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Elderly parents

How long can people live like this?

414 replies

HoppityBun · 22/10/2026 19:07

This might seem callous, but I don’t mean it to be. The thing is, I’m bewildered about how long elderly, bedbound people in their 90s can continue to exist. I’ve got several relatives in this situation. One I know wishes that she had died several years ago: I know because she says so when her children aren’t around. One of the other others, actually it’s hard to tell but she focusses on the next meal, or tea, or sweets, and seems ok. Has a few UTIs and once had a very low breathing rate but was revived. The other, seems to be ok, but at other time seems to be sad and has twice commented that they “just wanted to be all over“.

They’re all in nursing homes, all mid 90s, all bedbound and I just don’t understand how it is that they continue to survive when they are not eating much and not getting any exercise. This has been going on since 2020 for one of them and 2-4 years for the other two.

It seems extraordinary to me and, to be honest, it’s getting family members down. I suppose it’s anticipatory grief, which we’re all warned against.

I’d be interested to know because the way things are going they could all live for another five or six years it seems to me. Gradually declining and getting thinner and paler, but just sort of existing. I don’t want that for myself and I hardly recognise them when I look at them, for the people they used to be. Has anybody else come across this? It’s particularly extraordinary because they’ve lived lives that I would have thought are contrary to all we told about healthy living. Granted, none of them ever drank or smoked, but none took any exercise that I remember. Yet still they are here.

How can the body go on existing?

OP posts:
HelenaWaiting · 23/10/2026 03:55

PigletJohn · 23/10/2026 02:40

I knew a person who suffered very bad health and was put on tbe pain reduction pathway which was basically doses increased daily with no food or water until she lost consciousness and died.

I also knew a person with terminal cancer who made all the necessary arrangements and accidentally took a fatal overdose of morphine when it got too bad.

It is quite normal for people to want to die in their own homes while they still can. Sadly this option is often taken from them.

Have you any idea how horrific being starved to death is? Because that's what happens on these end of life pathways.

GarlicEverything · 23/10/2026 03:19

No flippin' idea why my reply was hidden!

I can't be bothered to submit a query - will wait and see whether it reappears. It says something, though, if fellow posters are offended by the idea that choosing death for someone else may not be morally desirable.

GarlicEverything · 23/10/2026 03:15

Glitchymn1 · 23/10/2026 03:05

What about the ones who are in constant pain, discomfort or just plain bored, unable to move, sore from existing. Some want to go, I know I will. I wouldn’t want to spend a decade in that condition.
My aunt is in relatively good health, married, she’s 90 but she’s said she’s had enough, she’s tired and waiting to go. I think people should be able to choose, not kept alive because it’s more palatable.

With apologies for my bluntness, your aunt could deal with this herself if she was deeply serious about it.

I may as well add that, 20 years ago, I'd have said the life I lead now would be intolerable and would've entertained the thought that I'd rather not live like 'that'. Turns out it's okay. Objectively, I don't like it. But I am living it - and would rather this than have no more tomorrows, ever.

Glitchymn1 · 23/10/2026 03:05

FashionPassion · 22/10/2026 19:46

They deserve to live their lives out just because the thought (or cost) of their death is upsetting to others.

What about the ones who are in constant pain, discomfort or just plain bored, unable to move, sore from existing. Some want to go, I know I will. I wouldn’t want to spend a decade in that condition.
My aunt is in relatively good health, married, she’s 90 but she’s said she’s had enough, she’s tired and waiting to go. I think people should be able to choose, not kept alive because it’s more palatable.

SparkleHorse82 · 23/10/2026 03:02

midnight4 · 22/10/2026 20:19

Caring for someone who is disabled can become a burden. We can’t pretend it doesn’t affect people.

Of course not. But we can avoid suggesting that the lives of those doing the support work - who are indeed affected - are more valuable than those who need the support.

GarlicEverything · 23/10/2026 02:59

PigletJohn · 23/10/2026 02:59

"It should be noted that the vast majority of patients 'put out of their misery' by doctors acting illegally are older women."

You don't think it's because men habitually pop their clogs at a younger age?

No, they pop their clogs in similar fashion.

PigletJohn · 23/10/2026 02:59

"It should be noted that the vast majority of patients 'put out of their misery' by doctors acting illegally are older women."

You don't think it's because men habitually pop their clogs at a younger age?

GarlicEverything · 23/10/2026 02:56

PigletJohn · 23/10/2026 02:40

I knew a person who suffered very bad health and was put on tbe pain reduction pathway which was basically doses increased daily with no food or water until she lost consciousness and died.

I also knew a person with terminal cancer who made all the necessary arrangements and accidentally took a fatal overdose of morphine when it got too bad.

It is quite normal for people to want to die in their own homes while they still can. Sadly this option is often taken from them.

Except you've just described two cases where this option was exercised.

I recognise that it is more difficult than it used to be, for which we may thank Harold Shipman and a few subsequent 'healthcare' professionals who took on the power of death rather too willingly. I know this is under Parliamentary review and very much hope they'll arrive at a set of workable but safe protocols. There's still some compassionate scope for doctors, though, as evidenced by many people's experiences including my own mother's.

It should be noted that the vast majority of patients 'put out of their misery' by doctors acting illegally are older women. It looks like an unused vagina makes us even more worthless than a redundant penis. Plus ça change ...

PigletJohn · 23/10/2026 02:40

I knew a person who suffered very bad health and was put on tbe pain reduction pathway which was basically doses increased daily with no food or water until she lost consciousness and died.

I also knew a person with terminal cancer who made all the necessary arrangements and accidentally took a fatal overdose of morphine when it got too bad.

It is quite normal for people to want to die in their own homes while they still can. Sadly this option is often taken from them.

OnlyClothes · 23/10/2026 02:30

We don’t talk about medical interventions, quality of life, withdrawing treatment, advanced health documents (?) enough. The legal documentation is too lengthy, and too expensive.

There should be regular programmes, The One Show and breakfast tv etc should have bits every six months, get people talking about it like it’s normal, not an ‘unpleasant’ thing to talk about. When interviewing celebrities, ask them what they think, let it become something in everyday conversations.

Otherwise it’ll carry on, elderly people with no quality of life just suffering.

And people saying ‘ooh look at Margaret, isn’t she wonderful?’ And Margaret cannot see enough to read or watch tv, cannot hear enough to listen to anyone, is lonely, no children, husband died, niece too busy, nephew far away, and she just wants to close her eyes and fade away. And we are falling over ourselves to ensure she lives as long as possible. Why? It’s cruel.

GarlicEverything · 23/10/2026 02:23

IamtheDevilsAvocado · 23/10/2026 01:25

À friends mum-who was absuive to all her kids... Blew through over a million quid on care...

That's an interesting comment. You seem to be saying that nasty people should be prevented from spending their own money on their own healthcare.

Does this mean you'd like to see an old woman forced to die early and painfully, so the children she failed as a mother can get their hands on her money? Seems like a twisted idea of justice to me. What's the price of a good mother, and how would blood money have improved their long-gone childhoods?

If that is the reasoning, I'm curious as to how you feel the adult children of abusive mothers without money should be treated.

itstooorangeyforcrows · 23/10/2026 02:19

midnight4 · 22/10/2026 20:16

@FashionPassion We are making some people live too long.

Killing them without their consent is not the answer to that. If society starts saying it's fine to kill people once they're perceived as a burden, where does it end?

(And I know you didn't say we should kill them, it's just difficult to see where else the conversation could lead, once people start talking in terms of people being burdens who live too long.)

Boreded · 23/10/2026 02:10

HoppityBun · 22/10/2026 20:12

But that’s not what I’m discussing

Poster has their own agenda, don’t worry about it too much.

My dad asked me on more than one occasion to help him end his life, it isn’t about wanting to make it easier for people around them, or about us waiting for them to die…these are people who want to die. They’re old, frail, in pain…they’re basically dying an incredibly slow death, often trapped in their own minds at the end (my dad was). It is really sad and unfair that they have to live that way when they don’t want to.

snackatack · 23/10/2026 02:10

FashionPassion · 22/10/2026 19:46

They deserve to live their lives out just because the thought (or cost) of their death is upsetting to others.

We have to focus on quality, not longevity.

You can refuse to let them have antibiotics and put them on a 'pain reducing' path, so with a UTI - they just get pain reduction.

I honestly think we keep people alive, and I do wonder if it is for profit, it is certainly not for life quality.

MermaidMummy06 · 23/10/2026 01:55

The thing is, the medical professional has to keep them alive. My FIL almost died earlier this year. He's been very unwell & can't even use his legs, toilet himself & can barely lift a spoon. They revived him & said right, off to age care. He can't do anything for himself & never leaves his room. It's admittly a huge drain on us & all his money has been eaten in care fees already. He will likely live for years like this if they keep reviving him. No quality of life, just endless medical intervention, drugs & begging for a carer to take him to the toilet. They've gotten sick of it so he's got a permanent catheter.

My GM, at 101, was begging to die and crying as they were saying another feeding tube down the throat for you..... as she could no longer eat & was literally vomiting feaces. Thankfully she passed before the last tube.

What's the point? Where's the dignity?

BruFord · 23/10/2026 01:44

CharSiu · 23/10/2026 01:00

My Father refused treatment for cancer in his eighties as he had in his words lived long enough. I found his strength and resilience amazing really. The hospice nurses were fantastic at keeping him comfortable.

@CharSiu It wouldn't surprise me if my Dad (88) decides one day that he'll stop taking his medication, because he's ready to go. He's got various conditions and would likely have a heart attack or stroke without medication. He has a DNR so that would probably be the end.

I think it's perfectly reasonable to assert our agency as your Father did and if we don't want treatment, we should refuse it.

IamtheDevilsAvocado · 23/10/2026 01:25

GarlicEverything · 23/10/2026 00:45

They won't put her in a care home though because it'll rinse the inheritance

That's the quiet part people won't say out loud.

À friends mum-who was absuive to all her kids... Blew through over a million quid on care...

HelenaWaiting · 23/10/2026 01:18

Threads like this make me heave. We have looked after our foster son (severely disabled from birth) for over 20 years. He isn't a burden and he isn't sad. He just has a quieter life than most people. It's the thin end of the wedge when we normalise views about people being burdens.

FWIW, I believe the Assisted Dying Bill failed because open discussion about it was prohibited. When you tell people who feel uneasy or have questions that they are shameful, you're just shutting them up, in which case you don't deserve to get your bill through Parliament.

GarlicEverything · 23/10/2026 01:14

@LazyCrazyAndStupid - why is your father still at home, taking so much out of your mum?

Newmeagain · 23/10/2026 01:12

Remaker · 22/10/2026 23:50

My mum is 91 and lives in a care home. She’s mobile, eats a normal diet, reads voraciously and enjoys visits with her family. Her neighbour is 100 and still enjoying life. I know couples in their 90s still living independently, exercising and discussing world events.

I live in Australia and discussions on MN about ageing always leave me bewildered and often disturbed. Both by the sheer numbers of elderly people apparently living years of misery begging for death and how rapidly the conversation always veers to financial cost and assisted suicide.

My thought exactly. I find these threads really disturbing. My parents (in Australia incidentally) are in their 70s and 80s and leading a very active life. I am in the U.K. but have quite a lot of elderly neighbours in their 80s and 90s who also live independently, going on holiday, etc.

what are we proposing - that as soon as they start declining, it’s a lethal injection? Shall we also do that for severally disabled younger adults and children who need round the clock care?

LazyCrazyAndStupid · 23/10/2026 01:08

FashionPassion · 22/10/2026 20:12

I don't think I'm derailing. I read that you have decided their quality of life is poor and struggling to understand how or why it continues.

IMO, the way you've positioned your thoughts is why the discussion has evolved the way that it has.

Again, what is it you suggest as a solution? What do you want others to say? Do you wish for them to not die naturally? Is it upsetting for you to see it or experience it? Do you wonder if they are okay dying this way even if you're not?

I think we need re-educated about what it means to age and die. Someone in their 90s isn't going to be posting on MN, if unable, and it is perfectly normal that they are as they are towards the end of their life.

It seems that this fact is not acceptable to you and I'm trying to understand what you think would be more appropriate if you are offended by the natural end of life process.

Edited

There is no good solution. My dad is 89 now and for the past 3 years has had Parkinson's and lewy body dementia. I wouldn't wish it on my worst enemy. Till then he used to be so active and full of life. Now He can't walk independently (or do anything for himself), he is practically blind and now his hearing is going. He doesn't enjoy any of the things he used to love. He refuses to get out of bed till late at evening. He has constant body aches. He has got terrifying and terribly upsetting paranoid delusions and hallucinations. He is convinced my mum is having multiple affairs and that his nurses are trying to kill him. My mum lives in hell because he keeps calling her every minute and accusing her in very graphic details. Every day he cries that he just wants to die. He doesn't respond well to medication. It's no life, worse, he is trapped in a nightmare that he can't wake up from but what can you do? Nothing. His body is strong otherwise. He could keep going like this for years. The worst is there is no way out from this except for dying. What a scary thought that must be. It cannot get better. My heart breaks for my parents but there is no good solution. Maybe if he had a doctor that cared enough to find a sedative that would allow him to just sleep but that is the best you could hope for and even that is not a possibility. As I said there is no good solution but how on earth are you meant to accept this?

CharSiu · 23/10/2026 01:00

My Father refused treatment for cancer in his eighties as he had in his words lived long enough. I found his strength and resilience amazing really. The hospice nurses were fantastic at keeping him comfortable.

KeefTeef · 23/10/2026 00:55

midnight4 · 22/10/2026 20:09

We often don’t have the time for the “burdens”. If you are working full time and have dependent kids it is very hard to cope with the demands of very elderly relatives.

Then we need to have a good hard look at our priorities.

Our elders aren't clutter at the edges of our lives and a person doesn't become less human because they lose physical or mental faculty.

We all benefit from advances in medicine that mean we don't die from things that would have killed us 50 years ago. The payoff for that is that we're all living longer. You can't have one without the other and I don't know what the answer is but I do know that some kind of Logan's Run scenario isn't it. Maybe if we get ourselves a proper health and social care system, then things would look a bit different.

GarlicEverything · 23/10/2026 00:45

They won't put her in a care home though because it'll rinse the inheritance

That's the quiet part people won't say out loud.

ChangedName010 · 23/10/2026 00:43

A friend of mine was caring for her elderly grandfather who was bed bound and needed antibiotics for recurring infections. The GP finally said "At this point you're prolonging his death rather than prolonging his life" - they agreed no more antibiotics and he slipped away peacefully a short time later.

A woman who lives nearby me is 104 years old. She is in her house bed bound, no quality of life. Carers go in, plate a sandwich for her (don't make sure she is able to reach it much less eat it) and that's that. She's on a hospital bed that is lowered to the floor mostly but raised to change her. She has four children who frankly don't bother with her and instead call her cleaner to assist her instead of making proper arrangements or helping her themselves. That's no shade to cleaner but it shouldn't be dumped on her (and it is). They won't put her in a care home though because it'll rinse the inheritance dry and can't be having that.