Any help appreciated...I think my mum "isn't dying quickly enough" as she has been in the hospice for 2 weeks now. I don't know if I can contest that or what to do.
She is in a hospice with advanced cancer (terminal, liver etc)
She's on a syringe driver (pain, sickness) her mobility declined and her legs just don't seem to work anymore so she is bed bound. She eats only icecream, iced water and some soup sometimes but can't tolerate it at a temperature that she would ordinarily have eaten it at. She has a catheter and is pooing on a nappy pad in the bed.
She has proper mental capacity and can get all the test questions right for this, when she is not in delirium or asleep (which is 22+ hours per day I would say - she can only stay awake for a few mins at a time). She is in and out of delirium every day now and when she is in it, she doesn't know where she is, what is going on, she is hallucinating things that aren't there and she is frightened. When awake, briefly, she falls asleep mid sentence during very short conversations and her voice has become so quiet that you need to put your ear to her face to hear her.
Sometimes I think she is near death and she was admitted on that basis but they want to send her home. I don't know how we can possibly manage. We were absolutely destroyed trying to care for her before she went in to the hospice and she is afraid and doesn't want to go home. Her wishes were to die in the hospice. I don't know if she would even make the transport home, that in itself might stress her destroyed body to the point she dies. She would have to be belted to a trolley in an ambulance.
what should i do? is she not near to death?
all her life she has helped people and I don't know what to do for her :(