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Here you'll find advice from parents and teachers on special needs education.

Being tested for ASD - is it true that you have to wait till they're 9?

57 replies

Psipssina · 05/06/2015 14:16

Ds2 has some traits that I associate with the possibility of an ASD and I asked the SENCO recently if we could have him assessed, and if so how.

She said they don't generally do it until the child is 9. He is nearly 8.

She said the only way to do it sooner would be to take him to the GP and ask to be referred for assessment at the hospital.

I'm concerned that this might make him feel as though he has something wrong with him, though of course the school process might do that too.

Does anyone have any thoughts on the best thing to do? He has been a little 'different' since he was a baby and scored a few red flags on the M-CHAT, which our HV told me not to worry about.

He is very anxious, generally, has a stammer, is shy, and the way he moves is unusual. He has already had a bit of bullying at his primary.

I suppose I'm worried he may suffer more, socially and with his anxiety, if he isn't diagnosed before long, that's assuming these issues are caused by what I suspect and not something else.

He's not in a desperate situation - he is anxious though and also seems to be very bright (completing a times tables sheet well before the rest of the class, and 100% correct - not having really learned them yet AFAIK, he just figures them out). I don't know if it would change anything to have a DX in any case?

Thank you for any thoughts.

OP posts:
PolterGoose · 05/06/2015 17:01

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LineRunner · 05/06/2015 16:57

It is so incredibly complicated it makes me want to scream.

When I met OH his youngest DC had what OH thought was a diagnosis of ASD. Turns out that he didn't. Thanks to some excellent advice from MNers on the special needs boards here, we finally fathomed that his son had a CAMHS assessment of ASD traits (which they didn't do till he was 11).

The CAMHS assessment was arranged by OH's son's new special school. It was/is NOT a formal diagnosis, but the school didn't tell OH that, nor did any other professional. In fact the word 'diagnosis' appeared in Local Authority notes - imagine OH's confusion. It's very unfair.

And nor does the school seem to particularly focus on the assessment during his Individual Education Plan meetings Confused preferring instead to talk about anxiety and additional needs (which would be great if they didn't keep causing DC anxiety by constantly changing his timetable, tutors and travel arrangements).

OH's son is 14 now. He wouldn't cooperate with a formal diagnosis now.

It was a hell of a learning curve.

PolterGoose · 05/06/2015 16:56

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Psipssina · 05/06/2015 16:55

Thank you, that is really useful. I will try and discuss it with ds and see how he feels about it. Maybe we can go from there.

OP posts:
QueenYnci · 05/06/2015 16:49

My DS was diagnosed at 4 but although it was highlighted by the nursery we had to get a referral through the GP for the assessment. The GP was very sceptical about referring at such a young age but according to the consultant at the hospital it's not that unusual now.

We had to wait a few months for the appointment (I know he was in reception by the time we had the assessments) which was two full-morning assessments two weeks apart then a wait of a week for the results.

Psipssina · 05/06/2015 16:36

Thanks so much. I think she was talking about referring him to the educational psychologist? I'm not sure.

I'm glad diagnosis has helped your ds. I'm still not sure whether to wait and go through the school route or take him to the GP now and ask to be referred (apparently it takes a really long time, but I don't know if that is the same both ways?)

OP posts:
PolterGoose · 05/06/2015 16:26

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