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Sign in here for Giving Week 2015: nominate your favourite organisation, charity or worthy cause

288 replies

JustineMumsnet · 12/05/2015 17:39

Hello, hello

As (hopefully) lots of you will remember, last year we ran the inaugural Mumsnet Giving Week, raising nearly £23k (with MNHQ match-funding) for five MNer-nominated causes.

The idea is that you lovely lot use this thread to put forward the charities, organisations and good causes that you’d like to benefit - and we at MNHQ will pick five to be the focus of a week-long Mumsnet-wide fundraising drive in June. As last year, we will match-fund the amount raised by the end of the week (up to £25k, just in case any donors turn out to be Bill Gates).

A few principles: ideally the organisations chosen won’t be huge, national charities that already get a lot of coverage and fund-raising welly; they don’t have to be registered charities (our partners at JustGiving will do a bit of due diligence to make sure any that are chosen are legit organisations); and we’re on the lookout for a spread of organisations that reflect MNers’ concerns and interests. Last year the chosen organisations were the PDA Society (providing support for people with a little-known behavioural condition); the MNer-driven Woolly Hugs; Women’s Aid; Free Cakes for Kids; and Haven House Children’s Hospice.

And because we also want to make sure that the causes are ones that existing Mumsnetters have settled on, we’re only going to shortlist projects suggested by Mumsnetters who are registered as of now. (Apologies to newbies who join after this point, but there’s always next year.)

We’ll be partnering up with JustGiving, which will be organising the fundraising element and will also be making a donation to the chosen causes.

You’ve got until May 22 to nominate good causes, using this thread. So get cracking, and as ever do put any queries or comments here as well.

OP posts:
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6
nievesdesign · 24/05/2015 09:26

Can I nominate a small fund raising quest;

Nadia's Neonatal Vapotherm Fund

This friend of mine gave birth to twin girls at 25 weeks. A long road later they are all at home but rather than just deal with life as has been thrown at them, she wants to raise enough money to buy the neonatal unit one more Vapotherm machine to help a premature baby breath more comfortably!

I think this is a really worthy cause, driven by an extraordinary lady who, at the end of the day is really just like any other "(extra)ordinary" mother!

This is a tiny fund with a reasonable goal... but I'd love to see that goal smashed and Barnet Neonatal Unit receive a truck load of all the equipment they really need!!

AnonyMusty · 24/05/2015 08:43

ADD Vance have helped our family so much and I'd dearly love to nominate them

LJH79 · 23/05/2015 22:08

I would like to nominate pregnancy Sickness Support who are a very small charity but help a lot of mums like me that suffer with severe hyperemesis in pregnancy. They are a lifeline and prevent people ending their much wanted pregnancies and provide valuable support and advice as well as seeking to educate the health profession. Fingers crossed they get chosen as they really struggle for funding.

SoonToBeSix · 23/05/2015 22:04

The biscuit fund

ItsAllKickingOffPru · 23/05/2015 18:52

www.sophielancasterfoundation.com/

I would like to nominate The Sophie Lancaster Foundation for their tireless work with schools, police and communities.

rubyslippers · 23/05/2015 18:43

I would like to nominate a wonderful charity set up by a family after the unexpected death of their DD

A smile for Orly is based in Manchester and distributes the funds it raises to support multiple projects which benefit children under 18

It's a really worthy and inspiring cause and has benefited many, many children since it was set up

It would be really amazing if the charity could be one of the chosen ones this giving week

asmilefororly.com/who-we-support/

JoanHickson · 23/05/2015 18:35

Fabed gets a vote from me.

dollymixedup · 23/05/2015 14:40

Reverse Retts uk

Retts is a neurological degenerative disease that effects young girls.

Reverse retts fundraises for research and raises awareness/ supports families.

A small charity that was set up by the mother of a retts girl. The research they have funded has reversed retts in mice already and may have implications for beating other conditions such as parkinsons.

MTWTFSS · 23/05/2015 09:17

Vote one: ADD-vance
Vote two: Count the kicks

1andonlyTwinsplustwo · 23/05/2015 09:16

I would like to nominate a gastro children's charity. FABED - the ONLY UK charity supporting children with eosinophilic disease and their families. www.fabed.co.uk It is widely acknowledged that Kids with chronic gastro disease have the worst quality of life of any chronically ill child. It is unglamorous, no celebs visit the gastro wards at GOSH, which are the last to be refurbished with only ONE SHOWER and ONE TOILET for TWO 7 bed wards. On a GASTRO ward. It's insane. Less than 1% research funding goes to gastro issues and NONE to paediatric ones. My kids rely on 40+ drugs a day just so they can wee and poo, normal bodily functions most take for granted. We also have EDS co-morbid with the EGID (Ehlers Danlos Syndrome and Eosinophilic Gastro-Intestinal Disease) and this causes a host of other problems too.
EGID involves the immune system, children are on multiple medications, restricted diets - some tube fed on elemental feed alone - undergo multiple surgeries and invasive tests and are in pain most days. There is more on my Blog here thereciperesource.blogspot.co.uk/2015/05/why-we-need-culture-shift-on-medical.html

Today is the end of National Eosinophilic Awareness Week - just for once it would be wonderful for gastro issues to top the bill.

Sign in here for Giving Week 2015: nominate your favourite organisation, charity or worthy cause
mummybumpage · 23/05/2015 07:41

Vote for hmsa here. X

kzedii · 22/05/2015 23:17

Hi,

I would like to nominate FOBE (Friends of Bright Eyes) www.fobe.org.uk/ `it is a charity supporting disabled children and their families by providing respite care. It is supported by local volunteers and they do an amazing job looking after disabled children. They provide a environment where young people with disabilities can enjoy themselves in a manner pleasing to them.

I would also like to nominate the meningitis research foundation www.meningitis.org/ They provide vital research into a vaccine as well as supporting families that have been affected by this deadly disease. This disease can kill in hours and babies are especially at high risk of contracting meningitis.

mummyhat · 22/05/2015 23:10

Magic breakfast (because I volunteer for a local breakfast club and think it's a travesty that some children are not fed in the UK in the 21stC) and:
52 lives, The Biscuit Fund & Trethosa Hut project all sound particularly amazing (amidst all the other amazing nominees)
Great initiative MN Smile

JoanHickson · 22/05/2015 22:27

my second vote is to HMSA too

DWic123 · 22/05/2015 21:45

Hypermobility Syndromes Association. They work hard at helping kids with heritable disorders of connective tissues to cope with chronic pain, fatigue and multi-systemic symptoms. They have set up family self-management programmes.

Krissy12334 · 22/05/2015 21:45

I would like to nominate Linbee dog Rehoming we look after dogs that no one else wants who are at high risk of put to sleep. We take dogs that no one else wants and we try to find them their forever homes. We are raising funds to help overall the kennels so they are nice for the dogs to stay in until they find their forever homes. We have a no kill policy and we will continue to love them and look after them forever if necessary we love all dogs xx any donation would gratefully be accepted and everyone is welcome to come and see our dogs xx thank you for reading you can see our page on Facebook just look for Linbee dog Rehoming Ossett x

cozietoesie · 22/05/2015 20:17

I hope you have plenty of gin up there, Rowan. With that list, you'd likely need it. Grin

mummylin2495 · 22/05/2015 19:58

I would like to nominate the same ascrystalglitz Naomi house and Jack place, a most wonderful children's and teenage hospice.

Lones80 · 22/05/2015 19:52

I'd like to nominate Educate for Life, its a tiny charity having a big impact within a remote, tribal community in Rajasthan in northern India, where families have to survive on less than 32p a day. It provides education and access to reliable health care to children who would otherwise never go to school and never see a doctor. All money goes directly to operational costs in India.

Blaadyblah · 22/05/2015 19:45

Ooh, the Hypermobility Syndromes Association for sure - it is thanks to them that I'm able to manage my health at all. The HMSA made a massive impact and I'm perpetually amazed at how much gets done with so little. :)

WonderWomansSister · 22/05/2015 19:38

For anyone wanting to know more about The Sick Children's Trust, you can see info about their homes from home in Newcastle, Leeds, Sheffield, Cambridge and London here: www.sickchildrenstrust.org/our_houses/index.html

The Trust was set up by two paediatricians who realised that parents of critically ill children were sleeping in cars in hospital car parks to stay close to the ward. It does an amazing job, quietly, efficiently and in a hugely supportive way.

hhhhhhh · 22/05/2015 18:30

This reply has been deleted

Message withdrawn at poster's request.

southlondonbaby · 22/05/2015 17:42

I volunteer with Community Action for refugees and Asylumn Seekers (formerly Kleviskola Kola Foundation) based in tooting, south London.

I'd like to nominate them because of their incredible community-led work helping traumatised children and their families adjust and heal in the UK. Only two members of staff are paid, part-time, and the rest are either local volunteers, students or former service users. They really are amazing and all heart.

RowanMumsnet · 22/05/2015 17:34

BERTIE!!

Right - for cozie and anyone else who finds it useful - here's your list:

52 Lives
Abortion Support Network
Action Duchenne
ADD-vance
Adoption UK
Afrikids
Aiming Higher
Alder Hey Children's hospital charity
Amber Phillpott Trust
Antenatal Results and Choices
Antibiotic Research UK
Art and Soul
Ashley's Birthday Bank
Assist Trust
Auditory Verbal UK
Autism Wishes
Barnardos
Ben's Den
Blessings in Disguise
Bliss
Breakaway Foundation
Brunswick Organic Nursery
CAB
Calum's Cabin
Camp Amazing
Camp Mohawk
Care for the Family
Cats' Protection League
CDH UK
Charlie Grainger Fundraiser
CHAS
Chestnut Tree House
ChildAid
Children with Cancer
Christian Blanford Trust
Cleft Lip and Palate Association
COMAS
CoolTan Arts
Count the Kicks
Countess Mountbatten Hospice
Day Trippers
Dexter's Light
Ectopic Pregnancy Trust
Eden House Project
Ehlers Danlos Support UK
Erbs Palsy Group
Fawcett Soc
Folly Wildlife Rescue
Freedom from Fistula
GirlGuiding
Grandparents' Association
Hamlin Fistula Ethiopia
Hearing Dogs for Deaf People
Heartbeat NI
Homestart
Hope House Children's Hospice
Hope4Kidz
Horton Women's Holiday Centre
Hospice At Home
Hypermobility Syndrome Association
ICP support
Indie's Gift
IPSEA
KairosWWT
Khalsa Aid
Kids and Crew
Kids Company
Lauren Page Trust
Leeway Support
Lupus UK
Magic Breakfast
Manchester Action on Street Health
Martineau Gardens
Mary's Meals
Megan's Smile
Mummy's Star
Muscular Dystrophy UK
Narcolepsy UK
Nelson's Journey
Newcastle Toy and Leisure library.
NIA
NICU Appeal, Luton and Dunstable hospital
OCD-UK
Off the Record
Papyrus
Penhaligon's Friends
Phyllis Tuckwell Hospice
PLANETS
Post Pals
Preemies UK
Rape Crisis
RAVSCA (Raising Awareness of Victims and Survivors of Child Abuse)
Reach UK
ReadWell
Rebounders
Refuge
Rett UK
Reuben's Retreat
Richard House Children's Hospice
Rise UK
RNLI
Ruby's Fund
Samaritans
SANDS
Scleroderma Society
Scottish Women's Aid
Scotty's Little Soldiers
SELSAR
Sick Children's Trust
Smile Train
Snowdrop CC
SOBS - Survivors of Bereavement through Suicide
Solace Women's Aid
SOS SEN
Special Kids in the UK
Springboard Project
STEM4
Supershoes
SWAN UK
TEA Project
Team Jo Epilepsy Foundation
The Biscuit Fund
The Carers Centre
The Daisy Garland Charity
The Flying Seagulls
The Open Nest
The Running Charity
The Unicorn Centre
The Up Project
Trafford NCT's Little Bundles Scheme
Trethosa Hut Project
Trinity Hospice
TSC Mwanza
Unique: Rare Chromosome Disorder Support Group
Wanstead Playground Association
Water for Africa
West of England MS Therapy Centre
Whittington Babies
Who Cares Trust
Widowed and Young
Winston's Wish
Women for Refugee Women
Women on Waves
Yorkshire Cancer Research
Young Minds
Zoe's Place

Happy voting everyone - we really don't mind how many times you vote

MNHQ xx

Queenmarigold · 22/05/2015 14:32

Children with Cancer.

Yes, children get cancer. Existing treatments are old - very old. Treatment for children is around 20 years behind treatment for adults. For ethical reasons, drug companies won't test on children so our precious children suffer more pain and more life changing disabilities as a result.

Life changing disabilities? - Yes. Paralysis, kidney. liver, heart damage, deafness, blindness, balance, poor coordination and learning difficulties. All in the name of a cure - and children get ALL of those, not just some.

Cancer in children has many, many different forms. And overall, children's cancer receives less than 3% of cancer funding - spread across all the different forms - just no where near enough to make any kind of difference to those poor kids.

Children, and in particular dead children, have no voice. So they cannot set up and take part in Race for Life or Movember, for example.

Charities such as Children with Cancer are working to give them a voice and co ordinate and shape research for new treatments and cures to mitigate the effects of the treatment and disease. They deserve all of Bill Gates money!