Just out of interest, what are your elderly parents care home fees?

The care home my husband works for is £1,558 per week and they also have a live in carers at £1,800 per week.

7.5k a month
Glasgow suburb

Are they claiming Attendance Allowance as that will be awarded for end of life?

I am not sure it would. I imagine the cost to provide is somewhere between what the council says it will pay and what self funders, who essentially top up the council places, pay. So it probably makes sense for the council to only pay for those who have no savings and not have to deal with the wider issues of running a home. It’s an awful demoralising system, and when you cannot get nhs coverage when your parent is bed bound, unable to move independently, in an advanced state of dementia so unable to speak and doubly incontinent, yet their needs are “social” when the person of the same age with Parkinson’s in the next room has their stay completely covered - it feels like there is no rhyme or reason to it.
my mum grew up poor and saved her entire life. I am glad she has access to good care but the system is not just.

£1550 p/w in Hertfordshire. Very expensive but place is clean, friendly & good care with excellent range of activities that make a real difference. Been a real fight to get local authority to pay a portion of the monthly fees (in line with government guidance, given my parents circumstances)

I completely agree. It should be a choice. Sadly it never will be.

£1400 per week. Self funded.

This is for end of life and hard to get for dementia or Parkinson’s as end of life can vary by years.

Selling houses. When they bought them for £35k in 1975....and now they're worth £1.35 million

Edinburgh - parents each paying £1900 per week and that’s with a discount for two of them ! However due to their needs they have gone straight to the nursing wing where staff ratio seems to be about one staff member for each resident, the place is very warm and DF has been enjoying some outings which are included and the afternoon wine ( with a cheeseboard on Saturdays). It’s a bit like a nice four star all inclusive which smells a bit of wee.

They are getting an assessment for the free personal care element which should reduce the cost by £350 per week each if they qualify for the full amount (DM definitely will) and I think they can continue to receive attendance allowance although I haven’t filled in the form for DF yet, so that should take it down to around £1500 per week. It is what it is, they couldn’t continue to live at home and that’s what their savings are for, I just hope theu run out before the money does.

My DF’s care home fees (London) were £1450 per week.

As soon as he was declared ‘end of life’ he went onto NHS continuing health care. Op, do check whether your DM is not entitled to this. I was told by the end of life palliative care team that he would qualify and it was in place the following day. I did nothing.

His care place was full funded from then and he died two weeks later.

This would be one of the best financial decisions ever made for the taxpayer. It would free up cash for Councils to invest in other mums needed areas. A significant amount. I just hope they don't get lobbied (bribed) by the care home groups and investors to reverse this decision. We live in hope.

Dementia care home for mil £2,200 per week

Everything you need to know about applying for NHS CHC. Beacon have so much helpful information. Self funders often fall through the net as the local authority won't be contributing so have no incentive to argue with the NHS that they should be picking up some or all of the cost.
https://beaconchc.co.uk//faqs/general/

£3000 per week, specialist dementia but not nursing care. Inadequate rating on last CQC inspection. Social services chose it as they hold relatives finances.

While it is a lot of money and I have raged about it in the past, I divided the weekly fee by the number of hours (168), and gained a different perspective. £1400 a week (a lot of money) works out at £8.34 per hour. That doesn't seem a huge amount to keep my relative safe.

MIL are about £1200 a week. The interest she makes on her savings and investments plus her AA and pensions are more than enough to cover this. In fact last year she finished just over £1000 up!! She and FIL lived like paupers. When FIL died and she went into care it came to light they had over £1 million in assets!

Oh yes the extras!
Nails, hair, toiletries, bedding, glasses, hearing aids and endless clothes that go missing ( despite being named) or destroyed in the fiery furnace know commonly as the laundry!
I’ve even witnessed staff take toiletries from one residents room to use on another resident.
Even those are now named in big red pen so they don’t ‘walk out’

£1200 per week (has CHC funding for nursing which would be about £200 extra). Home is excellent, dementia specialist and has different wings for different levels of need, including a palliative care wing. Food is excellent, facilities are excellent, full programme of activities, visits (people and animals) and outings, and the staff and the care they provide are fantastic. (House is being sold so that the fees can be covered for as long as required.) It's an independent home and the owners have 2. They plough a lot of money into keeping the place decorated and keeping the residents comfortable.

My mum always says the same. I understand yours / her frustration but it’s very difficult to see a way to ethically euthanise dementia patients, who by definition can’t give consent (even if they have previously said they would want that).

The last time my mum was self funding it had gone up to £1k a week. Between her and my dad all their assets down to threshold have been used up now so she has a social services place, so now pays all her pension and teachers pension bar £26 each week.

My Dad’s fees were £1800 for nursing care in quite an ordinary care home. He has (undiagnosed dementia) in the North. Staff ratios are 3 care / nursing staff on at a time to roughly 20 residents. Don’t know how that stacks up to other homes. I say were as they decided his needs were too great and ‘shipped’ him out to hospital after just over 2 weeks. I’m worried about finding somewhere that can cope for him and how much that will cost.

What are you doing about the lack of care?

We sold their house, 600K, 375k of which went to the care home. The ones that are self funding subsidise the council places. It’s pretty unfair in my opinion but thats how it works. 23k is the cut off for assets, or was a few years ago.