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Elderly parents

How long can people live like this?

414 replies

HoppityBun · 22/10/2026 19:07

This might seem callous, but I don’t mean it to be. The thing is, I’m bewildered about how long elderly, bedbound people in their 90s can continue to exist. I’ve got several relatives in this situation. One I know wishes that she had died several years ago: I know because she says so when her children aren’t around. One of the other others, actually it’s hard to tell but she focusses on the next meal, or tea, or sweets, and seems ok. Has a few UTIs and once had a very low breathing rate but was revived. The other, seems to be ok, but at other time seems to be sad and has twice commented that they “just wanted to be all over“.

They’re all in nursing homes, all mid 90s, all bedbound and I just don’t understand how it is that they continue to survive when they are not eating much and not getting any exercise. This has been going on since 2020 for one of them and 2-4 years for the other two.

It seems extraordinary to me and, to be honest, it’s getting family members down. I suppose it’s anticipatory grief, which we’re all warned against.

I’d be interested to know because the way things are going they could all live for another five or six years it seems to me. Gradually declining and getting thinner and paler, but just sort of existing. I don’t want that for myself and I hardly recognise them when I look at them, for the people they used to be. Has anybody else come across this? It’s particularly extraordinary because they’ve lived lives that I would have thought are contrary to all we told about healthy living. Granted, none of them ever drank or smoked, but none took any exercise that I remember. Yet still they are here.

How can the body go on existing?

OP posts:
OrangeFlower14 · 22/10/2026 23:10

Why is everyone talking about antibiotics?
It’s the heart medication, surely

Carandache18 · 22/10/2026 23:08

Ved · 22/10/2026 22:05

I agree about the revolving door of appointments. Once you hit 60, they're constantly on at you, shingles vaccine, flu jab, covid jab, shit on a stick test, (for bowel cancer) breast-screening, multiple blood tests, wanting to shove tubes up your arse and down your throat, doing MOTs on people, doing medicine reviews, doing asthma reviews (where they teach people who have been asthmatic for 20 years how to use an inhaler,)🙄and just generally wanting to poke and prod and cut bits away outside and inside of you to do 'biopsies' etc etc etc...

If I was diagnosed with cancer now, (late 50s) I would not have any treatment/chemo/radiotherapy. It would probably do me more harm than the cancer! I have seen people wrecked by cancer treatment, with their lives upended, barely able to put one foot in front of the other, and unable to do anything, (even go out alone,) for 2-3 years, only to die anyway - just a year later than they would have died, if they had had no treatment.

Ved, I couldn't agree more. I am late 60s and stopped all cancer screenings more than 10 years ago. I'm still working, travelling, dog walking and gardening but I've seen extreme old age first hand, and life prolonged with endless antibiotics, and the rest. I'd rather go in the next five years than that.

socialdilemmawhattodo · 22/10/2026 23:04

Apologies not read the whole thread. Too busy dealing with my elderly mum, my own home and my young adult! My mum is 91. Has suffered failing body health (osteoporosis - early menopause, like me. Why do they not tell us of the bone risk!) But OK mentally. Forgetful, but not dementia. Independently living with limited support. But effectively housebound, unless with major support. That was OK, until this year. My sibling died unexpectedly and then a few months later Mum admitted to hospital with delirium due to an infection. Now out, clearly improving as being awkward about ongoing care. Her friendship group of similar age jest it is due to the war diet and rationing. There are so many of them, female in their 90s, but from different locations and backgrounds I think it must be true. My mum has said clearly following the death of my sibling she no longer wants to live on, and has agreed to a DNR. The hospital asked me what I thought after she agreed ( she has capacity in general). I also agreed, she's had her life, some of it better than other times, she can't bear the restrictions on her life, but refuses a care home. So here we are, plodding on.

Alphabet1spaghetti2 · 22/10/2026 23:04

@AncientBallerina this is what I’ve done and had written into my h&w poa.
I have decided I won’t be continuing with any health mot/testing etc the Gp decides either.

HappyViewer · 22/10/2026 23:02

AncientBallerina · 22/10/2026 22:58

I will have an advance directive to have no antibiotics, no vaccines and no assisted feeding if for example I have advanced dementia or similar where my quality of life is poor. Then I will die naturally of infection most likely with only comfort care. This is how to prevent the situation of elderly people languishing for years in nursing home, but the individual has to have given prior instructions with proper medical and legal involvement m. I’m quite sure many of us who are witnessing this now with our parents generation will make damn sure that it doesn’t happen to us.

I wonder how many will actually do it, have you yet?

Dollymylove · 22/10/2026 23:00

Problem is nobody is allowed to pass away peacefully anymore. They become ill, get blue lighted to A&E to spend 3 days on a trolley in a corridor, pumped full of antibiotics and sent home for more misery. Once upon a time the frail and the elderly would be tucked up in bed, kept comfortable, pneumonia would set it and the end would come. Now it seems that they need to be kept alive at all costs. 30 years ago a very elderly person breaking their hip would be the end.
A 96 year old frail old lady who I knew, broke her hip, admitted to hospital, hip replacement and she was dead inside a week......

Sunshineandoranges · 22/10/2026 23:00

The Liverpool path was tried. It meant that elderly sick people were starved. Not only medication was witheld but also food. No quick injection which would be preferable. Luckily the Liverpool path has now been discontinued.

AncientBallerina · 22/10/2026 22:58

I will have an advance directive to have no antibiotics, no vaccines and no assisted feeding if for example I have advanced dementia or similar where my quality of life is poor. Then I will die naturally of infection most likely with only comfort care. This is how to prevent the situation of elderly people languishing for years in nursing home, but the individual has to have given prior instructions with proper medical and legal involvement m. I’m quite sure many of us who are witnessing this now with our parents generation will make damn sure that it doesn’t happen to us.

echt · 22/10/2026 22:57

There's some nasty stuff on this thread.

Here's a review of "The Experiment" on Channel 4 which I haven't seen became I'm in Australia, but possibly you can see it in the UK. The review is detailed. Its premise is looking at the extent to which ordinary people can be influenced by Nazi ideology, While the subjects are disabled, by any reasonable definition, so are the elderly in this thread.

Some posters on this thread need give their fucking heads a wobble.

https://www.theguardian.com/tv-and-radio/2026/oct/21/the-experiment-channel-four-tv-review-uk-nazi-disability

The Experiment review – easily the most disturbing thing on TV

As members of the public tour a fake ‘residential home’ for disabled people riddled with Nazi ideology, you desperately hope someone will speak up. Prepare for the most excruciating viewing of your life

https://www.theguardian.com/tv-and-radio/2026/oct/21/the-experiment-channel-four-tv-review-uk-nazi-disability

ParkFirstDesk · 22/10/2026 22:57

Papyrophile · 22/10/2026 19:51

Of course, but when life is a burden? When there ceases to be any enjoyment?

Are you proposing the state should euthanise them?

Alphabet1spaghetti2 · 22/10/2026 22:56

@EveningSpread totally agree.
As a society we really do need to think about how people age and death as a package. It comes down to quality versus quantity in my view.
I still regret allowing myself to be persuaded to let the consultant fit a pacemaker to my elderly (91) mil who was already in a care home with advanced dementia. Caused her a lot of distress and prolonged her life to a point it wasn’t a life (not that it was much being in a home anyway), just a being existing.
There is a good reason pneumonia was known as an old man’s friend.

HappyViewer · 22/10/2026 22:56

GETTINGLIKEMYMOTHER · 22/10/2026 22:54

It’s up to relatives who have P of A, to decline life saving or life prolonging treatments , if they don’t think it’s in the person’s best interests. I have done this for an aunt in her late 80s, with dementia, who was refusing food and drink after the umpteenth UTI. The GP agreed that treatment was not in her best interests, and I knew that letting her go was what my aunt’s former self would have wanted.

I’ve done this with my 75 year DM with advanced Dementia. She’ll never go to hospital , receive treatment for cancer or a stroke etc.

The situation is much more difficult when the elderly person has capacity.

GETTINGLIKEMYMOTHER · 22/10/2026 22:54

PropertyD · 22/10/2026 19:25

both parents had respect forms but hospitals and doctors will often throw everything at these elderly people because they don’t want to be accused of ignoring them.

So we just plod on.

It’s up to relatives who have P of A, to decline life saving or life prolonging treatments , if they don’t think it’s in the person’s best interests. I have done this for an aunt in her late 80s, with dementia, who was refusing food and drink after the umpteenth UTI. The GP agreed that treatment was not in her best interests, and I knew that letting her go was what my aunt’s former self would have wanted.

JudgeJ · 22/10/2026 22:52

Advocodo · 22/10/2026 19:33

I think these elderly people are going to bankrupt the country. I don’t mean to upset anyone but it should be quality of life rather than quantity.

Your sentiment didn't need the first sentence, it's clear from it that all you care about is the financial aspect, not the quality of life.

AInightingale · 22/10/2026 22:52

It's pretty simple - every ailment treated aggressively with antibiotics (and screw the rest of us who need them to work in years to come), vaxxed to the hilt, calorie-dense purees and drinks spooned in. And long-term use of other drugs for HBP, statins etc. And doctors who are terrified to make what used to be compassionate decisions about letting nature take its course, and who need to leave a paper trail showing that they have done everything possible to keep that person alive.

Houseyhope · 22/10/2026 22:49

Advocodo · 22/10/2026 19:33

I think these elderly people are going to bankrupt the country. I don’t mean to upset anyone but it should be quality of life rather than quantity.

I disagree. But the future generation will, who have signed houses and assets over to their kids but will expect care from the state…

seahorsessky · 22/10/2026 22:35

Doing the "right" thing or not doesn't seem to make that much difference. Some people far younger than that have severe health issues and are in agony, while their lifestyles were far better than some older people who seem healthy. Luck has a lot to do with it. And if more people thought that, we might live in a country which allowed euthanasia.
Also remember that if you're talking 90 year olds, the food they ate (probably) had more nutrients, and they had far less sugar, and moved much more in their youth than most of us. Surprises me you say they never smoked or drank, but then, they'd have been less likely to binge drink than, say, people born in the eighties.

Awkwardisfunny · 22/10/2026 22:33

Theworldismybuffet · 22/10/2026 22:23

Very elderly, chairbound people are not having a "natural life process". Usually cancer, heart attack or pneumonia will have seen them off. I know an 80yr old with early stage dementia who was given a pacemaker.
Modern medicine is amazing but sometimes it seems to go too far.

Exactly this!! We keep people alive so long (to work) and then forget that we were never meant to be that old in the first place.

Fair sensitivity warning ⚠️

Are we really supposed to look like we are half corpses already by the time we go in the ground?? Doubtful.

OrangeFlower14 · 22/10/2026 22:31

@HoppityBun are they on a lot of medications that will keep them going to some extent

Fernsarethebestplants · 22/10/2026 22:29

pandora206 · 22/10/2026 22:28

Have a look at Hospice Nurse Julie on Youtube.

One of her videos is entitled I'm a Hospice Nurse. Here's what I'd do if I got dementia and is an eye opening prompt to really plan end of life care before losing capacity. This includes making choices about being intubated, tube fed, treated for infections, etc. as well as resuscitation.

Watching it has given me a lot to think about.

Edited

I love Hospice Nurse Julie, so much fantastic information on end of life care and she's just such a lovely person. We could all do with Hospice Nurse Julie towards the end. I'll check out her videos on decision-making.

Awkwardisfunny · 22/10/2026 22:29

mumumental · 22/10/2026 22:12

My Mil is well over 90 and wouldn’t want to die at all. There’s a lot of generalisation on this thread.And end of life is not for the convenience of relatives.

Edited

I don't think anyone is talking about your MiL.

pandora206 · 22/10/2026 22:28

Have a look at Hospice Nurse Julie on Youtube.

One of her videos is entitled I'm a Hospice Nurse. Here's what I'd do if I got dementia and is an eye opening prompt to really plan end of life care before losing capacity. This includes making choices about being intubated, tube fed, treated for infections, etc. as well as resuscitation.

Watching it has given me a lot to think about.

Fernsarethebestplants · 22/10/2026 22:27

mumumental · 22/10/2026 22:12

My Mil is well over 90 and wouldn’t want to die at all. There’s a lot of generalisation on this thread.And end of life is not for the convenience of relatives.

Edited

I think there is sometimes a bit of a plunge in quality of life, not always, but my Grandma looked great at 91, 92, mobile, able to laugh, chat, socialise a bit, slow moving but still moving, able to be part of life.

Once you are bed bound, having pressure sores, incontinent and so on, as well as losing sight/hearing, cognitive decline, any of these can tip what was a very enjoyable old age into something to be endured.

It's fab if your mum still enjoys living her life, I think what's being discussed here is a step on from that which is where it's just not possible to enjoy life in quite the same way, I would find being doubly incontinent and bedbound pretty unbearable, and having to have carers clean and shower me, very unpleasant; I'd also find not being able to speak or communicate easily very difficult which is what happened to my gran, having been chatty up til her early 90s.

pavillion1 · 22/10/2026 22:24

I work in care .. you wouldn’t treat animals how humans treat other humans .. how do we get it so wrong 😢

runnerducky · 22/10/2026 22:23

My 93yo granny is like this and it’s awful. She tells my dad she doesn’t want to be here any more every time he visits her in her home, she is almost entirely bedbound, does nothing, enjoys nothing, but lingers on. When my mum died a few years ago, she kept saying ‘It should have been me’. It’s horrible. It will be a relief when she goes. For her as much as anyone.