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How to argue the point on ASD with Appeal panel

63 replies

Kalimero · 31/03/2026 13:14

We filled the Appeal for our school of interest, but in the meantime we sent Social medical form to the Council.
Today we got the answer which is quite shocking.
They say that autism is NOT considered as exceptional need.

Exact quote from the refusal letter:
'The Panel were also in agreement that the prevalence of autism is also on the rise nationally as well as in (Council name) and unfortunately it is not considered as exceptional need, as it is fairly common condition affecting 1% of children and adolescents.'

I am shocked by this blanket statement. Is it even appropriate statement to make?
How do we argue back this kind of statement if we face it from the Appeal panel?

OP posts:
ChasingMoreSleep · 31/03/2026 15:14

Children with ASD who are completely dependent on others for care because of their ASD need an EHCP. If they don’t have an EHCP, their parents should request an EHCNA. Children with EHCPs are dealt with outside of the normal admission arrangements.

CandyEnclosingInvisible · 31/03/2026 15:07

Having a diagnosis of autism is completely insufficient for showing need for a specific school.

Child A with autism might be perfectly well able to cope in a mainstream school within the universal reasonable adjustments that any school is able to make for supporting neurodiverse pupils, and will thrive and get excellent grades. Child B might be totally unable to cope, unable to focus or function in the loud and rambunctious environment of a mainstream school and start avoiding school or self-harming or shutting down into total unresponsive mutism if forced into it. Having autism is not in itself a need or evidence of a need and there are no schools that have zero pupils with autism so you need evidence of specific needs that cannot be met within the universal provision that all schools are expected to offer but that your preferred school for some reason can. The usual mechanism for this is via an EHCP.

Kalimero · 31/03/2026 15:05

My shock and issue with their statement that 'ASD is not exceptional medical need ' is because it's generalising ASD. As others have also pointed out, ASD is a broad spectrum from highly functional children who need minimal support to children completely dependent on their carers.
Hence, to state ASD is not exceptional medical need is quite shocking and unfair in my view.

OP posts:
hahabahbag · 31/03/2026 14:58

An exceptional medical need could be something like the school is all on one level for a young person who used a wheelchair or crutches, that there are hearing loops in every classroom for a young person with hearing loss, there is a school nurse based on site if they need regular medical care, or in my dc’s case, they had an established nurture programme for dc who were capable of mainstream education but needed provision at break and lunchtime.

hahabahbag · 31/03/2026 14:52

I can see their point. The figure is currently put at 1 in 30 children though it’s over represented in areas where parents can afford private testing. I’m guessing from your post this isn’t a special needs school, just your preferred school, so no your child can’t leapfrog a child who lives in catchment.

Kalimero · 31/03/2026 14:39

@claryunfortunatelly the sentence used isn't exactly like the one you recommended, it's more wordage 'in my opinion ', 'this school is able to meet xyz', I wish I came to this forum before sending the Appeal.
@Owninterpreterthats very helpful, thank you. Does it carry weight if I as a parent point out all those school specialist interventions and offers- I listed them all in my statement. All HCP statements are focused on medical diagnosis and needs, only Senco pointed out that specific school is the right one to meet my child needs.

OP posts:
Owninterpreter · 31/03/2026 14:15

I have sat in appeals panels as a clerk.
The evidence really has to be around why only this school can meet difficulties with evidence (not just evidence of the difficulty)

the assumption is all mainstream schools can support a wide variety of pretty significant needs including autism so having autism isnt seen as exceptional automatically. It has to be something specific to your chikds presentation of autism that makes it exceptional that this school is only one that can do that.

clary · 31/03/2026 14:06

Yes agree with PPs, how is it framed in the letter from the HCP?

If it’s “in my opinion as a medical professional with in-depth experience of supporting YP with ASC, this is the only school that can properly support [your DC] because it offers xyz” then that’s a really strong line for your appeal.

Kalimero · 31/03/2026 13:57

@claryThank you, that's very helpful

OP posts:
ChasingMoreSleep · 31/03/2026 13:55

Kalimero · 31/03/2026 13:53

I don't consider myself a professional on ASD or any other medical condition so of course I am aware that my view doesn't carry expert weight.
MDT report, DLA, Senco, allergy panel, gastroenterology report, SLT report to name few.
And yes, the school has been clearly named by professional as the recommended school

You need to look at the exact wording. For example, “Mum says school X…” or “school X would be a good fit for DC…” isn’t strong evidence. Whereas, “School X is the only school that can meet DC’s needs because…” is stronger.

ChasingMoreSleep · 31/03/2026 13:53

The bar for being under the exceptional medical and social needs oversubscription category is higher than the bar for an ordinary school admission appeal that is decided on the balance of prejudice.

So just because you don’t meet the bar for the former, doesn’t mean an appeal won’t be successful. You need to think about why DS would be disadvantaged by not going to the school. Just saying DS has autism won’t be enough. You can also look at other reasons beyond ASD e.g. extra-curricular clubs, language provision, the music offer, etc.

The vast majority with ASD won’t meet the bar for the exceptional medical and social needs category. Neither will most with diabetes. There isn’t a definitive list of what does and doesn’t qualify though. It depends on the individual circumstances. And, yes, you do need strong evidence. Not just circumstantial evidence or a feeling.

Kalimero · 31/03/2026 13:53

LIZS · 31/03/2026 13:45

What professional evidence? It needs to state that in the opinion of the writer only x school, or a school with y provision only available at x, can meet their needs. Saying dc has asd and in his parents’ opinion needs a place at x school is not enough.

I don't consider myself a professional on ASD or any other medical condition so of course I am aware that my view doesn't carry expert weight.
MDT report, DLA, Senco, allergy panel, gastroenterology report, SLT report to name few.
And yes, the school has been clearly named by professional as the recommended school

OP posts:
clary · 31/03/2026 13:50

Yes agree with @SheilaFentiman @Robotindisguise no one is saying “no insulin for you” or the ASC equivalent (I guess, “no support or consideration for your ASC”).

What they are saying (literally) is that ASC is relatively common and as it has a spectrum, it may be that you DC’s needs can be addressed by any school.

If indeed mainstream school is inaccessible and they need a special school bc they are non-verbal or have other complex issues then that is one thing; if someone thinks they can simply say “but they have ASC therefore need the school I preferred” then that’s something else. You will need to show why that school is the one.

Plenty of DC with ASC are catered for and supported in mainstream, perhaps with adjustments such as earlier lunchtime or a quiet space for breaktimes, or a separate room for exams. You @Kalimero need in your appeal to specify the level of need and why the appealed-for school is the only one that can cater to it. PPs use the example of a wheelchair user needing a school with lifts and accessible doorways. Some schools have specialist units where support is offered (for example my DCs’ school had a unit that catered for YP who had hearing issues). If that’s the case then that may be a strong element.

LIZS · 31/03/2026 13:45

What professional evidence? It needs to state that in the opinion of the writer only x school, or a school with y provision only available at x, can meet their needs. Saying dc has asd and in his parents’ opinion needs a place at x school is not enough.

pinkdelight · 31/03/2026 13:45

Robotindisguise · 31/03/2026 13:38

Except the insulin isn’t available at the mainstream surgeries (to torture the metaphor). You are just told that it is and when you repeatedly have a hypo it is treated as a disciplinary matter

But what is 'the insulin' in this tortured metaphor? Because that's why everyone is saying to be specific. If this school is the only with whatever this magic insulin equivalent for this particular ASD student is, then OP needs to specify that. But the current system is that ASD kids aren't having hypos in the offered school so this DC will be okay there.

LIZS · 31/03/2026 13:41

In itself asd will not be sufficient to qualify, all schools have SEND provision. If some of its presentations created a specific need which would be catered for by a specific school that might be more relevant and useful at an appeal. However being without an EHCP suggests it is mild.

Kalimero · 31/03/2026 13:39

Robotindisguise · 31/03/2026 13:32

Imagine if they said that about diabetes? It’s becoming more common so no insulin for you.

You may end up having to go to a tribunal on this, but I would reply robustly setting out the reasons why mainstream school is inaccessible and saying there is no basis in law for refusing protected reasonable adjustments allowing a child to access education because her condition is less rarely diagnosed than it used to be. One per cent is still rare (in fact sounds a bit on the low side to me)

Thank you all for your views.
I think I'll leave this to go to the Appeal and get ready for all kinds of questions and answers.
The council person who called me was not very interested in what I had to say, every reason I gave to their question was dismissed even before I finished the sentence...
Literally everything I said they called 'circumstantional evidence ' and 'subjective feeling '.
Even though they received professional evidence to my claims..

OP posts:
Anothersymptom · 31/03/2026 13:39

Autism affects everyone differently. Both of my DC have autism, one manages fine in mainstream without an EHCP (and struggles after leaving), the other hangs on by a thread with lots of support in place.

Tryagain26 · 31/03/2026 13:38

Octavia64 · 31/03/2026 13:27

You need to focus on how the condition affects your child and the needs that they have.

autism as a diagnosis covers a very broad spectrum.

be specific.

In some cases it will be an exceptional need. You should set out what exactly your child needs and why that particular school is able to meet his needs while the other one can't.
Just saying he has autism doesn't explain what specific need he has that can only be met at the chosen school because there will be many children with autism at every school.

Owlbookend · 31/03/2026 13:38

I think for people to help it might be useful to provide some more information.
*What additional support does your child need? How is that need evidenced? What support do they receive in their current setting?
*Why do you believe the allocated school can't meet their needs? What does your preferred school offer that makes it better placed to meet your child's needs?
*Did you apply and hope to be placed in a specific ESM category of applications for your preferred school? Is this what the rejected form relates to? If not how does it fit within the admissions system?

Robotindisguise · 31/03/2026 13:38

SheilaFentiman · 31/03/2026 13:33

Imagine if they said that about diabetes? It’s becoming more common so no insulin for you.

They aren’t saying “no insulin for you”

They are saying “access to insulin is available in various places, you do not need to specifically go to surgery X for it”

Except the insulin isn’t available at the mainstream surgeries (to torture the metaphor). You are just told that it is and when you repeatedly have a hypo it is treated as a disciplinary matter

ladyamy · 31/03/2026 13:38

Robotindisguise · 31/03/2026 13:32

Imagine if they said that about diabetes? It’s becoming more common so no insulin for you.

You may end up having to go to a tribunal on this, but I would reply robustly setting out the reasons why mainstream school is inaccessible and saying there is no basis in law for refusing protected reasonable adjustments allowing a child to access education because her condition is less rarely diagnosed than it used to be. One per cent is still rare (in fact sounds a bit on the low side to me)

That is completely different and a very crass comparison to make. Shame on you.

ladyamy · 31/03/2026 13:36

Kalimero · 31/03/2026 13:14

We filled the Appeal for our school of interest, but in the meantime we sent Social medical form to the Council.
Today we got the answer which is quite shocking.
They say that autism is NOT considered as exceptional need.

Exact quote from the refusal letter:
'The Panel were also in agreement that the prevalence of autism is also on the rise nationally as well as in (Council name) and unfortunately it is not considered as exceptional need, as it is fairly common condition affecting 1% of children and adolescents.'

I am shocked by this blanket statement. Is it even appropriate statement to make?
How do we argue back this kind of statement if we face it from the Appeal panel?

I'm surprised it isn't a larger percentage.

pinkdelight · 31/03/2026 13:34

Kalimero · 31/03/2026 13:26

In that case, what condition is considered as exceptional medical need?
Why are they not listing them prior to filling out the ESM application so parents don't waste energy filling it out. If autism is not exceptional medical need shouldn't they point it out. Sounds like waste of time and councils resources sending applications for conditions they don't accept.

Surely you can understand why it's not possible to make such a list covering every medical condition that a child could have and at what degree it becomes exceptional. It's not hard to imagine that an exceptional medical need might be someone in a wheelchair needing a school that's fully accessible as opposed to an old school with no adaptations. Or a hundred other specific examples. But they can't generalise upfront saying don't bother us about your DCs asthma or ND because we're not interested. You fill the form in or you don't, and they take your case forward or they don't, it's not that much energy wasted.

SheilaFentiman · 31/03/2026 13:33

Imagine if they said that about diabetes? It’s becoming more common so no insulin for you.

They aren’t saying “no insulin for you”

They are saying “access to insulin is available in various places, you do not need to specifically go to surgery X for it”

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