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Here you'll find advice from parents and teachers on special needs education.

Original poster

Got diagnosis... what now?

27 replies

Billynomateswontbemyfriend · 03/02/2012 21:08

So, after 18months plus of wondering, worrying, pushing and pulling...

DS1 (3.8YO) finally got a dignosis of 'being on the spectrum' today. A plan will be put together to get a more formal diagnosis in the next few weeks. This is not news to me.

What happens now? I am feeling relieved but anxious.

I would be so grateful to hear of people's experiences please. Did you tell people? Did you wait for more results? So far, have told my mum and DH. Neither really want to believe it, but I've known for atleast a year that something wasn't 'quite right'.

Also, I have questions about medication. I am adament that I do not want DS1 medicated at this time. He is 3YO. There is nothing about his behaviour that needs to be changed at this point. I just need to work out ways to deal with the way he is. I can refuse to give him meds, right? He is not aggressive etc.,

thanks,

OP posts:
rosie1977 · 04/02/2012 11:04

Its strange when you get that piece of paper confirming something is wrong it knocks you back.
I found out this week my DS actually does have developmental delays even tho everyone ignored me and called me neurotic.

Does your DS have a curved pinky finger? My son does and so far all the Drs we have seen mentions it and tells me its significant although no one has mentioned autism and its brushed aside when i do.

At least now he has a diagnosis so help can be sought and i do wish you all well. Until i found this site i didnt realise so many mums felt like i did.

ToffeeWhirl · 04/02/2012 10:54

Oh, gosh - I have just posted on your other thread and now seen this. That is a very quick diagnosis. I'm so sorry that you have to deal with this, but so relieved too for you that you don't have to keep fighting to prove to other people that there is something not right. You knew, didn't you?

My son is not on the spectrum, but he does have ASD traits (sub threshold of diagnosis) and has been assessed for it twice. I found the NAS very helpful. I spoke to one of their advisors and he was incredibly kind and helpful and sent me loads of useful information.

Even though you suspected this, I know receiving a diagnosis is hard. I was very upset for quite a while, once I had the diagnosis (Tourettes and other stuff) in black and white. I don't think twice about it now. It's just the way things are. DS is still the same lovely boy he always was, but we now have more ideas of how to help him and we receive more support.

There are lots of people here with children on the spectrum and I'm sure someone will be along soon to advise you.