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Elderly parents

State of FIL house

43 replies

Hohofortherobbers · 20/06/2026 08:11

My FIL has a mild dementia diagnosis and COPD, lives with SIL who never left home and I believe is ND, but never diagnosed. MIL died long time ago. He's not coping with looking after the house, SIL has never been one for housework. The house is now becoming a health hazard. I got them to agree to cleaners , found them, booked them, they came but FIL made it very difficult for them by insisting they dont dust as he didn't want them touching his things, he's a collector. There's items of his collection everywhere, lots of shelves holding hundreds of them, all gathering dust. He then decided the cleaners hadn't done a good enough job and said they couldn't come back. I try to give a room a freshen up when I'm there but he tells me off, that he can do it and stop touching things. But in the same breath he moans that it's dirty. Now they have mice, my DH is doing the same as me, trying to help but not getting anywhere. He's closer to giving up and letting them rot in their own filth than I am though. Any words of wisdom? We've had paramedics in twice and they must think we're cruel leaving them to live this way. He doesnt leave the house so no chance of a sneak in and clean. I think the house will end up killing them, its getting so cluttered, as each of them have a hoarding tendency and the dust must exacerbate his COPD.

OP posts:
redboxer321 · 20/06/2026 10:36

Not sure there is much you can do sadly OP but I would try to get your FIL to allow you to take the dog to the vet for a check up. It doesn't sound like either he or the SIL is able to take care of the dog and she may well be suffering.

JillThePlantKiller · 20/06/2026 10:36

@ThroughTheRedDoor thank you for posting that link. That’s very useful guidance.

Hohofortherobbers · 20/06/2026 10:32

Thank you for the replies and reassurance. Its actually really comforting to know we're not alone in this 💕.
The images of hoarding are also comforting, its not where near this bad, a 2 for the house perhaps, a 3 for SILs bedroom. However 1 bedroom is totally inaccessible due to boxes of FILs collection , cannot even open door beyond 12".
Its more the dust, grime and mice. The collection has years if dust which has become grime stuck all over it. Imagine hundreds of small items that probably need to be soaked in hot soapy water and scrubbed 😬.
According to FIL they're worth a fortune and we can sell them individually on eBay for £20 a pop one day, he's delusional, just cos he paid that much doesn't mean anyone else is stupid enough to. As if I've got the time and inclination to dedicate my life to selling his crap. DH is of sane opinion, he thinks we'll just put it in a skip when the time comes.

He's also developed this compulsive behavior, printing photos of similar items of the Internet and putting them in photo albums. He prints hundreds out, fills an album a day the boxes it up and puts it in that jam packed bedroom. He doesn't even look at them once he's filled the album. It's irrational, they'll just be scrapped. He spends a fortune each week on printer ink, photographic paper and albums, in excess of £200 probably which creates more clutter and will just be thrown away.
I say he spends, but my DH arranges this as he has poa for finances , he tries to limit him, but if he doesn't receive the delivery he just gets a taxi to WHSmith and buys it himself for 5 times the price 😣
Thank you all, just saying this out loud is cathartic

OP posts:
Cheese55 · 20/06/2026 10:29

Choconuttolata · 20/06/2026 08:49

The only thing you can do is contact adult social care and make a safeguarding report under self neglect. With a mild dementia diagnosis they will need to have him on their radar as his cognition will worsen over time and they should complete a capacity assessment. I had to do this for DAunt with similar issues. It is not a quick fix as if they have capacity they can refuse help which DAunt did. They can act on hoarding if it causes fire safety issues that would impact the safety of others, but it is not simple. They may also act on the pest control issue. DAunt at first agreed to allow a visit from the fire brigade and then refused it. I had to complete several safeguarding referrals as the situation rapidly worsened once she stopped eating and her cognition declined swiftly as a result. Social care repeatedly stated she had capacity. Her GP was useless. She ended up having a fall due to clutter in the home which resulted in admission to hospital, it was only then that the hospital doctors fully listened and declared her to not have the capacity to keep herself safe. She died in the hospital a few weeks later. If I had my time again I would get a private assessment of mental capacity completed by a professional rather than waiting for social care if the situation was deteriorating. This is what my neighbour did for her sister when she was unsafe at home (wandering with dementia) which enabled her to organise care for her DSis.

My DF who has COPD, is likely ND and now has dementia (as yet undiagnosed by memory team but a CT of his head showed obvious changes) is very resistant to all change in his home. Everything being where it should be allows him to map his world, fills gaps in his short term memory which enables him to feel like he knows what is going on and reduces his anxiety. Anxiety is massive when you are confused by the world around you due to changes in your cognition. He has been miles better since the GP started him on citalopram for anxiety around his breathing. Far less controlling about his environment allowing people to help with cleaning, helping him with his meals and self care which he neglected before. I find he listens to doctors more than me so if FIL listens to his GP it might be worth your DH speaking to them about his concerns.

Social care don't have to accept private capacity assessments when it comes to funding services. They have to do their own.

TheTortiePuffinNeedsHerBreakfast · 20/06/2026 09:44

You have tried OP but if he isn't receptive to help it's very difficult.I agree with contacting the council about the mice as that could escalate at pace if they have food to eat and places to nest. Would FIL be open to keeping all his treasures in one room do you think? That way they could be untouched but the rest of the house more hygienic.

AllJoyAndNoFun · 20/06/2026 09:30

My GP were like this- DM used to send Dsis and I round to visit. One of us would hide behind a bush and then sneak in with the flash wipes and stealth clean the bathroom and kitchen when the other one was talking to them in the sitting room. Fortunately they were both quite deaf so didn’t hear me but I did once have to hide in the boiler cupboard when they came in to make more tea. We laugh about it now but it was really stressful at the time. Honestly the house was awful but they just couldn’t “see” it.

OuEstLaPlage · 20/06/2026 09:25

My PIL are like this. We tried to help, they insisted the house was fine, nothing needed doing. In the end I said to DH he could go and see them but me and the children wouldn’t be going over until it wasn’t so dirty. It was a complete health hazard - mouldy plates, the dog had worms and used to rub his bum along the carpet etc. it stunk. It made the relationship very difficult, but they managed to get a cleaner. To add - they have plenty of money to do so.

Choconuttolata · 20/06/2026 08:49

The only thing you can do is contact adult social care and make a safeguarding report under self neglect. With a mild dementia diagnosis they will need to have him on their radar as his cognition will worsen over time and they should complete a capacity assessment. I had to do this for DAunt with similar issues. It is not a quick fix as if they have capacity they can refuse help which DAunt did. They can act on hoarding if it causes fire safety issues that would impact the safety of others, but it is not simple. They may also act on the pest control issue. DAunt at first agreed to allow a visit from the fire brigade and then refused it. I had to complete several safeguarding referrals as the situation rapidly worsened once she stopped eating and her cognition declined swiftly as a result. Social care repeatedly stated she had capacity. Her GP was useless. She ended up having a fall due to clutter in the home which resulted in admission to hospital, it was only then that the hospital doctors fully listened and declared her to not have the capacity to keep herself safe. She died in the hospital a few weeks later. If I had my time again I would get a private assessment of mental capacity completed by a professional rather than waiting for social care if the situation was deteriorating. This is what my neighbour did for her sister when she was unsafe at home (wandering with dementia) which enabled her to organise care for her DSis.

My DF who has COPD, is likely ND and now has dementia (as yet undiagnosed by memory team but a CT of his head showed obvious changes) is very resistant to all change in his home. Everything being where it should be allows him to map his world, fills gaps in his short term memory which enables him to feel like he knows what is going on and reduces his anxiety. Anxiety is massive when you are confused by the world around you due to changes in your cognition. He has been miles better since the GP started him on citalopram for anxiety around his breathing. Far less controlling about his environment allowing people to help with cleaning, helping him with his meals and self care which he neglected before. I find he listens to doctors more than me so if FIL listens to his GP it might be worth your DH speaking to them about his concerns.

whippersnapper55 · 20/06/2026 08:45

I think all you can do is a referral to Adult Social Services. If they have mice, it is hard to get rid of an infestation if there is food around for them to get into and they multiply at an alarming rate!

PersephoneParlormaid · 20/06/2026 08:40

Don’t get stressed about it, it’s not worth it. Let them live the way they want to, it’s not a reflection on you.
If you want to do something, refer to social services confidentially.

JANetChick · 20/06/2026 08:38

You’ve done your very best. You can’t do any more.

It doesn’t matter what other people think.

ThroughTheRedDoor · 20/06/2026 08:34

Have you seen the clutter image rating scale? For some reason I can't attach it here. But if you click the button on the link it takes you to a scale that helps identify how 'bad' the clutter is. Anything above a 4 they encourage people to get help for their hoarding. Where is the house on this scale @Hohofortherobbers ?

https://hoardingdisordersuk.org/clutter-image-ratings/

Clutter Image Ratings - Hoarding Disorders UK

These are Clutter Image Ratings that have been done from a previous study which are widely used across the world. This shows the severity of the problem in many homes across the UK.  2.5 % – 6 % of the UK are affected by this disorder. Please click her...

https://hoardingdisordersuk.org/clutter-image-ratings/

CyrtainFlop · 20/06/2026 08:34

I have a family member like this. He's always going to 'sort it out' but never does. Won't accept any help. Only very reluctantly let's anyone in the house, on very rare occasions. I too think it will kill him one day.

thedevilinablackdress · 20/06/2026 08:28

I wouldn't worry about paramedics or anyone who has to come in to the home, they will have seen it all and more. You only have to browse this board to know how often it's not down to 'neglectful children '.
I do the occasional bit of cleaning if DM is incapacitated and/or something is very bad, otherwise I can't bang my head against that brick wall any more.

PermanentTemporary · 20/06/2026 08:24

The mice sound bad.

First thing to do is to let go of worrying about what other people think. That will drive you mad.

Would he agree to a cleaner just for the bathroom and kitchen? That way the food prep, toilet and washing areas would at least be cleaner and they’ve got less likelihood of progressing to rats.

Just be open and blunt about the dust and its likely impact. Though I’m not sure the dust would make that much difference to his COPD would it? Mould might though.

It sounds as if they both may be neurodiverse tbh.

rookiemere · 20/06/2026 08:24

Paramedics won’t blame you for the state of the house, it’s a common issue. Elderly people with more than enough money for cleaners refusing to accept them. I wouldn’t be trying to do it yourself as from experience the chores will expand exponentially.

If it’s a health hazard I would consider putting in a report to social services, in fact because of the mice I would just go ahead and do that. The place is unsanitary and your DFILs living conditions need to be investigated.

Hohofortherobbers · 20/06/2026 08:23

Not mouldy food, but food stored in unusual places that the mice must just love. Lots of clutter, lots of dust, he's got an elderly dog too that sheds and smells a bit, her dry food is everywhere, treats dropped and not eaten etc.
Not been in hospital recently and then there's the SIL problem if I were to go round and start cleaning, she'd find that very intrusive. She's a big part of the problem.
Can only imagine an air purifier would be yet another thing to collect dust. The prospect of sorting this house out one day is terrible

OP posts:
Plimfoot · 20/06/2026 08:16

Is it just the dust or is there mouldy food, clutter etc?

If he has ill health he must go to the Drs or hospital sometime? If you could get him to allow you to dust you could then buy an air purifier?