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SEN

Here you'll find advice from parents and teachers on special needs education.

Being tested for ASD - is it true that you have to wait till they're 9?

57 replies

Psipssina · 05/06/2015 14:16

Ds2 has some traits that I associate with the possibility of an ASD and I asked the SENCO recently if we could have him assessed, and if so how.

She said they don't generally do it until the child is 9. He is nearly 8.

She said the only way to do it sooner would be to take him to the GP and ask to be referred for assessment at the hospital.

I'm concerned that this might make him feel as though he has something wrong with him, though of course the school process might do that too.

Does anyone have any thoughts on the best thing to do? He has been a little 'different' since he was a baby and scored a few red flags on the M-CHAT, which our HV told me not to worry about.

He is very anxious, generally, has a stammer, is shy, and the way he moves is unusual. He has already had a bit of bullying at his primary.

I suppose I'm worried he may suffer more, socially and with his anxiety, if he isn't diagnosed before long, that's assuming these issues are caused by what I suspect and not something else.

He's not in a desperate situation - he is anxious though and also seems to be very bright (completing a times tables sheet well before the rest of the class, and 100% correct - not having really learned them yet AFAIK, he just figures them out). I don't know if it would change anything to have a DX in any case?

Thank you for any thoughts.

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GooodMythicalMorning · 09/06/2015 19:51

Ah brilliant stuff. Well done.

Psipssina · 09/06/2015 19:44

I know, he is German, maybe they are just very sensible generally Grin

Thank you Polter.

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PolterGoose · 09/06/2015 19:43

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Psipssina · 09/06/2015 19:28

Just to update, I spoke to the GP yesterday on the phone, and he took it very seriously and made notes as we spoke. He said he is happy to fire off a letter to community paediatrics to get the ball rolling.

He is very sensible - he said there would be no point bringing in Ds as ten minutes observation would teach him nothing, and I know him best. Shock

I was so grateful. He said it's a bit difficult to write a referral unless school or someone else has flagged concerns but we sort of bodged it between us, I gave him a lot of info including the HV stuff from when Ds was 2, and he seemed to think it was sufficient.

He's epic. I actually am a little bit in love with himSmile He said they will send me a questionnaire initially and then decide from that whether it warrants pursuing, I spoke to the SENCO today who confirmed this (and said it may take a while) and she said once that's done, they'll write to the school with something similar, and she said that not knowing him very well, she would still be happy to speak to them on the phone and say that she thinks it warrants investigation.

She says she's spoken to Ds a few times but didn't specify whether or not she had any concerns. I told her a few of mine and she was sympathetic - she said sometimes it does present in a very subtle way.

She is brilliant too - we haven't been at this vast primary for very long but I feel in good hands already. Compared to our old school where SEN was brushed under the carpet a lot of the time.

Thanks again for all the info, it's been invaluable.

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DixieNormas · 07/06/2015 21:37

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Psipssina · 07/06/2015 12:04

Oh thanks Dixie that would be better I think, if our HV will see ds2 as well.

I'll ask her when we see her.

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DixieNormas · 07/06/2015 10:30

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Psipssina · 06/06/2015 12:32

Well this is it 5, I don't think the GP will be able to diagnose a problem just by ds sitting there saying nothing. Plus I won't feel comfortable discussing him while he is there.

I think I will ring the surgery and ask what their protocol is for referral. Ds would have to miss school for an appointment anyway which isn't ideal.

Sorry you are going through this, it sounds like a nightmare.

Btw I should probably say ds isn't challenging as such. He behaves really well which is why I don't think school is that bothered iyswim.

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5madthings · 06/06/2015 12:28

Please push for diagnosis of you think that it is needed. My ds2 has asc and had traits and has been challenging at times, lovely bit challenging. We saw camhs when he was the age your son is now who said yes yes lots of traits but you and school are coping well... And they sent us away. Anyway he is now on ur8 at high school and yes it has all fallen apart, we are ending up paying as the nhs route is taking too long and we don't have time. He has had some health issues as well, gastro and joint issues so at the moment he is at home until school get proper support sorted. I so wish we had pushed for a diagnosis when he was younger so he could have had a plan for transition to high school.

We have had to go through gp to community paed and also school are finally getting in ed psych etc.

Good luck.

Oh and i had to take ds2 to see the gp for referral to community paed despite reports from school and ed psych etc saying needs referral they still wanted to meet ds2 and observe him, though in a five min gp app I not sure what they were expecting to see!

Sirzy · 06/06/2015 12:27

That should have said school nurse. School did a CAF and then she triggered the refferal from tnat.

Psipssina · 06/06/2015 12:27

Thank you, will take ds along then just in case.

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PolterGoose · 06/06/2015 12:13

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Sirzy · 06/06/2015 11:42

DS is 5, he has just been reffered by the school to the local developmental peads to start the diagnosis process

Psipssina · 06/06/2015 11:36

Oh that makes sense.

Just wondering - do I have to take ds along to the GP or can I arrange to be referred without putting him through that?

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Pumpeedo · 05/06/2015 18:46

No, see your GP and ask to be referred to the community paediatrician for assessment. School is trying to save money as they need to pay for first 20 hours of support if positive diagnosis. Also ask for referral to speech therapist for his stutter.

accessorizequeen · 05/06/2015 18:42

No worries. I need to call them myself so they can help with ds1's school appeals. One thing I meant to say earlier that it seems sometimes to happen that ASD traits only appear at home (until things get too much) at least IME with my son and several other children I know. Ds1's school were very sceptical, until we produced some videos. It was one of the reasons I hesitated about going for a dx, and I wished I had known that before.

PolterGoose · 05/06/2015 18:38

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FrChewieLouie · 05/06/2015 18:35

I definitely recommend pursuing a dx sooner rather than later.

I'm waiting for the final conference for dd1 - I'd hoped that she would get her diagnosis before starting secondary school in September (and had expressed this view several times to nodding, sympathetic professionals) but rang up today and was told there was no chance, and she'll probably be midway through y7 before we get called in for the final meeting Hmm.

I'm going to speak to the SENCO at her new anyway and hopefully they'll be able to make the transition less stressful for her without formal diagnosis. The process takes a lot longer than I thought (or was led to believe).

Psipssina · 05/06/2015 18:31

GP it is then, I think. Thank you AQ for the link!

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GooodMythicalMorning · 05/06/2015 18:27

We went through the gp at 6 and took under a year for diagnosis of ASD. The school recommended this route as they too had concerns.

Psipssina · 05/06/2015 18:24

Cheers Polter - brilliant Flowers

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accessorizequeen · 05/06/2015 18:24

Poltergoose gave me great advice when I started this journey. Thank you again Poltergoose!
www.kids.org.uk

PolterGoose · 05/06/2015 18:18

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PolterGoose · 05/06/2015 18:16

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Psipssina · 05/06/2015 18:15

I cant find it on a google search - does it stand for something?

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