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Politics

Supporting disbaled people unsustainable?

190 replies

SantasMooningArse · 07/12/2010 13:31

here

I hate this sort of uncertainty. I have trained part and full time for seven years now alongside two disabled kids to get to the point where I was hoping to train in social work in 2013- but if DLA vaniushes it will be unaffordable. I feel we have lived up to every Tory ideal, battling redundancy, my DH's illness and the boy's SN with constant battles to get back on line, and now I think I might just give up after all- can;t train until thenas no childcare means DH must be working from home to care and he dosn;t qualify until then, and we will need to move and cannot do so with the SNU realistically until 2013 (a SW trained where we are in Wales cannot practice in England but we need to get back to family badly for support and help, both for them as they age and us as we try and fit in work).

Working in tesco woudln't ever cover the huge costs of disability childcare.

I acknowledge that this is a left wing article, there's a thread on this in SN with a less reactionary letter from teh NAS C&P's to it, but is this how big society was meant to work? Sorry disabled people, there's no money- saldy when it comes to ds3 there's no cure either- can I never afford to die then? Will there be any care left for him?

OP posts:
SantasMooningArse · 08/12/2010 19:33

Lougle anything I can do to help with forms just ask. I don;t know where you are but may be close or pass by, if not via mail.

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pastyeater · 08/12/2010 19:32

That was me that questioned what you were saying about depression earlier. Sorry.

I do suspect those with hidden disabilities like mental health problems are going to be the victims of this "initiative".

Five years ago I was on incapacity benefit and DLA for severe mental health problems. Mental health care is appalling, they are so overstretched.It takes years even to get the correct diagnosis.I gave up all my benefits and went back to work without any "incentives "
The reward for me was getting my pride back. Not having to explain to every new person I met why I didn't work. There is a real stigma to being mentally ill.
I don't believe many genuine mental health claimants need poverty to force them back to work.It can take years to get well. If they are forced to work before they are ready it will make them worse.

CardyMow · 08/12/2010 19:13

Oh, and don't get ESA either cos DP works. So our only income is DP's £16k wages and tax credits.

CardyMow · 08/12/2010 19:12

Sidenote - mine was a renewal for DLA, when I first alied 3 yrs ago, I had the CAB help me to fill in the form, when I sent in my renewal, CAB couldn't hel before form needed to be back, adults with disabilities team at SS refused to help (much like the carer I'm meant to have to help me prepare the dc's dinner that has never materialised from them, or the wet room as I don't even have a shower...), so I had to do it on my own. I obviously did a crap job of exlaining my needs, got refused, appeal was turned down, can't reapply for 6 months until February. And even then, unless I find someone who can hel me fill in the forms, I don't expect to get anything.

Kaloki · 08/12/2010 19:07

thisisanicecage I think we are all quite comfortable with ranting here, just be aware, this is a pretty calm thread. They usually get much worse, I'm amazed we haven't had hundreds of posts from people who know a friend of a friend's uncle's sister's daughter's friend who is fraudulently claiming DLA/ESA and therefore all disabled claimants are liars and cheating the system. Hmm

santasmooningarse (have I told you how much I love your new username?) I think we all have our own agenda. Both myself and my DH have invisible/erratic illnesses, so we are vulnerable enough with the current system, so I am biased towards seeing what will affect us the most. Doesn't make any of our views less valid.

Tbh I would love support to get back into work, I miss it, hate feeling useless. However I hate the thought that it will be used to beat us with, "do this or else", when I already don't trust them to know their arse from their elbow.

There are so many people out there already getting hideously wrong diagnosis from idiots like ATOS, as shown by the amount of people initially declared fit for work on ESA, then later found unfit through the tribunal.

They need to prove to us that they
a) know the difference between DLA and ESA
b) want what is best for vulnerable people, rather than their bloody figures
c) are aware of the huge range of ways different disabilities can affect different people
d) understand that lots of jobs cannot or will not make allowances
e) understand that people are suited to different jobs, and that disability can limit that further

It's not as simple as "here's a job, do it".

SantasMooningArse · 08/12/2010 18:32

Dont be silly, here is exactly teh place for it! It's what MN is for and why many of us come ehre.

In Rl I am quite timid LOL.

Sort of anyway Wink

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ThisIsANiceCage · 08/12/2010 18:31

Actually, sorry generally for bursting out into full rant. It's normally poor old DP (works away) who gets his ear chewed down the phone after such "initiatives". Thank you for letting me spout here instead, so I can be serene Cage-dweller when he calls today...

SMA I feel for your situation and your DH/DCs. It's crap, isn't it?

SantasMooningArse · 08/12/2010 18:23

Thing is ThisIs they ahev already started the consultation process not us- it's open until February. If we can't ahve what we would want then I want something that might just work for my boys IYSWIM. DS3 can't work, ds1 could probably self employed with help.

I don;t trust this lot any farther than I an throw them, which is why I want to find answers that they may actually go for IYSWIM but leaves most vulnerable people in safety.

But I do suppose a bit of my own agenda as a carer who wants to work gets stuck there sometimes.

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pastyeater · 08/12/2010 18:10

Leave DLA alone?
How are they going to do that and make the savings they want? That's what it boils down to, making savings. They are going to fiddle around with it until a certain proportion of claimants lose money. They are going to get away with it because benefit claimants have been demonised by the media. No votes to be lost in punishing scroungers. Lots of votes to be lost in means testing winter fuel allowance....

ThisIsANiceCage · 08/12/2010 18:05

Oh no, come back to the warm by the fire! (Only been here 5 mins, am scaring the nice people away already. Sorry.)

ThisIsANiceCage · 08/12/2010 18:03

Offended at you? Nope, nothing personal: you proposed an alternative system, I'm shredding it! Grin

But if you don't believe the message that DLA is being used as a crutch to keep people out of work, why are you supporting that message in practice by suggesting changes to DLA? I don't get it.

(that's not to say DLA is set in stone till the hills fall into the sea, but this specific set of changes)

SantasMooningArse · 08/12/2010 18:03

I was really trying to get a discussion going

In fact it now seems I need to be desptahced to a snowy area with my large shovel!

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SantasMooningArse · 08/12/2010 17:57

And thats gonna come over as coz you disagreed with me isn;t it

not what I meant either

Argh

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SantasMooningArse · 08/12/2010 17:51

It'a not now this. I think that's what they want.

A mentor can help with findsing adaptations for people with disabiltiies- we used to do a lot fo that when I was HE mentor: it dfoesn;t ahve to be all psych, practical is good too.

the reason I am getting for destroying DLA is that people use it as a crutch to stay out of work: don;t belvie it for a second but that seems to be the message they wish to send.

You did get I didnt mean you or anyone with depression earlier right? you still seem offended by me and I didnt mean it the way you took it at all. I;d be slating my own DH if I did.

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ThisIsANiceCage · 08/12/2010 17:48
  1. Since when was DLA anything to do with "rewarding efforts to find work"? Disabled people have additional living costs because of disability regardless of whether we're working or not. They just vary in nature.

Since ESA is now going to be set at the same level as Income Support after the first year, ie at the minimum the govt reckons a fit human being can actually survive on, how are we going to pay these costs?

Quite importantly, what will happen to us if we can't?

  1. The no 1 putative reason for destroying DLA is "simplification". Hardly, under your scheme.

  2. If you have depression or lack confidence a "work support mentor" may be useful. If you can't sit upright for 30 mins, not so much.

This fairyland "people just need encouraging" model of dis/ability has always seemed to me exactly like the "signposting to other services" stuff above - enough to get us off the (anyway teflon) consciences of the nation without being enough to actually be useful.

nightmarebeforechristmas · 08/12/2010 17:42

riven they won't raise it,
just lower it for others iynwim

SantasMooningArse · 08/12/2010 17:39

There should be a higher dependency level yes

but they won't leave DLA alone which is why we have to input into any consultations about whatever does replace it. Likewise CA, which they are 'thinking about'.

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sarah293 · 08/12/2010 17:29

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SantasMooningArse · 08/12/2010 17:03

(BTW I didn't mean an employer administered allowance- I meant more along the lines of a work support mentor to ehlp someone cope with employment and amke a success of it, funded by a specialist NFP or charity provider. Employer allowances create extra burdens on employers which won't help employment rates anyway but isnlt going to help anyone)

personally i'd rather see it left as it is but they've done such an effective job of demonising dla that I don't think it could happen.

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SantasMooningArse · 08/12/2010 17:01

Actually you're not far off what we are doing- Dh works from home too, 16 hours a week.

I would suggest that people with a disability who can work fewer hours have an entitlement to Tax credit top ups at a lwoer elvel than the current one (and Government is raising 16 hgour limit to 24 shortly). That would take a lot more people in under the system. It would IMo apply to carers too- certainly if our plans worked out longer term then dh's temporary part time business could be our ticket out of dependency.

I would also being training in under this system for the same reason- ATM it doesn;t seem to be about rewarding efforts to find work that may be small but require huge strides from the person making them, but about creating a big in / out of work divide and pulling up any ladders that may help someone to get off of dependency.

I'd also like to see dedicated start up support for disabled people becuase quite often self employment IS the only option I don't think ds1 could ever work in any team or under anyone but he has a great craft skill and hopes to be self employed- it's the only option I think.

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ThisIsANiceCage · 08/12/2010 16:47

OK, I'm feeling more communicative than I'd expected now my blood has stopped boiling.

SMA, if my health improves I hope to work freelance at home for, say, 5 hours a week. This is by far the most plausible way of me ever earning anything again.

I would have no employer to administer an allowance (suggested on the parallel thread) or verify that I was working. I would also not be earning my living, because I couldn't work enough hours.

I would still, however, need someone to take work documents, etc, to the post for me and occasionally attend meetings in person. These are the sort of costs DLA contributes to (but may not fully cover), as well as the basic ones of hygiene, food, etc.

How does your proposed system work for me?

SantasMooningArse · 08/12/2010 16:30

how about a new system where those who can never work remain on DLA (with sense used in making decisions) but people who could work if given a chance can be palced on a PIP and given X hours in work support on the job plus a PIP allowance? that being absed in part on whetehr anyone can get them a job (permanent only) given that the big barrier to work for many is the unwillingness of an employer to hire?

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ThisIsANiceCage · 08/12/2010 15:08

Riven it's even worse than that. According to the consultation document:

Chap 1 §17. A significant proportion of DLA recipients believe that DLA is an out-of-work benefit. Applying for DLA is widely linked with the process of leaving or being out of work due to disability. A common assumption among people receiving DLA is that entering or returning to work will lead to a review of their circumstances and a loss of the benefit.

Chap 1 §19.
The benefit can act as a barrier to work
Evidence suggests that DLA can also act as a barrier to work, when it should enable people to lead independent lives, including having or getting a job. DLA is widely perceived to be an out-of-work benefit and receiving it appears to reduce the likelihood of being in employment

In other words, we've pretended it's an out-of-work benefit so often that Real People believe it.

So to solve that problem, we'd better destroy the benefit.

numotre · 08/12/2010 15:07

Riven- I think they mean that DLA on top of other benefits mean that the person has no need to work as they recieve enough money through welfare to sustain a reasonable standard of living.

Its not a view agree with but I think that is the point they are trying to make.

sarah293 · 08/12/2010 14:53

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