DLA mandatory reconsideration

Thank you guys your messages mean a lot, I feel very alone with n this process, the school my son is supposed to attend I believe is for naughty kids , my sister in law works for a special school and she has said they shouldn't restrain my son as many times as they have , I no my son can be very challenging and he can have physical outbursts but he would never intentionally hurt another child , but they restrain him at least two times a day , he comes home crying begging me not to send him ,I tried to talk to the school as he has severe sensory issues due to his disability and they said they won't stop restraint, he will be hurt in the process all if he picks up a toy to throw , the ehcp thinks his setting is suitable for him not even requesting to talk to me since this issue has arose, I've asked the council but have been told funding is very limited as our council have been near to being bankrupt mad I know , I've messaged my MP in the past but felt they didn't touch on the problem, my family are not willing to look after Freddie and I wouldn't feel right asking I've not had a break since he was a year old I find it very overwhelming, and I've thought great we can use his money to pay for someone to support him as he enjoyed outreach will Tilly but that stopped as soon as he had his school placement. I just feel very frustrated at the system but know I'm not alone these children are being overlooked and neglected but it feels like I can't do a single thing .

If your son is missing out on much needed equipment for a better quality help with day to day living then have you contacted your local councillor/MP? Name and shame .. unfortunately as a parent with a disabled child/children we have to fright strongly for them. Even when the world feels against us. Our child's need/love gives us strength. Feel no shame in doing what is needed to be done for your child.

@EmIdax have you looked at grants for an SN buggy and equipment?

@Helenmwalker86 if DS is unable to attend school, is alternative provision in place? Have you had an early review of DS’s EHCP? If you have been refused social care respite, have you challenged the decision?

O yes, genuine cases always seem to be rejected. I was waiting 27 weeks and 3 days before we heard off a mandatory reconsideration. Countless phone calls. And poor communication back. Keep on to them now, ring them everyday if you have too. 25 week is like there limit time. Ring them tomorrow 1st thing. The operator will escalate it with the assigned case worker to your son's case. It will become frustrating as they will try and put you InTouch with the case worker but you won't get to talk to them. At this point I even put in numerous complaints. You are near the finish line, I promise. Your hard work, love and and patience will hopefully pay off.

We applied on the 11th December but we put in for my son's claim originally on the 4th January 2023 I'm so incredibly angry at the way his case has been treated , my son is currently out of his special needs school as they cannot handle his outbursts, he has savere mobility problems because he is overweight and they don't know why , he's severely autistic , he has suspected ADHD he has global developmental delay , and genetic disability he's on a ventilator at night time if he doesn't have it he will die , but he didn't meet the criteria for dla I've sent letters outlining his conditions letters from his health professionals ,, we desperately need the money to get him the support he desperately needs and a bit of rest bite for me as funding from councils are near to none , it's absolutely disgusting the way we get nothing and have to go through this process , but other parents get it straight away or have to wait just shy of a year and the dla is approved. just fed up as no support what so ever it's been 26 weeks today and nothing . So that's nearly 2 Years and 5 months . He's 7 years old and yes a nice backdated payment we possibly will get but we needed the support two years ago I can't get that time back with my son or other children who have suffered emensley,

Some MRs are taking longer than 25 weeks. Try not to worry.

Even at 23 weeks I rung up only to be told that the case had already been assigned to a case worker 😕 .. I understand back logs but only communication we have had was a letter stating it could take 15 weeks .. that's it. I don't understand why they have operators that cannot give you any information regarding the matter. Waste of time, and wages.

O yes! Definitely.. I am also still waiting for my return phonecall which has not been returned within two working days. June last year we 1st applied for DLA 🙄 .. it's the unknown and with no communication that is the frustrating part.

Snap! We are on 26 weeks and 3 days .. I rung last Monday and did manage to talk to a decision maker who said that on the day they were dealing 24/10 applications. And to ring back in 10 days. Our was submitted on 28/10.

I also have rung this morning and like you could only talk to a call handler and not a decision maker .. so still no updates.