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Original poster

Disclaimer/Helpful Links for SN too?

47 replies

Davros · 28/05/2005 19:04

Similar to the idea for the Feeling Depressed section, we did talk about doing something like this on SN, plus a possible Q&A somewhere (which could be links to threads) and Dinosaur offerd to write a Red Flags & Red Herrings document. Also the links on the Weblink thing from the HOme page could do with improving (with our help of course).

OP posts:
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zippitippitoes · 25/10/2005 22:46

And what is the answer from the tower

Original poster
Davros · 25/10/2005 13:56

Thanks Zippi. I tried the archive and looked for myself in Site Stuff but couldn't find it and couldn't remember what it was called, doh!

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zippitippitoes · 25/10/2005 10:56

was this the one Davros

MNHQ
JJmumsnet · 05/08/2005 15:16

Hi,

Sorry this hasn't gone live yet, but we are working on it and I would say it's about 3/4 of the way done. Unfortunately, everything takes us a bit longer to get done in the summer holidays. Sorry about that!

dinosaur · 05/08/2005 13:13

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This has been withdrawn by MNHQ at the poster's request.

coppertop · 05/08/2005 13:12

dinosaur.

I think Davros meant the SN links rather than the red flags guide. I think the chances of any of us writing a guide during the summer holidays is virtually zero.

dinosaur · 05/08/2005 12:55

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This has been withdrawn by MNHQ at the poster's request.

Original poster
Davros · 05/08/2005 12:52

Look, don't want to be funny, but was this just a waste of our time?

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Original poster
Davros · 14/07/2005 22:14

bump

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MNHQ
JJmumsnet · 25/06/2005 11:15

Wow, thanks. What a response! We'll get these up soon.

Jimjams - thanks for asking! He's doing really well. It took a while but moving back here (to an English speaking country) and going to nursery have really helped him. He was getting speech therapy, but we tapered that off as he was progressing quickly otherwise. Still has minor problems, esp with low tone in his lower lip, but in general all is well. How's your ds2?

And that made me think - would a page of all the diff places (eg Christopher Place, BIBIC, dev paed ) and what they do (eg diagnose, offer treatment plans) be worth putting together?

Jimjams · 23/06/2005 21:29

I wondered where JJ had gone- was thinking about you this week (I was thinking about christopher place- so you see the link). How's your ds2 getting on?

Original poster
Davros · 22/06/2005 23:08

Autism Research Institute at Sunderland University for gluten sensitivity testing

osiris.sunderland.ac.uk/autism/index.html

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beccaboo · 21/06/2005 22:32

Maybe a link to Sunderland University too - how to get the urine tests done is a question that comes up quite often.

coppertop · 20/06/2005 10:52

Oops! Yes. The CHAT test is the one you do at 18mths or so and the PDD is the one you can do anytime.

coppertop · 20/06/2005 10:51

There was a recent thread on SN about seizures where people discussed their various experiences. I can't for the life of me remember what it was called and I'm hopeless with the Search facility. I think International Girl started it? I think it would be good to have a link to that one too.

Original poster
Davros · 20/06/2005 10:23

Thanks everyone, I'll email them to MN/Tech. CT, the CHAT one and that PDD one are different aren't they? I've put them separately.

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coppertop · 20/06/2005 09:58

this one

coppertop · 20/06/2005 09:57

link{http://www.childbrain.com/pddassess.html\the PDD questionnaire with scores}

coppertop · 20/06/2005 09:53

Aaarrgh! Just realised you probably meant the childbrain one. That'll teach me to post when suffering from sleep deprivation.

coppertop · 20/06/2005 09:48

Here's one:

CHAT test

heartinthecountry · 20/06/2005 09:47

Should also definitely include:

Contact a family - www.cafamily.org.uk/index.html

Scope - www.scope.org.uk

Speech Therapists site is - www.asltip.co.uk/main.asp

Umm, I've got loads but will need time to type them all out.

Original poster
Davros · 20/06/2005 09:27

Thanks SueW, what I'm looking for is the on-line CHAT test that gives you a score. I KNOW it is on several SN and B&D threads but the archive search is beyond me...... I hope someone else will be able to track it down.....

OP posts:
SueW · 20/06/2005 00:15

These CHAT links any use?

Autism Soc of America

Public Aitsim Awareness

Original poster
Davros · 19/06/2005 23:54

Thought I would post this here first as there are lots of gaps. Can anyone fill any in or has anyone got more ideas? I cannot find the on-line CHAT test, despite trying archive (it only comes up with about 5 threads, none of which have it) and going Alpha on SN has collapsed again and only goes up to "C"!!!! So here is my work so far, based on Coppertop's first draft:

SO FAR NOTHING ON DS, CP, SPECIFIC DISABILITIES/CONDITIONS OTHER THAN AUTISM

IPSEA (Independent Panel for Special Education Advice) ? www.ipsea.org.uk
Organisation giving free advice and advocacy on issues related to SEN

National Autistic Society ? www.nas.org.uk
Includes information on accessing their Helpline and Education Advocacy Service

CHAT test ?

Autism SD/PDD tests

PEACH ? www.peach.org.uk
UK charity supporting families running ABA programs (Applied Behavioural Analysis)

TreeHouse/PACE - www.treehouse.org.uk
UK charity specializing in campaigning and lobbying for better/more autism education provision

AiA

JABs

Disability Living Allowance, help with completing forms ? www.bhas.org.uk

Carers? Allowance

Tax Credits

Free Nappies

Mothers From Hell

The Family Fund ? www.familyfund.org.uk
Following means testing, provides funding for families with children with disabilities to purchase items and services, e.g. washing machine, driving lessons, holiday, garden clearance etc

BIBIC (British Institute for Brain Injured Children) - www.bibic.org.uk
Based in Brigwater, Somerset, offers inter-disciplinary assessment, producing tailored programmes to improve the quality of life for the child and family. Parents are then taught how to take an active role in their child's development by implementing these programmes at home.

The Dyscovery Centre - www.dyscovery.co.uk
Based in Cardiff, provides a specialist and high quality service with an inter-disciplinary team helping individuals with living and learning difficulties.

Website for locating Speech Therapists

Communication Matters - www.communicationmatters.org.uk
Organisation concerned with augmentative and alternative communication (AAC) needs of people with complex communication needs, from lo-tech such as PECs to hi-tech such as voice output communication devices

PECs ? www.pecs.org.uk
Official organisation for the Picture Exchange Communication System

Makaton ? www.makaton.org.uk

Signalong ? www.signalong.org.uk

Dyslexia Institute at www.dyslexia-inst.org.uk/

Websites offering free worksheets, flash cards and other resources:
Do2learn - www.dotolearn.com
ABCteach - www.abcteach.com
Funschool - games.funschool.com/games.php?section=g1
Kidsfonts - www.kidsfonts.com
Worksheet factory - www.schoolhousetech.com
Myparentime?s Printable Checklists - www.printablechecklists.com
Nouns&Sounds - faculty.washington.edu/chudler/works.html
Speechteach (Speech therapy based resources) - www.speechteach.co.uk
Responsiveface (to help children with SN, esp ASD, learn to recognise facial expressions and the related emotions - mrl.nyu.edu/%7Eperlin/facedemo

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Original poster
Davros · 19/06/2005 16:27

Who the hell is Davrois? I'm sure SHE is a mad velcro cow whereas I, on the other hand, am a charming and helpful lambikins....
I have been giving this some thought and Coppertop already made some good suggestions. The problem is finding time to do a good job of listing websites etc, I'll give it a go but I won't be able to trawl out useful threads and sort out links to those.... The main one of those I'm thinking of is Choc's DLA one, oh and maybe some of the toilet training children with SN...??

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