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Here you'll find advice from parents and teachers on special needs education.

If autism is obvious at 2, is it severe?

40 replies

Goodwitchglenda · 12/07/2024 16:14

Hello
We are looking at an autism diagnosis for my child, who is 2. Says few words, no pointing or much waving, lots of running up and down and flapping, pushes other kids away. We are on the waiting list and have been told we will get a diagnosis probably. We are very worried, my mother less so (I have two autistic siblings, one very severe, so her benchmark is quite extreme).

Amidst the “red flags” there are lots of promising signs of progress - eye contact, good understanding, games, sense of humour, desire to engage with us (cuddles, books, songs and play), learning hand gestures to songs, no real sensory or routine issues to speak of, protests but not massive meltdowns. Lots of babbling and a few words breaking through. Child was also premature so milestones have been a bit off, but smiled on time and has always responded to faces. Was so social as a baby that we didn’t think there was anything to worry about.

I suppose what I’m asking is, in your experience, does autism that is obvious early on always mean severe autism? Or could my child still learn to talk and even live independently?

I want to manage my expectations, but I also don’t want to live without hope. I know some autistic people didn’t talk until quite late.

Thanks

OP posts:
BrumToTheRescue · 12/07/2024 17:26

DS’s presentation now may not always be how he presents as he grows up. No-one can say if DS will be independent or verbal. That’s really hard when all you want is answers, I know.

Also, ASD isn’t on a scale from mild to severe. That isn’t what the spectrum is. A child who is verbal may still have significant support needs. A child who is not verbal may go on the be independent. A child who has low support needs may go on to be a teen/adult with high support needs.

It is brilliant you are on the waiting list for an assessment and have met supportive HCPs. None of what you have written rules out autism. Some autistic DC laugh, play, engage, enjoy (or even seek out) cuddles, smile, shows eye contact.

Goodwitchglenda · 12/07/2024 17:25

thedesigner · 12/07/2024 17:18

and if you’re being honest

no medical professional has said your 2.3 year old who still laugh, engages, enjoys cuddle and playing… “likely” as ASD

They have. They said we were almost certainly looking at a diagnosis when our assessment comes up.

This is the third professional who has been concerned, as well as nursery who have put extra support in place and receive extra SEN funding for child.

OP posts:
thedesigner · 12/07/2024 17:18

and if you’re being honest

no medical professional has said your 2.3 year old who still laugh, engages, enjoys cuddle and playing… “likely” as ASD

thedesigner · 12/07/2024 17:17

2 years 3 months

so so young op

thedesigner · 12/07/2024 17:17

Goodwitchglenda · 12/07/2024 17:10

Can I ask, when did they point/talk? How come you didn’t suspect ASD?

because i didn’t have two siblings with autism

and just accepted he was…. 2 years old

and as long as he seemed happy, i was happy

Goodwitchglenda · 12/07/2024 17:11

sleepworkmum · 12/07/2024 17:02

My DD showed all these signs but at aged 4 or 5 things started to change. We clocked on at 7 and she was diagnosed at 9. All this is to say, perhaps try no tot catastrophise and concentrate on enjoying hanging out with your lovely DD! She sounds wonderful. You can't see what's round the corner and it sounds like it's too early to tell what her experience will be in the future - with or with out ASC.

Thank you, I’m trying, but my experience of severe autism is making it very difficult. I know how challenging this journey could be. I hope your daughter is happy and well

OP posts:
Goodwitchglenda · 12/07/2024 17:10

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Can I ask, when did they point/talk? How come you didn’t suspect ASD?

OP posts:
Goodwitchglenda · 12/07/2024 17:08

thedesigner · 12/07/2024 16:41

i can’t fathom that on the basis of what you describe a medical professional said a diagnosis was “likely”

Are you…. sure?

2 years 3 months.
Yes am almost certain, and I know what to look for. Not pointing alone seems like a massive one, but now the stimming and running up and down make it seem obvious. Child is engaged with us but seems markedly different to peers, to me anyway. Does mostly ignore medical professionals/strangers, which doesn’t help.

My partner is neurotypical and didn’t say a word until 3, but it’s the other signs plus the speech delay.

OP posts:
sleepworkmum · 12/07/2024 17:02

thedesigner · 12/07/2024 16:42

Amidst the “red flags” there are lots of promising signs of progress - eye contact, good understanding, games, sense of humour, desire to engage with us (cuddles, books, songs and play), learning hand gestures to songs, no real sensory or routine issues to speak of, protests but not massive meltdowns. Lots of babbling and a few words breaking through. Child was also premature so milestones have been a bit off, but smiled on time and has always responded to faces. Was so social as a baby that we didn’t think there was anything to worry abou

i would be very very surprised if this child is has ASD

My DD showed all these signs but at aged 4 or 5 things started to change. We clocked on at 7 and she was diagnosed at 9. All this is to say, perhaps try no tot catastrophise and concentrate on enjoying hanging out with your lovely DD! She sounds wonderful. You can't see what's round the corner and it sounds like it's too early to tell what her experience will be in the future - with or with out ASC.

BusMumsHoliday · 12/07/2024 16:55

I wouldn't start thinking about severity yet. Unlike the previous responses, I do think its good that you're seeking an assessment, but you don't even have a diagnosis, so worrying about severity isn't going to get you anywhere. And a lot can change over time in both directions. I saw a young autistic person give a presentation to an audience this week, and they said they didn't speak until 3 - now thriving in mainstream high school with support. Concentrate on meeting your son's needs now. Do you have a speech therapy referral?

thedesigner · 12/07/2024 16:43

I have two autistic siblings, one very severe, so her benchmark is quite extreme).

i think this is making you see shadows where there are none

thedesigner · 12/07/2024 16:42

Amidst the “red flags” there are lots of promising signs of progress - eye contact, good understanding, games, sense of humour, desire to engage with us (cuddles, books, songs and play), learning hand gestures to songs, no real sensory or routine issues to speak of, protests but not massive meltdowns. Lots of babbling and a few words breaking through. Child was also premature so milestones have been a bit off, but smiled on time and has always responded to faces. Was so social as a baby that we didn’t think there was anything to worry abou

i would be very very surprised if this child is has ASD

thedesigner · 12/07/2024 16:41

i can’t fathom that on the basis of what you describe a medical professional said a diagnosis was “likely”

Are you…. sure?

thedesigner · 12/07/2024 16:40

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

thedesigner · 12/07/2024 16:39

how far in to being 2?