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Here you'll find advice from parents and teachers on special needs education.

Waiting time for DLA Third Thread

414 replies

Mummy2boys1520 · 22/11/2021 16:11

Hi the Second thread ended because when it reaches a 1000 comments it will close I thought I would set this up so everyone can talk again

OP posts:
Alk19 · 25/11/2021 11:52

@Blabbermouth93 don't feel bad! I do understand though my 3 year olds room is full of toys proper typical boys room but the youngest isn't have you applied to family fund? X

Blabbermouth93 · 25/11/2021 11:48

@Alk19 thank god I’m not the only one I was starting to feel like a bad mother cause there room is basic too tv on wall but they break everything drawers etc 🙄 currently 3 strips they’ve pulled off it looks like a doss room 😂 x

Jneill2021 · 25/11/2021 11:26

@Blabbermouth93 @Alk19 my little boys the same I can't even have wallpaper coz he just picks it , o god they wanna pull there finger out ino there probably a backlog but they must have alot of decision makers and usually they only take couple hours to read through and approve or turn down xx

Alk19 · 25/11/2021 11:12

@Blabbermouth93 yeah very I've refused to re do his room I had to take the lid of his toy box cause he stands on it had to get him a very low to the floor bed tv on the wall so his room is quite bare and basic x

Blabbermouth93 · 25/11/2021 11:10

@Jneill2021 phoned again this morning still nothing still with cm women must have thought I was mad blubbering down the phone at her had to try explain it’s been a rough night 🙄😂😂 god help us x

Blabbermouth93 · 25/11/2021 11:08

@Alk19 it’s frustrating isn’t it I’ve got chunks out of my hall and his room has been decorated three times this year he’s torn 3 full strips off wallpaper off I refuse to do it again 🙄😂 x

Alk19 · 25/11/2021 10:10

@Jneill2021 I hope so getting tired of waiting x

Alk19 · 25/11/2021 10:09

@Blabbermouth93 my son has ripped my wallpaper downstairs and eaten it and in his bedroom he was diagnosed with pica aswell he eats anything and everything Hmm

Blabbermouth93 · 25/11/2021 09:24

@Jneill2021 my boy keeps stripping the paint and wallpaper off the walls and eating it 😑 my couch is getting chewed arms and faces are getting licked and clothes are horribly chewed lol 😂 I’ve tried my youngest with teething toys but nope he would prefer to lick everything or eat everything haha never boring our households though 😳😂

Blabbermouth93 · 25/11/2021 09:12

I’m so drained today rather emotional my self today such a bad morning and night so hard trying to keep it together for them anyone know if I can ask for more support workers for them I’ve got 3 disabled children fighting me daily oldest isn’t as bad going to phone again now my claim was received the 17th of September sorry for the rant 🙄

Jneill2021 · 25/11/2021 09:11

@Alk19 that is terrible for the amount of time uve waited, fingers crossed its sorted soon for you xx

Alk19 · 25/11/2021 09:07

@Jneill2021 nope nothing yet still with the approval team apparently they don't give much away xx

Jneill2021 · 25/11/2021 08:57

@Alk19 good morning, did uc finally sort your back pay? Xx

Alk19 · 25/11/2021 08:30

I've found the new thread :)

Jneill2021 · 25/11/2021 08:08

@Blabbermouth93 there taking so long with certain claims and yet others seem to be getting sorted pretty quick when dis they recieve your forms ?, I wish they could see how hard it is for our children and how distressing it is for them then they might understand there actuall care needs, my boys hasn't been said his got pica but every health care professional I've spoke to have suggested toys he can chew on as he is exactly the same everything apart from food goes in his mouth he even pulls his hair out and try to eat it due to his sensory processing, it hasn't really worked for him as he just pushes the toy to the side to buts its worth a try xx

Blabbermouth93 · 24/11/2021 22:49

I honestly wish we could send in recordings of our children so they can see what we are dealing with it’s absolutely soul destroying watching them practically self harm 😭 anyone got any advice for picca two of my boys being assessed for autism and adhd but they keep licking and chewing everything ones 4 ones 8 x

Blabbermouth93 · 24/11/2021 22:46

@Jneill2021 yes still no result will phone again in the morning apologies has been a long day with the kids today one is currently having night terrors trying to settle him down so tired tonight ☹️ Waiting on a emergency dietitian as he won’t eat and hasn’t in over two weeks two slices of toast every couple days and won’t drink or pee my god life can be so hard lol vomiting even trying to chew now 😑☹️ X

Jneill2021 · 24/11/2021 18:25

@Blabbermouth93 did you ring today ? Xx

Loladiego38 · 24/11/2021 17:58

@Emotionallyexhausted
Ahhh I see
Yeah apologies I only know for first time

Good luck with it
The relief will be worth it xx

emotionallyexhausted · 24/11/2021 17:38

[quote Loladiego38]@Emotionallyexhausted
You have 6 weeks to fill in the form if you rang up for it

It will get backdated to the day you rang x

[/quote]
Isn't that for first applications? When we first did it a few years ago the form was date stamped but this one isn't? I thought you had unlimited time its already been a month I'm not going to finish it in 2 weeks

Loladiego38 · 24/11/2021 17:28

@Emotionallyexhausted
You have 6 weeks to fill in the form if you rang up for it

It will get backdated to the day you rang x

Emotionallyexhausted · 24/11/2021 15:55

I'm about to apply for mobility for my child and also hoping to be moved up to high rate care from middle rate care as night time.care needs have increased we are now looking at night time oxygen 😭 but the form is hard going! I really want it posted off by Christmas so it's not.hanging over me but so hard to find the time and motivation. I can only do it from 10pm.at night and I'm so tired!

Loladiego38 · 24/11/2021 15:39

@blabbermouth

Yesterday x
Backdated to when I applied for the form x

Blabbermouth93 · 24/11/2021 15:18

@Loladiego38 did they say when you where actually awarded though x

Loladiego38 · 24/11/2021 15:14

Lastly everyone
How long after finding out or receiving a text did the letter arrive ? Xx