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The Goose and Carrot Pub Thread

918 replies

roaringdragon · 30/08/2026 15:27

Everyone is welcome, and the thread disappears after 90 days.

Thank you for the last thread @lougle. I hope the doctor was helpful and DD2 isn’t feeling too rubbish this morning.

DS1 has used the last of his EOTAS hours today. There will be at least a few weeks before the EHCP is finalised and funding restarts. He will hopefully have his operation during that time, but it is still going to feel like a long time without that provision.

OP posts:
Lougle · 14/10/2026 21:49

We have considered a hot tub at points. Worth thinking about.

Zzzzzs · 14/10/2026 21:13

I love those random gift moments @Lougle . Food for the soul. Yay for watching anything together.
i know it’s an expensive punt, @Lougle but what about a hot tub? Ds really enjoys his (though I’m hold at the moment because of seizures). You could always set it up in her unloved shed. Probably cheaper this time of year.

@NoHaudinMaWheest people asking about job hunters progress is extremely tedious.

roaringdragon · 14/10/2026 20:56

@lougle that is wonderful.

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Lougle · 14/10/2026 20:50

I can tell you that DD1 takes a very dim view of Abuela's attitude towards Mirabel.

NoHaudinMaWheest · 14/10/2026 20:12

lougle that is really lovely.😀

Lougle · 14/10/2026 20:03

@roaringdragon busted! I thought moaning about it was a good cover for my delight.

@NoHaudinMaWheest a queuing system would be neater. Your SIL is ridiculous, isn't she?

I've had the nicest time with DD1 in years tonight. It was like the old DD1 glimpsed through. We watched Encanto (she normally won't watch films of any kind) and she sang her heart out.

NoHaudinMaWheest · 14/10/2026 19:33

roaringdragon you are right she doesn't have children.

roaringdragon · 14/10/2026 18:31

@NoHaudinMaWheest I’m rolling my eyes at SIL. Said by someone without an ounce of understanding into the world of disability, particularly someone with dual disabilities. Even without disability, securing a job for young adults at the moment isn’t easy, so I suspect also said by someone who does not have a DC seeking employment.

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NoHaudinMaWheest · 14/10/2026 17:57

roaringdragon glad antibiotics are working and you are beginning to feel better.

lougle Now if you just instituted a queuing system life would be so much better.

zzzzzs sorry about the building works. However much you want the results the process is soul destroying.

On other people's expert opinions, we have had an example this week. DH is visiting his mother and staying with his brother and wife. SIL is persistent in asking when Dd is going to get a job without any understanding at all of why that is not a straightforward task. Even DH has finally learned to just change the subject.

roaringdragon · 14/10/2026 17:31

@lougle are you sure you don’t take DD1 with you everywhere because you enjoy her giving you driving tips from the passenger seat?

@Zzzzzs you are right. Many don’t want to understand. Of course they think they would care better Hmm. It is like parenting, isn’t it? Before DC, people always think they would do X/would never you Y/wouldn’t stand for Z. I’m sorry DS is all over the place. Building works always seem to drag on.

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LathkillDale · 14/10/2026 17:14

@Lougle Many of the children with autism, DD1 was at school with, used to use cartoon voices. As she didn’t have autism, she never did. However, recently she has picked up the satnav voice and uses it sometimes! 🙄

Lougle · 14/10/2026 16:57

DD1's a curious creature. She's really trying to cope with the pain today, so she hasn't been crying, but her language has regressed. She's using key words instead of full sentences and one of her different voices.

Lougle · 14/10/2026 16:54

I don't know what I'd do without you lot. Even the SW looked a bit baffled when I pointed out that I don't take DD1 with me everywhere for fun.

My DF said something really lovely today, though. DD1 hasn't spent much time there recently without me because she's not been in a good place. A friend wants to take me out for lunch and to see a film in the cinema next week as a late birthday treat. I asked DF today if he'd cope with DD1, because she's been quite tricky. He said "She's our grandaughter. Of course we'll manage no matter how she is." I mean, it's not really true because when she's on a mission it's impossible, but the sentiment behind it was lovely.

Zzzzzs · 14/10/2026 16:18

Lots of people think DS1 just needs discipline, boundaries and consequences. they think the same of mine including the greater family. They could all do it SO much better. They are not queuing up to actually do anything at all, and never had so I bite my cheeks and ignore. I don’t believe they don’t understand, I think they don’t want to. While I totally understand why I think if it looks like an arse it probably is. People can be kind and weak, brave and cowardly, and lazy, all at the same time.

ds is all over the place and needs more of my time and love but building work continues and is VERY noisy. We are enduring.

@roaringdragon I’m glad you’ve got your antibiotics in place. It sounds like you were heading towards sepsis so I’m glad your GP was herding you. Honk honk. We all see you.

roaringdragon · 14/10/2026 16:07

@Lougle if only it was that simple, eh? DDs could pencil themselves into your diary in advance and you would never be left feeling yourself pulled in different directions or that you need a clone of yourself. I’m glad the school is supporting DD3. I’m here if you want to discuss anything off the thread.

I would hate to think what DS1 would be like without all the support we have. The brief pause in his EOTAS provision has resulted in regression. Longer term wouldn’t bear thinking about.

@LathkillDale oh, I pay them no heed. Don’t worry. They haven’t got a clue. A not insignificant proportion of the general public thinks DS1 and people like him should be kept behind closed doors and never be allowed out in public. Don’t get them started on the cost of support. Sad they don’t see the loving, funny DS behind his disabilities/the SIB/VCB.

OP posts:
LathkillDale · 14/10/2026 15:33

roaringdragon · 14/10/2026 13:49

I am starting to feel better, thank you @Lougle. As well as feeling a bit better in myself, my HR isn’t as high and I no longer have a temperature.

Lots of people think DS1 just needs discipline, boundaries and consequences.

@roaringdragon - take no notice. They have no idea!

LAs and ICBs wouldn’t be funding disabled DC for 2:1 or 3:1 or 4:1 care, if it were just a matter of telling offs, boundaries, etc; and you are doing it 24/7! You don’t get to go home for a break and a night’s sleep, after an 8 hour shift!

Lougle · 14/10/2026 15:13

DD3 has been having a really tricky time at school. I can't really post online about it, but after a bit of lag because the impact wasn't fully appreciated, they've stepped up to help her today. She's seeming completely burned out. It would be nice if the girls took turns to be in crisis. Perhaps some sort of ticket system? "Sorry, you've used your crisis ticket and it will renew in two weeks."

Lougle · 14/10/2026 15:10

"Lots of people think DS1 just needs discipline, boundaries and consequences."

Yeah, I'm surprised you didn't think of that. Might have avoided a few injuries, hey? It must be nice to sit on the sidelines, watching and judging. All I can think is imagine what it would be like if you hadn't fought for all the provision you've secured. Life is exhausting enough without the worry of what other people think. When you're old and grey, I hope you look back on these years and know you did everything.

roaringdragon · 14/10/2026 13:49

I am starting to feel better, thank you @Lougle. As well as feeling a bit better in myself, my HR isn’t as high and I no longer have a temperature.

Lots of people think DS1 just needs discipline, boundaries and consequences.

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Lougle · 14/10/2026 13:32

I think it's hard for people to understand how this happens and they assume that there must be solutions, so they decide it's not true because it makes them uncomfortable.

Are you starting to feel any better? IV abx should start to work quite quickly.

roaringdragon · 14/10/2026 12:20

@PurringTiger I understand HCPs being vigilant to the risk of abuse. People aren’t always honest about the hows or whys when they are being abused. I understand that and the hospital’s duty. However, VCB that results in injury is life for some parent carers. We aren’t the only ones. It is part of the caring role that is often hidden from society and marred by shame. Facing disbelief pushes the topic and families further into the shadows. We will just have to wait to see what, if anything, comes from it. I’m not worried. We are already known to social care and we have evidence DS1 bites, hits, kicks, etc.

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PurringTiger · 13/10/2026 23:03

@Violasilkie its my biggest hurdle the sadness of writing it all down. Lazy reviewers and only reading the box text raised by @roaringdragon is making me rethink my form filing. It’s good that we are renewing at the same time as it’s stimulating a lot of goose wisdom.

@roaringdragon i find that kind of alertness very prescriptive. You told them the why and how, the lack of understanding and jump to safeguarding is energy in the system that could be applied to supporting the facts. Get well soon.

roaringdragon · 13/10/2026 20:31

Oh sorry, @JumpersFluffy, I missed you were unwell. I hope the viral infection is short lived.

Thanks @Violasilkie. It’s great DS has been gardening in the lane. Benefit forms are emotionally draining.

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Lougle · 13/10/2026 20:14

@Violasilkie I'm sorry you're having to think about the even more difficult times.

@roaringdragon I'm not sure...I could ask her.

Violasilkie · 13/10/2026 20:00

Hope you feel better soon @JumpersFluffy

Glad study is progressing @PurringTiger though tiring for you on top of work.

Glad you have antibiotics @roaringdragon

DD2 is doing so well @Lougle with the diet.

Sorry about your cat @drspouse

Decided I am going to do the PIP form once a week rather than little bits every day as it brings back bad memories and this way I get a break from them. Decided to go out to do garden as its outside and nice and DH and I tell DS and he stays in and takes a bath. I look in our new laundry room and see DS has been using the new little sink in there to clean his teeth. Then we go out to garden and start clearing leaves and weeding with the 3 silkies who are singing and I discover a pile of ivy DS has cut down from the lane so clear that too and good he is doing some gardening. Must have been today or late yesterday as I cleared that area yesterday. Come back in and he's left his bathroom open after having it shut rest of the day so I go in and clear the rubbish he's put in there, mainly fruit peels and clean the sink and toilet. I see that he has taken the new duvet cover and sheet I bought for him, fleece ones. We also put the doorframe back on.