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SEN

Here you'll find advice from parents and teachers on special needs education.

Waiting time for DLA Third Thread

414 replies

Mummy2boys1520 · 22/11/2021 16:11

Hi the Second thread ended because when it reaches a 1000 comments it will close I thought I would set this up so everyone can talk again

OP posts:
Jneill2021 · 29/11/2021 20:39

@DeludedWench I'm so happy there working on ours as some man said to me might be after Christmas I thought no way that would be terrible xx

Jneill2021 · 29/11/2021 20:38

@Blabbermouth93 I'm dealing with 2 asd possible adhd and I feel it can't imagin how your feeling hopefully everything just gets better in time, I couldn't work my daughter has only just started full days she was only doing 2 hours a day, constantly having to pick her up due to meltdowns my little boy starts next year absolutely dreding it as he is so much work the meltdowns can be unbearable xx

DeludedWench · 29/11/2021 19:43

@Jneill2021oh oh! Yay! Good luck! Please update when you have called! It may be our week! Grin

I honestly can't handle this anxiety any more lol.

Jneill2021 · 29/11/2021 18:05

@DeludedWench Yes up to 29th, mine was recieved 28th and I said should I be looking at end of this week next week and she said should imagin it will be dealt with this week so fingers crossed, I'm going to call back Wednesday as I sent in more evidence today so should recieve it tomorrow x

DeludedWench · 29/11/2021 17:40

@Jneill2021they are working up to the 29th Sept? Yaaaaay! Ours was recieved the 29th, so this includes ours?

Blabbermouth93 · 29/11/2021 15:16

@Jneill2021 it honestly is with having to give up work and to be honest I’m juggling two asd and adhd and ocd boys and Isla with her seizures it’s taking every thing out of me and not being able to work now was having a serious impact financially and emotionally so best thing to have happened just need to wait on the boys outcomes now 🙄😂 not stressing as much about that now though fingers crossed you get it this week please just keep me updated x

Jneill2021 · 29/11/2021 13:46

Just spoke to a lovely lady mine hasn't been looked at yet but there now working on dates up to 29th Sept now so she said I should have a decision this week fingers crossed xxx

Jneill2021 · 29/11/2021 12:26

@Blabbermouth93 I'm 9 weeks atm so really hoping it's sorted this week or beginning of next such a good outcome for you, yh ino what you mean I want to get alot more sensory toys for my boy so hoping it's sorted fast so can get them in for Christmas for him must be such a relief for you xx

Blabbermouth93 · 29/11/2021 10:59

So in total it was 10 weeks one day but 10 weeks 3 days until I found out as they made the decision on the Saturday I honestly am still shaken just can breathe properly now and not stress about there Christmas haha x

LovingLanz5 · 29/11/2021 10:42

@Blabbermouth93
That's brilliant news, so happy for you and your daughter, you can breathe now. I'm 7 weeks this week hopefully a couple more weeks to wait.

Jneill2021 · 29/11/2021 10:10

@Blabbermouth93 how long was it in total before your decision? Xxx

Jneill2021 · 29/11/2021 09:39

@Blabbermouth93 absolutely amazing I'm so happy for you and your little one, I'm so nervous now waiting I'll keep you updated again I'm so glad you got such a good outcome xxx

Blabbermouth93 · 29/11/2021 09:33

Just phoned up Isla has been Awarded higher rate care until 2022 As she will be 3 then , and she will be able to apply for mobility actually cried on the phone the women couldn’t have been nicer wow so much stress has just been lifted off my shoulders I hope you all get the decision you are looking for keep me up to date @Jneill2021

Jneill2021 · 29/11/2021 09:19

@Blabbermouth93 I havnt rang yet I've got my sons portage worker out this morning so once she leaves going to ring hopefully with a dm as the wait is terrible just wish they say it will be done by this date and stick to it lol you had any luck ? Xx

Blabbermouth93 · 29/11/2021 09:07

@Jneill2021 any luck yet hun x

Imitatingdory · 28/11/2021 10:32

Deluded I've seen two of the same diagnosis get different outcomes!

This is common, it is because DLA is based on needs, not diagnosis.

Blabbermouth you might want to report your posts as you can see DS’s name and NHS number etc on the photograph.

Blabbermouth93 · 28/11/2021 10:12

This reply has been deleted

Message deleted by MNHQ. We've nipped on to remove this one as it contains some indentifying info.

DeludedWench · 27/11/2021 23:29

@Jneill2021 I sent a Urology letter which lists all of his diagnosis and explains them a little but more focus on his kidney problem.

It does seem random, I've seen two of the same diagnosis get different outcomes!

Jneill2021 · 27/11/2021 12:06

@DeludedWench everybody has that feeling its because there so hit and miss with there decisions they say it just goes on care needs but in my cases in the past being rejected because of no evidence, did you send it evidence of needing extra care or diagnosis of any sort? xx

Jneill2021 · 27/11/2021 12:04

@CloMo1995 If you claim careers allowance you have to tell them xx

CloMo1995 · 27/11/2021 10:41

@Jneill2021 I rung on Friday and told them, the man just didnt give me a time frame on how long it will take lol, i told them middle rate and no mobility. Did I need to tell them anything else? Xx

DeludedWench · 27/11/2021 10:26

I hate this waiting, it's so nerve wracking! I'm thinking of calling on the 1st, as that's between the original 8 weeks and the updated 10 weeks.

But I have this feeling we will be denied and then it's the many weeks for the MR. I'm sitting here like "surely they can't deny on the fact our son relies on a wheelchair" but they always find a reason it seems!

Jneill2021 · 27/11/2021 09:41

@Blabbermouth93 o god hopefully over weekend, I rang again yesterday had nice lady saying it taking the 10 weeks instead of 8 atm so I'm hoping sorted quick as 9 weeks Monday lol xx

Jneill2021 · 27/11/2021 09:39

@CloMo1995 usually only takes tax credits couple days and they sort everything, that's what happend with mine for my girl but that was couple yrs ago, make sure you ring them instead of by app as they put me down for hrc for my daughter when she was mrc and I had to pay back the mistake they made xx

Blabbermouth93 · 27/11/2021 09:27

@Jneill2021 still had no decision haha infuriating so Monday call it will be lol x