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Elderly parents

Too young for a care home?

62 replies

Fizzyrosie · 29/04/2026 23:56

My Dad is 76, diagnosis of dementia in Oct. He seems to have got worse quite quickly and my mum can't really cope. He is fine with me but I work full time. I go round at least once a week and also do overnights too. I can't really do more. They've just started getting carers in twice a week which does mean my mum gets a break.

It has been very stressful as they've moved house further away from me and my dad has gone further downhill and now seems to struggling with incontinence. My parents marriage has often been strained but the atmosphere is so tense all the time and caring takes endless patience at the best of times. My mum wants to look at care homes. I think we should give the carers more of a chance and see what we can do to manage it better at home including not getting so angry with him. When I look after him I can get him to relax more and generally find he's ok. This just makes my mum angry "he does it for you" is the refrain.

They have some money but not that much if it's got to last 10 years! He's pretty fit and well Apart from dementia.

When we look for homes should we look at ones that accept council funding too as he will probably need that when the savings run out.

OP posts:
LBFseBrom · 30/04/2026 01:45

I'd up the carers if possible and wait a bit longer but, ultimately, the decision is your mum's, she is the one who lives with him all the time.

It's very sad. I am 76 and have made plans to barricade myself in at the first hint of care home. I need a toy armoury all of which looks realistic and scary and will deter visitors, any suggestions?

ProfessorBinturong · 30/04/2026 01:37

sittingonabeach · 30/04/2026 00:50

My DM is in the early stages of dementia, I visit her every day. She knows who I am but it is still relentless and emotionally draining.

My DF also had it early stage but the cancer killed him before the dementia did. They lived further away then so I only saw them every few weeks, he always put a front on when I visited so I never really saw how bad he was until near the end. Now I realise what my DM had to put up with

My DM is much better with my DH than she is with me. Spending every day with a loved one with dementia can be horrendous

Showtime for 'strangers' is a very real phenomenon (and 'stranger' can include even the closest family members if they don't actually live in the same house).

My stepdad had dementia and I used to visit for a week at a time because I live at quite a distance. His daughters who lived closer would pop in much more frequently but only for an hour or 2 at a time. For them he could keep up a front for the duration of the visit, so they very rarely saw the reality. For me, the first time I visited after it really took hold he kept showtime going for the first 4 days; the next time about a month later it lasted less than 2 days; and at each subsequent visit it got shorter until it was down to just an hour or so after arrival.

Plainjanespaghetti · 30/04/2026 00:58

Has your mum got any outside support?
Admiral nurses? Age UK? Had a carers assessment? She is eligible for this even if yr dad is self funding.
If he lacks the mental capacity to make the decision to move them yr mum would still need to be acting in his best interests, and in the least restrictive way. This usually means upping care at home including assistive technology, respite might form a part of this.

Respite care also gives the person a chance to see what residential care could be like and may alter their view.

The above organizations can give more detailed, nuanced advice.

It would potentially be worth your mum speaking with the OPG if yr dad lacks capacity, re what needs to happen which could really depend on his level of resistance, for example how would he actually get to any home in the first place?

It sounds very stressful for everyone. I hope you are looking after yourself too.
I hope this makes sense, sorry if garbled, I'm quite tired but you must be worried to be posting this late at night

sittingonabeach · 30/04/2026 00:50

My DM is in the early stages of dementia, I visit her every day. She knows who I am but it is still relentless and emotionally draining.

My DF also had it early stage but the cancer killed him before the dementia did. They lived further away then so I only saw them every few weeks, he always put a front on when I visited so I never really saw how bad he was until near the end. Now I realise what my DM had to put up with

My DM is much better with my DH than she is with me. Spending every day with a loved one with dementia can be horrendous

ProfessorBinturong · 30/04/2026 00:41

The house is not part of financial assessment. Nor are any savings or other assets in your mum's name, and only half of any in joint names.

Age isn't really relevant, but stage of dementia is.

Respite or day centres are probably the first thing to try at the moment.

Fizzyrosie · 30/04/2026 00:18

They have about 4/5 years worth at £1.5k a week. That doesn't include the house they live in. But think I'm right that it can't be sold if my mum is living there

OP posts:
Fizzyrosie · 30/04/2026 00:14

He won't want to go (or stay). He will probably try to leave and they have to manage that. My mum has single LPoA. Will she need to apply to the court ahead of the move. We could look at respite I suppose

OP posts:
LadyGardenersQuestionTime · 30/04/2026 00:14

The thing about council funding is that if they don’t think he needs to be in a care home and could manage at home with carers then theoretically they could refuse funding when the time comes. If they are managing ok with just a couple of carers a week he’s probably a long way from needing residential care. How long would their £ last if paying privately at £1500 or so a week?

Plainjanespaghetti · 30/04/2026 00:11

Yr dad needs to want to go.
Even if he lacks capacity and yr mum has legal powers it will potentially mean an application to the court of protection if he doesn't.
Would respite care be a compromise?
Day service an option?

Fizzyrosie · 30/04/2026 00:08

She's the same age. Agree it's her decision. Just wondering how unusual it is to go into a home at that age and with mid stage dementia. He still knows who we all are and is quite aware.

OP posts:
scaredsillyabout · 30/04/2026 00:07

You need to go with what your mum wants, she’s the one dealing with the brunt of it.

JassyRadlett · 30/04/2026 00:02

How old is your mum?

I know you're doing what you can and it sounds like you're doing a lot, but you're not the one living with grinding reality of it day in, day out, with the only breaks coming according to someone else's schedule. If the marriage was already strained the caring must be hell for her. So when you talk about what "we" can do to manage better at home you're really talking about what she can do.

It's a shit situation but ultimately if your mum feels it's getting beyond her, and despite the financial risks associated with it, it has to be her decision unless you're going to have your dad move in with you.

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