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Elderly parents

to make it plain to df that if chooses to go back to his house we can help but can't run round after him constantly

64 replies

ohreallyIsee · 10/01/2026 09:53

Had a shit month, my stepmum died just before xmas(had been in home with severe dementia for about 4 years), her funeral is this week. Df has endstage cardiac failure(surprised he's still with us) and has gone downhill a lot over last few months. He's still at home but myself and my stepbrother+sister have serious concerns about state of house and his ability to look after himself but he has been refusing all help(won't consider having carers or even a cleaner, no keys are or alert system). This week had to call an ambulance and he went into hospital, they wanted to discharge him yesterday but we've managed to persuade them to keep him til Monday.
We all think it's time for a home but we know he won't agree to that. House needs work before we're happy for him to go back(dangerous stairs, toilet not working properly, house filthy), so are we being unreasonable to say that if he insists on going back to the house we can help out but can't run round after him constantly, I work nearly full time in a stressfuljob, my stepsister has her own health problems and my stepbrother lives at the other end of the country. We're trying to get social involved but don't know if he'll co-operate

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ThePure · 22/01/2026 14:59

ohreallyIsee · 21/01/2026 21:38

We're really hoping things change, the local well being team discussed him in their meeting today after we raised concerns when he was discharged last week but unless he co-operates it's difficult. We're all medical(pharmacist, paramedic and retired nurse) and last week we kept saying that it was an unsafe discharge, that he really didn't have an understanding of how ill he was and wasn't really looking after himself although he thought was but they still discharged him. I'm going to see if I can speak to the ward social worker and go through all our concerns again. He's still going on about getting his car back on the road(he is unaware that I have raised concerns about his driving)

The trouble is that he would need to have some kind of diagnosis of a disorder of his mind or brain for the mental capacity act to apply at all. That is base one to displace the presumption of capacity that we all have under the act. If he doesn’t have such a disorder then he continues to have the right to make unwise choices including to take an unsafe discharge. The hospital cannot force him into a care placement or care package unless he agrees or is certified to lack capacity. It is not their fault that the discharge was unsafe it is his own responsibility if he is capacitous. You will need to ask for an assessment for dementia if you think he has that condition or suggest some other disorder of his mind or brain that the hospital can diagnose and would be affecting his judgement.

CrazyGoatLady · 21/01/2026 23:13

EmotionalBlackmail · 12/01/2026 11:44

She thinks paid compassionate leave should cover potentially weeks of running around after her on repeat.

I’ve pointed out that there is emergency unpaid leave which is a day to deal with an initial crisis, but after that I’d be expected back at work and someone else dealing with the care. And that compassionate leave is two days paid leave when she dies! She’s also expected me to use compassionate leave to take her to the funeral of someone I don’t even know.

They really don't get it do they. Sympathies.

ohreallyIsee · 21/01/2026 22:52

He is very plausible, he's intelligent but in total denial about the state of his health and ability to look after himself and his house is a mess. We've now discovered that the drains are blocked, we can't afford to get someone out but he can, we can help him organise it but he will have to pay

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Climbingrosexx · 21/01/2026 22:11

It's a difficult one, especially if he is plausible when speaking to the medical staff and SS. If they feel he has capacity then they can't/won't make a decision for him.

With my situation things were finally taken out of mine and my elderly parents hands when they were in late stage dementia and it was clear I was never going to cope. It took years for that to happen and I was at breaking point (only me and no one else to help).

You have to stand your ground and make it clear to the hospital you won't be around full time and the decision is theirs. I say this but I was too soft hence me reaching the end of my tether.

ohreallyIsee · 21/01/2026 21:38

We're really hoping things change, the local well being team discussed him in their meeting today after we raised concerns when he was discharged last week but unless he co-operates it's difficult. We're all medical(pharmacist, paramedic and retired nurse) and last week we kept saying that it was an unsafe discharge, that he really didn't have an understanding of how ill he was and wasn't really looking after himself although he thought was but they still discharged him. I'm going to see if I can speak to the ward social worker and go through all our concerns again. He's still going on about getting his car back on the road(he is unaware that I have raised concerns about his driving)

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BlackAmericanoNoSugar · 21/01/2026 20:28

I'm sorry to hear that @ohreallyIsee, that's less than a week from going home to having to be readmitted which really ought to make him realise that things will have to change. I will hope for your family's sake that he has a revelation about this, but experience suggests that he will recover and just decide to go home again.

ohreallyIsee · 21/01/2026 13:34

Well he's back in hospital and very ill. My stepsister went round yesterday, couldn't get a response so she and her daughter got in via a back window. They found in bed, he was difficult to rouse and confused. When the ambulance got there his oxygen was only 71 so he probably would have died if they hadn't broken in

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ThePure · 14/01/2026 21:47

If he has that much money then he will have to pay for any care package himself which is often the reason why people refuse care. They think it is too expensive and they want to save money when often it’s a false economy to refuse care that would help them to stay at home longer (and anyway what else would they be keeping if for??)

ohreallyIsee · 14/01/2026 10:15

He's really shot himself in the foot with as he's gone from having a daughter and two step children who'd help out quite happily to us feeling used and resentful

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ohreallyIsee · 14/01/2026 10:05

He's also still driving although we think he shouldn't be, I reported our concerns to the police and gp yesterday so we'll see what happens-i know he won't surrender his licence voluntarily.

We're all pissed off and feel like he's been playing us for fools so we're going to leave him to it, no more lifts, no more helping with paperwork, I'll do some shopping once or twice a week but when it's convenient for me, not when he demands

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ohreallyIsee · 14/01/2026 09:45

He unfortunately does not have a fall alarm-won't have one.
During g a conversion with my stepbrother yesterday we realised that he has more money than he was letting on, my stepbrother let slip that his private pension is a lot larger than he has implied and I mentioned a savings account that my stepbrother knew nothing about, so we realised that actually instead of being on his bare bones he should actually be quite comfortable especially as the house is paid off.He had been implying that he was going to struggle to pay for the funeral and the wake when that won't be the case at all and he should certainly be able to pay for some help around the house

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MikeRafone · 14/01/2026 08:04

When they phone for “h your help” remind them you can get “ carers help” but you can’t do it each and every time and ask why are you being so stubborn?

MikeRafone · 14/01/2026 08:01

Tell him he has option of care home or staying at home with carers & cleaner twice a week harsh but his choice

Gassylady · 14/01/2026 07:53

EmotionalBlackmail · 11/01/2026 12:40

Trouble is, a lot of us HAVE had the conversation, multiple times, and the elderly parent ignores it, or agrees at the time and then refuses to do anything different.

I had it again over Christmas. Reminded “D”M that if she had a fall/stroke/crisis I can’t just drop everything and come
and deal with it. Because of my dc, and job (FT, demanding, involves travel and overnights). Her response: well work will have to sort themselves out, you’ll be needed so you can’t be at work.

When the next crisis happens, she’ll be yet another one stuck in hospital whilst SS try to get hold of me.

Wow I think she might win the most self centred on the thread award. No mean feat on this board.

Gassylady · 14/01/2026 07:52

ohreallyIsee · 13/01/2026 15:56

Well he's being discharged today, is refusing any help or care package. He apparently is going to let someone look at the stairs but we will see what happens.
I am happy to call him every day to check on him and go shopping for him a couple of times a week and have him up for meal once a week but I can not be at his beck and call nor can my stepsister due to our own lives.

Almost inevitable that he would of course insist on going home. I think the modern “discharge to assess” approach can very occasionally work well if the team is able to do home visits promptly and get equipment in very promptly. More often it is a way of getting a patient out and leaving them to struggle on.

Please do try and stay to your boundaries. Does he wear a falls alarm at least - who is on the contact list for that if he does? Hopefully the stairs will not be his undoing.

ohreallyIsee · 13/01/2026 15:56

Well he's being discharged today, is refusing any help or care package. He apparently is going to let someone look at the stairs but we will see what happens.
I am happy to call him every day to check on him and go shopping for him a couple of times a week and have him up for meal once a week but I can not be at his beck and call nor can my stepsister due to our own lives.

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DemonsandMosquitoes · 12/01/2026 16:55

Except those choices are usually made at someone else’s expense. He has the right, that doesn’t make it right. I hope I don’t do this to my children.

LoyalGreenOtter · 12/01/2026 15:06

I said she was being very reasonable to say they can only help out occasionally. Ultimately, it is still, and should be, his choice. He accepts the risks etc of living alone.

DemonsandMosquitoes · 12/01/2026 14:59

LoyalGreenOtter · 11/01/2026 16:13

Very reasonable but you do have to realise that your dad is a grown man who is within his rights to stay in his own home, difficult though that may be for everyone else. There will come a time when we are all in your dad’s position and may also not want to leave our home and memories, despite currently believing we’d be ok with it.

The fact we will all be old one day is irrelevant. It’s not a given to become stubborn and unrealistic. My own GP planned well. There comes a point when needs outweigh wants and as individuals we have a responsibility to get our heads round that at a much earlier age if we all want modern medicine to continue to extend our lives past their natural end. As a nurse of many years in both primary and secondary care I see the ramifications of failure to do so every day. Look at the profile of the majority of those filling medical beds, A&E units, the ambulances queued outside hospitals. Many hundreds of thousands on a revolving door of re- admissions and unsafe discharges up and down the country.
Anyone is allowed to make unwise choices as long as they don’t impact negatively on others, particularly our nearest and dearest. To make them knowing that they will is the height of selfishness. PIL, dementia free, had a similar ‘cross that bridge’ mentality but were straight on the phone to us the minute things predictably fell apart. Dreadful parenting. It damaged the last several months of their children’s relationship and left a very poor legacy.

EmotionalBlackmail · 12/01/2026 11:44

Shinyandnew1 · 11/01/2026 13:22

Her response: well work will have to sort themselves out, you’ll be needed so you can’t be at work.

Wow, that's a pretty selfish response. I would go down the 'I need my job and can't afford to lose it as we will lose our home' line.

She thinks paid compassionate leave should cover potentially weeks of running around after her on repeat.

I’ve pointed out that there is emergency unpaid leave which is a day to deal with an initial crisis, but after that I’d be expected back at work and someone else dealing with the care. And that compassionate leave is two days paid leave when she dies! She’s also expected me to use compassionate leave to take her to the funeral of someone I don’t even know.

sueelleker · 12/01/2026 09:53

I sympathise My SIL rented rooms in a large house, where the elderly owner also lived. When the old lady started having falls, my SIL was roped in to take her to A&E. When the hospital asked who would take care of her , and the lady answered "SIL". was when my SIL started looking for a new home! No relative, everyone just assumed that because she was living in the house she would take on the responsibility.

HappyToSmile · 12/01/2026 09:43

We currently have the same issue with my dad. He shouldn't be living alone, but refuses a live in carer or going into a home.
He has carers in 3 times a day, a cleaner and meals on wheels, but he only (finally) accepted the carers (after physically removing one carers from his house), after we told him it was carers or a nursing home. However, it still means an awful lot of running around for us (he is currently in A&e), and we are physically and mentally exhausted by it.

Lightwell · 12/01/2026 08:59

I can’t walk past this post without asking all those with elderly parents not to leave it to social services or the hospital ward team to have the conversation

As others have said I think this is naive about what actually happens. I would bet the mortgage that every family has had those conversations. Elderly people just don't want to hear it and are in denial. And quite frankly if they just refuse to engage, fairly often the family does step in to help, so it's a game of chicken that the recalcitrant old'un often wins.

CandiceBloor · 12/01/2026 08:43

ohreallyIsee · 11/01/2026 22:54

I know he has very right to choose to go back to his own house but he also needs to accept that he is now in eighties and poor health
He really needs help to stay at home and me and my stepsister are limited in time and ability in what we can provide.
If he is prepared to accept help he will be able to stay at home safely, otherwise I can see we will be in crisis mode again or worse shortly

Most people in reality end up having to introduce carers as “friends” or “someone to give you a hand”. Whatever the reason they will accept, my parents were used to and quite liked people in the house to chat to, so we called them the cleaner which was a role they were used to. Once in, they would then help way beyond cleaning.

You can also try the move direct approach of literally saying what you have here - dad, we love you, and the choice is yours - accept the help available (paid carers, the council) or go into a nursing home. Which would YOU prefer? Point out that if he delays hints then it will almost certainly result in a nursing home simple because it’ll all be an emergency. If it is very important to him to stay in his own home he should accept this. But, sometimes not. Sometimes people sadly do need a couple of admissions before they come to terms with reality but they usually do over time. It can also help when it’s coming from a professional like nurse or social worker- you can find the reaction is quite different.

ohreallyIsee · 11/01/2026 22:54

I know he has very right to choose to go back to his own house but he also needs to accept that he is now in eighties and poor health
He really needs help to stay at home and me and my stepsister are limited in time and ability in what we can provide.
If he is prepared to accept help he will be able to stay at home safely, otherwise I can see we will be in crisis mode again or worse shortly

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