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Here you'll find advice from parents and teachers on special needs education.

HOw do you deal with people telling you your DC is 'fine'?! - Rant alert!

30 replies

SammyK · 08/10/2008 22:17

??!??

I am currently in the process of fighting for a dx of aspergers/asd for DS 4yrs. He is high functioning, but does have lots of issues and behaviours that affect him daily (and nightly).

Relatives (mainly on DP's side) keep telling us (his parents) that he is fine, and I feel like screaming at them!!

I am seriously sleep deprived, I am sick of cleaning shitty pants, hugging his tears away, calming him, and having the same conversation over and over and over. I don't need people telling me he is fine. Or giving me parenting tips, or telling me he will gow out of it.

Sorry rant over now.

OP posts:
lou031205 · 08/10/2008 22:41

SammyK, until September 18th, I wouldn't have had a clue how you feel. But that was the day Pre-school asked my permission to get an assessment of my DD for 1:1 for the free-play time, because they felt she was 'behind'. Her assessment has taken place, and she needs full 1:1 for all sessions, and is being referred to the Paeds for further assessment.

Everyone has agreed with pre-school, except my family. Who, I have found, can not get their heads around the idea that there is anything 'amiss'. It is SO draining having to say "Yes, I know what you are saying Mum/Dad/Sister, but they don't hand out 12.5 hours 1:1 per week at the drop of a hat for nothing".

"Yes, I can see what you are thinking, but the pre-school sees hundreds of 2.9 year olds over the years, and they know what to expect & feel DD needs intervention."

If only they could see that it would be more reassuring if they said "OK, what can we do to help her", or just accepted the facts, that she does need 1:1, and that is why I am so exhausted trying to look after her, DD2, and being 12 weeks pregnant with DC3.

SammyK, I have ranted myself but what I wanted to say was this:

Your son may grow out of it, he may not, but you will find it easier as time goes on, because you will find ways of dealing with things, and anticipating situations before they occur.

There are some great threads on here about specific ideas. TClanger posted about a sensory bag, on one of the threads. It may be of help? specialchildren.about.com/od/sensorystrategies/a/sensorybag.htm

SammyK · 08/10/2008 22:32

Thanks so much both of you, I read the link and am sat with tears in my eyes.

It is really helpful, and I may print it out and keep copies to give to anyone who I feel needs educating.

OP posts:
sarah573 · 08/10/2008 22:29

LOL Niecie cross posted with the same link!!

sarah573 · 08/10/2008 22:27

My brother in law told me the other day, that he was sure that my DS would grow out of it!!!! He has aspergers, no he bloody well won't grow out of it!!!!!
He wasn't being malicious in any way, it was just a complete lack of knowledge about AS - but it still makes you want to scream I know!!

I found this really useful. Its a bit american, but explains AS/HFA really well, and is great for handing out to grandparents or other well meaning but uninformed family members.

Niecie · 08/10/2008 22:22

I know how you feel - I think the older generation particularly, just don't understand. AS wasn't 'invented' in their day.

I found this recently. I think it is quite useful.

I also used to show the doubters the reports I got back from the paeds and the other professionals that assessed my DS. That helps too, especially if you show them as you go through the process. It won't be such a shock when you get the final dx then.