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Politics

Supporting disbaled people unsustainable?

190 replies

SantasMooningArse · 07/12/2010 13:31

here

I hate this sort of uncertainty. I have trained part and full time for seven years now alongside two disabled kids to get to the point where I was hoping to train in social work in 2013- but if DLA vaniushes it will be unaffordable. I feel we have lived up to every Tory ideal, battling redundancy, my DH's illness and the boy's SN with constant battles to get back on line, and now I think I might just give up after all- can;t train until thenas no childcare means DH must be working from home to care and he dosn;t qualify until then, and we will need to move and cannot do so with the SNU realistically until 2013 (a SW trained where we are in Wales cannot practice in England but we need to get back to family badly for support and help, both for them as they age and us as we try and fit in work).

Working in tesco woudln't ever cover the huge costs of disability childcare.

I acknowledge that this is a left wing article, there's a thread on this in SN with a less reactionary letter from teh NAS C&P's to it, but is this how big society was meant to work? Sorry disabled people, there's no money- saldy when it comes to ds3 there's no cure either- can I never afford to die then? Will there be any care left for him?

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sarah293 · 08/12/2010 08:22

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newwave · 07/12/2010 23:36

Never mind, we have money for Trident, we can let Vodaphone off 6 million in tax and Phillip Green is a lot better off with his tax avoidance so it's not all bad Angry

SantasMooningArse · 07/12/2010 23:24

I asked once about employment for the assessors role and was told I was probably over qualified.

Know what I am talking about more like.

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SirBoobAlot · 07/12/2010 21:52

Frankly, I'm fucked.

Am very very frightened.

You can tell the people making these decisions do not cope with any of the conditions that classify as disabilities. Maybe they should try it on for size for a little while, and then decide if "we" don't need the financial support.

besidethesea · 07/12/2010 21:44

Where did you get your information regarding epilepsy and DLA, Loudlass? I have epilepsy and on average I have less than one seizure a week and I have been getting DLA for the past seven years. The criteria for DLA is based on care needs throughout the day and night, which can still be high regardless of the number of number of seizures. I had a volunteer from my local support organisation to help me fill out the forms. I was awarded lower rate initially but I managed to get that increased after appealing.

I've been told that applicants often get turned down and given misleading information about eligibility but many charities can give support through the appeals process as well. Did you appeal when you were turned down and do you have a local org who would be able to help you?

I also get ESA so I can't understand why you've passed the fitness to work test. I was initially placed in the work group but was eventually placed in the support group after some persistence. My volunteer told me that the majority of new applicants get turned down. The govt assume that a certain percentage of applicants won't understand the appeals process or just give up, so they save money by denying eligible claimants who don't appeal.

CardyMow · 07/12/2010 20:09

Riven - It worries me WRT children that have epilepsy TBH, as they may well qualify for DLA for their epilepsy when they are under 16yo, but then be told as soon as they hit 16 that they no longer have a disability. Does it vanish just because they are older??

ilovemydogandMrObama · 07/12/2010 19:23

Can't understand how the new assessment isn't discriminatory per the DDA. It's as if the assessment only gives points or whatever if the disability is clearly visible.

Unbelievable. Angry

sarah293 · 07/12/2010 19:13

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SantasMooningArse · 07/12/2010 18:11

It's shocking how badly publicised all this is isn't it? I never heard about the epilepsy thing until after I heard you post about it.

TBH could you imagine if this was to a NT benefit- well we know don't we; the CB thing recently.

I am expecting on the basis of no evidence except instinct for AS to be reclassified as they have pulled a lot of employment support altely adn they won;t want those people claiming ESA etc.

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CardyMow · 07/12/2010 18:08

This is already happening for adults with disabilities - Some disabilties were 'reclassified' in July for Adult DLA, epilepsy being one of them. Until my renewal was due at the end of July, I was in receipt of DLA on the basis that I have, on average, at least a seizure a week (averaging 52+ per year). Now to automatically qualify for DLA on the basis of Epilepsy as an adult, I need to be having 104+ seizures a year (or 2+ per week). Because I do not meet the new criteria, I have lost my DLA.

The difference between having one seizure a week and two seizures a week does NOT make me any more employable, I could still have to take at least one day off sick each week, or go home mid-shift if I had a seizure at work, so still nobody wants to employ me, I'm hardly a model employee under those circumstances, but now I get no financial hel to make up for the fact that no-one wants to take a risk on an unreliable employee, even if that unreliability is due to a disability.

I am now £350 a month WORSE off, we are now struggling financially, yet I am now stuck in a limbo where I am to disabled to get anyone to give me a job, yet not disabled enough to get disability benefits. I can see for myself firsthand how bad things are going to get for disabled people.

I can pick up a pencil, so I 'passed' the fitness for work test, and in fact, the tester told me that unless he witnessed me having a seizure, in all probability, he would have had to pass me as fit for work. And of course, everybody with epilepsy can seize on demand, in front of the untrained assessors!

SantasMooningArse · 07/12/2010 17:34

I've been helping DH with a study on the French Revolution today, I have a lot of revolutionary stuff coarsing through my mind.

And a good deal of the (non violent sections) quotes underlined as being as relevant today as when they are from.

It needs over turning but they passed a law IIRC against that, have to serve a full 5 year term (if they did not they are going to).

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newwave · 07/12/2010 17:31

FioFio, this government needs to be dragged out and hung from a lampost :o

FioFio · 07/12/2010 17:29

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newwave · 07/12/2010 17:27

The idea that "call me Dave" and Gideon have any morals or human feeling except those that fit with their sordid politics is frankly laughable.

SantasMooningArse · 07/12/2010 17:26

Shit isn;t it?

And it doesn;t mean all are out to get you; we experience as much kindness as the opposite of course.

But I am unwilling (to DH's frustration) to give in and hand over my own sense of self worth which is largely built on my morals, I do however think I might do my boys a disservice if I raise them the same.

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smallwhitecat · 07/12/2010 17:09

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SantasMooningArse · 07/12/2010 15:51

EMA- esa. Doh.

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SantasMooningArse · 07/12/2010 15:50

And of course as any politican knows- they can take it away and you know what? 'they' win (a random 'they': I don't believe not caring to be a rpeserve of any one party). Because we will still feed and love our kids, oh yes the SN may mean we still cannot work and live in poverty but the kids will be alright.
Until we die, of course. My boys are unsupported by SSD; if that situation remains (I suspect it will) and something happened to the last surving one of us what woudl happen to ds3 I wonder? Well I know; he'd sit staring at his PC without eating, drinking, moving or using a toilet until he starved. Nice thought. Or maybe ds1 could take him in? The fact ds1 is physically abusive to ds3 unless we keep them in sight at all times would not be noted by anyone as after all, he qualifies for nothing.

And it almost makes me laugh that I am 'lucky' to have two disabled kids- ds3 disability is indisputable. DS1's is only visible over time and experiecne. No childcare institution would touch him though so I can actually imagine a situation where his benefits would be cut meaning i'd lose my carers, as I coudln;t work, but i;d lose JSA as well becuase I couldn't seek work, or turn up at those compulsory work events without him in tow either. Thank goodness ds3 is more visibly severe eh? What a bizarre conclusion to have to reach!

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SantasMooningArse · 07/12/2010 15:42

You know, fear alone is a cruel thing- announcements without back up are horrible when you ahve no options but to wait.

But DC is but one person: he cannot have a real understanding of every aspect becuase as he admitted to Riven he could buy in the practical help he needed. Emotionally I have no doubt but one's philosophy of why people are able to have or not ahve the resources would feed any interpretation.

The reality is that massive numbers of people who cannot work are being thrown off EMA becuase the tests are unfit for purpose- unless we believe that every person who can pick up a pencil on request (ds3 could, possibly) can hold a job? And that it is OK for those turned down by people who have no real training to then be denied the resources to appeal? My specialism is ASD: you would struggle to find people less able to appeal amongst the non LD population than someone with an ASD. At the same time the people who would normally help- often in LA employment- are losing their jobs left right and centre, or indeed if in voluntary employment as many advocates are being forced back into paid employment becuase of many factors- bioth cuts to state help and a mass rising in redundancies within everyone's families.

The support system as it is, DLA is one of teh elast abused benefits in existence- a lot of the stats given out are in fact applicable to ESA which nobody would be likely to argue has been secure. But the difference between a benefit that someone can get on the say so of one GP and one that is hard to get with a wedge of aperpwork from many experts is tangible.

Ultimately experience of something amkes no difference, only interpretations of the reasons behind something. My dad's family was raised in abject poverty (real, hunger causing poverty) and half that family are very compassionate to other people in the situation, and half absolutely of the belief that if they survived so can anyone, sod them. I'm not saying DC does (or doesn't) believe that but it is a relevant illustration.

It's not as if it's ideal either now: ds1 is up for a place at a local ASD comp. Two places, with currently 37 kids needing those places after the screening process. DS1 was at the top of the list at one stage but I know that a lcoal SNU has put forwards some other children as emergency cases: who knows what will happen as the other local comp has said they cannot meet his needs. he gets no other input- zero- so we know he will probably lose DLA at the next application (June) based not on his disability but a lack of evidence due to service cutbacks, but any scheme brought in utilising under trained assessors and with a target to cut claims by 20% is going to harm people. There is not 20% of people falsely claiming DLA, and if there were they need to start sacking a lot of NHS professionals becuase it is them who verify the forms.

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nightmarebeforechristmas · 07/12/2010 15:38

please don't think for one minute that DC has any idea what it it is like for most disabled people and their cares. he doesn't have a clue, and seem very keen on proving that.

StewieGriffinsMom · 07/12/2010 15:36

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Nickiename · 07/12/2010 15:31

One minister compared people living in supported accommodation to people living in hospitals, and said that's why they didn't need any money. People don't bloody LIVE in hospital. Many people in supported accommodation have lively minds, interests, friends etc, but trapped in very uncooperative bodies. They want to go out and have a life like anyone else, but how can they if they have no money at all?

Nickiename · 07/12/2010 15:30

David Cameron has insight into what disability is like alright - for for people who are millionaires. I don't suppose DLA was terribly important to him, as he'd find gold ingots down the back of his sofa.
The problem is fear alright. Fear of people who intend to cut a benefit they don't understand in the slightest.

reallytired · 07/12/2010 15:24

Britain has chanaged and the welfare state needs to be reviewed from time to time.

Given the fact that David Cameron's late son was very disabled, I doult that he wants to attack disabled people. I think we can be confident that David Cameron has more insight into disablity than many politicians.

The problem is fear as people do not know what the consequences of change will be.

StewieGriffinsMom · 07/12/2010 15:19

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