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Period symptoms no one talks about

464 replies

TammySwansonTwo · 05/06/2018 19:16

Day 1 of my period today which is always horrific (double whammy of endometriosis and adenomyosis) and was just thinking about how many weird symptoms I think of as normal, because no one ever talks about them.

The main ones for me are javelin arse and the feeling that my vulva has run a marathon. Oh, and the fact that I had no idea periods were supposed to be red until after my first surgery - I thought I was bleeding to death.

So much isn’t talked about that many women put up with awful stuff for years, and illnesses like endometriosis take years to diagnose. I think we should talk about it more!

What are other people’s weird period symptoms that they believe(d) are normal / universal?

OP posts:
Stripeyblue · 06/06/2018 22:55

This thread is a revelation. So much resonates. Sorry so many of us are suffering.

What about heartburn/indigestion? Anyone else find this gets so much worse around period time?

TammySwansonTwo · 06/06/2018 22:07

It makes me really happy that everyone has embraced this and shared (like I said, was worried people might think I was some sort of period version of the poo troll!).

Just to reiterate, symptoms being common doesn’t mean they’re normal. Fibroids are common. Endometriosis is common. PCOS is pretty common. Hypothyroidism is very common especially in women who are approaching menopause (although I suspect actually that’s just because it takes so long to diagnose).

Don’t put up with periods that are so debilitating they prevent you from working, from taking care of your children or living your life. Period pain should not be so severe that OTC painkillers can’t touch it. For many women, the best they get is stronger pain relief and / or the pill. It’s not good enough.

There are women who have no idea periods can be so bad (some of them have kindly read this thread and commented empathetically but many will never have the realisation that they can be hellish for some of us). They are the ones with normal periods. The rest of us are under-diagnosed and under-treated.

OP posts:
LimboLuna · 06/06/2018 21:54

Yes I get hairier too and it hurts more plucking!

youarenotkiddingme · 06/06/2018 21:49

Loads of stuff that I've only noticed is connected to my period as I've been diagnosed severely aneamic and have started medication to make them lighter.

Pain in thighs and groin
Period poo clear out!
Dropping things and trouble gripping
Strange dreams that wake me up!
body hair grows twice as fast Hmm

TammySwansonTwo · 06/06/2018 21:45

Totally understand - I scarcely had an unmedicated cycle from 13 to 33. I had forgotten how awful it could be without hormones, but the hormones cause me so many problems I can’t put myself through it again. I’m at the point where I’m pushing on until it’s totally unbearable and I go for a hysterectomy.

OP posts:
user1471426142 · 06/06/2018 21:38

I’m on my second period since coming off the pill and it’s been a shock. The first one was ok but I suspect I must have still had some hormones. Last time round I got pregnant straight away so didn’t really have normal periods in hindsight. I had a 35 day cycle so got excited and then deflated when I realised I wasn’t pregnant. My uterus feels like it is about to fall out, I’ve been flooding, I’m really light headed and feel nauseous and I had 10 days of spotting around ovulation. I’m not loving this new world. I suffered a lot before I went on the pill but I’d forgotten how crap my periods can be.

TammySwansonTwo · 06/06/2018 21:24

the range considered "fine" by the nhs with lower levels of TSH would be considered too low in most other countries.

Graphista I think you might have this back to front, unless you’re talking about hyperthyroid?

With hypothyroidism, you need a TSH level of 10+ for diagnosis in the UK. Go to almost any other developed country and it’s 2.5-3. Even here, the upper end of the normal lab ranges are 3.5 - 5.5, so you can have an abnormal level and still not get treatment. It’s a disgrace. This is why I do private testing of all my levels - and be sure to get your TPO and TGAB antibodies checked too.

OP posts:
PickAChew · 06/06/2018 21:21

When I ovulate, my PM's symptoms start as soon as it's over. I turn fucking psycho on that first PMS day, some months. Even if I feel relatively chilled, ds1, who has asd, picks up on something and has had some of his most violent meltdowns on that particular day, so I can only assume that my whole demeanor is affected.

Cold sores attempting to break through everything weak point they can find on my face and my thankfully occasional migraines tend to happen after my period has ended, just when I would have ovulated, back when things hadn't started to fizzle out. Goodness knows why poor DH bothered with a vasectomy because it's not like I'm in a fit state for anything.

I made the mistake of shaving my legs in the hours before my period started, a few years back. I looked like I'd been burnt.

Gwenhwyfar · 06/06/2018 19:43

Does anyone else think that maybe the PMS time has moved? I still get the feeling teary just before, but now it seems to me that the feeling down and very low mood happens earlier, maybe 10 before and actually gets a bit better just before my period. Or maybe, I actually feel crap for the whole second half of my cycle and this might explain why I've been told by others that I'm just a constantly mildly depressed person. Maybe I've lost half my life to this?

Graphista · 06/06/2018 19:42

Meant to say mum was treated like a "neurotic new mum" she is the eldest of a big family and has nursed LOTS of children through chicken pox, far from inexperienced and not one to take children to the dr for mild childhood ailments.

Graphista · 06/06/2018 19:38

Men don't worry about being dismissed. They can be reluctant to go but when they do they're taken seriously.

So should women.

My mum doesn't trust gp's full stop. Mainly based on being fobbed off when she took my brother in with chicken pox.

Yes "only" chicken pox but she was worried as his temp was very high and he was vomiting a lot and couldn't even keep water down.

She was fobbed off by 2 separate gp's and then bro took a fit and she decided enough was enough. Took him to a&e where he was admitted with severe degydration and put on a drip. Turned out he had pneumonia too (just remembered that). NEITHER of the gp's had examined my brother, mum says they barely even looked at her!

That was almost 40 years ago but it seems little has changed.

TodoDoingDone · 06/06/2018 19:34

Lots of the above plus: - really painful teeth and gums. First dentist I mentioned it to, looked at me blankly. Next one said it wasn't a surprise as hormone levels affect the sensitivity of gums. - looking at property sites for an affordable studio flat for me to live in, only me! Dh will be allowed to visit on good days!Grin. - RAGING PMS, though some monthsare OK. Last period was fine, currently having period from hell. Rages, flooding, sciatica, tears, highly irritated, nausea and eaten my weight in biscuits and chocolate. Flowersto all, it's shit.

Flooffloof · 06/06/2018 19:20

I would have thought things had improved in 30 years.

Apparently not. It's not the only time I was dismissed.
Donkeys year's ago I had a chest infection and was sent out with the sage advice, "be a woman about it" no drugs, no help or advice, not even a stethoscope was raised.
Although with the topic in hand, I have never seen a Dr about period stuff. Just got on with it.
This makes me quite angry now, because I have been dismissed so often previously I have not wanted to be dismissed again over women's issues.

Graphista · 06/06/2018 19:18

One of my aunts went through 7 mc (has 2 living DC) but wasn't even referred to a gynae until pre-menopausally she was fainting a lot eventually breaking a wrist. Was the a&e dr referred her - heartbreaking

Graphista · 06/06/2018 19:16

Snowspeckled your GP is wrong a fucking idiot

Me, sis and 3 aunts all dx and I suspect my gran also had it based on what mums told me of her difficulties both with periods and repeated mc.

"You'd have to have bad period pain as well for endo to be suspected wouldn't you?" No - as with any ailment not every sufferer gets every symptom - but Drs seem to spin this crap re gynae issues.

kalinkafoxtrot45 · 06/06/2018 19:15

Ovulation pain - like a big elastic band pinging my ovary. I always know which side has ovulated and sometimes it makes me cry out loud.
PMS: sore tits, clumsy, hypermobility gets worse, oversensitive to noise, can’t stand being touched as it makes me want to scream. Oh, and chin spots.
Period: skitters, occasional javelin arse, sawing pain and flooding on day 2, pissing like a racehorse, intense desire to hide from the world.

Gwenhwyfar · 06/06/2018 19:08

"A GP once told me that it was not possible that diarrhoea could be associated with my periods."

What an idiot GP. A quick google would explain it to you.

Buffymum · 06/06/2018 19:08

Ravenously hungry with the need for chocolate and carbs
Dreadful sleep the night before -
No PMT and can feel quite upbeat / energy - until the day after I finish - when for a couple of days feel quite tearful, anxious and tense .

Dragonlight · 06/06/2018 19:07

Snowspeckled it certainly can and does run in families. It's incredible how much misinformation from health professionals is out there.

Gwen some people with endo have no or very little pain at all, so pain is not always an indicator.

Gwenhwyfar · 06/06/2018 19:02

"Gastric issues especially during periods are a strong indicator of endomitriosis"

I thought it was quite normal to be constipated before and have dia. on the first day? You'd have to have bad period pain as well for endo to be suspected wouldn't you?

Snowspeckledeyelashes · 06/06/2018 18:56

I get loads of these symptoms and terrible heavy periods with large clots, had polyps removed last year but that hasn’t helped. My dsis was diagnosed with endometriosis and I’ve read that it can run in families but my gp said no it doesn’t. I do wonder if I have it too though?!

ScrambledSmegs · 06/06/2018 18:49

Graphista you’re right, they were testing my TSH levels only for years which were supposedly fine, although my GP admitted they were actually borderline when I saw her after finally getting a diagnosis.

You do have the right to request a printout of your blood test results from your GP surgery. I’m lucky enough to have made a friend with expertise who could give me advice and interpret my results correctly, she also told me that the levels we consider ‘normal’ in this country have to be taken in conjunction with how the patient actually feels. Something that seems to pass some GP’s by, especially with women.

SomethingDarkside · 06/06/2018 18:38

That's horrible, Flooffloof! Shock

DM still tells the story from 30 years ago when she went to see her doctor about bad pains and was told it was OVULATION. She was 35-year-old, had had several kids, and fucking knew what an ovulation does or doesn't feel like. She had pneumonia... I would have thought things had improved in 30 years. :(

flourella · 06/06/2018 18:36

Haven't read the whole thread yet, so probably not adding anything new.

Few days before: increased anxiety leading to an increase in OCD behaviours. If I have allowed any eyelashes and eyebrow hairs to grow in the previous month, they tend to get pulled out in a frenzy (trichotillomania). Spots around mouth and chin.

Day before and first day of: insatiable thirst. I can down a litre or more and the second the last gulp has been swallowed, it's back again, raging, and my mouth is instantly as dry as a desert.

First couple of days: period poo. Never knew that was a thing till reading Mumsnet! Also, intense aching in thigh bones. The only pain I ever feel due to my period.

MustBeThin · 06/06/2018 18:36

Oh and i forgot the aches down there, it feels like something sat inside waiting to be pushed out! What's that all about??? Numerous time I've thought that perhaps my super plus tampon had reached it's limit or something coz there's this weird heavy feeling but it's not my tampon. This comes and goes for 24 hours