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11 year old DS, severe separation anxiety and secondary school struggles - suggestions for alternative London schools?

236 replies

usernamebore · 20/09/2022 11:57

Hi

DS is 11 and just started secondary at a relatively kind and supportive London co-ed private. Unfortunately he has developed acute separation anxiety and every day for the last two weeks has been brutal. He has had multiple panic attacks in the morning, including in school. This morning he was screaming in fear, sobbing, begging me not to leave, begging me to get him help as he was so scared, hyperventilating etc. When I tried to leave he was so terrified he pushed past the teacher and was basically fighting to get to me and grabbing on to my work bag with white knuckles. He seems terrified of being alone in the school without us. It seems he had a propensity for this, but Covid and the recent death of his grandfather (they were very close) has pushed him over the edge. Pre-Covid he loved having playdates with friends from primary school, but when the restrictions lifted he just refused to have them. I wonder if being told to stay at home with us to keep safe from Covid just exacerbated this sense that he needs to be with us.

I have managed to get him in school every day for the last two weeks, and he has taken part in almost all of the lessons, but it is brutal for him and for us. The school are being helpful, and he has an appointment with the counsellor. We are also looking to try and get him seen by someone privately to help. I worry about the fact that all his peers have obviously seen some of this, and dont want him to start getting bullied or ostracized for being the weird crying kid. It is also hard not to think it is annoying for his teachers....

But part of me wonders if a big, competitive school like this is just not going to work for him. If it gets to that stage, does anyone have any suggestions for smaller london schools with really good SEN provision, or that might otherwise be better able to support him and us with this? Anyone had any experience with separation anxiety issues like this and have any advice, or know of a school which might be better for him? Dealing with getting him in every morning, and then going off and doing a full days work is just killing me and I worry a lot about his long term mental health.

OP posts:
lifeturnsonadime · 11/01/2023 15:27

Difficulties around transition are most DEFINITELY an autism thing OP.

tpmumtobe · 11/01/2023 15:16

Hello - good to get the update have been thinking of you guys. We experience a similar set back at the start of each term, albeit a smaller one each time. Its always a hump to get over after a break, especially one as long as Christmas.
We're 3 years in now and each time it gets more manageable and he bounces back into routine more quickly. Last week we had tears and refusal to go to lessons on the first morning but he was back into the swing of it by the afternoon and full of beans by day two. It's unrealistic to think it will ever go away, but just to reassure you just because he's had a blip doesn't mean all your hard work is wasted. I know first hand how easy it is to catastrophise when these blips happen. Give him a week or so and I'm sure he'll settle. It sounds like you have a great support team around him.

p.s. For what it's worth my son is a carbon copy of yours with a similar family history and while we were briefly considered for inattentive ADHD due to other symptoms the CAMHS psychs were always very clear as part of those assessments that he was in no way shape or form, autistic.

usernamebore · 11/01/2023 14:57

@jamoncrumpets I appreciate your views, and I can see on here from your other posts that you have strong views re autism, but as I have previously explained we are working closely with a child psychologist (who is extremely experienced and highly qualified and who has experience with autistic kids) as well as the school counsellor and a further psychologist who is assisting my wife and I. All these individuals are collaborating together and with the school. None of them think autism and, indeed, when i mentioned it, they said very clearly they see no signs of that at all. He has anxiety (as I do, and as his grandmothers on both sides do - all diagnosed and all (save for me any more) on medication for the anxiety). He struggles with intrusive thoughts and worries and doubts his own ability to cope. He is also clearly highly sensitive and has always been (again, as I am). He is just having a tough time separating from us again after having 3 weeks together on holiday, and a hard time adjusting back to the school environment.

OP posts:
Aleaiactaest · 11/01/2023 14:43

I think it will get better…. Early to mid January tends to be the most depressing time of year, even for adults. Monday 16 January is meant to be Blue Monday.

It is dark in the mornings and dark in the evenings when the DC go to school and come home. It is wet and cold. All these things have an impact. Don’t lose heart and carry on.

jamoncrumpets · 11/01/2023 14:36

Maybe time to get that autism diagnosis now, OP

usernamebore · 11/01/2023 14:23

Just thought I would report in for those following our progress, unfortunately the return to school after 3 weeks of holiday has not been easy and he is struggling with a lot of anxiety. It is only the second day back, but I have had to take him in to the nurses office both mornings, and we have had tears and he has needed to miss some parts of lessons to go and be with the nurse. Not as bad as it was, but still heartbreaking to have this setback. It is just so hard not to feel disheartened and discouraged and to worry that he will never be ok. Hopefully he can find his feet again relatively quickly, but it really feels like a punch in the gut for all of us. We just have to try and remember how well things were going last term and know we can get back there.

OP posts:
Zib · 30/11/2022 18:44

I am cheering for every step your boy is making @usernamebore

What excellent news that he's going into school by himself, and congratulations to you for your patient, gentle and consistent approach.

Onwards and upwards!

usernamebore · 30/11/2022 18:16

@Hamsterdamn @weRone Thank you both. I think my view is that "Neurodiverse" is a very wide category, if it actually means anything (wouldn't the correct term be something more like "neurodivergent"?) as is "spectrum". I certainly have elements of what could be classed as mild autism in my personality, but you could also say I was an highly sensitive introvert with some social anxiety, GAD etc etc. Self evidently DS is not "neurotypical" (or whatever the phrase for that is), or he would not be so far from him peers, but then aren't all the more interesting people? 😉

My feeling is each kid is so completely unique, and their challenges similarly so, that you just have to take it each day at a time and try and do what seems best for them. We can see the change, and the increasing confidence (and we were really pleased to hear at parents eve this week from all his teachers that he is doing fantastically in lessons), even though he still needs a lot of help (which is why he sees a child psychologist every week and we work with him on this stuff every day), so we have confidence in where we are going. If something changes that makes us feel differently, we will deal with that then. It all takes time and patience and is bloody exhausting, but I really feel hopeful for the first time in 3 months.

OP posts:
Hamsterdamn · 30/11/2022 17:55

I think your family is doing incredibly well.

Your journey sounds similar to ours, all be it that yours had been rather faster. We went from thinking DC wouldn’t lead a normal life, couldn’t go to school, to wrangling with the pointless CAMHS. What seems to have worked has been the specific therapeutic help. It sounds similar to what your son has. Our school has been less helpful but not hopeless.

I am concerned that your sons behaviour is seen as so typically neurodiverse. DD therapist asked if she was autistic and I was surprised, she doesn’t have any of the characteristics I would associate with this. But maybe I’m thinking if the wrong traits.

weRone · 30/11/2022 12:35

Well done, OP! So happy for you. I'm glad you're making so much progress. And I wanted to suggest checking your own anxieties so that you're calm and confident - as your son will feel that.

And @jamoncrumpets I absolutely disagree and am curious about your background story, why are you so adamant?

What I see in this thread is this: a parent helping getting their son get used to living in the real world, with real humans and helping him navigate that. Teaching him coping skills and enjoy life.... instead of having him live in a bubble.

usernamebore · 29/11/2022 12:15

And of course he is neurodiverse, as am I. That does not mean he can’t develop ways and strategies to manage everything life throws at him. We are supporting him every step of the way

OP posts:
usernamebore · 29/11/2022 12:13

@jamoncrumpets thanks but obviously I don’t agree, nor do you know the reality of my child or what is happening with us.

We are working with the school, the school counsellor and an independent child psychologist, all of whom agree with the approach we are taking. And it is working - his confidence is growing, he is starting to make friends, and we are a long way from the panic attacks etc. He did brilliantly this morning and walked into school on his own, without any of the panic or tears I was expecting. It was a challenge for him (and he was a little teary from all the emotion when he called me from the nurses office) but he is doing amazingly.

Rather than thin ice, we are seeing deepening roots and growing self-confidence.

OP posts:
jamoncrumpets · 29/11/2022 11:15

usernamebore · 28/11/2022 11:35

@tpmumtobe @Hamsterdamn - thanks both. I am struggling myself with real anxiety about tomorrow morning, and he is definitely worried. The hard thing is it is a big symbolic change - walking in alone rather than me walking him in. Plus he has to walk away from me, rather than me leaving him with the nurse. I am expecting a tough time, but I know he can do it and once he gets into that routine it will be fine.

If you persist with trying to make your square peg child fit into a round hole, of course it's going to be hard. Every day he's having to contort his entire way of being to try and fit in.

You could explore more square peg options, but you haven't.

This will blow up in your face, OP. Every day he goes there you all skate on thin ice.

jamoncrumpets · 29/11/2022 11:08

RavenclawsPrincess · 28/11/2022 23:40

I’ve been following this one as I’m a therapist, and autistic. There seem to be many signs of that your DS could be autistic, and I just want to say, I’m a therapist who works with other autistic therapists, so the thing about empathy is a big ol’ myth.

I’m pleased for you that things seem to be settling down and your DS seems happier. IME the pandemic was particularly tough on neurodivergent youngsters, it has in general taken many longer to get back into the kinds of things they were doing pre pandemic. It sounds like it’s been very tough on you all.

Pretty clear that there's neurodiversity in there isn't there?

RavenclawsPrincess · 28/11/2022 23:40

I’ve been following this one as I’m a therapist, and autistic. There seem to be many signs of that your DS could be autistic, and I just want to say, I’m a therapist who works with other autistic therapists, so the thing about empathy is a big ol’ myth.

I’m pleased for you that things seem to be settling down and your DS seems happier. IME the pandemic was particularly tough on neurodivergent youngsters, it has in general taken many longer to get back into the kinds of things they were doing pre pandemic. It sounds like it’s been very tough on you all.

Handoverthechocollate · 28/11/2022 23:10

Sounds like you are dong a great job, OP. Tiny steps!

usernamebore · 28/11/2022 11:35

@tpmumtobe @Hamsterdamn - thanks both. I am struggling myself with real anxiety about tomorrow morning, and he is definitely worried. The hard thing is it is a big symbolic change - walking in alone rather than me walking him in. Plus he has to walk away from me, rather than me leaving him with the nurse. I am expecting a tough time, but I know he can do it and once he gets into that routine it will be fine.

OP posts:
Hamsterdamn · 28/11/2022 09:17

Wonderful. He’s done so well, I hope he’s proud of himself.

tpmumtobe · 27/11/2022 21:08

Brilliant news, I'm thrilled for you both. Good to get that next change to the routine in place before the Christmas break too, build a bit of confidence in it going into the holidays so hopefully the return in Jan is less fraught.

usernamebore · 27/11/2022 20:39

Just thought I would post an update - the call dropping went really well. He was anxious that morning but actually when he called at lunch he was in good spirits. We have successfully kept the call dropped, and dropped almost all the notes from us too. Tears in the morning are now a rarity, though there is obviously still anxiety there. He has been talking more to other kids, and even went to one lunchtime club session! Often when I speak to him at lunchtime he is laughing and joking, which is such a long way from the crying and fears we had 6 weeks ago.

The next big step is Tuesday when I will drop him at the gate for the first time and he walks to the nurses office on his own, where he can then call me. Both he and I are very anxious about it but I am sure he can do it. Then that will be the last change before next term so we have time to embed everything.

We had an excellent group meeting with the school pastoral team and his child psychologist last week which was really helpful. We all felt he was capable of taking this next step and it was important not to stagnate.

Still a long way to go (and he definitely had a case of the Sunday scaries tonight) but making great strides forward.

OP posts:
Hamsterdamn · 14/11/2022 21:04

Slowly, slowly. You’re all doing so well. Of course he will have worries but hopefully he’s spilled them out and can sleep well.

usernamebore · 14/11/2022 20:34

@Hamsterdamn thanks - it is hard to keep hold of those positives when there is so much to worry about, but he really is coming along. Still very far to go - and we had lots of worries from him before bed tonight - but we are still slowly moving forward

OP posts:
Hamsterdamn · 14/11/2022 20:22

Ah user, that’s brill. He’s come so far so quickly.

usernamebore · 14/11/2022 19:32

He played tag with “friends” at lunchtime today!! That has made my evening!

OP posts:
sleepwhenidie · 14/11/2022 12:04

MadamNoo · 20/09/2022 13:11

Portland Place offer a hybrid model with 2 days in school and 3 online, if that could be an option. They are very accommodating of SEN.

I was going to suggest looking at PP too

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