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Here you'll find advice from parents and teachers on special needs education.

Autism treatment

35 replies

confusedthirtysomething2 · 17/09/2024 13:24

My autistic son (5) seems to have hit a regression when it comes to meal times and I’m so concerned. Prior to the summer holidays, he was eating certain vegetables, meats, and sauces for over a year. Suddenly it all stopped and now all he wants is plain foods, chocolate, and pancakes. He won’t eat bolognese anymore, just the pasta and garlic bread. He stopped eating yogurts which were always a massive favourite. He’d live off pancakes and spaghetti hoops if I let him and all he asks for is sweet stuff. I feel so bad about the amount of sugar he consumes but right now he literally won’t eat anything else.

He doesn’t enjoy the park anymore. He hasn’t used his trampoline in weeks. He complains about being tired when he has to walk. He jumps at the slightest noise. Yes, I know those are autism traits but he seemed so much happier before his world started shrinking (I know it sounds dramatic but it’s the only way I can describe it).

I’ve never been one for online snake oil treatments, but Aibu to ask if anyone has had any success with supplements or a heavy metal detox? I’m scared to mention anything to my health visitor. I also want to try Mebendazole.

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a73 · 12/04/2025 08:05

My daughter's autism symptoms got massively worse after a bowel disimpaction. I believe it wiped out her gut flora. There is a well researched link between gut flora and autism. You can read the scientific literature. That is why so many autistic children have gut problems. My daughter also used to get worms a lot when she was younger. I don't agree with everyone who says we should just let them eat sugar and junk food. This just makes the dysbiosis (gut flora issues) worse and makes them more nutrient deficient. My daughter has improved massively from a gf/df and high protein diet, a good quality multi vit high in b-vitamins, very high dose probiotics, no sugar or processed foods and a herbal remedy to support her liver and digestion. It's not about not wanting our kids to not be autistic. It's about wanting to see them be happy and laugh and have energy to enjoy life. But there is no quick fix. And it's all expensive. Also, autism is obviously very complicated and multi factorial. For my daughter, the gut link was obvious as she has always had stomach problems. For other children, the cause may be different.

x2boys · 17/09/2024 17:45

SilenceInside · 17/09/2024 14:22

Is he in year 1? It must be a very large primary school to have an Autism unit.

I didn't really mean school support, I meant NHS or LA support that you would be aware of after his diagnosis.

We have a few autism hubs in my LEA in normal sized primary schools ,children that get a place in the hubs though have ti have an EHCP and meet the criteria.

massistar · 17/09/2024 15:58

SilenceInside · 17/09/2024 15:54

@massistar stop advertising that site. It's selling unnecessary supplements and posts like these prey on people who are vulnerable and desperate. It's pretty grim.

@SilenceInside a PP asked me to post it again. I'll bow out now as I have no personal experience and not wanting to upset anyone.

SilenceInside · 17/09/2024 15:54

@massistar stop advertising that site. It's selling unnecessary supplements and posts like these prey on people who are vulnerable and desperate. It's pretty grim.

massistar · 17/09/2024 15:53

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EndlessLight · 17/09/2024 14:47

It must be a very large primary school to have an Autism unit.

Not necessarily. Some of the schools with additionally/enhanced resourced unit/bases/provisions (or what the LA calls them) are in smaller schools.

EndlessLight · 17/09/2024 14:46

I presume DS has an EHCP? If so, all the provision he reasonably requires should be in F. That includes the nurture group. Sounds like you need to request an early review. On their website, IPSEA has a model letter you can use. Does the EHCP include therapies such as SALT and OT? What about support for anxiety?

I would speak to the GP about the recent change. You could also ask about a referral to an ARFID service.

If you think DS has threadworms you can buy medication OTC. I’m not sure why you would need the HV to consider it?

SilenceInside · 17/09/2024 14:22

Is he in year 1? It must be a very large primary school to have an Autism unit.

I didn't really mean school support, I meant NHS or LA support that you would be aware of after his diagnosis.

confusedthirtysomething2 · 17/09/2024 14:17

@SilenceInside he’s in full time mainstream now because he’s so academic (double gifted) that the school’s autism unit isn’t suitable for him (it’s more a mix of learning difficulties and severe behaviours). This was recommended by the educational psychologist. I’m going to fight for him to have regular access to the nurture unit but apparently they’re full. He was happier in a smaller class half the time.

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Sceptical123 · 17/09/2024 14:12

Sceptical123 · 17/09/2024 14:04

I’ve tried this address but it says - could you post it again please or give us the name to google?

Thanks

Sorry, that should have said - it says the address is invalid

Maria1979 · 17/09/2024 14:06

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SNAKE OIL. It's all just to make a profit from desperate parents.

Wwyd2025 · 17/09/2024 14:06

Yoga, and a weighted blanket. It's sensory seeking the wriggling. A anti worm tablet isn't going to fix any of this.

If you really want to help your child you need to stop looking up bat shit crazy theories and invest time into therapies & sensory items that will help him.
It's normal to only eat safe foods, most of us do it and it'll then change later on when taste buds etc change. You just need to be patient.

sleepworkmum · 17/09/2024 14:04

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Maria1979 · 17/09/2024 14:04

confusedthirtysomething2 · 17/09/2024 13:24

My autistic son (5) seems to have hit a regression when it comes to meal times and I’m so concerned. Prior to the summer holidays, he was eating certain vegetables, meats, and sauces for over a year. Suddenly it all stopped and now all he wants is plain foods, chocolate, and pancakes. He won’t eat bolognese anymore, just the pasta and garlic bread. He stopped eating yogurts which were always a massive favourite. He’d live off pancakes and spaghetti hoops if I let him and all he asks for is sweet stuff. I feel so bad about the amount of sugar he consumes but right now he literally won’t eat anything else.

He doesn’t enjoy the park anymore. He hasn’t used his trampoline in weeks. He complains about being tired when he has to walk. He jumps at the slightest noise. Yes, I know those are autism traits but he seemed so much happier before his world started shrinking (I know it sounds dramatic but it’s the only way I can describe it).

I’ve never been one for online snake oil treatments, but Aibu to ask if anyone has had any success with supplements or a heavy metal detox? I’m scared to mention anything to my health visitor. I also want to try Mebendazole.

Please don't go down that route! Snake oil is always snake oil! Have an autistic DS 14 and I have tried everything that's not potentially dangerous to his health (magnesium supplements, bach drops etc etc). It just does not work. When we are desperate we can become fools so please listen to the professionals. That being said you can always try meditation, yoga, cardiac breathing, massage etc which can be calming and soothing with no negative side effect and for free (youtube tutorials).

My son likes to roll himself in his blanket like a sausage ; made him feel secure.

Overall what I have noticed is that my DS changes radically from time to another in what he likes etc and then it will be only that for a period and then he changes again. So don't be too worried about his new eating habits, they will probably not last. And also don't be too hard on yourself. You are feeding him, he's surviving and let that be enough. You can't forcefeed him all the healthy stuff you would love for him to eat so cut yourself some slack. Nobody who hasn't had the experience can understand how overwhelming and tiresome it is to have an autistic child. Plus you always feel like a bad parent but you are NOT a bad parent. You love him and you do what you can but autism is not an illness to cure, it's a difference to live with/through. Sending ❤️ to you and your child.

Sceptical123 · 17/09/2024 14:04

This reply has been deleted

This message has been withdrawn at the poster's request

I’ve tried this address but it says - could you post it again please or give us the name to google?

Thanks

SilenceInside · 17/09/2024 14:01

Do you have any support information from the autism diagnosis team to access specialist support?

Has he just started in Reception or had another significant change to his routine?

confusedthirtysomething2 · 17/09/2024 13:58

@SilenceInside the constant sugar cravings, loss of energy, wriggling around at night, agitation. I’m not being taken seriously because of his autism. He is on multivitamins but I’m concerned it’s not enough to counteract all the processed crap he eats. Obviously I’d rather processed crap than nothing but I still feel like I’m failing him.

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x2boys · 17/09/2024 13:57

Many autistic children have a restricted diet
I would let him eat what he wants for now my sin is severely autistic and has aevere learning disabilities, generally he eats quite well but I never restrict anything ,if I'm eating something, and decides he wants what I'm having I give it to him.

HoppingPavlova · 17/09/2024 13:55

In other snake oil news, some people believe infesting children with whipworm ‘cures’ symptoms of autism. Bollocks and poor kids. There’s a lot of shit floating around out there unfortunately.

SilenceInside · 17/09/2024 13:54

Why would a worm treatment be offered to any child unless there was evidence of worms?

As people have said, feed him what he will eat and give him a multivitamin.

And yes, I have an autistic child who recently went through a time of refusing to eat at all. Not just restricting foods, but not eating at all and barely managing to drink. So I do know what it's like.

BusMumsHoliday · 17/09/2024 13:51

As a parent to an autistic child, I'd want to rule out any physical cause for the drop in energy levels. So go to the GP.

If he is in burnout, I'd feed him what he can eat and a good quality multivitamin. And then work out how to make school and him environments easier for him.

massistar · 17/09/2024 13:50

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confusedthirtysomething2 · 17/09/2024 13:50

I just want to clarify. I know that skill regression is common in autism as well as food aversions but my concern is that no one will look into it being something medical precisely because of his autism. If he were a neurotypical child, Mebendazole might at least be considered. He’s very agitated at the moment and all he wants is sugar. Do you know how hard it is to see your child go from eating a nutritious meal to nothing but a Yorkshire pudding and chocolate bar overnight? He used to run around with his friends at soft play and now he just wants to sit in a corner somewhere because his anxiety is through the roof. I’m not trying to cure him, I’m just miss him being happy.

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nicknot · 17/09/2024 13:44

he’s malnourished because he won’t touch a vegetable.

No he isn't

offyoujollywelltrot · 17/09/2024 13:43

Is this for real?