilkie · Yesterday 21:22

Its quite windy and rainy here as well - got old paint from area to tile removed today and DH went to collect brackets I ordered. Got them and then car got a flat tire and lost a wheel nut so he sent a message to say calling rescue services. Meanwhile power was going on and off here. DH is back now and car fixed and currently have power.

I've done all the questions on PIP form now so its just adding evidence and printing now then will get it sent off guaranteed delivery. DS did leave bathroom open and even hasn't left rubbish in it today where the bath will go and has been putting it in the bin. Plumber we are still awaiting quote and date.

PurringTiger · Today 01:36

Finally settled on incremental timing. That was a lot harder involving DD in the decision but although I was not happy with DH throwing the decision at her the day before it happens it is better long term to have her aware. Done nothing but discuss this with DD until I’m finally in bed.

Dcat is being a diva. Will not go out in wind or rain and is shouting at us.

Zzzzzs · Today 01:38

Ds had another seizure this evening. Lots of smashed crockery but miraculously not hurt himself. We are worried and tired but life will go on. We have decided to stock up a little in food and water as recommended (though if I know dh this will spiral into crazy levels of prepping). So long as it isn’t too expensive I think it will be a good way to adjust some of what we do. Perhaps I will become a super organised canner and jammer. It will keep me entertained.

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