The Goose and Carrot Pub Thread

Has she tried a portable white noise machine? They are really small and you can pick them up on Amazon for £20. Tinnisoothe makes a pendant one but it's £365. Some people with misophonia find it helps to reduce the focus on the noises.

DD1 has been pretty tricky today. She punched the car window hard enough to bruise her knuckle earlier. I think it might be the crossover process in changing her antidepressant.

Thanks everyone for your input. As I suspected there are no easy answers.

PurringTiger I hope the return to study goes well.

Glad you had a great camp @drspouse

Hope return to study goes well @PurringTiger

Thanks @NoHaudinMaWheest Hard to solve noise sensitivity without the ears involved but DS was never sensitive to his own noise so might have been able to do noise controlled by himself (like an ipad with sound) though wasn't a fan of music. Or soundproofing if its somewhere that's an option.

Hope DD2 is getting better @Lougle

DH is just laying the tile floor today, should have taken an hour but DH is being a perfectionist and its taking all day. He's now gone to piano but I really hope he sticks the final tile down tonight as we need it ready for electrician later in week. He kept recutting one tile and then found adhesive was dry so went out for more and they have it in stock but he couldn't find it so he came back and I ordered it so they will get it and he's off again but is going to piano. Tomorrow he needs to collect DDs stuff.

@NoHaudinMaWheest the only alternative I can think of is treating noise like pain until you can remove yourself from it. Square breathing, squeezing something etc. How upsetting for your DD.

I have missed everything but what I have read is still very hard going for a lot of posters.

im tripping over myself working and tonight is return to study. Slide the gin barrel over, straws for everyone.

@NoHaudinMaWheest Thanks.

No, sorry I can’t think of anything to help sensitivity to noise, without using something over or in the ears. Is it possible to occupy her mind with input to another sense.

DD1 apparently learnt to cope with it, as she got older. It’s very rare she complains about loud noise now, except a few specific ones like hand driers, babies’ crying and women’s high pitched laughter. We either avoid hand driers or move her, if it’s babies or women.

DS bought DGD ear defenders for when they go to noisy events.

Lougle glad Dd2 is out of hospital and I hope she manages college today. Also hope the other two settle down. It is so hard walking on egg shells all the time.

LathkillDale that is quite scary. Is there nothing you can do to get your informed opinion listened to?

Fififizz I hope your Dc has a better week at college.

Violasilkie You have made great progress. I hope you don't have too long to wait for a plumber.

We have decided not to appeal Dd's driving licence refusal as it would need a solicitor and medical report and could run into thousands. When we get the SAR through we will see if we can pinpoint anything we could ask the GP to clarify and submit that as additional information and hope for the best. If not we will wait a while and reapply. At least we have some knowledge of the pitfalls now.

Dd also asked me to pick your collective brains. She thinks that noise sensitivity is contributing to her tiredness especially out of the house. However she can't tolerate anything in or over her ears. Is there any solution to this conundrum?

@drspouse sorry camp was disappointing. It's good that you've identified next goals though.

@Violasilkie well done for DIY progress. It's all coming along.

@LathkillDale that all sounds so difficult! Can you ask for a best interests meeting? I'm glad the zoo gives a bit of relief.

This weekend has been hard. DD2 was released from hospital yesterday. We had to go back to get her medicine, and in the three minutes it took for me to get to the ward and back, DD3 & DD1 had a spat over DD1 humming to music in her headphones and DH had upset DD3 by telling her she just needed to deal with it to keep DD1 happy so she didn't kick off. Lots of hurt words exchanged.

DD2 is exhausted, understandably, but she missed the last two Mondays at college so I'm hoping she can make it in for the 1½ hours.

DD1 has been in tears regularly, since she came home, over the drop attacks. She’s into zoos at the moment, so we took her to a big one near us yesterday. She was back to her normal happy self.

The consultant asked her on Tuesday, if she wants an operation to make her better? (Replacing the battery in the VNS). He didn’t explain to her, what it really entails - screaming hysterically with pain, when she come round, and suffering for 2 weeks after. He didn’t ask us, if we consented either - just talked as if it’s going ahead! I told DH beforehand, it was heading this way and imo, he could take it to court.

It’s been done twice, and did nothing for seizure control, so when the second battery ran out, we didn’t put her through a replacement again. We will have to put up with saying afterwards:

“We told you so!”

Great weekend at camp, all exhausted, luckily I have booked the day off tomorrow. I was thinking of going to London for an optional training course next week Mon and Tues but honestly I need a rest.
Unfortunately DS has been too random for them to think about having him on the teens camp currently. With issues around wandering off at Scouts too we think it's time to put this at the top of things to address. We know he's safe when he goes out near home but he doesn't always reliably tell us where he's going or for how long. At the teens camp they expect them to stay in groups (which they would also if out in town with Explorers though not on Scout camp as there are always adults around, so it might be hard to get the difference over to him).
We also want to get both DCs more reliable in running errands. Currently they tend to buy a pint of milk but spend the rest of a fiver on sweets!

All tiles now cut, primer gone down- did more of first coat of paint in bathroom, that's now done except tiny bit on ceiling and around boiler and bathroom cupboard needs finishing.

Sorry DD2 is still in hospital @Lougle and DD1 is struggling but glad you are definitely on surgery list now.

Sorry about seizures @Zzzzzs

Varnished the worktop today - the one which will go over the washing machine and hopefully have the countertop sink on and has the radius corner in for the water meter. DH was cutting more tiles and is nearly done. DD called asking DH to pick her stuff up from Oxford on Tuesday so he'll do that but we were hoping for a day off DIY, which I guess it is but not a rest for DH. Once we have plumbing and electrics done can slow down. Electrics is Thursday. Plumbing we have 2 plumbers away but one back mid next week.

@Lougle sending many many honks.

Some staff have offered. They're a nice bunch. I think it's probably also hard that DD2 has been admitted and is going to have an operation for her pain, whereas DD1 is told there is nothing wrong.

No bloods. After telling us that she'd see how the bloods compared, me saying we hadn't had any, and her saying she'd order some, the doctor decided bloods weren't needed. The cannula tissued, so she's now on oral antibiotics but not allowed home. I presume that if she remains pain free overnight, they'll let her home tomorrow, but it's not been written as a plan yet. I begged DD2 to say yes to a cup of tea so I could steal it from her and she was very accommodating (she doesn't drink hot drinks usually).

DD1 was in an absolute state earlier because she couldn't go to bed before bedtime. She messaged me to say she wanted to kill herself. I told her I was proud of her, etc., with no effect. So I tried a new tactic. I messaged her and said 'I'm asking you to be on Team <surname>and help by waiting nicely for bed. I know it's been hard today.' That and DH offering a star for waiting until 7.30pm for bed did the trick.

@Zzzzzs I hope you can get more sleep. The pub will be here when you have time for it. Sorry the seizures continue.

More seizures and a very very busy two month ahead. Not much time for the pub. I need more sleep. I don’t seem to cope so well with the long days and exhaustion any more. Dh is slowing down but can still do double what I can on any job. I need a week in bed with room service.

I hate those messages @drspouse . Glad camp is going well. It's hard when you feel your child is a 'problem'. Hopefully they'll see his potential rather than anything else.

@roaringdragon a bath! How luxurious. We don't have a bath so when we have Goose & Carrot meetups I always try to arrive early to maximise bath opportunities!

The doctor came in earlier to review DD2 and we asked about discharge. She said that they'd see how her bloods were doing compared to yesterday, so I mentioned that she hasn't actually had any taken so that would be tricky. Hopefully they'll take some soon.

We got a text message re DS referral to a neurologist the other day. I got all excited but it was just to ask us if we still wanted to be on the mailing list.

Currently we are on the family health camp. Everyone doing well. Hope DS doesn't put them off him too much, would be excellent if he could come on his own.

Maybe, it's all a bit odd. They know she was definitely referred on February 26th, but they don't know why she hasn't had an initial consultation and been added to the surgery waiting list. But at least this admission has pushed her to near the top of the list. I'm probably being over optimistic that the timing could tie in with half-term, which would be great.

Maybe someone forgot to put her on the list?

DD2 is doing better. They've said that if they can convert her to oral abx and tablet pain relief, and she's eating and drinking, she can go home at some point. They'll give her a surgery date for 4-6 weeks, once the inflammation has gone down and get her gallbladder out so she doesn't keep bouncing around the system. The Consultant couldn't explain why she isn't on the surgery list. It's a bit baffling, but all's well that ends well and the nursing team on this ward are lovely.