Waiting time for DLA Third Thread

Listenkid yes, the difference between the disabled child element and the severely disabled child element should be backdated.

Hi ya, yesterday a lady from dla called me and said that my ds was awarded middle rate dla in error and he should of been awarded high rate, she is sending me a new award letter dating back to when I 1st claimed dla so October 2020. I recieve uc and recieve the low to medium disability element, does anyone know if uc would backdate any payment as I should of received the high rate which I will be able to show when the new award letter arrives along with the letter explaining their mistake?

@Imitatingdory
Thankyou that makes sense xx

Loladiego At 3 you can only get HRM, LRM is not available until 5. With autism there are 2 ways you could potentially qualify for HRM - under the 'virtually unable to walk' criteria and the 'SMI' rules. For the latter you also need to be in receipt of HRC. This booklet explains it well.

@Loladiego38 amazing news if you feel like it should be more no harm in doing a Mr I wish I did with my daughter at the time xx

Hi guys
Just rang up
They received it sept 14th
Awarded yesterday middle rate no mobility till 2024

I'm happy obvs !

but she's three in a couple of weeks
So want to apply for mobility component as she's completely non verbal autistic
So massive flight risk and has 0 awareness of danger road or people
We rarely go out as she's so temperamental

I don't want to rock the boat though ?

Any thoughts guys ? Xx

I tried to apply when our son was about 18months old and was told he didn't need any more care than another child his age. He had been using a wheelchair since around then, but obviously that part isn't considered until 3 years old if there is absolutely no mobility.

He needed more care, in my eyes, also. With medications, hospital visits, procedures and night time care from procedures. DLA can be cruel with their decisions.

But he is 3 years old now, being fit for his permanent wheelchair mid December and has more care needs, but I still feel they're going to deny his application.

@Lozca93 I'm sorry to read you are having to now go through the MR stage. If you're able, maybe try and get a medical professional to write you a letter that puts into detail what is expected of you to keep your daughter and her condition comfortable.

I hope you get a better outcome next time. X

My daughter's 2 aswell with severe eczema and allergies. Constantly has to be watched and her sleeping is horrendous because of the scratching. Flares up constantly and even worse when heating is on in winter and in the summer.

@Lozca93 how old is she ? My daughter is two I’m absolutely dreading it honestly going to phone back tomorrow I know how you feel that’s what is bothering me having to wait another 8 weeks if I need to do the MR it’s ridiculous x

I sent the 2 hospital letters one was diagnosis letter and the other was next steps for one of the diagnosis. Really annoyed as I now need to wait another 8 weeks to hear back, I have to care for her alot more than a normal healthy child her age aswell 😭

@Blabbermouth93 no didn't bother gonna give them till Friday coz that's basically 9 weeks so fingers crossed xx

@Jneill2021 same to you did you phone back today x

@Blabbermouth93 hopefully you'll get a decision tomorrow they are taking a while lately well some claims I've seen some are dealt with quick xx

@Lozca93 did you hand in any evidence I’m expecting to have to do a mr as my daughter is still being diagnosed so not much to send apart from consultants letters for eeg and ecg and her speech and language and neuro letter x

Phoned today and was told so filled in the form on the phone

@Jneill2021 I’ve been 9 weeks 4 days just phoning daily now @Lozca93 did you phone again today to be told or did they send you a letter x

Didn't get dla so I've put in a reconsideration which takes another 8weeks! Explained everything I do during the day and night and what happens during flare ups.

@Blabbermouth93 how long have you been waiting x

Phoned this morning still with case manager said should definitely be this week x

Any one had any good news ? Xxx

@Boof23 amazing news after waiting so long you got the decision you wanted amazing news x

@Imitatingdory I did go online to get family fund forms sent out but still haven't recieved them, I will have to check the other ones never heard of them, thank you xx

@jneill2021 we finally got a decision I rang earlier my little one was awarded hrc nearly 13 weeks since the forms were scanned we finally have a decision so pleased for him 😊

Jneil Have you looked at Family Fund, Caudwell children, variety and Newlife for sensory toys?