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Elderly parents

How long can people live like this?

414 replies

HoppityBun · 22/10/2026 19:07

This might seem callous, but I don’t mean it to be. The thing is, I’m bewildered about how long elderly, bedbound people in their 90s can continue to exist. I’ve got several relatives in this situation. One I know wishes that she had died several years ago: I know because she says so when her children aren’t around. One of the other others, actually it’s hard to tell but she focusses on the next meal, or tea, or sweets, and seems ok. Has a few UTIs and once had a very low breathing rate but was revived. The other, seems to be ok, but at other time seems to be sad and has twice commented that they “just wanted to be all over“.

They’re all in nursing homes, all mid 90s, all bedbound and I just don’t understand how it is that they continue to survive when they are not eating much and not getting any exercise. This has been going on since 2020 for one of them and 2-4 years for the other two.

It seems extraordinary to me and, to be honest, it’s getting family members down. I suppose it’s anticipatory grief, which we’re all warned against.

I’d be interested to know because the way things are going they could all live for another five or six years it seems to me. Gradually declining and getting thinner and paler, but just sort of existing. I don’t want that for myself and I hardly recognise them when I look at them, for the people they used to be. Has anybody else come across this? It’s particularly extraordinary because they’ve lived lives that I would have thought are contrary to all we told about healthy living. Granted, none of them ever drank or smoked, but none took any exercise that I remember. Yet still they are here.

How can the body go on existing?

OP posts:
4noisykids · 23/10/2026 21:21

FlyingCatGirl · 23/10/2026 09:06

You don't have any experience of the hell some people go through with elderly parents do you! Your comment is utterly disgusting! You think every elderly parent is a happy little sweetie that's a ray of sunshine and that as kids we are scumbags that just want their money?

My 75 year old mother has had mental health issues since having her first child at 21, in the last ten years since our dad died she has put my brother and I and our aunt through hell! She has threatened suicide countless times, she has been on Diazepams and lorazepams for 46 years and uses them as a weapon! She even tried to get me to sign a DNR which would have dropped me right in it as a will beneficiary if she'd topped herself after I signed it. She's very mentally abusive, used to be very violent to us when we were kids, she's narcissistic. And her behaviour is getting worse because her metabolism is slowing and not processing the drugs in her system quick enough so she's clumsy and more delusional!
You have no right to judge people in such a horrible way! I'm not going to stop her killing herself, I'm tired of threats and wish she'd just do it! Ever had your mother tell you that she's left you money on the mantle piece to have her dog put to sleep once we find her dead?

I know someone who looked after their elderly mother in law in the family home. The mil had mental health problems and all the kitchen knives had to be licked away. They didn’t actually tell me whether they thought she’d use them on herself or on the rest of the family.

Papyrophile · 23/10/2026 21:16

A lifetime friend is 20 years into Parkinsons. He is completely coherent, but his body is awkward and jerky and unreliable. His responses are slower, but not stupider than they would have been 20 years ago. He holds the Queen's Gallantry Medal and several others for dangerous bomb disposals. I want him to continue to be regarded as a hero, rather than a liability.

Seeingadistance · 23/10/2026 21:14

PropertyD · 23/10/2026 20:12

Seeing. That is awful for him.

Could you explore some sort of statement saying no more interventions. I guess he doesn’t have capacity which is a warning to us all to get our wishes in writing.

Will someone be giving him Covid and flu jabs shortly?

He hasn’t had capacity for a number of years now. My DM has POA and she agrees to all the vaccinations, antibiotics etc. He had his Covid and flu jags last month. I keep saying, “To what end?”

My DF’s own father lay in a hospital bed for 8 years (back when geriatric hospitals were still a thing) unable to move or speak after a massive stroke. At the time my father said that would be his worst nightmare and that it would have been better after all if his father had died from the stroke.

I have started putting together my own advance direction and my family are in no doubt at all that I would not wish to be kept alive as my father is. As I mention in previous post DM has reluctantly agreed to comfort meds rather than antibiotics for future infections but I expect her to change her mind on that.

Seeingadistance · 23/10/2026 21:02

AInightingale · 23/10/2026 20:08

The shareholders certainly want it. I know of one group of nursing homes (think 13 in total) in N Ireland where the pretax profit a couple of years ago was £20M.

I am so sorry about your father @Seeingadistance . 💐 I take it you've spoken to the staff about these treatments, what do they say about it? I don't think history will judge us very kindly for putting our old people through this mindless torment.

Thank you.

My mother has POA and she insists on him getting all these “life” extending treatments. My DSis and I have had endless conversations about it with her but to no avail. Her life now revolves around the nursing home and there’s something quite troubling to me about the way she treats my father. But that’s a whole other issue.

There is a new depute manager at the nursing home and she is very keen on the concept of “a good death”. She has come up with a form addressing various aspects of care up to and beyond death. There was a very recent meeting when that form was completed and after some discussion my mother did agree that if other medication could make DF comfortable rather than antibiotics for an infection then that would be ok. However, when we do get to that point again I fully expect my mother again to insist on antibiotics. And on and on we go…

4noisykids · 23/10/2026 20:54

Seeingadistance · 23/10/2026 19:57

Good for her. That’s lovely. My DF’s Alzheimer’s became apparent 12 years ago, when he was 80. For the past 4 years he has been in a nursing home. When he went in he was totally immobile, extremely confused and needed to be dressed, washed, toileted and hoisted from bed to chair etc. Since then and for the past 2 years at least he has lost almost all control over his body apart being able to move his head slightly to the right and some movement in his right arm. He has no facial expressions other than when in distress when he groans and bites his one hand or the hand of anyone who tries to stop him. He is spoon fed mush and he hasn’t been able to speak at for over a year now. The loss of speech was something of a mercy for us as for the previous 3 years all he did say, repeatedly, was “Help me, please. Help me.”

This thread isn’t about elderly people with a reasonable or good quality of life, however frail they might be. It’s about people like my poor DF whose continuing existence is completely and utterly miserable. And yet he gets antibiotics for every infection and his flu and Covid jags! Great effort is made to ensure he gets calorie dense food and remains well hydrated.

I’m sorry that was a bit of a rant. To be fair to those who really don’t get it - they are almost certainly in the very fortunate position of not knowing just how horrific this extended end of life can be.

It’s awful isn’t it. My neighbour had dementia for 20 years, a quarter of her life. She had ulcers that went to her bone, and ended up not just on a pressure mattress, but some special bed that rocked her to and fro. Every effort was made to keep her going, meanwhile, the house will have to be sold and the son who looked after her will be lucky to be able to afford a flat, even after leaving London, where he’s lived all his life.

Seeingadistance · 23/10/2026 20:38

twocrumpets · 23/10/2026 09:39

Does this include the lady who says she left granny in a tent to die? Surely hers takes the top spot on the disgust level?

She didn’t say that at all! She said that was what granny would have preferred but it obviously wasn’t an option!

Seeingadistance · 23/10/2026 20:32

ThisWiseRobin · 23/10/2026 09:14

I blame the litigation threats. Doctors backs are against the wall in many cases. Families will often sue if they see a glimmer of money in the wings.
We had this discussion at our last bible study, and although for reasons not needed here, we did not support assisted dying, we all agreed that interventions have gone too far. Keeping someone out of pain is kind, keeping them alive against natural odds is not.
I just want to add that from a Christian point of view, it is absolutely acceptable to pray for a fair and kindly death for someone suffering.
Its modern life...its not easy.

I’m a Christian and every morning I pray for my father’s death - an end to this terrible suffering and distress.

autumnalannie · 23/10/2026 20:19

@Seeingadistancei hear you and your pain and have also had a relative like that. Until you’ve seen it you wouldn’t believe it and how long it can last.

right now I have a relative close to that state in their 70s. I also have a hail, hearty and very independent late nonagenarian relative. What appropriate medical treatment might like for both of those people should be different, imho.

PropertyD · 23/10/2026 20:12

Seeingadistance · 23/10/2026 19:57

Good for her. That’s lovely. My DF’s Alzheimer’s became apparent 12 years ago, when he was 80. For the past 4 years he has been in a nursing home. When he went in he was totally immobile, extremely confused and needed to be dressed, washed, toileted and hoisted from bed to chair etc. Since then and for the past 2 years at least he has lost almost all control over his body apart being able to move his head slightly to the right and some movement in his right arm. He has no facial expressions other than when in distress when he groans and bites his one hand or the hand of anyone who tries to stop him. He is spoon fed mush and he hasn’t been able to speak at for over a year now. The loss of speech was something of a mercy for us as for the previous 3 years all he did say, repeatedly, was “Help me, please. Help me.”

This thread isn’t about elderly people with a reasonable or good quality of life, however frail they might be. It’s about people like my poor DF whose continuing existence is completely and utterly miserable. And yet he gets antibiotics for every infection and his flu and Covid jags! Great effort is made to ensure he gets calorie dense food and remains well hydrated.

I’m sorry that was a bit of a rant. To be fair to those who really don’t get it - they are almost certainly in the very fortunate position of not knowing just how horrific this extended end of life can be.

Seeing. That is awful for him.

Could you explore some sort of statement saying no more interventions. I guess he doesn’t have capacity which is a warning to us all to get our wishes in writing.

Will someone be giving him Covid and flu jabs shortly?

Bababear987 · 23/10/2026 20:11

FashionPassion · 22/10/2026 20:03

And? Are we too important to have "burdens" as part of natural life processes? Are you suggesting that burdens and inconvenience is unacceptable to us so ...what is your solution? Not coping mechanisms, support or realistic expectations? Only extinction will suffice so we, who are younger and whilst we are younger, are comfortable?

But its simply not natural to live that long or in those conditions. Its going completely against nature to prolong life to such am extent that we are actually causing more suffering. Being alive should never be a goal, being happy should be and I doubt anyone is happy living like that.

AInightingale · 23/10/2026 20:08

Lordanlyknas · 23/10/2026 20:00

Someone is making a lot of money out of this and effectively bankrupting the country.

could not agree more.

nobody wants this.

The shareholders certainly want it. I know of one group of nursing homes (think 13 in total) in N Ireland where the pretax profit a couple of years ago was £20M.

I am so sorry about your father @Seeingadistance . 💐 I take it you've spoken to the staff about these treatments, what do they say about it? I don't think history will judge us very kindly for putting our old people through this mindless torment.

Lordanlyknas · 23/10/2026 20:00

PropertyD · 22/10/2026 19:39

Yes. No one wants to say this. Both parents funded their own care and clearly others who weren’t getting the same funding from local authorities. Someone is making an awful lot of money out of all of this and effectively bankrupting the country.

Someone is making a lot of money out of this and effectively bankrupting the country.

could not agree more.

nobody wants this.

Seeingadistance · 23/10/2026 19:57

Constantrunner · 22/10/2026 23:32

My grandmother lived until 97 and could still chat away happily until the last month of her life. She wanted to continue living in her care home and still valued her life.

Good for her. That’s lovely. My DF’s Alzheimer’s became apparent 12 years ago, when he was 80. For the past 4 years he has been in a nursing home. When he went in he was totally immobile, extremely confused and needed to be dressed, washed, toileted and hoisted from bed to chair etc. Since then and for the past 2 years at least he has lost almost all control over his body apart being able to move his head slightly to the right and some movement in his right arm. He has no facial expressions other than when in distress when he groans and bites his one hand or the hand of anyone who tries to stop him. He is spoon fed mush and he hasn’t been able to speak at for over a year now. The loss of speech was something of a mercy for us as for the previous 3 years all he did say, repeatedly, was “Help me, please. Help me.”

This thread isn’t about elderly people with a reasonable or good quality of life, however frail they might be. It’s about people like my poor DF whose continuing existence is completely and utterly miserable. And yet he gets antibiotics for every infection and his flu and Covid jags! Great effort is made to ensure he gets calorie dense food and remains well hydrated.

I’m sorry that was a bit of a rant. To be fair to those who really don’t get it - they are almost certainly in the very fortunate position of not knowing just how horrific this extended end of life can be.

AInightingale · 23/10/2026 19:56

UnexpectedlyRetired · 23/10/2026 17:41

If you can keep someone alive and you don't, surely that's the same as euthanasia?

Euthanasia would be deliberately injecting someone with a double dose of morphine or barbiturates (which many doctors used to do, quietly, when confronted with a hopelessly sick patient). Letting a simple infection take its course so it turns to pneumonia, then treating the person with pain relief and sedatives while they pass is not euthanasia. But even euthanasia, even what the sick elderly cat gets (a double dose of anaesthesia, I believe), would be preferable to the cruelties meted out to our old people!

Ved · 23/10/2026 19:51

PropertyD · 23/10/2026 19:12

Do you really not get this? They are effectively vegetables and suffering. Do you have some sort of religious views on this. Have you EVER supported an elderly person screaming to die, suffering, not recognising you, wetting themselves, having fall after fall, UTI after UTI?

Sitting listening to some Doctor doing yet another memory test and smugly patting themselves on the back.

No, I didn’t think so..

These sorts of views make me boiling mad. They clearly have no idea.

All of this. ^

Seeingadistance · 23/10/2026 19:41

pandora206 · 22/10/2026 22:28

Have a look at Hospice Nurse Julie on Youtube.

One of her videos is entitled I'm a Hospice Nurse. Here's what I'd do if I got dementia and is an eye opening prompt to really plan end of life care before losing capacity. This includes making choices about being intubated, tube fed, treated for infections, etc. as well as resuscitation.

Watching it has given me a lot to think about.

Edited

I saw that video the other day and was meaning to post it on this forum as I’ve been thinking for some time about creating an advance directive for myself and she’s given me some good starting points. Have been having problems with the MN website so am now on the app - will see if I can start another thread on that subject.

UnexpectedlyRetired · 23/10/2026 19:17

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

PropertyD · 23/10/2026 19:12

UnexpectedlyRetired · 23/10/2026 17:41

If you can keep someone alive and you don't, surely that's the same as euthanasia?

Do you really not get this? They are effectively vegetables and suffering. Do you have some sort of religious views on this. Have you EVER supported an elderly person screaming to die, suffering, not recognising you, wetting themselves, having fall after fall, UTI after UTI?

Sitting listening to some Doctor doing yet another memory test and smugly patting themselves on the back.

No, I didn’t think so..

These sorts of views make me boiling mad. They clearly have no idea.

Chickpeacurrywithrice · 23/10/2026 18:59

UnexpectedlyRetired · 23/10/2026 17:41

If you can keep someone alive and you don't, surely that's the same as euthanasia?

No of course it’s not! Stop the bloody intervention of elderly people, who have no quality of life!

midnight4 · 23/10/2026 18:16

Ved · 23/10/2026 18:13

The doctor should do what the patient wants. And if they don't have capacity, then they should do what is in the best interests of the patient. The wants of their family should not trump the patient's needs and desires.

This. A patient’s wishes should be paramount.

Ved · 23/10/2026 18:13

UnexpectedlyRetired · 23/10/2026 17:57

But who makes that decision?

I'm not saying I disagree with you in principle, quite the opposite. But is it up to the elderly person themselves? The relatives? The doctor? What if the elderly person wants to die but the relatives want them to stay alive? What should the doctor do?

The doctor should do what the patient wants. And if they don't have capacity, then they should do what is in the best interests of the patient. The wants of their family should not trump the patient's needs and desires.

UnexpectedlyRetired · 23/10/2026 17:57

Ved · 23/10/2026 17:47

Why 'try and keep them alive' when they are very elderly and very ill with no quality of life? Just allowing them to die of natural causes is hardly killing them!

But who makes that decision?

I'm not saying I disagree with you in principle, quite the opposite. But is it up to the elderly person themselves? The relatives? The doctor? What if the elderly person wants to die but the relatives want them to stay alive? What should the doctor do?

FlyingCatGirl · 23/10/2026 17:55

Cushionthefloor · 23/10/2026 17:48

I'm so sorry to hear that - it's so hard to deal with it when you think medical negligence was involved. My family were very concerned about the palliative approach - but it turned out to be a kinder approach than all that brutal cancer treatment - I felt very sorry for my uncle - his cancer preoccupied the last few years of his life - my Dad rarely thought about it - to the extent that we often forgot about it too - I know that must seem mad but it was a non event to my dad.

The day my dad was told that he had the cancer and that without chemo he'd have about 3 months and with he might get a year and a half, he went home shrugged his shoulders and had a Chinese takeaway! He wasn't phased either!
My mum has the book that the nurse wrote his white cell counts in before chemo and apparently his white cell count was through the floor for his second chemo so probably he shouldn't have had it but his suffering was minimal and short so I find that hard to argue with.

Funny thing is I'd never heard of oesophageal cancer until he was diagnosed with it and strangely heard so much more about it after he was diagnosed.

Cushionthefloor · 23/10/2026 17:48

FlyingCatGirl · 23/10/2026 16:54

It's so interesting to read your comment as my dad died from oesophageal cancer, they initially told him it was operable which was stupid because he hadn't had his pet scan at that point! When they did the scan it had metastasized to his liver and wasn't operable. He had two rounds of chemo to prolong his life but he ended up with sepsis from it wiping his immune system and it killed him. My family look upon in it as negligence which it kind of us but I think it was the better thing to happen to him! His tumours had actually shrunk but I always thought about the nasty death sentence he had ahead of his if he'd had to go through it all!

Even if it had been operable, the suffering afterwards for patients that had it sounded awful! When they cut part of your oesophagus out and pull your stomsch up to stitch it back together it's pretty horrific and the gastric issues long term sounded so grim.

I'm so sorry to hear that - it's so hard to deal with it when you think medical negligence was involved. My family were very concerned about the palliative approach - but it turned out to be a kinder approach than all that brutal cancer treatment - I felt very sorry for my uncle - his cancer preoccupied the last few years of his life - my Dad rarely thought about it - to the extent that we often forgot about it too - I know that must seem mad but it was a non event to my dad.

Ved · 23/10/2026 17:47

UnexpectedlyRetired · 23/10/2026 17:41

If you can keep someone alive and you don't, surely that's the same as euthanasia?

Why 'try and keep them alive' when they are very elderly and very ill with no quality of life? Just allowing them to die of natural causes is hardly killing them!