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DD not able to stay in all her classes due to health issues - what should the school be providing re teaching time?

65 replies

SirChenjin · 19/02/2015 12:26

Quick background - DD (15) has severe anxiety-related IBS. Currently under a Paed Consultant and waiting for an appointment for guided self help and CBT with CAMHS (4-8 months waiting list). Has also had 10 sessions with a private counsellor.

The main problem is that she finds 'quiet' classes very stressful as her stomach and bowels make terrible noises, and the anxiety this produces is so severe and sudden that she experiences terrible pain and has to run to the toilet before she soils herself. As a result, she now sits out of these classes and works in the library by herself. Although she gets work from those teachers, she is missing out on teaching time - and as a result her grades are suffering. She has very important exams coming up this year and the next 2.

Is there anything that the school or LA should be doing to ensure that she is getting this teaching time? We're in Scotland, if that makes a difference.

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EvilTwins · 19/02/2015 17:21

For under 18s, written consent would be needed from all parents of children in recorded lessons if that footage was going to be used out of school. That might be difficult to obtain.

EvilTwins · 19/02/2015 17:20

There's a range of reasons I wouldn't want to be routinely recorded. Safeguarding takes videoing out of the question, if the video is going out of school, which, in this case, it would be. I would not be comfortable with a video of me going into the public domaine, in any way. Teenagers are not necessarily going to treat it with respect and it could be used in any number of ways to the detriment of me or one of the students.

Also, if the OP's DD is worried about questions raised if she leaves the room, will she not also be concerned about questions raised about why she needs recordings of lessons? Resources should be provided, an appropriate place for her to work, and access to teaching staff at other times if she has questions - it sounds like all of that is already there.

PolterGoose · 19/02/2015 17:16

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PolterGoose · 19/02/2015 17:14

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EvilTwins · 19/02/2015 16:51

I think that any kind of recording could potentially throw up safeguarding issues, as well as the concerns noble mentions. TBH, I think the school will argue that it is pretty much providing as much support as it can. I'm not sure what else you can expect. I get that it's frustrating but if I were you I'd be badgering my GP, rather than the school.

morethanpotatoprints · 19/02/2015 16:50

My friends son has just had his support finalised, but we are in England.
He has a tutor from the LA who comes to his home for 0ne/two hours per week.
He is in y9 and attends a few lessons per week at school.
My friend was told if he completely left school he would be offered 5 hours a week for a tutor. His disability is OCD and anxiety.
If your child is seeing the gp, the LA will want to know the treatment and meds and ask for a report from gp and hospital specialist..

My friend started the process at the start of y7.
You need to fight, bang hands on table and constantly nag and the bureaucracy is unbelievable.

I hope it is much better where you are Sir

Siolence · 19/02/2015 16:48

Any tablet or smart phone could do skype. Audio quality could be variable unless the teacher was miked up though. Probably not all that effective without video of the teacher and the board though which would need to be arranged with each member of staff. Tricky. I do hope you get a solution.

SirChenjin · 19/02/2015 16:40

What about just an audio recording of the lessons giraffe - would that work, do you think?

Shadow - thank you so much. I will show her this later and may PM you, if you're sure you're OK with that?

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Callooh · 19/02/2015 16:40

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ShadowsShadowsEverywhere · 19/02/2015 16:38

SirC please do show her my posts. I very rarely ever come across anyone with the condition and it does make you feel like you're alone with it. I know you don't know me from Adam but I'm very happy to PM if you want any more info or if she wants to talk to someone that's been there please don't hesitate to message. My school years were heavily affected by the throwing up aspect I had at the time, and any big occasion since be it an exciting trip to the zoo with the kids or an interview sets me off. It really impacts life and even more so when it's new and scary; you spend your whole day tense and worrying about every tummy twinge! She will get used to managing it though, and it does get easier to cope with.

noblegiraffe · 19/02/2015 16:31

I think teachers would be very reluctant for lessons to be videoed. I certainly would be, even by Skype where the video wouldn't be recorded.

Apart from the obvious worries about the videos being misused to e.g. complain about the teaching, the amount of time required to set up a Skype session / video camera at the start and end of the lesson would eat into teaching time, especially as these things never run smoothly. Also, what would the teacher be skyping from? I don't have a webcam and my computer is needed to teach the lesson.

SirChenjin · 19/02/2015 16:31

Thanks again everyone for all your fantastic ideas and support Smile

Shadow - is it OK if I show DD your posts? I think she feels quite alone a lot of the time, as so many cases of IBS seem to be food as opposed to anxiety related. I think she would benefit from hearing that she is not alone. I do need to work on encouraging her to do some relaxation - she's decided that the easiest way of dealing with it is simply to avoid situations, but that can't continue long term.

I phoned the school but no-one was available in Pupil Support - I'll get them tomorrow and will definitely look into recording the lessons, which would be a really good solution.

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skrumle · 19/02/2015 16:05

i think in terms of support the likelihood of getting teaching time is fairly limited - if you push they may provide staff support but that won't necessarily be from an approppriate subject teacher so might not be much help.

there shouldn't be any issue with skype-type technology - a very small number of schools already deliver lessons remotely in scotland (to do with curriculum availability, etc but same principle).

Corsu · 19/02/2015 16:01

Could you arrange to video/ voice record the teacher's lesson as it goes on so that she could get the same visual teaching as the rest of the class?

That could actually be a good idea for everyone in the class when it comes to revision time, and wouldn't necessarily be a child protection issue depending on where the videos are stored (eg on the school's own private network, only for access at school etc)

Thinking about your Dd. I haven't experienced IBS, but did have close contact with someone with IBS at school and recognise the embarrassment side as being thoroughly undignified. I wish your Dd all the best.

ShadowsShadowsEverywhere · 19/02/2015 15:50

A few other things - and I know this is going to sound like the most daft unhelpful thing ever BUT when she starts to feel the cramping set in or whatever usually indicates an episode is coming on, she must try not to panic. Look into some deep breathing exercises, meditative techniques, detachment techniques because daft as it sounds I've really found they help. If I'm in an interview for eg and I get that familiar cramping I've found deep breathing and detaching myself buys me enough time to get through the situation so I can run to the loo after the interview is over. Granted it's not pleasant, and you do feel rough but it's helped me get through a lot of situations that years ago I couldn't have done because like your Dd currently, I'd have been unable to fend the attack off and would have soiled myself.

Obviously it isn't a cure and doesn't stop the attacks but it may help her manage them slightly in the months before her CBT and cahms referral.

Callooh · 19/02/2015 15:38

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ShadowsShadowsEverywhere · 19/02/2015 15:26

I'm glad it helped. You mentioned Dd is under a consultant? That's great because when I was younger IBS wasn't really something that was diagnosed so as a child I didn't actually have a diagnosis or medication for it! My medical notes say "morning sickness" at the age of ten due to the throwing up every morning and whenever stressed and this then mutated to IBS by my teens. At that time I used to take over the counter standard immodium type drugs whenever I had a flare up. As an adult with a diagnosis my GP took the approach of treating the anxiety as he believed the IBS episodes were a symptom of the anxiety rather than a separate condition. However I then had two pregnancies and didn't like being on anxiety meds while pregnant as there was conflicting advice about whether it was safe or not so I came off them. Tbh they didn't do a great deal to reduce the episodes anyway, I'd just be less aware of them coming on.

These days I just sort of cope. Have immodium for really bad episodes and have prescription anti emetics in the cupboard for emergencies. I was hospitalised twice in the last few years with severe abdo pain and they think that was connected as they occurred at times of trauma/distress and nothing could be found on scans or X-rays. If it happens again I will be referred. I've got used to knowing when I'm likely to have a flare up, what my worst triggers are and rather than pumping my body full of drugs I try and manage the triggers. Lying down in a dark room doing some deep breathing and focussing on finding "calm" often staves of an episode. I'm sorry that I can't be more helpful or suggest a miracle cure. It's really very unpleasant and IME not treated in quite the same way as non anxiety/stress IBS. Doctors have always been quite dismissive and reluctant to prescribe.

SirChenjin · 19/02/2015 14:56

Thanks for all the suggestions Smile

I don't think a 6th Year would work sadly - they have exams coming up themselves and have already allocated their volunteering time through the Saltire Award, plus the idea of being somewhere quiet and sitting next to someone with the bowel noises going on puts her off the idea of a tutor. She does look at other schools websites, and finds them helpful.

I will definitely look at Skype/recording the lesson. Does anyone know if there are any issues around confidentiality etc I need to be aware of?

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TrollsTrollsEverywhere · 19/02/2015 14:37

I'd second using Skype too and if not Skype then a sound recording of the lesson would be useful . It would be so easy to do.

Fortysix · 19/02/2015 14:33

Following on form OddBoots are there any supported study sessions after school that could provide a short catch up opportunity for her most critical subjects?

If you can't afford a tutor could you get a sixth former to help as part of their Duke of Edinburgh volunteering element? Obviously a sixth former doesn't have the skills of a qualified Maths or English teacher but if your DD is a linguist you might find a native language speaker among the pupils for example...

My eldest worked out that other schools' websites also publish info on the syllabus and notes which can be helpful. For example say they are studying specific poets sometimes another school's English Dept has a slightly different approach or does them in a different order that sort of thing... Could be worth a look.

SirChenjin · 19/02/2015 14:30

Shadow - thank you so much for that post, it was so helpful. It sounds like you had a really rough time of it. If you don't mind me asking, what treatment you got for your stress related IBS? I'm going to phone Pupil Support now and make an appointment to see what more can be done. Using IT more is something that we will definitely look at. The school have been great to date but I feel that we now need to push for more support, especially as the next 2 years are so important.

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SirChenjin · 19/02/2015 14:24

She now avoids these quiet lessons altogether - which is hugely frustrating, and something that we (and the CAMHS team) agree needs to be addressed.

Although she gets the lessons, she doesn't get the teaching time so struggles to make sense of some of them - maths in particular. BBC Bitesize and Youtube is helpful to a point - but it's hard for her when she doesn't understand the concept, iykwim?

Sorry - I'm sounding really negative, I don't mean to Sad. This has been going on for many months now, and she's in real danger of not passing her Nat 5s and getting onto the Higher class in key subjects - not because she's mucking about but because she physically and mentally can't stay in every class. She's a bright, hard working, polite, lovely young woman and it's heartbreaking to watch - if it was a physical thing she'd have been treated by now but the time between our initial visit to the GP and being seen by a psychologist will be more than a year.

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ShadowsShadowsEverywhere · 19/02/2015 14:20

I have stress triggered IBS although mine is not as severe as your DD and I utterly sympathise. Back when I was at school the IBS element of my anxiety hadn't really emerged yet although I did used to be sick every morning so I have no direct experience of what your poor DD is going through. I do think the school need to be making more of an effort to help her cope though. This is debilitating, and must be making school such a negative experience for her. Is there a pastoral support person you could talk to? Come at it from an emotional health angle? The obvious issue is that the more of an issue this becomes the more it will feed into the anxiety and the IBS episodes will get worse. That cycle needs to be broken. I'm struggling to think of how it can be achieved though. I think an audio link from the class to her in a different location is the answer. So a skype link without video and only one way so the class doesn't necessarily know it's on. If she's allowed headphones in the library then she could sit in there, laptop connected to the skype feed and headphones in so as not to disturb others.

When I was doing A-Levels (not that long ago, I'm 24 now) I had difficulty attending school for different reasons, and my head of year gave me a school laptop to use. The idea being that teachers could then email me copies of the PowerPoint presentations they used and I could access them anywhere on the school property which was vital as often It rooms were full an almost all my work and communication with staff was via email. So if back then they could provide tech for someone struggling but not classified as disabled I don't see how they can't be accommodating now. I'd push it OP. Make an appointment to see head of year and a pastoral person and push that she wants to learn, she wants to participate, she can't and she needs support to enable her to access education in a way which won't have a negatived impact on her emotional and mental health.

OddBoots · 19/02/2015 14:05

It sounds like a frustrating situation. How does she know if it is going to be a lesson she can attend or not, does she go along anyway but excuse herself if she can't stay?

If the school is letting her use the toilet as she needs to and giving her the choice between being in class or being set lessons for private study they could probably argue that they are fulfilling the requirement to make reasonable adjustments.

Depending on what subjects it is there are lots of useful videos on YouTube and places like Khan Academy, you could spend some time with her in the evenings working out which bits she isn't understanding and find things together.

SirChenjin · 19/02/2015 14:01

She already has that card, and has the key to the teachers toilets which means that she can just run as needed to the nearest loo (the school have been very helpful and supportive) - but the pupils in her classes tend to ask her where she was or what the matter is, and she finds it hugely embarrassing.

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