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Elderly parents

How long can people live like this?

414 replies

HoppityBun · 22/10/2026 19:07

This might seem callous, but I don’t mean it to be. The thing is, I’m bewildered about how long elderly, bedbound people in their 90s can continue to exist. I’ve got several relatives in this situation. One I know wishes that she had died several years ago: I know because she says so when her children aren’t around. One of the other others, actually it’s hard to tell but she focusses on the next meal, or tea, or sweets, and seems ok. Has a few UTIs and once had a very low breathing rate but was revived. The other, seems to be ok, but at other time seems to be sad and has twice commented that they “just wanted to be all over“.

They’re all in nursing homes, all mid 90s, all bedbound and I just don’t understand how it is that they continue to survive when they are not eating much and not getting any exercise. This has been going on since 2020 for one of them and 2-4 years for the other two.

It seems extraordinary to me and, to be honest, it’s getting family members down. I suppose it’s anticipatory grief, which we’re all warned against.

I’d be interested to know because the way things are going they could all live for another five or six years it seems to me. Gradually declining and getting thinner and paler, but just sort of existing. I don’t want that for myself and I hardly recognise them when I look at them, for the people they used to be. Has anybody else come across this? It’s particularly extraordinary because they’ve lived lives that I would have thought are contrary to all we told about healthy living. Granted, none of them ever drank or smoked, but none took any exercise that I remember. Yet still they are here.

How can the body go on existing?

OP posts:
FashionPassion · 22/10/2026 20:03

midnight4 · 22/10/2026 20:01

People living too long in poor health can become a significant burden on their families.

And? Are we too important to have "burdens" as part of natural life processes? Are you suggesting that burdens and inconvenience is unacceptable to us so ...what is your solution? Not coping mechanisms, support or realistic expectations? Only extinction will suffice so we, who are younger and whilst we are younger, are comfortable?

midnight4 · 22/10/2026 20:01

FashionPassion · 22/10/2026 19:54

But maybe they say these things about wishing to die or feeling like a burden because people, the very people they trust and loved their whole lives, make them FEEL like they're a burden. You know, we'll all be old one day, if we're lucky. Wouldn't it be nice to think that people would celebrate that as an achievement instead of sitting around waiting for us to die because of how that makes them feel. We sure pretend the West is the bastion of compassion and morality and then I see all of these posts about how old people just need to hurry up and die because they're a "burden" and "unhappy". Do they have to skip around like Dick Van Dyke, tap dancing in the rain, to be acceptable in their old age to others?

People living too long in poor health can become a significant burden on their families.

FashionPassion · 22/10/2026 19:54

Papyrophile · 22/10/2026 19:51

Of course, but when life is a burden? When there ceases to be any enjoyment?

But maybe they say these things about wishing to die or feeling like a burden because people, the very people they trust and loved their whole lives, make them FEEL like they're a burden. You know, we'll all be old one day, if we're lucky. Wouldn't it be nice to think that people would celebrate that as an achievement instead of sitting around waiting for us to die because of how that makes them feel. We sure pretend the West is the bastion of compassion and morality and then I see all of these posts about how old people just need to hurry up and die because they're a "burden" and "unhappy". Do they have to skip around like Dick Van Dyke, tap dancing in the rain, to be acceptable in their old age to others?

IAxolotlQuestions · 22/10/2026 19:52

I’ve known quite a few nonagenarians. Only one was active and happy. The rest were literally waiting to die, for years, and were not happy about it.

I never want to hit that point.

Papyrophile · 22/10/2026 19:51

FashionPassion · 22/10/2026 19:46

They deserve to live their lives out just because the thought (or cost) of their death is upsetting to others.

Of course, but when life is a burden? When there ceases to be any enjoyment?

Papyrophile · 22/10/2026 19:49

It is tragic. My DMIL was lovely but absolutely hated the last four or five years of her life. She was always in discomfort and often in pain from arthritis, and had asked me to take her to Dignitas when she had had enough, but then developed vascular dementia after a heart attack, and could not make that choice. She self-funded four years in care homes and was desperately miserable. It was awful for everyone who loved her.

FashionPassion · 22/10/2026 19:46

They deserve to live their lives out just because the thought (or cost) of their death is upsetting to others.

PropertyD · 22/10/2026 19:39

Advocodo · 22/10/2026 19:33

I think these elderly people are going to bankrupt the country. I don’t mean to upset anyone but it should be quality of life rather than quantity.

Yes. No one wants to say this. Both parents funded their own care and clearly others who weren’t getting the same funding from local authorities. Someone is making an awful lot of money out of all of this and effectively bankrupting the country.

Advocodo · 22/10/2026 19:33

I think these elderly people are going to bankrupt the country. I don’t mean to upset anyone but it should be quality of life rather than quantity.

HoppityBun · 22/10/2026 19:28

WaffleMacGubbins · 22/10/2026 19:16

I think that when you're at that stage where extremely few external physical demands are placed on the body beyond new infection, it really is a case of continuing to exist until that last infection occurs

Do they have respect forms in place? Have conversations been had around refusing antibiotics and hospital transfers in the event of a new infection? Are they refusing annual vaccinations?

Good questions.

I know that one of them has a DNR. The other two I don’t know, but I’ll ask: though I’m not next of kin for two of them. I think that there have been no discussions about refusing antibiotics and hospital transfers. To be honest, I have not thought to ask about vaccinations.

I’m a bit wary about the antibiotic business because a couple of them have had UTIs and they were definitely in pain and hallucinating and very uncomfortable and miserable. I don’t want that for any of these relatives.

I’m well aware that pneumonia was said to be the old man’s friend. And that must’ve been in days before antibiotics. Yet I do not want their last days to be pain and suffering.

So I’m asking for the impossible, aren’t I?

I should add, having read the comments below, that the youngest is 94 and the oldest is 97. I just can’t see circumstances changing for any of them.

OP posts:
WhereverIlaymycatthatsmyhome · 22/10/2026 19:26

Yes, I have a friend who has been barely alive for nine years now. She’s immobile, doubly incontinent, can’t speak, rarely opens her eyes, eats puréed foods. It’s intolerable for her family and it really shouldn’t be happening.

PropertyD · 22/10/2026 19:25

both parents had respect forms but hospitals and doctors will often throw everything at these elderly people because they don’t want to be accused of ignoring them.

So we just plod on.

PropertyD · 22/10/2026 19:20

Yes. Mum lived to 91. Her last few years weren’t great. She wanted to die and her last words at the care home to the nursing staff was please just let me go, I want to die.

We seem to celebrate long lives but in the vast majority of cases it’s either families members normally women propping up these very elderly people or them just living from day to day.

It’s truly awful and I think we need a robust discussion about assisted dying yet it’s been voted down again and unlikely to come back. Shame on the people who voted against it. They clearly have never experienced an elderly relative.

WaffleMacGubbins · 22/10/2026 19:16

I think that when you're at that stage where extremely few external physical demands are placed on the body beyond new infection, it really is a case of continuing to exist until that last infection occurs

Do they have respect forms in place? Have conversations been had around refusing antibiotics and hospital transfers in the event of a new infection? Are they refusing annual vaccinations?