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Elderly parents

Care homes make me think people never die

694 replies

rockrollerpud · 04/05/2026 08:40

Recently I was given the news that someone I know died suddenly. Classic late seventies, living life totally normally, seemingly slim, fit and healthy, then gone within 24 hours from heart attack. This was surreal to me. And here is why.

I visit a relative in a care home weekly. And for want of better words, I’ve been visiting so long that I honestly feel like some people can’t die. Or at least, their bodies are just designed to trundle on like a diesel engine car with 200,000 miles on the clock.

Most of them are 80-100 years old. Many sit there all day asleep with their mouths open. Many are overweight, have multiple health conditions, yet they just don’t ever change from that. They go on for years/decades.

I have to say, there are far more women than men in the care home.

Quite regularly, I’ll read on here, that someone struggled at home but then went in a care home and only lasted 1-2 years. Yet I see the majority seem to live forever in the care homes.

Before I knew what I know now about elderly disease and decline, I’d always assumed that by the time I got to a care home, I’d be so spent, I’d only last a few years too. But now it’s freaking me out that I, like many others, could spend 15% of my life in one.

Anyone else a long term visitor to a care home and be shocked at this?

OP posts:
SadSaq · 10/05/2026 15:22

Pasta4Dinner · 10/05/2026 14:55

MIL died at 71. I think if she had been in a care home she would have lived for many more years. She never would have gone jn one though.
Her main issues were taking medication and drinking water and needed someone to supervise her. She was fine when she was in hospital and someone did that.

That's young nowadays though

Pasta4Dinner · 10/05/2026 14:55

MIL died at 71. I think if she had been in a care home she would have lived for many more years. She never would have gone jn one though.
Her main issues were taking medication and drinking water and needed someone to supervise her. She was fine when she was in hospital and someone did that.

LiviaDrusillaAugusta · 10/05/2026 14:53

My grandmother went into a care home relatively okay for her age and died a couple of weeks later

PropertyD · 10/05/2026 14:37

Who is paying for these state run care homes?

Allseeingallknowing · 10/05/2026 14:34

Carpedementia · 10/05/2026 14:22

I agree that good carehomes are desperately needed. I think they should be run by the state though. Maybe with different offers according to what people want to pay. Old age shouldn’t be something to make profit on.

But then there would be several tiers of care, and old age would be something to make a profit on. There should be one level of care-good care!

rookiemere · 10/05/2026 14:33

Carpedementia · 10/05/2026 14:22

I agree that good carehomes are desperately needed. I think they should be run by the state though. Maybe with different offers according to what people want to pay. Old age shouldn’t be something to make profit on.

You could make the same argument about children’s nurseries though- why should companies profit from childcare.

I have to admit to being glad my DPs are at a care home that only accepts paying residents. I find it particularly iniquitous that when there’s mixed residents the private residents costs are bumped up to cover the difference.

The main issue as far as I can see is that in DPs care home, most of the carers don’t speak very good English and there appears to be a fair bit of turnover. They seem like caring and hardworking staff but the language barrier causes an issue because both of my DPs are - like many elderly people- fairly deaf and DMs speech is failing so she is difficult to understand. I am not sure how having council run care homes would get round this unless they paid the carers more and I suspect they wouldn’t.

Carpedementia · 10/05/2026 14:22

rookiemere · 10/05/2026 12:17

But if care homes didn’t exist what is the alternative?
Maybe I am just too much of a capitalist but it doesn’t seem ridiculous that those owning them would expect them to run at a profit and 19% doesn’t seem ridiculous. I do wish of course that the care staff were paid more, but you could say that about most businesses.

The issue is caused by people living too long due to medical intervention. I tried to keep DPs at home for as long as possible, partly because they wanted to, partly because it was the cheapest option and partly because I have seen other people’s DPs in care homes lasting longer than anyone could feasibly imagine. But ultimately it was a simple choice between my mental and physical health or them going into a home. Gawd knows where I would be now if care homes didn’t exist or they couldn’t afford it, so unfortunately they are a necessary evil.

I agree that good carehomes are desperately needed. I think they should be run by the state though. Maybe with different offers according to what people want to pay. Old age shouldn’t be something to make profit on.

TheLivelyAzureHedgehog · 10/05/2026 13:13

rookiemere · 10/05/2026 12:17

But if care homes didn’t exist what is the alternative?
Maybe I am just too much of a capitalist but it doesn’t seem ridiculous that those owning them would expect them to run at a profit and 19% doesn’t seem ridiculous. I do wish of course that the care staff were paid more, but you could say that about most businesses.

The issue is caused by people living too long due to medical intervention. I tried to keep DPs at home for as long as possible, partly because they wanted to, partly because it was the cheapest option and partly because I have seen other people’s DPs in care homes lasting longer than anyone could feasibly imagine. But ultimately it was a simple choice between my mental and physical health or them going into a home. Gawd knows where I would be now if care homes didn’t exist or they couldn’t afford it, so unfortunately they are a necessary evil.

Sorry - double post, edited

TheLivelyAzureHedgehog · 10/05/2026 13:12

rookiemere · 10/05/2026 12:17

But if care homes didn’t exist what is the alternative?
Maybe I am just too much of a capitalist but it doesn’t seem ridiculous that those owning them would expect them to run at a profit and 19% doesn’t seem ridiculous. I do wish of course that the care staff were paid more, but you could say that about most businesses.

The issue is caused by people living too long due to medical intervention. I tried to keep DPs at home for as long as possible, partly because they wanted to, partly because it was the cheapest option and partly because I have seen other people’s DPs in care homes lasting longer than anyone could feasibly imagine. But ultimately it was a simple choice between my mental and physical health or them going into a home. Gawd knows where I would be now if care homes didn’t exist or they couldn’t afford it, so unfortunately they are a necessary evil.

Care homes are as necessary as nurseries and crèches if we are to pursue ‘personal happiness’ as our primary motivation. Women used to do all of this care, at each end of life. But it’s not a lot of fun, it’s low status, there’s no money in it, and there are much more fun/rewarding/personally enriching things to do than wipe bums and feed mush to old people / babies. So we hand it over to private equity to provide a solution - just like we do with nursery and crèche, where people with fewer options do all this shit work for us. And we say that’s progress. The job still has to be done - but we get to choose to not do it now. And like everything else private companies will step in to provide these services for us.

i was a SAHM for ten years: I’ve no desire to care for aged parents for ten years. But part of the problem is that people generally used to retire then pop their clogs a few years later. They died of heart attacks, pneumonia, flu, sometimes cancer - not lingering on for years and years in a state that requires specialist equipment and round the clock, hands-on care to manage the most basic bodily functions.

EnthusiasticDecluttering · 10/05/2026 13:02

user7463246787 · 10/05/2026 12:46

A chap that I know is at the cliff face of dementia research/drug development. He’s full of enthusiasm that a drug they are developing will slow dementia, note slow not cure. So essentially in the next 20yrs we might be living with dementia for even longer. He thinks it'll be a marvellous thing, I’m not so sure!

I see it the other way, it will be life-changing for those that develop early onset dementias. And for those that are older and more frail at diagnosis, it will improve their quality of life until their body gives up from other causes, possibly allowing more of them to stay at home. They may also maintain capacity and autonomy over their care and enable them to say enough’s enough for treatments.

user7463246787 · 10/05/2026 12:46

A chap that I know is at the cliff face of dementia research/drug development. He’s full of enthusiasm that a drug they are developing will slow dementia, note slow not cure. So essentially in the next 20yrs we might be living with dementia for even longer. He thinks it'll be a marvellous thing, I’m not so sure!

rookiemere · 10/05/2026 12:17

But if care homes didn’t exist what is the alternative?
Maybe I am just too much of a capitalist but it doesn’t seem ridiculous that those owning them would expect them to run at a profit and 19% doesn’t seem ridiculous. I do wish of course that the care staff were paid more, but you could say that about most businesses.

The issue is caused by people living too long due to medical intervention. I tried to keep DPs at home for as long as possible, partly because they wanted to, partly because it was the cheapest option and partly because I have seen other people’s DPs in care homes lasting longer than anyone could feasibly imagine. But ultimately it was a simple choice between my mental and physical health or them going into a home. Gawd knows where I would be now if care homes didn’t exist or they couldn’t afford it, so unfortunately they are a necessary evil.

Carpedementia · 10/05/2026 11:51

Strawberriesandpears · 10/05/2026 10:29

That will be me sadly. Only child, no children of my own and no other relatives. I will end my days completely alone. Likewise, I hope to live in a retirement village where hopefully I will be supported.

Yes best solution and before we get too old. If you choose wisely you may have more support from neighbors and staff than you would from kids anyway . Fingers crossed xx

Iamstardust · 10/05/2026 11:45

SweetChilliGirl · 10/05/2026 09:38

You keep saying this but as someone who has LPA for an elderly uncle in a NH in Surrey, it hasn't been my experience at all. He went in as 'end-of-life' but has rallied considerably as they spooned him full of mush and pumped antibiotics into him. He has zero quality of life - he is bedbound and incontinent - but will probably survive for years, at the cost of £2k a week, which all goes to the private equity company that own the NH. He had a very complex artery replacement two years ago to save his life. It would have been better all round if he had passed away then. The last two years have been nothing but pain, misery and a loss of dignity for him.

Edited

He's now just a a cash cow☹️
The private equity companies can see that house prices are on the slide and they want to siphon off the equity before the bubble bursts.

Gloriousgardener11 · 10/05/2026 10:32

It’s honestly shocking the amount of very expensive, high risk, invasive medical intervention that very elderly people receive, no wonder the NHS is on its knees and practically bankrupt.
FIL, late 80s was admitted to hospital with severe constipation. He was in so much pain it caused a mild heart attack which only showed up when he said he was having a bit of pain in his chest.
One doctor said he had to have a stent fitted but another doctor overruled him as FIL was deemed frail.
In the end he was given stronger statins which are much cheaper than the stent procedure I’d imagine!

Strawberriesandpears · 10/05/2026 10:29

Carpedementia · 09/05/2026 18:17

Yep. If there’s no one to help them organize it it’s such a sad situation. I’m keen on the idea of DH and I renting ( not buying) a nice sheltered housing flat/ senior apartment when we get to about 70. There’s some lovely looking ones near us. In my mind we’ll sell our house and keep the money in the bank for care needs. It seems the best way to stay independent with a warden etc to keep an eye out. It means less hassle for adult kids too.

That will be me sadly. Only child, no children of my own and no other relatives. I will end my days completely alone. Likewise, I hope to live in a retirement village where hopefully I will be supported.

SweetChilliGirl · 10/05/2026 09:38

NewspaperTaxis · 10/05/2026 09:15

Again, I can only say, if they're in that state, take then to a care home in Surrey. Often they will get two years tops, then they're out of there - whether they or their family like it or not.

You keep saying this but as someone who has LPA for an elderly uncle in a NH in Surrey, it hasn't been my experience at all. He went in as 'end-of-life' but has rallied considerably as they spooned him full of mush and pumped antibiotics into him. He has zero quality of life - he is bedbound and incontinent - but will probably survive for years, at the cost of £2k a week, which all goes to the private equity company that own the NH. He had a very complex artery replacement two years ago to save his life. It would have been better all round if he had passed away then. The last two years have been nothing but pain, misery and a loss of dignity for him.

NewspaperTaxis · 10/05/2026 09:15

Again, I can only say, if they're in that state, take then to a care home in Surrey. Often they will get two years tops, then they're out of there - whether they or their family like it or not.

TheLivelyAzureHedgehog · 10/05/2026 09:12

Completely know what you mean OP.

MIL was in a nursing home, immobile, advanced Parkinson’s, dementia and osteoporosis. Yet they kept her alive for 4.5 miserable years. In any natural situation, she would have died long before - that’s what happens to animals when they are too old to eat, drink, move, communicate.

Dementia and Alzheimer’s are now the leading cause of death in the UK. Great job guys - we’ve stopped people dying of natural causes and now we’re keeping them alive long enough to die a horrible, drawn-out living death instead.

FIL for example. As a dedicated smoker, drinker and enthusiastic consumer of daily fried breakfast, he should have died of a heart attack years ago. But he had a quadruple bypass instead. And now at 80 he’s setting off down the same path as MIL , diagnosed with vascular dementia, frail, confused and lonely.

rockrollerpud · 10/05/2026 07:23

OldJohn · 09/05/2026 17:31

I might be fortunate that I don't have any close relatives who would feel that they need to care for me. They would be happy to support me to make my own decisions.

Supporting you to make your own decisions IS caring for you. If you get dementia your decisions will likely be unreasonable and risky. They will take the brunt of that. In reality this means they’ll be fielding calls, uploading power of attorneys to
an endless list of institutions, researching, sending emails, sacrificing their free time, sacrificing their work time, unable to switch off their phones, responding to last minute crisis calls from social workers, nurses, care company managers and run ragged taking you to hospital appointments.

And as I mentioned earlier, you’d likely be unable to make your own decisions. So they’ll be burdened and stressed whatever happens.

OP posts:
WhaleEye · 10/05/2026 00:23

I’ve had discussions with my mum about future proofing where she lives( she refuses point blank to move to a bungalow) .
Her answer is to say she’ll drop dead before any of that is needed. Except she might not. But she will not have it.
Shes terrified of going into a home so at least some planning should be done for enabling her to remain at home, but no, not interested.
So now we wait for the inevitable crisis.

Carpedementia · 09/05/2026 20:48

Tontostitis · 09/05/2026 19:52

Tbf my dad had a large inheritance plus a house in his 40s has never paid a mortgage has taken 2 lots of equity release, never helped out me or my sibling and had a very nice, financialy comfortable life he's just outlived his resources. its not sad that he can't afford care it's downright stupid. But your point stands residential care should be available to those that need it but sadly those that need it are living longer and longer and there's more of them than the system can accommodate.

Ah I see . Not easy at all when you know he actually had the funds. I suppose no one believes they’ll need care one day.

Ved · 09/05/2026 20:21

Carpedementia · 09/05/2026 18:28

This is the problem. Adult children are getting on themselves. It’s a sad situation that you and your aging kids are left to manage if you don’t have the money to pay for residential care when you clearly need it.

Exactly this. It's so unfair and wrong that adult children are having to care for elderly relatives. (Many who are in their 50s and 60s, and many who have health issues themselves, children still living at home, and a job.)

worldsgonemadnow · 09/05/2026 20:20

OldJohn · 09/05/2026 17:31

I might be fortunate that I don't have any close relatives who would feel that they need to care for me. They would be happy to support me to make my own decisions.

I appreciate your positivity. Sadly things don't always work out tge way we plan. Like I said before I hope you can live out your life in the way you choose, but with a hope that it doesn't come at a great cost to those who love you.

Tontostitis · 09/05/2026 19:52

Carpedementia · 09/05/2026 18:28

This is the problem. Adult children are getting on themselves. It’s a sad situation that you and your aging kids are left to manage if you don’t have the money to pay for residential care when you clearly need it.

Tbf my dad had a large inheritance plus a house in his 40s has never paid a mortgage has taken 2 lots of equity release, never helped out me or my sibling and had a very nice, financialy comfortable life he's just outlived his resources. its not sad that he can't afford care it's downright stupid. But your point stands residential care should be available to those that need it but sadly those that need it are living longer and longer and there's more of them than the system can accommodate.