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Elderly parents

Balancing independence and safety for elderly parents as they become frailer

31 replies

Wofflewaffle · 05/08/2026 08:02

So I’m staying with my 80 yr old parents, and they are currently up in arms because one of my mums best friends has been ‘carted off’ to a nursing home, and no one was told where or when.

They live in a very rural, close-knit community. The elderly person in question was my mums colleague for decades and a real community stalwart. She had dementia and was very frail but coping at home with private carers round the clock. She had lots of friends who visited and gave her lifts and kept an eye out for her, got the hairdresser and chiropodist in for her. None of her children live locally.

She finally agreed to go into a home when her eldest daughter (allegedly) said ‘how can DH and I ever go on holiday / enjoy our retirement when we’re worrying about what might happen to you at home?’. Then it was all arranged, none of her friends were given the chance to say goodbye or told which nursing home she was going to. None of her children (who all know my mum and her other friends pretty well) has been in touch since she left. My mum only found out where she was via the local grapevine.

Anyway, it raised some interesting questions for us, as my parents are just starting to get a bit less mobile / frailer - namely the trade-off between independence and safety.

I personally would have gone on holiday quite happily if my parents were in the situation their friend was in - living in her own home, not distressed, frail but supported both formally and informally. No, it wasn’t risk-free but life isn’t a risk free endeavour. I would not want my anxieties to overule my parents being able to make this choice. But I’m a pretty relaxed person overall. My sister OTOH is a real worrier (diagnosed GAD) and has very controlling tendencies of left unchecked.

How have you navigated this trade-off?

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IsItWickedNotToCare · 05/08/2026 09:01

I'm sure it's not the same with your mum's friend but as the only person "responsible " for my mum with dementia who can't cook, wash or dress herself appropriately, forgets to eat and wanders off when unattended, the worry is constant and immense. As to her so called friends and the rest of the family they never visit her, contact her or even hardly ask me how she is getting on. And forget them asking how I'm coping with the stress! So when the time comes that she has to go into a care home my first priority will not be letting them know where she's gone. Since they never bother with her now, I will let them know when I'm ready. As you can probably tell, I'm very angry about the lack of support and feel very alone with all this nightmare.

Wofflewaffle · 05/08/2026 08:58

Elieza · 05/08/2026 08:43

it’s not fair to cart someone off and leave no word with neighbours or friends. so disrespectful.

i’d be onto the care at home company asking if there is any point phoning round local homes to find her (GDPR would likely prevent them from saying where she is but they might say yes try, or no shes gone to a home 100 miles away near her children, so dont waste your time, or whatever).

when it’s time for my mum to go into one as shes falling repeatedly or dementia kicks in i will put a forwarding address on with the post office to my address so your mum could try writing to her friend saying things like “whats your new address”. if the daughter gets it via forwarding she will read it or the lady will.

They did track her down in the end, but not via the children. My mum spoke to one of the daughters who promised to call her ‘when it was all settled’ but she never did call. I think it feels like a real kick in the teeth as they made such a big effort to help her at home, where she wanted to be, and while the children said thank you very much, the underlying message seems to have been back off 🤦‍♀️.

my parents definitely believe that she was guilt-tripped into agreeing to move to residential care. Everything was set up to keep her at home, she hadn’t had any crisis or fall recently etc. But her children were so worried about what might happen, they were apparently unable to enjoy their own lives / pursuits / holidays / retirement. None of them live near enough to do any hands care in any way, and there’s plenty of money to pay for whatever they need.

Anyway, it’s led to some interesting discussions over the dinner table, which I guess is a good thing. It’s just that I can see my sister and I diverging on this in the future 🤷‍♀️

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LadyGardenersQuestionTime · 05/08/2026 08:55

Regarding your parents’ friend, 5 minutes on the Elderly Parents board will tell you that a frail person living with dementia isn’t doing any coping of their own at all - everything will be being arranged and managed by an unpaid carer somewhere, presumably her daughter, and that can be a massive worry and burden.

Although not telling her friends where she has gone is thoughtless I can understand how it happens. If she is no longer able to ask about her friends then her children may not register that her friends still care about her.

Don’t assume you will have any control over your parents’ actions as they age. Most people have full mental capacity when they die, and it’s their decision about how they live and what risks they choose to take, not yours.

If you think they are likely to develop dementia it might be worth having a conversation with them about what they would want for that - extending their life as long as possible regardless of quality of life, or powering through fast and risky and allowed a natural death? I’ve made my choice and being in England have been able to make it legally binding on my family and carers.

Elieza · 05/08/2026 08:43

it’s not fair to cart someone off and leave no word with neighbours or friends. so disrespectful.

i’d be onto the care at home company asking if there is any point phoning round local homes to find her (GDPR would likely prevent them from saying where she is but they might say yes try, or no shes gone to a home 100 miles away near her children, so dont waste your time, or whatever).

when it’s time for my mum to go into one as shes falling repeatedly or dementia kicks in i will put a forwarding address on with the post office to my address so your mum could try writing to her friend saying things like “whats your new address”. if the daughter gets it via forwarding she will read it or the lady will.

sesquipedalian · 05/08/2026 08:31

It must always depend on the individual circumstances. I don’t understand why none of the friends, including your DPs, were told which nursing home your DM’s best friend had gone to. Is the elderly friend incapable of making a phone call? Is there some reason her family wants to cut her off from her former friends? I’m not surprised that the children aren’t in touch: I am surprised, though, that friend didn’t say anything either before or after her move to a nursing home. As far as your own parents are concerned, you know them as well as anyone else, and while they can remain independent, there’s no reason why they shouldn’t do so. There are also two of them. I can understand friend’s daughter worrying if she was on her own and becoming increasingly frail. Ultimately, though, so long as the parent is compos mentis, it should be their choice when or whether they move to a nursing home or similar.

Wofflewaffle · 05/08/2026 08:16

Just adding that I am completely aware that the situation from the POV of my mums friends children may well be completely different to how my parents perceived the situation. I’m just using that as an example of the independence/risk trade-off. I take my parents version of the story with a little pinch of salt 🧂

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