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Elderly parents

Literally no one understands my reluctance to do personal care

358 replies

bringincrazyback · 25/09/2026 17:55

I just want to put that there for now, really, because this board has been just about the only place where people haven't made me feel like a strange/cruel person for saying that emergencies aside I want my DM's carers to handle her personal care (she lives with me) and I can only really get involved if it's needed at times outside of carer visits. Just been through it yet again with one of the carers this afternoon, and yet again I've been met with looks of incomprehension. It makes me feel so annoyed (especially as this never happens to men) but also ashamed that this is how petty and grudging I seem to be over some things. But feeling ashamed doesn't change the way I feel, unfortunately.

Is it reasonable for me to have this boundary (taking into account that I'd never leave my mum without personal care if she needed it), or do I just need to get over myself as a lot of people seem to think?

Sorry, just a quick vent for now as I need to see to DM now the carer's gone, but just needed to put this somewhere, just as a request for some empathy I guess, as I know some on here do understand it. (The only person who understands is DH, but of course if this ever happens to him with his mum he'll never be expected to do it anyway, being a man!) I'll add context later. Thanks for reading.

OP posts:
GnomeDePlume · 25/09/2026 20:21

I'm fortunate that DM is in a care home. I totally get what you are saying.

My DM has vascular dementia and is doubly incontinent. When her pad needs changing I make myself scarce.

IMO maintaining this distance is important for her and me. My DM was very private about these matters. Before dementia claimed her she would have been mortified by her current situation.

suburburban · 25/09/2026 20:19

IDreamtOfManderley · 25/09/2026 18:27

My mum refuses carers and because she has capacity I can’t override that so I am involved with personal care. She has incontinence unexpected to clear up her accident. It really upsets me. I also have to go round and bath her once a week which I find so difficult. I don’t want to see my 92 year-old Mother naked . it’s really killing me.

You could say no though?

suburburban · 25/09/2026 20:10

I wouldn’t want to do it at all. Isn’t that what the carers are meant to do.

MiddleAgedDread · 25/09/2026 20:09

Absolutely not unreasonable, my mum knows we’re putting her in the nursing home down the road if she ever reaches that stage!

tsmainsqueeze · 25/09/2026 20:07

OP i am totally on your side and everyone else's who feel the same.
I can't describe the horror i feel at the thought of doing personal care for my mother, it makes my skin crawl.
I absolutely dread being the only person there should she need any personal care.
I could (i think ) and would help my adult children, possibly my husband and a couple of close friends but that's it.
I have always been squeamish with this kind of thing, no way would i want to make my children feel like this either, i do not want them ever helping me.
Any one putting pressure on you OP tell them to bugger off.

WestwardHo1 · 25/09/2026 20:06

Absolutely no way would I do personal care for my mum. Makes me feel nauseous just thinking of it. Quite apart from not liking her, I am also squeamish and very very aware of how I would feel if it were me.

maudelovesharold · 25/09/2026 20:05

AvengingAngle · 25/09/2026 18:28

I think this poster is referring to where the OP says this board is the only place where she hasn't been criticised for it - i.e. whoever is criticising her face to face or on other forums are the ones who won't have any personal experience of it.

Ah yes, you’re right, I misunderstood. Thought it was a strange thing to say! Thanks for setting me straight. 🙂

TheBlueKoala · 25/09/2026 20:05

@bringincrazyback I couldn't clean anyone's bottom tbh so yanbu. Have worked with young children and while it's never pleasant to change diapers it's not awful either whereas I just couldn't do it for an adult without vomiting. And I fully intend to end my life should I ever be in the situation that I would need that kind of help.

CaptainMyCaptain · 25/09/2026 20:00

Not at all weird @bringincrazyback I wouldnt want to do it and fortunately didn't have to with my parents. As an Early Years teacher I have cleaned up many small children but doing it for your parents is quite different.

If it came to it I would rather have paid carers attend to my personal care than my daughter.

CossyBunt · 25/09/2026 19:59

The carers do understand you but they are deliberately misunderstanding you because they are lazy cows or it means they might have to be replaced with carers who can deliver personal care. They will have an agenda and your best interests and those of your parents, will not be coming into it. Don’t let anyone shame you or emotionally blackmail you.

DungeonsnDragons · 25/09/2026 19:55

Totally with you OP

Wouldn't in a million years do this for a parent, and wouldn't in a million years have my kids doing this in the future

tsmainsqueeze · 25/09/2026 19:54

IDreamtOfManderley · 25/09/2026 18:27

My mum refuses carers and because she has capacity I can’t override that so I am involved with personal care. She has incontinence unexpected to clear up her accident. It really upsets me. I also have to go round and bath her once a week which I find so difficult. I don’t want to see my 92 year-old Mother naked . it’s really killing me.

She has no right to pressure you into doing this and at 92 this is only going to get worse and more demanding of you.
You need to sort this out ,put your foot down and spell it out , either she accepts help from professionals or sits stinking.
Don't let her do this to you , it is very unfair of her .

bringincrazyback · 25/09/2026 19:52

And incidentally @Awkwardisfunny as for 'no one bats an eyelid at changing a baby's nappy or even picking up dog poo' - speak for yourself. Plenty of people find those things unpleasant.

OP posts:
wontsomeonethinkofthechimdren · 25/09/2026 19:51

My mum would absolutely hate me doing this, she'd much prefer a professional carer if it came to that.

bringincrazyback · 25/09/2026 19:49

Awkwardisfunny · 25/09/2026 19:38

I used to think that but when it's your own or people you care about, it's different.

Your post is confusing. So, you do provide personal care when the carers are not in.. just not when they are. That's part of their job description so that's fine, but why are you saying that's your boundary, when you actually do it anyway when you have to?

Or do you secretly not ever do it and just don't want to be attacked on here for that.

I don't believe people when they say it's because it's a parent and it's too weird / a boundary - I'm not saying they're lying, they may well think that's the reason.. but no one bats an eyelid at changing a baby's nappy or even picking up dog poo. It's snobbery. You think you're above wiping someone's bum. Plain and simple. You're focusing on the wrong thing. Focus on your family member and being able to hold your head high knowing you helped them when they needed it. If they deserve it. I wouldn't do it for just anyone.

Are you kidding me?? What is your actual problem??

Regarding your second paragraph, for example re personal care I've never yet had to wipe my mother's bottom but I have had to clean the toilet/wash her clothes after an accident. She is currently not too bad at dressing/undressing herself and washing, so although I help her where needed if the carers can't make it, having to see her naked (which I'd prefer not to, my prerogative) when the carers aren't here hasn't come up yet. But, obviously, these things are likely to come up in the future. What I was trying to convey was that I am here to do what's needed in the absence of the carers, and will do what is needed, but that not wanting to commit to being the default person to do my mother's personal care is my boundary. Surely my post explained it clearly enough?

And as for calling me a snob and accusing me of thinking I'm above doing personal care, who the hell do you think you are?? You seem to have found my post triggering for whatever reasons of your own, but I'll be damned if I'll let you make me feel bad about myself after that little tirade. Enjoy your evening.

OP posts:
Aluna · 25/09/2026 19:48

I wonder why the carers you employ think these kinds of conversations are appropriate? Are they agency carers? It doesn’t sound like very unprofessional.

I’ve never had a carer who questioned me on my choices for my parents. It’s none of their business.

NiftyKoala · 25/09/2026 19:46

DemonsandMosquitoes · 25/09/2026 19:34

This.
I hope I don’t do it to my children. Put me in a home and live your lives.

I could not agree more. Over my dead body would I want my child to care for me. I tell mine find the best home my money can pay for without leaving you with nothing from my estate. Call and visit when you can but do not stop your life for me.

Thereisalight4 · 25/09/2026 19:42

Yes I didn’t want to do and didn’t do any personal care for my dad and wouldn’t for my mum - it’s enough be her support person in other ways

Awkwardisfunny · 25/09/2026 19:38

bringincrazyback · 25/09/2026 17:55

I just want to put that there for now, really, because this board has been just about the only place where people haven't made me feel like a strange/cruel person for saying that emergencies aside I want my DM's carers to handle her personal care (she lives with me) and I can only really get involved if it's needed at times outside of carer visits. Just been through it yet again with one of the carers this afternoon, and yet again I've been met with looks of incomprehension. It makes me feel so annoyed (especially as this never happens to men) but also ashamed that this is how petty and grudging I seem to be over some things. But feeling ashamed doesn't change the way I feel, unfortunately.

Is it reasonable for me to have this boundary (taking into account that I'd never leave my mum without personal care if she needed it), or do I just need to get over myself as a lot of people seem to think?

Sorry, just a quick vent for now as I need to see to DM now the carer's gone, but just needed to put this somewhere, just as a request for some empathy I guess, as I know some on here do understand it. (The only person who understands is DH, but of course if this ever happens to him with his mum he'll never be expected to do it anyway, being a man!) I'll add context later. Thanks for reading.

I used to think that but when it's your own or people you care about, it's different.

Your post is confusing. So, you do provide personal care when the carers are not in.. just not when they are. That's part of their job description so that's fine, but why are you saying that's your boundary, when you actually do it anyway when you have to?

Or do you secretly not ever do it and just don't want to be attacked on here for that.

I don't believe people when they say it's because it's a parent and it's too weird / a boundary - I'm not saying they're lying, they may well think that's the reason.. but no one bats an eyelid at changing a baby's nappy or even picking up dog poo. It's snobbery. You think you're above wiping someone's bum. Plain and simple. You're focusing on the wrong thing. Focus on your family member and being able to hold your head high knowing you helped them when they needed it. If they deserve it. I wouldn't do it for just anyone.

DemonsandMosquitoes · 25/09/2026 19:34

Parky04 · 25/09/2026 18:14

I refused to have DM live with me, let alone do personal care! She is in a care home which i visit regularly. I refused to ruin my life and the life of my DH and DC by being a carer! I didn't give a toss what anyone said, and there were a few disparaging comments! You already do more than enough by having her to live with you!

This.
I hope I don’t do it to my children. Put me in a home and live your lives.

bringincrazyback · 25/09/2026 19:27

Thanks so much everybody for such kind and supportive replies, and I'm sorry to hear what others are going through. 💐 I'm with DM atm but will reply properly when I get a moment. It really does help to hear it's not just me who feels this way.

OP posts:
Yourcousinrachel · 25/09/2026 19:19

IDreamtOfManderley · 25/09/2026 18:27

My mum refuses carers and because she has capacity I can’t override that so I am involved with personal care. She has incontinence unexpected to clear up her accident. It really upsets me. I also have to go round and bath her once a week which I find so difficult. I don’t want to see my 92 year-old Mother naked . it’s really killing me.

So what would happen if you, say, "hurt your back" and couldn't do personal care or bathing of your mum. She wouldnt be able to refuse carers then would she?

Im sorry either your mum is very unfeeling and selfish (to expect you to do it and not see why you are uncomfortable with it) or the idea she has capacity is misplaced. I see this in my own partner, going to help his mum all the time, for example, monday gp appt, tue exercise class, wed cleaner coming has to be there, going to make her sunday lunch every week. He has to make up the time with his work at the other end of the day or at the weekend. She thinks she has capacity (she does for some decisions) but in this one, no, she doesnt because she is simply unable to see past her own needs, consider his time, his lost income, his inconvenience, the impact on us as a couple.

Your mum sounds very similar. Her desire for you to step in does not mean you have to do it.

Sux2buthen · 25/09/2026 19:05

Itsabeast · 25/09/2026 18:51

I have made it very clear to my family that I don’t want anyone in the family to give me personal care …it’s called dignity!

My dad does it all for my mum. They are far from lacking dignity

Pallisers · 25/09/2026 19:05

IDreamtOfManderley · 25/09/2026 18:27

My mum refuses carers and because she has capacity I can’t override that so I am involved with personal care. She has incontinence unexpected to clear up her accident. It really upsets me. I also have to go round and bath her once a week which I find so difficult. I don’t want to see my 92 year-old Mother naked . it’s really killing me.

You can't override her but you can - and should - refuse to do the care instead. please don't ruin your life like this. Tell her you will not be doing it. If she has capacity then she can make and live with the decision. Ask someone to help you stand firm. Your life matters every bit as much as your mother's does.

IDreamtOfManderley · 25/09/2026 19:03

I have made it very clear to my children that if I need care in the future, I don’t want them to get involved in it. I would hate to see them going through what I’m going through.

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