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Elderly parents

Literally no one understands my reluctance to do personal care

358 replies

bringincrazyback · 25/09/2026 17:55

I just want to put that there for now, really, because this board has been just about the only place where people haven't made me feel like a strange/cruel person for saying that emergencies aside I want my DM's carers to handle her personal care (she lives with me) and I can only really get involved if it's needed at times outside of carer visits. Just been through it yet again with one of the carers this afternoon, and yet again I've been met with looks of incomprehension. It makes me feel so annoyed (especially as this never happens to men) but also ashamed that this is how petty and grudging I seem to be over some things. But feeling ashamed doesn't change the way I feel, unfortunately.

Is it reasonable for me to have this boundary (taking into account that I'd never leave my mum without personal care if she needed it), or do I just need to get over myself as a lot of people seem to think?

Sorry, just a quick vent for now as I need to see to DM now the carer's gone, but just needed to put this somewhere, just as a request for some empathy I guess, as I know some on here do understand it. (The only person who understands is DH, but of course if this ever happens to him with his mum he'll never be expected to do it anyway, being a man!) I'll add context later. Thanks for reading.

OP posts:
Rottweilermummy · 28/09/2026 08:22

You are most definitely not being unreasonable and you are not alone i have known lots of women who can't do personal care. I work as a carer so see it all the time I did care for my mum, personal care too but I also know people who do care work but draw the line st their own parents personal care. There is no law that you should do it. Sometimes you have no choice in emergency you wouldn't leave your mum in discomfort. But that doesnt mean you have to do it all the time. Thats what carers are paid for. . There is a great FB group called caring for elderly parents if you are in UK but if not I expect there will be one for your country

T1Dmama · 27/09/2026 23:40

bringincrazyback · 25/09/2026 22:45

So a bit of context to answer some of the questions pps have asked. We're self-funding (for now, anyway, not sure how long for though as we are upping the care hours) We have a self-employed carer some of the time, she's by far and away the best one we have, my mum likes her and we're currently looking at increasing her hours, as the rest of the time we have carers from a care company and as well as being bloody expensive it's been very problematic logistically for a ton of reasons I wouldn't want to bore anyone with. The carers themselves are mostly fine, they seem like pleasant people etc, they do what they're briefed to do (mostly) and I have a lot of respect for them. I couldn't do their job and I'm grateful there are people out there who will do it.

But I always seem to find that when a new carer comes in (i.e. a lot, the company seems to be having major staff retention issues atm), they will often seem puzzled as to why we have carers when I'm 'right there in the house' (as it was put to me once). I work, but from home, and we all know how that gets trivialised. I have various health issues (RA and chronic fatigue being the main offenders but not the only ones) which won't be apparent to the carers, but which mean I can't do everything. Even if I didn't feel the way I do about personal care, I'd be physically unable to give it on a daily basis.

Apparently, in addition to the puzzled looks, one or two of the carers have been asking my mum things like where am I (my mum has her own part of the house, and my husband and I live and work in a different part) and why aren't I looking after her/don't I ever look after her. (To be clear, I do everything that's needed between carer visits.) Unfortunately due to my mum's Alzheimer's she can't often remember people's names or exactly when things occurred, so I can't realistically challenge the carers on anything that might have been said, but my mum is still lucid a lot of the time and I believe her. I've also noticed tasks they are supposed to do being left undone by certain carers, and rightly or wrongly I'm getting a vibe of 'she can do it herself, the lazy mare, she's right here in the house.' As I mentioned upthread, I simply cannot imagine these assumptions/expectations being placed on a man.

My mum has always been desperate not to go into a home, and I'm doing my best to see to it she doesn't have to. I've also spent the past ten years caring for one or both parents at different times, I've been in varying degrees of burnout so long I can't even remember when it started any more (I do have some support in place as well as the increased care hours), and day-in-day-out personal care is simply not something I can do on any level. I'm really grateful to those on this thread who have empathised, and tbh I'm pleasantly surprised how many people there are out there who feel the same way about this! I do feel there's a bit of a taboo around not wanting to do certain things for an elderly parent, they brought you into the world, etc etc. What doesn't help is that some people in my life tend to romanticise the fact that I'm caring for my mum at home, which makes me feel like a fraud - I don't personally feel I should get a halo or a Blue Peter badge for it, I'm just doing what's necessary and a lot of the time I'm not very good at it tbh. But I'm doing my best. Thanks again to those who've posted supportively and with understanding.

First of all - don’t you dare speak down what you do do for your mum!… Just because you don’t do personal care, everything that you do is still extremely tiring!

You are paying for a device and don’t be afraid to complain if the carers are not doing everything you’ve asked them to do, or if they are treating you badly! It’s so easy to stick your relatives in a care home, like almost every other family does!… you have taken your mum in and you look after her 24/7, with the only time you can truly relax and be off duty is when her carers are there!! Take credit where credit is due!!

My nan is 100, she moved in with my parents almost 3 years ago… I’ve seen how draining it is, I sit with my nan as much as I can so mum has a break, we (me and mum) do personal care on her as it’s just physically impossible to have carers there everytime she poo’s…. It’s awful though… my nan isn’t completely in control and thinks she’s finished when she hasn’t, so there have been occasions where my mum has been mid wipe and my nan has poo’d on my mums hand!!
There is nothing nice about doing personal care, no one wants to do it, my mum has had to, and I have to in order to give my mother a break… but I wouldn’t judge anyone for not doing it unless absolutely necessary…
Obviously at some point you might have to wash her if she messes and the carers aren’t due for several hours ?!….

It sounds like you need to pay for private carers of your choosing (you already have one) and cut out the middle man… carers get minimal money out of what you actually pay the agency…. I’ve heard it’s £45 an hour and the carer gets £15!

Apart from me my mum gets no help at all, we recently put nan in a home for 2 weeks for respite for my mum, but that was horrendous and I can’t describe what they gave my nan as ‘care’ because whenever we visited without giving notice they’d left her in bed and we assume by her weight loss that they didn’t get her up for meals.

Caring for elderly relatives is really hard… don’t let anyone diminish that… even without personal care, it’s hard! My nan also has Alzheimer’s and it’s REALLY hard… she shouts out day and night and my mum is literally on call 24/7… it’s taking years off my parents!!!

LilyBunch25 · 27/09/2026 23:23

bringincrazyback · 27/09/2026 22:54

So you're now trying to order me off my own thread. Just wow.

Keep right on embarrassing yourself if you like, just know we see you.

I wouldn't bother to respond to this poster any more OP- they have nothing to contribute, that's clear, but I'm sorry they felt it was acceptable to resort to these kinds of comments. MN deletion on earlier comments obviously hasn't deterred them.
Overall it's good that you've received some actually constructive and empathetic input on here, so hopefully it's still been helpful.

bringincrazyback · 27/09/2026 22:56

AnnoyedAsAllHeck · 27/09/2026 20:49

I will very much say I do not have the ability to be any adult's carer.
I cannot deal with the 3 P's at all. I was barely able to handle my children's; so there is no way I could deal with an adult's.
I totally admire those that can do so. They are heroes in my book.

I'm slightly embarrassed to say that it took me a moment to work out what the third P was. 😄

OP posts:
bringincrazyback · 27/09/2026 22:54

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So you're now trying to order me off my own thread. Just wow.

Keep right on embarrassing yourself if you like, just know we see you.

OP posts:
SallyAnnDrivesACar · 27/09/2026 22:47

Just stop doing it ffs - you can't do it, that's totally fine. It's okay.

My mum lives 5 minutes from me and my sister. I won't do it. No emergencies, no help. In fact I'll go as far to say I won't help her at all. I'll visit 3/4 times a week but I'm not doing anything than make her a coffee.

She has carers in for that.

withoutwingsnow · 27/09/2026 22:27

maxslice · 27/09/2026 22:20

You don’t know me. Stop pretending you do.

Your unfounded inexperienced judgement has said everything. I hope you find healing and stop projecting you hurt on others.

maxslice · 27/09/2026 22:23

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bringincrazyback · 27/09/2026 22:21

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mean spirited and judgemental about any opinIon that differs from your own

Oh, the irony.

OP posts:
maxslice · 27/09/2026 22:20

withoutwingsnow · 27/09/2026 22:08

You don’t know what you’d have done because you sadly didn’t have the choice or opportunity too decide - your views are fantasy choices and your judgements are cruel and unnecessary - off you pop to a thread where you can contribute to a thread where you have some experience to share.

You don’t know me. Stop pretending you do.

withoutwingsnow · 27/09/2026 22:08

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You don’t know what you’d have done because you sadly didn’t have the choice or opportunity too decide - your views are fantasy choices and your judgements are cruel and unnecessary - off you pop to a thread where you can contribute to a thread where you have some experience to share.

LilyBunch25 · 27/09/2026 21:10

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I know you've never cared for your parents because you made that clear in your post, which is why you are now coming back with the 'don't know anything about your life' defence- again you cannot empathise with issues surrounding care for parents, so I categorically insist you can't empathise with the OP but, worse, you were unbelievably judgemental and harsh towards them as well. It is a shame you have to now resort to plain abuse and language because you were the one called out on your nastiness to someone yesterday. Your opinion was based on no experience of caring for parents. Mine was. If you think I found some kind of entertainment for feeling you should apologise for hurtful comments to another human being, you are completely judging me by your own standards.
You will get absolutely no other direct response from me.

maxslice · 27/09/2026 20:56

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AnnoyedAsAllHeck · 27/09/2026 20:49

I will very much say I do not have the ability to be any adult's carer.
I cannot deal with the 3 P's at all. I was barely able to handle my children's; so there is no way I could deal with an adult's.
I totally admire those that can do so. They are heroes in my book.

MrsJeanLuc · 27/09/2026 13:18

@bringincrazyback I just want to add my voice to those agreeing with you.
I think any attitude or comments from carers should be sharply cut off - it's very unprofessional of them.
Surely the whole point of having carers is to free you to be her daughter.

I am in a similar position with my 97 year old mother - we reluctantly moved her into a care home earlier this year.

My mother would HATE to have me do personal care for her. She is a very private person and hates any help with personal care tbh (and can be very short with the carers if they step out of line 🙂).
But the point is, if someone else does the personal stuff she can sort of close her mind to the indignity of it, whereas if I do it then that invasion of her privacy is there between us.

Rosscameasdoody · 27/09/2026 10:48

maxslice · 26/09/2026 21:17

It was. And OP is free to make her choices. Mine may be affected by having my father die when I was five. Probably my brother and I were closer to our mother afterward than many people. We would have chosen to do personal care for her whether we liked it or not. We agreed on this when she got ill. It never became necessary. OP must do what she considers best. There is a difference between understanding other people’s choices and endorsing them.

And you will never know whether, when it actually came to it, you would have been able to provide that personal care. Because the reality of the nature of that care is very different to anything you could possibly imagine - and you can’t possibly know how, or even if, you would cope until you actually face that reality.

Rosscameasdoody · 27/09/2026 10:45

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This is a dreadful post and you really should be ashamed of yourself. Like OP, I’m disabled and chose to look after my mum at home - as OP is doing. My motivation was similar to that you’ve described - I wanted to pay something forward for the way mum cared for me and the difficult time she had during my extended years of dependence. I couldn’t have done it without a mix of personal and local authority care - are you going to judge me by your standards too ? You didn’t provide personal care to anyone, so l think my advice to OP upthread applies. Ignore the detractors. Anyone who isn’t offering help or advice is a hindrance and best ignored.

bringincrazyback · 27/09/2026 10:34

Just popping my head round the door to say I'm still here and reading. Difficult day for DM yesterday as she had a bad IBS flare and needed lots of support, so I didn't get online much but I've been reading the replies and there is so much in here that resonates with me, I'm glad I posted. I've got some more replies to questions people have asked me, so I'll post more when I get a quiet moment.

OP posts:
Nannyfannybanny · 27/09/2026 10:17

Reading with interest.I haven't read every post.I wondered if anyone would give personal care to an adult DD,who was ill, pregnant or in labour. (I ended up with this situation last year , and I don't like watching women giving birth)My late DM, came to live with us after serious cancer surgery.. She had a colostomy.I did personal care.Maybe it was different for me, because I was nursing (over 40 years) only child, she didn't "expect" it,it was offered. There are aspects I don't like,there were times at work, I was forcing myself not to vomit.

FlatWhiteExtraHot · 27/09/2026 08:53

GnomeDePlume · 25/09/2026 20:21

I'm fortunate that DM is in a care home. I totally get what you are saying.

My DM has vascular dementia and is doubly incontinent. When her pad needs changing I make myself scarce.

IMO maintaining this distance is important for her and me. My DM was very private about these matters. Before dementia claimed her she would have been mortified by her current situation.

I think this is an important point. When my mother was her previous self, she would have been mortified about a family member attending to her personal care, aside from my dad. Just because she had dementia didn’t mean she would suddenly want me seeing her naked or wiping her bum. The home she was in was brilliant about preserving the dignity of their residents and respecting what the residents would have wanted before. With my mum if there was any care to be done while we were visiting, they discreetly asked us to step out.

MummyWillow1 · 27/09/2026 08:01

My Mum is my Grandads full time
carer. They still get a carer in to do his personal care daily. Who wants to be cleaning their parents privates? My one of my aunts was a nurse for years and the other was a carer herself until she retired this year - they also don’t want to do his personal care despite having done it for hundreds of other people.

withoutwingsnow · 27/09/2026 07:32

maxslice · 26/09/2026 21:17

It was. And OP is free to make her choices. Mine may be affected by having my father die when I was five. Probably my brother and I were closer to our mother afterward than many people. We would have chosen to do personal care for her whether we liked it or not. We agreed on this when she got ill. It never became necessary. OP must do what she considers best. There is a difference between understanding other people’s choices and endorsing them.

I’m sorry for your loss losing a parent is very hard, your experience explains your lack of empathy - you have been deprived of being parented by your father throughout your childhood and you lost your mum abruptly without having the opportunity to care for her and that has left you a bit bitter. You have no idea what it takes to care for an elderly parent for years and you resent that you never got the chance and the privilege but you have no idea how well you would cope and how you would feel - you have fantasy notions of how you’d be and you judge others by your fantasy. And no one can compete with fantasy.

thepariscrimefiles · 27/09/2026 07:07

bringincrazyback · 26/09/2026 11:36

Oh yes, I quite agree. I'm a terrible daughter for striving day in day out, for the past TEN years overall, to keep my parents out of a care home.

I'm a terrible daughter for having them live with me in my home for the past twelve years. For doing practically everything for them, because I love/d them want/ed them here with me and DH, and consider it my duty to do what I can. (Incidentally, you're making assumptions about my mother's love and care for me as a child which aren't quite accurate, but I love her anyway.)

I'm a terrible daughter for pushing myself to do as much care myself as possible for the past seven years (and three before that as my father was leaving us),
because I want to preserve my mother's finances and therefore our choices in terms of outside care for as long as possible. Although with your attitude you probably assume it's about inheritance, which it isn't.

I'm a terrible daughter for putting my own health at risk from the stress of it all for too long, as health professionals have recently made me see. A terrible daughter for having one thing, one single thing, that I struggle with and have chosen to be honest about, and to reach out for help.

But hey, at least I haven't put her in a home, eh. I'm sure that thought will console me when I'm losing sleep (NOT) over what people like you think of me simply for having this one thing I struggle with and need help with.

Someone on this thread certainly ought to be ashamed of themselves. It isn't me.

Honestly, that poster is unbearable in their smugness and sanctimoniousness and they have broken Mumsnet posting guidelines by personally attacking you. The Elderly Parents board is supposed to be a safe space for posters who are struggling with providing care for elderly parents and in-laws. It's also very easy for posters to say that they would sacrifice everything to personally care for their parents and in-laws when they haven't been in your situation. I get really pissed off by the finger-wagging and judgemental posts.

LilyBunch25 · 27/09/2026 07:01

maxslice · 26/09/2026 21:17

It was. And OP is free to make her choices. Mine may be affected by having my father die when I was five. Probably my brother and I were closer to our mother afterward than many people. We would have chosen to do personal care for her whether we liked it or not. We agreed on this when she got ill. It never became necessary. OP must do what she considers best. There is a difference between understanding other people’s choices and endorsing them.

Therefore, as I suspected yesterday, you actually have absolutely no experience of the type of familial care we are talking about; I don't believe your 'endorsement' or otherwise actually matters to the OP. What matters to me however is that I believe you owe them an apology for your extremely judgemental and cruel comment of yesterday.

LynnThese4reSEXPEOPLE · 27/09/2026 05:03

Hi OP,

If you/your mother are paying for a service, and the service is that the carers do personal care, then that is what they should be doing. I would speak to the Care Manager and tell them that you are not doing it unless it is an emergency with no other options and the carers need to stop asking.

If/when your Mum qualifies for council care (and I hope she is getting attendance allowance which is not means tested), you can ask for a care needs assessment. You could ask for one anyway. Depending on your income, you might be eligible for Carers' allowance too, although I am sure you've looked into all this. No-one can legally compel you to care for someone else - even if you have LPA, your only obligation is to arrange their care, not perform it.

I am sorry you are going through this and I think you are entirely normal in wanting to maintain a loving relationship with your mum whilst not doing her personal care.