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Elderly parents

Literally no one understands my reluctance to do personal care

358 replies

bringincrazyback · 25/09/2026 17:55

I just want to put that there for now, really, because this board has been just about the only place where people haven't made me feel like a strange/cruel person for saying that emergencies aside I want my DM's carers to handle her personal care (she lives with me) and I can only really get involved if it's needed at times outside of carer visits. Just been through it yet again with one of the carers this afternoon, and yet again I've been met with looks of incomprehension. It makes me feel so annoyed (especially as this never happens to men) but also ashamed that this is how petty and grudging I seem to be over some things. But feeling ashamed doesn't change the way I feel, unfortunately.

Is it reasonable for me to have this boundary (taking into account that I'd never leave my mum without personal care if she needed it), or do I just need to get over myself as a lot of people seem to think?

Sorry, just a quick vent for now as I need to see to DM now the carer's gone, but just needed to put this somewhere, just as a request for some empathy I guess, as I know some on here do understand it. (The only person who understands is DH, but of course if this ever happens to him with his mum he'll never be expected to do it anyway, being a man!) I'll add context later. Thanks for reading.

OP posts:
BruFord · 26/09/2026 01:50

IamtheDevilsAvocado · 26/09/2026 01:34

To me, it's tantamount to having a builder /decorator come around and saying... What you actually want me to build /paint those walls... Aren't you doing it??

It's one of those examples of utter sexism. Men wouldn't be asked this...

@IamtheDevilsAvocado Exactly, why do they think they've been employed by the OP?!

maxslice · 26/09/2026 01:45

In the case of some things, the carerers are not allowed to do it. Toenail clipping is one. They consider it a liability issue in case the person gets a foot infection. Shaving a man, also, I believe. However, some salons will agree to come do shampoos and hair care on site. Maybe check around for
a business that will do the same.

IamtheDevilsAvocado · 26/09/2026 01:34

BruFord · 25/09/2026 22:54

they will often seem puzzled as to why we have carers when I'm 'right there in the house' (as it was put to me once).

@bringincrazyback Quite frankly, that's absolutely none of their business, you're paying for their services, and they just need to provide them.

To me, it's tantamount to having a builder /decorator come around and saying... What you actually want me to build /paint those walls... Aren't you doing it??

It's one of those examples of utter sexism. Men wouldn't be asked this...

IamtheDevilsAvocado · 26/09/2026 01:19

IDreamtOfManderley · 25/09/2026 18:27

My mum refuses carers and because she has capacity I can’t override that so I am involved with personal care. She has incontinence unexpected to clear up her accident. It really upsets me. I also have to go round and bath her once a week which I find so difficult. I don’t want to see my 92 year-old Mother naked . it’s really killing me.

With respect {mention:idreamof}manderle@idreamomanderle
You can override... By refusing to do it... It's not pleasant... But it's what I had to do, otherwise my dad would have driven me into ground further... I ended up living with him... But insisted he pay for carers to help him with intimate care

patooties · 26/09/2026 00:49

I’ve told my parents I won’t do that for them, even if my siblings do.
it’s not for me. I don’t want to and I won’t be pressured into it.

if they were terminally ill I would be at their bedside but day to day? No chance.

FullLondonEye · 26/09/2026 00:40

ExpectMore · 25/09/2026 23:09

Can I ask why to help me better understand your perspective? Isn’t it something you’d feel obliged to go out of love? Or how do you square abandoning your mother with that?

i ask as personal care is something I haven’t had to do with my parents (they both died young and thus when I was young) so not been in that situation but my thoughts are it’s something I’d loath to do but would do if needed out of love. They raised me after all

All families are different. Do it out of love? I don't love either of my parents. i don't even like them.

A colleague sometimes jokes about the personal care she (gladly) did for her parents, and apparently found nothing odd or off-putting about handling her elderly father's penis. But she adored them.

She really struggles to understand my perspective when I explained that once, in that split second when you have to make an instant decision in a crisis, I chose to fall down a brutal set of tiled stairs while already in a full leg cast rather than let my father grab my arm to stop me from falling. I chose serious physical injury (on top of existing serious physical injury) rather than accept minimal physical contact. That's the relationship we have.

My parents actually live with me, but we built them their own apartment at the side of the house. It's a big place and you probably wouldn't believe how easy it is to ostensibly live in the same house as someone but manage not to see them at all for weeks at a time. Obviously I have to see him occasionally but I try to avoid being within six feet of him at all times.

I will not be doing any personal care, even in an emergency. I don't quite know how we'll get round this yet but they know and accept that carers will be involved. I feel no guilt about that whatsoever.

They may have raised me but it was a fucking awful experience. I realise it's not acceptable to say that you're lucky yours died when you were young but I do envy that as I wish for their end every day. Not something it's possible to say to most people in real life. A significant private fear I have is how, in public at least, I'm going to have to pretend to feel some kind of grief when they do die, simply because society doesn't accept the opposite. That's going to feel like a huge and uncomfortable pressure but I simply don't feel able to expose my true feelings around most people. It will be far too awkward and uncomfortable for everyone. However I'm worried the mask will slip and that can only lead to conflict and drama, which I really don't want. I'm not interested in sharing these details of my relationship with them to people who've known us all for years, and around whom I've spent my whole life masking like fucking Batman so no-one has to feel uncomfortable. I have no interest in having to justify my position to people because it's far too long and complex a history.

When you haven't been in this position it will be impossible to understand but for some of us, unfortunately that's how it is.

Maray1967 · 25/09/2026 23:57

IDreamtOfManderley · 25/09/2026 18:30

I am 67 and because of personal care I feel like I have no quality of life and it is honestly going to be the death of me. I have no help. I have told mum politely how I feel, but she says well I just don’t want carers and that’s the end of the conversation. I could weep.

It’s only the end of the conversation if you let it be. I’ve made it very clear I’m not doing personal care for MIL if it comes to it. I did help my DGM get out of the bath once and we both laughed about it, but I’m not wiping my MIL’s bottom.

Topseyt123 · 25/09/2026 23:40

I totally get what you are saying, OP.

My parents had paid carers three or four times a day for the last few years of both of their lives and personal care was part of their job.. My sister and I did not get involved in it - only in the odd real emergency when the carers were not due for another few hours. We wouldn't have wanted to have been involved, it's just not the image either of us would want to have of our parents. Nor do either of us want our own children to be involved in our own personal care if that need ever arises.

My parents would have been utterly mortified at the idea of us regularly cleaning up their shit and wiping their arses. Just no. It's the type of thing they were paying for the carers to do, and so are you, OP. So your mother's carers have no business making snide comments about you and implying criticism like that.

I think you should complain to the care company managers about this. It's totally unprofessional of them and isn't their place to comment at all.

Not wanting to be involved in the personal care of a parent or other very close family member isn't snobbery. Not at all. Also, it doesn't compare even remotely to changing a baby's nappy. The dickhead who drew that comparison is clearly clueless and has never even tried to clean a grown adult after a toileting accident. Though of course, if they come back again they are now likely to try and tell us how they did it regularly and how it was absolutely no problem at all.

bababamama · 25/09/2026 23:34

Are the care agency carers predominantly from other cultures? I’ve found dealing with carers that certain cultures are confused as to why we don’t look after our elderly, even though they are employed in the industry… one person I know is leaving the uk in 2 weeks to return to South Africa to care for her mum. The idea that you are in the house but would rather have an outsider do the care rather than doing it yourself confuses some people though I completely understand! My dsd (adult with high needs sen) lives in full time carer so her parents can be parents and not carers!

attichoarder · 25/09/2026 23:32

ExpectMore · 25/09/2026 23:23

Ignore the law. It generally sets out the bare minimum expected of people. I mean, there’s no law requiring parents to provide a happy childhood but we’d all surely consider that what we’re should be aiming for, by example

The aim is to ensure the elderly person has the personal care, and this be provided by carers.

ABitFab · 25/09/2026 23:25

I'm with you OP.

ExpectMore · 25/09/2026 23:23

ChimpanzeeThatMonkeyNews · 25/09/2026 23:15

Your parents looking after you when you were a baby, is the law.
Providing personal care to your parents is another matter entirely.

Ignore the law. It generally sets out the bare minimum expected of people. I mean, there’s no law requiring parents to provide a happy childhood but we’d all surely consider that what we’re should be aiming for, by example

CoastalCalm · 25/09/2026 23:20

I’ve already told my mum I won’t be able to do that when it’s needed - I can’t even cut her toe nails

bringincrazyback · 25/09/2026 23:20

Aluna · 25/09/2026 19:48

I wonder why the carers you employ think these kinds of conversations are appropriate? Are they agency carers? It doesn’t sound like very unprofessional.

I’ve never had a carer who questioned me on my choices for my parents. It’s none of their business.

They're struggling tbh, their CQC rating has gone down and they seem to have a recruitment crisis going on so I don't know how discerning they are managing to be about who they recruit. There's v little continuity of care. I'm hoping I can find another self-employed carer or two to fit around our existing one, so we can eventually phase this company out, failing that there are other companies locally that have better ratings and reviews.

OP posts:
NiftyKoala · 25/09/2026 23:19

bringincrazyback · 25/09/2026 19:49

Are you kidding me?? What is your actual problem??

Regarding your second paragraph, for example re personal care I've never yet had to wipe my mother's bottom but I have had to clean the toilet/wash her clothes after an accident. She is currently not too bad at dressing/undressing herself and washing, so although I help her where needed if the carers can't make it, having to see her naked (which I'd prefer not to, my prerogative) when the carers aren't here hasn't come up yet. But, obviously, these things are likely to come up in the future. What I was trying to convey was that I am here to do what's needed in the absence of the carers, and will do what is needed, but that not wanting to commit to being the default person to do my mother's personal care is my boundary. Surely my post explained it clearly enough?

And as for calling me a snob and accusing me of thinking I'm above doing personal care, who the hell do you think you are?? You seem to have found my post triggering for whatever reasons of your own, but I'll be damned if I'll let you make me feel bad about myself after that little tirade. Enjoy your evening.

Edited

Op you are Exactly right. You have every reason to feel the way you do. I think in coming years when these posters are tasked with this issue then by all means give advice. I will go to a nursing home before I ever have my child do personal care.

attichoarder · 25/09/2026 23:17

ExpectMore · 25/09/2026 23:09

Can I ask why to help me better understand your perspective? Isn’t it something you’d feel obliged to go out of love? Or how do you square abandoning your mother with that?

i ask as personal care is something I haven’t had to do with my parents (they both died young and thus when I was young) so not been in that situation but my thoughts are it’s something I’d loath to do but would do if needed out of love. They raised me after all

Unless you have been faced with actual situation it is impossible to understand how you might feel. I was faced with this with my father (not mother as she did want held from us), if we were there some of the carers assumed we would do personal care. It’s very strange because we weren’t there they would have had to have done it - or you would have hoped they would. Once we went to private care it was clearer as we were paying for this

bringincrazyback · 25/09/2026 23:15

ExpectMore · 25/09/2026 23:13

It sounds like you’re doing a wonderful job and your mother and father are lucky to have you as a daughter.

Aww, thank you! My dad sadly passed a good few years ago, but had a long illness and I did what I could for him too.

OP posts:
ChimpanzeeThatMonkeyNews · 25/09/2026 23:15

ExpectMore · 25/09/2026 23:09

Can I ask why to help me better understand your perspective? Isn’t it something you’d feel obliged to go out of love? Or how do you square abandoning your mother with that?

i ask as personal care is something I haven’t had to do with my parents (they both died young and thus when I was young) so not been in that situation but my thoughts are it’s something I’d loath to do but would do if needed out of love. They raised me after all

Your parents looking after you when you were a baby, is the law.
Providing personal care to your parents is another matter entirely.

ExpectMore · 25/09/2026 23:13

bringincrazyback · 25/09/2026 22:45

So a bit of context to answer some of the questions pps have asked. We're self-funding (for now, anyway, not sure how long for though as we are upping the care hours) We have a self-employed carer some of the time, she's by far and away the best one we have, my mum likes her and we're currently looking at increasing her hours, as the rest of the time we have carers from a care company and as well as being bloody expensive it's been very problematic logistically for a ton of reasons I wouldn't want to bore anyone with. The carers themselves are mostly fine, they seem like pleasant people etc, they do what they're briefed to do (mostly) and I have a lot of respect for them. I couldn't do their job and I'm grateful there are people out there who will do it.

But I always seem to find that when a new carer comes in (i.e. a lot, the company seems to be having major staff retention issues atm), they will often seem puzzled as to why we have carers when I'm 'right there in the house' (as it was put to me once). I work, but from home, and we all know how that gets trivialised. I have various health issues (RA and chronic fatigue being the main offenders but not the only ones) which won't be apparent to the carers, but which mean I can't do everything. Even if I didn't feel the way I do about personal care, I'd be physically unable to give it on a daily basis.

Apparently, in addition to the puzzled looks, one or two of the carers have been asking my mum things like where am I (my mum has her own part of the house, and my husband and I live and work in a different part) and why aren't I looking after her/don't I ever look after her. (To be clear, I do everything that's needed between carer visits.) Unfortunately due to my mum's Alzheimer's she can't often remember people's names or exactly when things occurred, so I can't realistically challenge the carers on anything that might have been said, but my mum is still lucid a lot of the time and I believe her. I've also noticed tasks they are supposed to do being left undone by certain carers, and rightly or wrongly I'm getting a vibe of 'she can do it herself, the lazy mare, she's right here in the house.' As I mentioned upthread, I simply cannot imagine these assumptions/expectations being placed on a man.

My mum has always been desperate not to go into a home, and I'm doing my best to see to it she doesn't have to. I've also spent the past ten years caring for one or both parents at different times, I've been in varying degrees of burnout so long I can't even remember when it started any more (I do have some support in place as well as the increased care hours), and day-in-day-out personal care is simply not something I can do on any level. I'm really grateful to those on this thread who have empathised, and tbh I'm pleasantly surprised how many people there are out there who feel the same way about this! I do feel there's a bit of a taboo around not wanting to do certain things for an elderly parent, they brought you into the world, etc etc. What doesn't help is that some people in my life tend to romanticise the fact that I'm caring for my mum at home, which makes me feel like a fraud - I don't personally feel I should get a halo or a Blue Peter badge for it, I'm just doing what's necessary and a lot of the time I'm not very good at it tbh. But I'm doing my best. Thanks again to those who've posted supportively and with understanding.

It sounds like you’re doing a wonderful job and your mother and father are lucky to have you as a daughter.

bringincrazyback · 25/09/2026 23:13

workingholiday · 25/09/2026 21:25

I thought it was only me who felt like this. I cannot tell you how much better this makes me feel.Thank you for your post and for all who have shared their views.

I'm glad, I tend to feel no one will understand too! Sounds like there are more of us out there who would struggle with this, than perhaps is generally realised.

OP posts:
ChimpanzeeThatMonkeyNews · 25/09/2026 23:10

My sil ended up doing personal care for her Dad, which she really, really didn’t want to do it. And I couldn’t understand why my mil blithely just let it go on.

She’d sit and smirk while her daughter took her Dad to the bathroom.
I was baffled.

ExpectMore · 25/09/2026 23:09

ArcangelaTarabotti · 25/09/2026 18:31

You absolutely can override that!
Just refuse.
OP I am heartened by your stance and that of others on here. I will not have my mother living with me and I will not do personal care.

Can I ask why to help me better understand your perspective? Isn’t it something you’d feel obliged to go out of love? Or how do you square abandoning your mother with that?

i ask as personal care is something I haven’t had to do with my parents (they both died young and thus when I was young) so not been in that situation but my thoughts are it’s something I’d loath to do but would do if needed out of love. They raised me after all

bringincrazyback · 25/09/2026 22:58

Lougle · 25/09/2026 22:46

@bringincrazyback I'm a bit confused by what's happening? Is it that carers are expecting you to do personal care while they are there, or is it that they are expecting you to do it in between their visits?

They shouldn't be making snide comments. If they have concerns that your DM isn't getting enough help with personal care between visits, they should be raising that her care needs seem to have increased and asking if you need more support.

Nobody has to do personal care. I was a nurse so it's not generally a big deal to me, but it is more difficult to provide intimate care to a loved one than someone you don't know.

It's mostly confusion as to why they're needed, I think. But there's been a couple of occasions when my mum (who's usually continent, but has IBS) has had an 'accident' and it's been assumed my mum and I would prefer me to clean her up than the carers, or my mum's refused a morning wash and I've been told never mind, I can easily coax her into the shower later on can't I... that kind of thing really.

OP posts:
RaraRachael · 25/09/2026 22:55

hattie43 · 25/09/2026 22:47

I’m absolutely not being a carer for my mum in any capacity . She’s been a shit mother and will have to sort herself out

Exactly how I felt.

BruFord · 25/09/2026 22:54

they will often seem puzzled as to why we have carers when I'm 'right there in the house' (as it was put to me once).

@bringincrazyback Quite frankly, that's absolutely none of their business, you're paying for their services, and they just need to provide them.

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