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Here you'll find advice from parents and teachers on special needs education.

Original poster

DLA wait times August 2022

227 replies

Bunnysarah · 05/10/2022 15:48

I made a claim for DLA 5th August so thought id start this for others who have made a claim same time!!!
My little boy has kabuki syndrome, severe hypotonia, feeding difficulties and sleep difficulties. Very anxious waiting a decision!!!!

OP posts:
MissEllie2 · 26/10/2022 18:45

Yes considering it is disability living allowance I also believe that having a diagnosis should have some form of impact on receiving it but apparently it doesn’t!

Original poster
Bunnysarah · 26/10/2022 18:08

@MissEllie2 i know its not based on a diagnosis but i do think they should give people dla if they have a formal diagnosis! My daughter recieves DLA, she doesnt have a diagnosis but im awaiting the outcome of my sons claim and he has been given a diagnosis so he is classed as disabled. Cant help but get annoyed if he isnt awarded anything 😫

OP posts:
MissEllie2 · 26/10/2022 15:57

It’ll all work out! We are on the last stretch now, can’t wait to hear all the outcomes! Hopefully all of your children get awarded ❤️

MissEllie2 · 26/10/2022 15:36

It’s so hard to prove how much care you give them at home because no one is there. I’ve sent my sons ASD diagnosis report which obviously doesn’t count for much as it’s based around care needs not diagnosis, his SEND plans from school, sleep diary, gp records of medication for his sleep, asthma hospitalisations and his referral to rheumatology and I got his TA from school to fill in the professional section. The only thing is that at home I can’t really give evidence of the care I provide other than my own words! I honestly think at this point it’s luck of the draw as to whether you’re denied or awarded 😣

georgiesmuma · 26/10/2022 14:55

I didn’t even know dla was a thing I only applied as my nursery told me to so then can get additional funding, he already has a 1-1 50% of the time he is there and is supported by cdc nursery

ChantelleB · 26/10/2022 12:47

It’s nice to hear from people in the same boat. No nursery will take my daughter as she will NOT keep any clothing in, no matter how hard I try. Me too there care page was full! It’s unfair isn’t it the stuff out kids go through and how much it would benefit them and allow us to support them the way we know best. I really do hope all of us on here get good news! X

georgiesmuma · 26/10/2022 12:06

Don’t worry, mine is about the same except I had supper form nursery and hv, and EHCP- remember it goes on their care need no diagnosis. I did wrote a lot for how hard and challenging it is to look after my child - who is extremely similar to yours- it’s about showing how much extra support and care they need to a child of their age. Don’t panic!

ChantelleB · 26/10/2022 11:58

Yeah! Hopefully we all get good news! I know I didn’t send enough evidence in as I sent nothing in at all. My daughter was referred to the social communication pathway 11 months ago for suspected autism and she is 3 1/2 and non-verbal. I never got any confirmation for referrals and the only support I was given was from speech and language. This week she has now got a community nursery nurse referral , having 1 to 1 home visits with Rodney house and may be getting a paediatrician referral. Just hope I can get written proof of these referrals or the symptoms and problems they have witnessed with my little girl to send off in time.

georgiesmuma · 26/10/2022 11:23

You too!!!!

ChantelleB · 26/10/2022 11:20

My scan date was 19yh August too! Best of luck

georgiesmuma · 26/10/2022 11:10

Also said they are working on claims end of July at present

georgiesmuma · 26/10/2022 11:09

I phoned today my date is august 19th and she said if not heard in another 4 weeks to call up.

dandymum · 26/10/2022 10:36

Hi guys just found this one, I’m following another thread too and people on 26th July scan date are starting to be awarded, apparently working on 27th next week…

im august 16th scan date and worked out we should find out 22nd nov going off other peoples claims 🙈

Gemma96x · 25/10/2022 22:46

Miss ellie2 what did you send in if you don't mind me asking

MissEllie2 · 25/10/2022 20:50

I’m so nervous, I honestly feel like this point it’s just luck of the draw 😣. I probably have about 4 weeks left so going to send more info

MotherOfCat · 25/10/2022 15:57

My scan date was 21/07/2022, awarded today.

Gemma96x · 25/10/2022 15:08

I rang them earlier and was told no later than 2 weeks for a decision x

Gemma96x · 25/10/2022 15:07

Same to you fingers crossed xx

MissEllie2 · 25/10/2022 14:44

22nd of August for me! Little bit later than you guys but will keep you updated regardless. Fingers crossed for you all 🤞🏼

Original poster
Bunnysarah · 25/10/2022 11:50

@Gemma96x mines the 5th so hopefully not long for us!!!

OP posts:
Gemma96x · 25/10/2022 11:24

Ok my forms was scanned 3rd august I'm dreading the outcome for my son as I only send his diagnosis report in as that's all I have x

Weez88 · 25/10/2022 11:13

My scan date was 19th July, I've just rung them and it was awarded on Thursday they have confirmed it's for hrc xx

Gemma96x · 25/10/2022 11:11

Weez 88 when was your forms scanned x

Weez88 · 25/10/2022 10:02

MissEllie2 · 25/10/2022 09:32

That’s amazing news!!!! Congratulations, you must feel so relieved right now!! Do you know what she was awarded yet???? Great news to wake up to 🥰

I woke up and saw the notification from the bank and I will admit I cried! I'm still in disbelief, I've jumped through hoops for my daughter and feel like I'm coming to the end of a very long battle! I think she has got mrc lrm from the payment I've received, I'm keeping my fingers crossed for you all 😘 xx

MissEllie2 · 25/10/2022 09:32

That’s amazing news!!!! Congratulations, you must feel so relieved right now!! Do you know what she was awarded yet???? Great news to wake up to 🥰