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Elderly parents

Is this lack of communication normal when a parent moves to respite care?

84 replies

Ghostlyglow · 16/07/2026 19:45

My partner's dad has been discharged from hospital to respite care today. The lack of information is really concerning me and I don't know if it's usual or not. Can anyone with similar experiences help? He will be self funding but nobody has asked about money. My partner was given the name of the care home and that's it.
Nobody has contacted him to say his dad's OK or anything. They haven't asked for any clothes or anything - he's just gone there with the stuff he had in hospital with him.My partner is reluctant to "interfere" as he puts it but it just doesn't seem right to me. It's not my dad so there's not much I can actually do but I'm concerned.
Does anyone know if this is how things usually go?

OP posts:
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Ghostlyglow · 20/07/2026 14:35

LathkillDale · 20/07/2026 13:47

if I were DP, I’d suggest to his parents, or if he has financial poa, I would set up a separate bank account or savings account in his mother’s name, and put 50% of their savings into it now. I have heard that say they had £20,000 in savings in a joint account, the local authority would insist £10,000 was used to pay for his father’s care, but then when the savings got down to £10,000, the local authority would say half, £5,000 was his and could be used to pay for his care. It’s better to protect his mother’s half share now. I can’t see any downside to it?

I agree @LathkillDale but it's not my call. I think their finances should have been separated several years ago, and I have expressed this opinion more than once. Not my decision.

OP posts:
LathkillDale · 20/07/2026 13:47

if I were DP, I’d suggest to his parents, or if he has financial poa, I would set up a separate bank account or savings account in his mother’s name, and put 50% of their savings into it now. I have heard that say they had £20,000 in savings in a joint account, the local authority would insist £10,000 was used to pay for his father’s care, but then when the savings got down to £10,000, the local authority would say half, £5,000 was his and could be used to pay for his care. It’s better to protect his mother’s half share now. I can’t see any downside to it?

BrickBiscuit · 20/07/2026 08:06

Ghostlyglow · 19/07/2026 21:05

You sound like a wonderful family @BrickBiscuit
The family dynamic here is rather different, but also because DP is an only child and his parents have become (their choice really) increasingly isolated as they have aged. They are also very unprepared (also as far as I can see, their choice) for their old age.
The fact that all this has now fallen on DP is ...well, a lot. I have my own thoughts on all this obviously, above and beyond those I've shared in this thread but dwelling on those does not seem helpful. I honestly feel like everything will come crashing down at some point.
I don't know.
Thank you for your reply, not rambling at all, very helpful.

Thank you. It's not all roses - we avoid staying in each others houses as we drive each other mad, and living in different cities and even continents is great for keeping out of each other's hair. However we are close and loving and don't allow schisms to develop. We seem to have this thing of unquestioningly stepping up in times like this. We just do it, no matter what. DP's family is exactly the same.

Ghostlyglow · 20/07/2026 07:48

Coralsunset · 20/07/2026 07:14

You need to be less available. Take some control back. He doesn’t get to insist on anything.

Well he does @Coralsunset
I really don't want to make this thread about me, but thanks.

OP posts:
Coralsunset · 20/07/2026 07:14

Ghostlyglow · 19/07/2026 21:11

He just wants be involved in everything, all the time @Coralsunset . It's driving me mad tbh and our own "life admin" is suffering because of it I admit because I'm exhausted! I feel like it's a waste of time us both doing everything because it doesn't actually save any time and I feel like a spare part! Also I end up getting frustrated and butting in and taking over and then regretting that 🤦🏼‍♀️ it's such a mess but I really don't want this to turn into a post about me "poor me" etc.

You need to be less available. Take some control back. He doesn’t get to insist on anything.

Ghostlyglow · 19/07/2026 21:16

Fiftyandme · 19/07/2026 08:55

OP - you say he’s a self funder so did the social services do a financial assessment? They should have done. With couples only half of anything ‘joint’ can be counted for threshold purposes (which iirc is £23,500). Your partner or his mother should have had a copy of the card and support assessment which should include a financial assessment - it’s a legal requirement that a copy of this is given.

No @Fiftyandme I don't believe they have. DP told them his dad will be self funding (which he is because there are some savings and a house) but I'm really concerned because social services have just accepted that info and obviously the home will just be happy if someone is paying, I suppose. His parents have joint bank accounts though (which in my opinion should have been separated long ago in preparation for circumstances such as this, but what do I know) and I'm wondering if it's because it's currently classed as respite care. I don't know. I can't really get too involved though because I obviously don't have any say in someone else's parents finances.

OP posts:
Ghostlyglow · 19/07/2026 21:11

Coralsunset · 19/07/2026 08:53

So your DH is just sitting back and waiting for the home to contact him? How odd!

They will assume he’s not interested.

What does DH “insisting” you are very involved in ILS care look like? I don’t like the sound of him tbh.

He just wants be involved in everything, all the time @Coralsunset . It's driving me mad tbh and our own "life admin" is suffering because of it I admit because I'm exhausted! I feel like it's a waste of time us both doing everything because it doesn't actually save any time and I feel like a spare part! Also I end up getting frustrated and butting in and taking over and then regretting that 🤦🏼‍♀️ it's such a mess but I really don't want this to turn into a post about me "poor me" etc.

OP posts:
Ghostlyglow · 19/07/2026 21:05

You sound like a wonderful family @BrickBiscuit
The family dynamic here is rather different, but also because DP is an only child and his parents have become (their choice really) increasingly isolated as they have aged. They are also very unprepared (also as far as I can see, their choice) for their old age.
The fact that all this has now fallen on DP is ...well, a lot. I have my own thoughts on all this obviously, above and beyond those I've shared in this thread but dwelling on those does not seem helpful. I honestly feel like everything will come crashing down at some point.
I don't know.
Thank you for your reply, not rambling at all, very helpful.

OP posts:
DustyMaiden · 19/07/2026 20:44

This is the problem when you are a good person, it’s hard to just stand by . But some men seem more than able to manage it.

saraclara · 19/07/2026 20:42

Do label all his clothes! It's very easy for clothes to be lost when they're laundered. And of course it makes like very difficult for the staff to reunite residents with their freshly washed clothes if they aren't name labelled.

Ghostlyglow · 19/07/2026 20:35

LathkillDale · 19/07/2026 09:14

While it may be, nobody can afford to buy a whole new wardrobe, going into a care home; but going forward, get DP to buy their father cheap, comfortable clothes like jogging bottoms, t shirts or polo tops, etc, because they are easier for the staff to take off; and nice clothes may get ruined in the 60 degrees c washes and tumble driers, care homes may use for hygiene reasons.

It depends how confused DP’s father is, but a photo album of the family may be nice to make him feel at home.

It seems on MN that some people think, if their loved one goes into a care home, that’s it - they will be taken care of, and are off their hands. Unfortunately, that’s not true ime. For a start, relatives need to buy new clothes and toiletries from time to time and administer the finances. In DD1’s case, I give the care home, a chunk of money from her benefits for toiletries, icecreams, books, whatever she wants within reason, when she’s out in the community. We get her clothes and make big purchases like a new tv for her room. The care plan should be reviewed after the first six weeks, and at least annually thereafter. If the loved one does not have mental capacity, there may be quite a few best interests decisions to be made.

For instance with DD1, it’s agreed she’s under audio and video monitoring, when she’s in her bedroom alone (for a life threatening condition). There’s the question of whether she has capacity to spend her own money in shops, etc (yes, she does); or can she go online safely (no, she has no idea what she could get into)?

Thank you for this.
I've actually bought clothes of the type you suggest and toiletries too, so hopefully that is taken care of for now.
I know it makes me sound awful but I'm trying not to be the person who does everything (not my dad etc.....) and often I get so frustrated that I just take over and do stuff anyway 😅
Thanks though, some interesting and useful info

OP posts:
BrickBiscuit · 19/07/2026 09:49

Each of my parents ended up in a care home, one from hospital and one from home. Both times, one or other sibling was present frequently. On day one we supplied a little folder with their immediate family tree (with mugshots), brief lists of preferences, latest medical info, property list, contact details including LPA, ‘do not resuscitate’ and living will copies. I doubt the staff had time to read most of it, if at all, but still. We were in and out with anything they needed, and helped the staff where we could. We did all their financial admin and set up TV, phone etc. We were explicit that if they felt we were interfering, the staff could tell us to back off or, alternatively, to do more. We were all working full time and lived between three hours and thirty-six hours journey away. In our case we had (a) total sense of commitment, (b) supportive families of our own, and (c) consistently good family relations all round (meaning able to resolve disagreements rather than to avoid them). We often worried we’d become a nuisance, and tried not to get under the staff’s feet. Most were happy to be open about what they wanted from us. Flexible working, family support, good relationships and no money worries made a difference for us. None of it was plain sailing - transport delays, dementia, bowel accidents, staff run off their feet, policies and procedures to learn. I’m just rambling really, but I do hope things can improve for you, OP. I think your sense that their actual child (your DP) has primary responsibility is correct. They seem to lack the sense of commitment that others often have. Different family dynamics perhaps.

LathkillDale · 19/07/2026 09:14

While it may be, nobody can afford to buy a whole new wardrobe, going into a care home; but going forward, get DP to buy their father cheap, comfortable clothes like jogging bottoms, t shirts or polo tops, etc, because they are easier for the staff to take off; and nice clothes may get ruined in the 60 degrees c washes and tumble driers, care homes may use for hygiene reasons.

It depends how confused DP’s father is, but a photo album of the family may be nice to make him feel at home.

It seems on MN that some people think, if their loved one goes into a care home, that’s it - they will be taken care of, and are off their hands. Unfortunately, that’s not true ime. For a start, relatives need to buy new clothes and toiletries from time to time and administer the finances. In DD1’s case, I give the care home, a chunk of money from her benefits for toiletries, icecreams, books, whatever she wants within reason, when she’s out in the community. We get her clothes and make big purchases like a new tv for her room. The care plan should be reviewed after the first six weeks, and at least annually thereafter. If the loved one does not have mental capacity, there may be quite a few best interests decisions to be made.

For instance with DD1, it’s agreed she’s under audio and video monitoring, when she’s in her bedroom alone (for a life threatening condition). There’s the question of whether she has capacity to spend her own money in shops, etc (yes, she does); or can she go online safely (no, she has no idea what she could get into)?

saraclara · 19/07/2026 09:07

Ghostlyglow · 19/07/2026 08:34

I get that people don't read posts thoroughly, but this isn't about my dad -he died in 1992. Part of the whole point of this post is that it's not my dad.
Thanks anyway

Apologies. I knew it isn't your dad and I had already made other posts about your partner's role in this. But I clearly had a brain blip in the post you quoted.

My advice is still the same for whoever in the family needs information about the finances for the respite care. Age UK is excellent.

Fiftyandme · 19/07/2026 08:55

OP - you say he’s a self funder so did the social services do a financial assessment? They should have done. With couples only half of anything ‘joint’ can be counted for threshold purposes (which iirc is £23,500). Your partner or his mother should have had a copy of the card and support assessment which should include a financial assessment - it’s a legal requirement that a copy of this is given.

Coralsunset · 19/07/2026 08:53

So your DH is just sitting back and waiting for the home to contact him? How odd!

They will assume he’s not interested.

What does DH “insisting” you are very involved in ILS care look like? I don’t like the sound of him tbh.

Fiftyandme · 19/07/2026 08:50

EmeraldRoulette · 17/07/2026 11:07

@Ghostlyglow i'm not sure what to say really

If he is self funding, why were the arrangements made by social services? I suspect that's where your communication gap is. The care home probably think they have to communicate directly with social services.

I had a complicated situation with my mum in respite care. The hospital kept saying that social care would sort it if I just left it a couple of days. She was also self funding.

I was happier with me being in charge rather than social services. In fact I think some private care homes won't deal with social services at all?

they asked me loads of questions because they are aware that hospital records can be pretty dire.

Anyway, I found the care home incredibly helpful but I was there when mum was assessed in the hospital, I was there when mum was taken to the care home. But I know from talking to other others with the same experience, sometimes they get so many calls they find it annoying.

If you can physically get to the care home and introduce yourself, that will help

Have you seen the care home and is it nice? I do sometimes wonder if we were just really lucky with the staff.

mum's been in respite care twice, the second time she went in from home and I had had a nervous breakdown looking after her, so someone else dealt with that admissions bit and that person also said that the care home seemed very nice and went over and above what they needed to do.

I wouldn't be surprised if you suddenly just get an invoice in the post.

I can answer this - the Care Act 2014 does not exclude self funders - they are just as entitled to hospital discharge processes as everyone rose - so an assessment of needs etc. POC are not an uncommon outcome for self funders with eligible needs - we help self funders with eligible needs source services all the time

Ghostlyglow · 19/07/2026 08:34

saraclara · 19/07/2026 00:06

Age UK are excellent at this stuff. They have an advice line that you or your dad can call.

When I needed advice re my mum, the person on the other end was so helpful. It's like she had all the time in the world for me. And she followed up with some booklets that spelled everything out clearly.

I get that people don't read posts thoroughly, but this isn't about my dad -he died in 1992. Part of the whole point of this post is that it's not my dad.
Thanks anyway

OP posts:
saraclara · 19/07/2026 00:06

Ghostlyglow · 18/07/2026 23:07

I honestly don't know. I've suggested to him that he seeks financial advice. He hasn't yet. I don't see it happening. I can't force him.

Age UK are excellent at this stuff. They have an advice line that you or your dad can call.

When I needed advice re my mum, the person on the other end was so helpful. It's like she had all the time in the world for me. And she followed up with some booklets that spelled everything out clearly.

Ghostlyglow · 18/07/2026 23:08

Thank you @LathkillDale that's really good information.

OP posts:
Ghostlyglow · 18/07/2026 23:07

Soontobe60 · 18/07/2026 22:48

Does your DH not realise that only half of his parents savings should be used to pay for his DFs care?

I honestly don't know. I've suggested to him that he seeks financial advice. He hasn't yet. I don't see it happening. I can't force him.

OP posts:
Soontobe60 · 18/07/2026 22:48

Ghostlyglow · 18/07/2026 15:17

His dad is self funding. They have some savings (not much by any means, but above the threshold, and a house). DP has financial POA - which is complicated in itself for all kinds of reasons that I won't go into 😆 but my partner will be actually dealing with paying the bills but paying it out of his parents funds. It is expensive yes £1250 a week at this home - the money will run out, sooner if his mother needs to go into a home at some point . I don't know what happens then

Edited

Does your DH not realise that only half of his parents savings should be used to pay for his DFs care?

LathkillDale · 18/07/2026 22:29

I would expect the care home to be setting up a care plan for DP’s father, and to do that, they need to speak to DP. DP needs to be proactive in this, otherwise the care home are not going to know for instance, that the father is a vegetarian - the staff could well be offering him non vegetarian food. I would suggest DP does an inventory of the father’s clothes, incontinence products (if applicable) and other personal possessions. Any or all of them could go missing?

MIL was moved to a care home after a hospital stay. I don’t recall the care home discussing the care plan with DH, so the staff were offering MIL, food and drink she couldn’t stand and wouldn’t eat in any circumstances. The family had to supply her incontinence pants, and every time, the staff moved her to another room, all her packs of pants in the bottom of the wardrobe disappeared. We could find her in clothes, that weren’t hers. There was a tv in her room ,but no remote, so she couldn’t use it - we had to go out and buy her a remote. DP shouldn’t expect care staff to use their initiative - they have to advocate for their father.

I was advised by someone with more experience than me of the elderly in care homes, that if relatives make themselves visible to the care staff, their loved one and the other residents are likely to get better care.

DD1 is in a care home. Her care plan is over 50 pages long - her diagnoses, a pen portrait of her; then it goes through the stages of an ordinary day with what she can do herself and when she needs help, like with getting up and dressed, breakfast, bathing, lunch, dinner, supper, bedtime; then her vision, hearing, mobility, moving and handling needs, food likes and dislikes, activities she enjoys, etc. I don’t know that a care home for the elderly would have such a long care plan, but I’d expect it to cover the basics?

Ghostlyglow · 18/07/2026 20:57

I'm grateful for the attention this post has got and for the responses. I haven't posted on here for ages, although I was here all the time at one point in my life.
Thanks very much to those of you who answered my questions, I genuinely did not know anything about this sort of situation.
I have my own opinions of my partner's behaviour here (and his mother's) but I really don't want to get distracted by discussing that. Ultimately there's an elderly and confused man at the centre of this, even though he's not actually my dad, and I want to get things clear in my head about what should be happening (and, I admit it, what would be normal behaviour from him and his family)
Thanks again all. I feel like I know a little more now, and I would love any more information or opinions - but mainly actual experiences.

OP posts:
titchy · 18/07/2026 20:53

Ghostlyglow · 18/07/2026 17:36

I don't yell.

Perhaps you should. Do you not recognise how utterly dreadful he is being? A really nasty little person. How can you have any respect as a partner with someone like that?

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