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Elderly parents

Literally no one understands my reluctance to do personal care

358 replies

bringincrazyback · 25/09/2026 17:55

I just want to put that there for now, really, because this board has been just about the only place where people haven't made me feel like a strange/cruel person for saying that emergencies aside I want my DM's carers to handle her personal care (she lives with me) and I can only really get involved if it's needed at times outside of carer visits. Just been through it yet again with one of the carers this afternoon, and yet again I've been met with looks of incomprehension. It makes me feel so annoyed (especially as this never happens to men) but also ashamed that this is how petty and grudging I seem to be over some things. But feeling ashamed doesn't change the way I feel, unfortunately.

Is it reasonable for me to have this boundary (taking into account that I'd never leave my mum without personal care if she needed it), or do I just need to get over myself as a lot of people seem to think?

Sorry, just a quick vent for now as I need to see to DM now the carer's gone, but just needed to put this somewhere, just as a request for some empathy I guess, as I know some on here do understand it. (The only person who understands is DH, but of course if this ever happens to him with his mum he'll never be expected to do it anyway, being a man!) I'll add context later. Thanks for reading.

OP posts:
BotterMon · 25/09/2026 22:52

Carers do it everyday so for them it's normal. I'd just respond to them well you couldn't do end of year accounts (or whatever your job is) and I can't do your job.

Perfectly understand OP. In an emergency yes as you wouldn't want somebody to be uncomfortable in case of an accident, but not every time.

bringincrazyback · 25/09/2026 22:52

TeddyOatmeal · 25/09/2026 18:25

My late DM lived with my brother and had carers visiting to do personal care. We were all round one evening for her birthday and the carers arrived and asked me and my daughter if we wanted to do it. We were horrified and said no and received strange looks from them, After that if we were around when they arrived we immediately left the room even going in the garden sometimes.

Ugh, this sounds very similar to what I've experienced from certain carers. I think when we have new carers come sometimes they assume they are there to help me get my mum up/put her to bed, so I stay out of the way as much as possible - she doesn't need two people to do it anyway. I bet those carers wouldn't have acted like that if you and your daughter had been men.

OP posts:
hattie43 · 25/09/2026 22:47

I’m absolutely not being a carer for my mum in any capacity . She’s been a shit mother and will have to sort herself out

Lougle · 25/09/2026 22:46

@bringincrazyback I'm a bit confused by what's happening? Is it that carers are expecting you to do personal care while they are there, or is it that they are expecting you to do it in between their visits?

They shouldn't be making snide comments. If they have concerns that your DM isn't getting enough help with personal care between visits, they should be raising that her care needs seem to have increased and asking if you need more support.

Nobody has to do personal care. I was a nurse so it's not generally a big deal to me, but it is more difficult to provide intimate care to a loved one than someone you don't know.

bringincrazyback · 25/09/2026 22:45

So a bit of context to answer some of the questions pps have asked. We're self-funding (for now, anyway, not sure how long for though as we are upping the care hours) We have a self-employed carer some of the time, she's by far and away the best one we have, my mum likes her and we're currently looking at increasing her hours, as the rest of the time we have carers from a care company and as well as being bloody expensive it's been very problematic logistically for a ton of reasons I wouldn't want to bore anyone with. The carers themselves are mostly fine, they seem like pleasant people etc, they do what they're briefed to do (mostly) and I have a lot of respect for them. I couldn't do their job and I'm grateful there are people out there who will do it.

But I always seem to find that when a new carer comes in (i.e. a lot, the company seems to be having major staff retention issues atm), they will often seem puzzled as to why we have carers when I'm 'right there in the house' (as it was put to me once). I work, but from home, and we all know how that gets trivialised. I have various health issues (RA and chronic fatigue being the main offenders but not the only ones) which won't be apparent to the carers, but which mean I can't do everything. Even if I didn't feel the way I do about personal care, I'd be physically unable to give it on a daily basis.

Apparently, in addition to the puzzled looks, one or two of the carers have been asking my mum things like where am I (my mum has her own part of the house, and my husband and I live and work in a different part) and why aren't I looking after her/don't I ever look after her. (To be clear, I do everything that's needed between carer visits.) Unfortunately due to my mum's Alzheimer's she can't often remember people's names or exactly when things occurred, so I can't realistically challenge the carers on anything that might have been said, but my mum is still lucid a lot of the time and I believe her. I've also noticed tasks they are supposed to do being left undone by certain carers, and rightly or wrongly I'm getting a vibe of 'she can do it herself, the lazy mare, she's right here in the house.' As I mentioned upthread, I simply cannot imagine these assumptions/expectations being placed on a man.

My mum has always been desperate not to go into a home, and I'm doing my best to see to it she doesn't have to. I've also spent the past ten years caring for one or both parents at different times, I've been in varying degrees of burnout so long I can't even remember when it started any more (I do have some support in place as well as the increased care hours), and day-in-day-out personal care is simply not something I can do on any level. I'm really grateful to those on this thread who have empathised, and tbh I'm pleasantly surprised how many people there are out there who feel the same way about this! I do feel there's a bit of a taboo around not wanting to do certain things for an elderly parent, they brought you into the world, etc etc. What doesn't help is that some people in my life tend to romanticise the fact that I'm caring for my mum at home, which makes me feel like a fraud - I don't personally feel I should get a halo or a Blue Peter badge for it, I'm just doing what's necessary and a lot of the time I'm not very good at it tbh. But I'm doing my best. Thanks again to those who've posted supportively and with understanding.

OP posts:
BruFord · 25/09/2026 22:45

If carers are available to do your Mum's personal care, there's no reason why you need to. I help my Dad with showering when I'm visiting; when I'm not there, he has a carer helping him. Luckily, he can still manage his other needs. It doesn't bother either of us, but every family is different. I think my DH would feel v. awkward helping his parents with personal care.

Stick to your guns @bringincrazyback, you've arranged carers and your Mum's needs are being met.

maybemaybenot17363 · 25/09/2026 22:37

I do understand why it is a hard boundary for some people. But as a nurse myself, I wouldn't want anyone else doing that for my mother, husband, children or even my MIL to be honest. I wouldn't want to do it ALL the time, but I geuinely would do it if needed. More than anything I have seen how some carers treat people and I would not want that for someone I love. I also think it is to do with generation and relationship too. My mother will get changed in front of me even now etc

FredbassetOT · 25/09/2026 22:35

My dad always said he didn't want me wiping his bum. He always looked down on people who wiped other adults bums so I'm not sure how much it was a personal thing on an intellectual snob issue.
I did, but only when he has severe dementia and was in a&e and I was his 1:1. It was easier than I expected but I have also done this professionally so I can make that separation.
He would have been uncomfortable had he known who I was... But I was uncomfortable leaving him without care.

florenceandthemac · 25/09/2026 22:34

Sux2buthen · 25/09/2026 19:05

My dad does it all for my mum. They are far from lacking dignity

I think this is different. I couldn’t do it for my mum, and wouldn’t want her to do it for me if anything happened to me first.
But I would 100% do it for my husband and I’d let him do it for me.
That’s still dignity, as it’s a choice

ArcangelaTarabotti · 25/09/2026 22:32

I love my mother but I won’t do the personal care.
I will pay for professional carers to do that.
I would though willingly and lovingly do personal care for my partner if he needed it.

RaraRachael · 25/09/2026 22:27

It didn't arise but my sister and I both decided we couldn't and wouldn't do personal care for our mother.
We were greeted with, "Oh but when the time comes you'll do it because she's your mum" etc.

We didn't love her and she'd been horrible to us so we didn't owe her anything.

Icanthinkformyselfthanks · 25/09/2026 22:25

@bringincrazyback , I hear you. I understand you.
After my mum died (and that is an awful saga) my dad who had been operated on for a brain tumour and had lost his ability to walk and function independently came to live with me and my husband. Initially he was minimally independent but he didn’t want what little independence he had. He lent on me very heavily, he was broken both physically and especially emotionally. I feel in the three years he lived with us I lost my place as his daughter and became his carer. I regret that. I do not at all regret looking after him but I wish it could have been in such a way that it didn’t so radically change our dynamic.
I believe it is possible and ideal to care for someone without crossing that line which alters the fundamental principle of your relationship. That’s not possible however without sufficient input from professional carers (in our circumstances). I hope you find a way to remain a daughter. I wish you well x.

Bikenutz · 25/09/2026 22:24

Thinking about it, I would contact the care company and make it crystal clear that carers should be carrying out your mum’s personal care on every visit, regardless of whether a family member is present.

They absolutely should not be questioning your boundaries or making you feel guilty. The fact that you’ve had this conversation repeatedly suggests the message isn’t being communicated to staff. A reminder from management might prevent you from having to justify yourself over and over again.

ArcangelaTarabotti · 25/09/2026 22:23

But she doesn’t get to tell you what you will do!

attichoarder · 25/09/2026 22:20

Totally understand OP , we have had a similar situation. It’s difficult, my mother ‘s situation was very clear it she did not want us to do any personal care and preferred help from the carer for the short time until she passed away.

ArcangelaTarabotti · 25/09/2026 22:15

I absolutely do not want my sons ever to get involved with my personal care -or would if they were daughters!
So I won’t with my mother.
Pay professionals.
I would though absolutely do the personal care if needed for my partner.

Screamingabdabz · 25/09/2026 22:11

I think it’s normal to feel like that op.

I had a panic attack in the middle of a demonstration from a nurse brought in to show us how to change my elderly DM’s intimate dressings. Ugh. No way. I left it to my DB who is a bit more pragmatic and willing to (literally) get his hands dirty.

The carers you spoke to clearly haven’t had much experience with reluctant family members. Everyone I’ve spoken to in the elderly parents club has balked at intimate care, even if they rolled up their sleeves and did it, no one I spoke to did it cheerfully.

ReallyniceThanks · 25/09/2026 22:04

IDreamtOfManderley · 25/09/2026 18:30

I am 67 and because of personal care I feel like I have no quality of life and it is honestly going to be the death of me. I have no help. I have told mum politely how I feel, but she says well I just don’t want carers and that’s the end of the conversation. I could weep.

@IDreamtOfManderley ‘ i just don’t want carers’. So you have to tell her ‘I just don’t want to do this’. End it. What kind of mother insists her daughter HAS to do this??

SweatySpider321 · 25/09/2026 22:03

Shinyandnew1 · 25/09/2026 18:09

What conversations are the carers having with you about this?

If the carers are there to deliver personal care, can’t you just say-‘I’ll leave this with you’ and walk away?

I would literally leave them to get on with it, then crack of with work, dinner, TV or whatever you are meant to be doing. What are you paying then for otherwise?! Or is it classic sexism that as a female you need to be heavily involved?

Bikenutz · 25/09/2026 22:02

Care staff need to ask if unsure when you’re around, and make sure it is in the notes that staff do personal care as scheduled, regardless of which family members are present at the time.

It’s honestly fine to have boundaries. We got on well but my mother would have hated me to have done her personal care.

Terfedout · 25/09/2026 22:01

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bringincrazyback · 25/09/2026 22:01

Branleuse · 25/09/2026 21:44

I think people are so weird about personal care.

What do you want the carers to say??

Erm... nothing? I just wish one or two of them would be a bit more open-minded and understand that not everyone in the world does things the way they would do. (This isn't paranoia, incidentally - there have been things actually said from time to time, as well as the funny looks.)

When you say you think people are weird for not wanting to do personal care, do you mean weird for not wanting to do it? It's difficult to tell from your post.

OP posts:
Greedybilly · 25/09/2026 21:49

OP - I totally get it!
Lots of others do too.
That's why you pay carers.
I also hated changing my kids nappies - some of just have other skills I guess! Xx

PyongyangKipperbang · 25/09/2026 21:48

Branleuse · 25/09/2026 21:44

I think people are so weird about personal care.

What do you want the carers to say??

I suspect that she doesnt want the carers to say anything, rather than implying judgement as they currently are.

Shodan · 25/09/2026 21:48

I remember phoning one of my brothers in panicky tears after our dad came out of hospital one time- the medical staff had told me he'd need personal care and I just couldn't do it. Fortunately my brother was horrified to hear they'd asked it of me and was on his way to dad's place within an hour of the phone call.

My mother expected it of me, but I drew the line at personal care and limited myself to emptying her commode, helping her undress and so on. And that was bad enough-especially given the general air of expectation.

I would never, ever expect or want my children to do it for me.

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