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Elderly parents

88yr old DM with Dememtia wanting to leave carehome to go home as being pushed by my Dad - what can I do?

88 replies

Secondtonaan · 05/01/2026 14:54

DM is 88, has vascular dementia, I'd say middle stage. V bad osteoporosis and mobility, incontinent and very confused. My Dad was looking after her at home for 3 years with one carer visit a day but it was going terribly, she had a lot of falls and A&E dashes... his health was declining too as getting no sleep and struggled with household tasks he'd never had to do before. He clearly couldn't cope but refused any more help from carers or anything I set up - day care / lunch clubs / meals on wheels etc etc.

Start of 2025 she went into a lovely care home for respite care - although I thought this would be long term as it was clear she needed this level of care. She is very happy there, well looked after and thriving doiing the activities compared with being stuck in one room all day at home. My Dad had some health crisis and ended up in hospital for a few months so DM has stayed until now.

However my Dad is now home and "better" and is desperate to get DM home. He could not cope in any way and she is so much better off where she is. I'm terrified what would happen if she went home. It's all about what Dad wants - he is lonely and feels abandoned by DM and as she hasn't lived at home for a year is totally ignorant of her care needs and seemd to have totally forgotton the state they were both in when she lived at home.

My Dad is about to give notice to the home for DM to leave. She has been appointed a social worker but is telling her she wants to go home so the social worker is supporting this. DM has no idea what's involved or any concept of how to cope at home... I don't even think it's what she actually wants. My Dad goes into the care home 3 times a day and tells her she's coming home so this is what she's telling people. I'm at my wits end, trying to explain to social worker the disatster that would unfold but they are saying they have to support DMs choice.

I'm trying not to drip feed but also not make this too long! I have POA for both financial and health as does my Dad. DM had a DoLs assesment recently when they said she lacked capacity (the care home say she lacks capacity) but then it was reveiwed at the last minute and they changed their mind and didn't sign it so there is no DoLs in place which I cannot understand as she clearly has no idea what is going on.

What can I do to keep DM safe / in the home?

OP posts:
Gall10 · 06/01/2026 11:19

I’m sorry not to be able to give any advice but I hope you can find an acceptable solution to your parents current situation…wishing you all a good outcome.

hatgirl · 06/01/2026 10:45

SleafordSods · 06/01/2026 07:18

Aren't there also long delays in the COP? I don’t know what they’re like now but the last time I heard it was 18 months to get a Court Hearing.

Depends on the urgency - anything that is routine and non urgent (e.g. deputyship for selling a property for care fees) there are long delays.

Anything relating to a personal welfare application such as this will be heard much quicker and as required.

SleafordSods · 06/01/2026 07:29

sittingonabeach · 05/01/2026 22:56

Do you think your DF’s capacity is beginning to go?

Can you get an idea from your DM what home she is talking about? As others have said she may be talking about a different home, or different time.

I brought this up further up in the thread. I would certainly be raising this with the SW that his cognition seems to be in decline as part of the reasons that it’s not a safe place for her to be.

I’m also appalled that she broke her neck! That must have been awful. How can he possibly say it’s safe for her at home?

And telling her she’s not good enough is awful. Sadly it’s our experience that abusive men can and do get more abusive when they actually have to give care to their DW. DSIL said that she she thinks FIL viewed DMIL as the “Wife Appliance” avd once she developed Dementia and could no longer do everything for him he became embarrassed and angry.

I still think part of his reasoning to refuse Carers at home was because he felt embarrassed, it was nothing about making her life better and providing what she needed.

Unfortunately she declined massively during lockdown and we weren’t aware of how bad he had become.

You know how bad the situation at home would be, I’m glad you have the strength to look after your DM and go against your F’s wishes. It must be hard but it sounds as though you’re doing the right thing Flowers

SleafordSods · 06/01/2026 07:18

hatgirl · 05/01/2026 22:10

It sounds like they have already exhausted the normal Best Interests process though from what the OP has posted.

Ultimately the two LPOAs disagree, the OP feels the capacity assessments are flawed (perhaps on the informed decision part of the decision) and there also appears to be a dispute/disagreement about P's capacity relating to the decision.

'Off to court we should go' in the words of my most favourite local authority lawyer.

Aren't there also long delays in the COP? I don’t know what they’re like now but the last time I heard it was 18 months to get a Court Hearing.

Seeingadistance · 05/01/2026 23:33

Secondtonaan · 05/01/2026 21:44

Very true. She broke her neck last year as my Dad was rushing her to go out (she didn't want to go out as finds it too much now). Lots of other stuff. It's horrible.

This is awful, and surely adds another element to the discussion about what is in the OP's DM's best interests.

It's not simply about her capacity to make a decision, but about the reality that she has suffered actual physical harm while previous being "cared for" by her husband. From everything that the OP has said, it seem that her mother has been at best dominated, at worst, abused, by her husband over the course of their marriage. This poor woman is probably now, in the grips of poor health and dementia, having a more socially fulfilling and secure life than she has had for many decades.

Has anyone asked the husband why he wants his wife back home? In what way does she benefit? And does he acknowledge that his actions caused her physical injury in the past?

Madformaltesers · 05/01/2026 23:32

@hatgirl I'm going to leave it here as it’s not my post to have a debate in and derail. It seems we both work in health or LA with experience of commissioning/MCA etc so we could go on forever.

Madformaltesers · 05/01/2026 23:21

@hatgirl hence my original post that OP requests another capacity assessment and a formal best interest meeting to lay everything out with all relevant professionals.

i didn't say anything about funding over riding POA welfare duties just pointed out that ASC/NHS can and do make best interest care decisions without it going as far as CoP if they are funding

hatgirl · 05/01/2026 23:05

Madformaltesers · 05/01/2026 22:58

i cant see that there has been a formal best interests meeting with all relevant parties just individual conversations.

Which is perfectly acceptable. It's not always appropriate to get everyone in the same room at the same time. It often can prevent some people from being able to voice what they want to say.

A series of conversations regarding a best interests decision with all the relevant parties is just as valid as a single round table discussion.

hatgirl · 05/01/2026 23:00

Madformaltesers · 05/01/2026 22:44

Court of protection would be last resort and is a long winded process, you need good reason to remove the POA’s as not acting in best interests. The OP answered me and said DM was self funding so it all hinges on capacity. If the funder was ASC or CHC NHS and the DM is not deemed to have capacity they would make the decision based on the best interest meeting with all POA’s involved, which could be challenged but in my experience this is rare. If the DM is deemed to have capacity and as she is self funding she can choose to go home or stay where she is without a Dols

It also relies on a good quality capacity assessment carried out by a competent professional.

Lots of professionals throughout health and social care still don't grasp that capacity isn't just being able to communicate a decision. It has to be an informed decision based in reality and coming from an informed rationale.

It sounds like OP isn't convinced that the capacity assessments have been completed robustly. She might be wrong, but ultimately her role as LPOA is to act in a way that she believes in in the person's best interests. She is disputing the decisions of other parties involved and the outcome of the capacity assessment. That means the COP need to make the decision.

Funding arrangements don't override the duty of the LPOAs to make the best decisions with what they believe to be the welfare of the person at the heart of them.

I don't think the COP is a last resort, I think local authorities just avoid it if they can due to the paperwork and the scrutiny involved.

If their capacity assessments are sound they have nothing to be worried about.

Madformaltesers · 05/01/2026 22:58

hatgirl · 05/01/2026 22:10

It sounds like they have already exhausted the normal Best Interests process though from what the OP has posted.

Ultimately the two LPOAs disagree, the OP feels the capacity assessments are flawed (perhaps on the informed decision part of the decision) and there also appears to be a dispute/disagreement about P's capacity relating to the decision.

'Off to court we should go' in the words of my most favourite local authority lawyer.

i cant see that there has been a formal best interests meeting with all relevant parties just individual conversations.

sittingonabeach · 05/01/2026 22:56

Do you think your DF’s capacity is beginning to go?

Can you get an idea from your DM what home she is talking about? As others have said she may be talking about a different home, or different time.

Madformaltesers · 05/01/2026 22:44

BlueandWhitePorcelain · 05/01/2026 21:18

Imo, if DM is found not to have capacity, then the ultimate decision maker would be the judge in the Court of Protection. DM would have the Official Solicitor acting for her (in reality a local firm of solicitors acts for DM, in consultation with the Official Solicitor) the LA would be another party to the case, DF another and OP - ie 4 parties. The care home might be asked if they want to join in the action. They can refuse. However, the care records would be required for the case.

OP could represent herself, she doesn’t have to have a lawyer. She can present her views, as expressed on here, as to what she considers to be DM’s best interests.

Court of protection would be last resort and is a long winded process, you need good reason to remove the POA’s as not acting in best interests. The OP answered me and said DM was self funding so it all hinges on capacity. If the funder was ASC or CHC NHS and the DM is not deemed to have capacity they would make the decision based on the best interest meeting with all POA’s involved, which could be challenged but in my experience this is rare. If the DM is deemed to have capacity and as she is self funding she can choose to go home or stay where she is without a Dols

Raisondeetre · 05/01/2026 22:13

EdgeOfThirtySeven · 05/01/2026 20:57

How about she visits her old home for, say, three days? So you don't give up her care home room, and she and your DF have to face the care issues and how she feels actually being there.

That’s a good suggestion . All you can do is write and express all your concerns and send it to both the care home and the SS. Then wash your hands of it all. If it goes tits up SS will have to sort it out.

hatgirl · 05/01/2026 22:10

PermanentTemporary · 05/01/2026 22:05

I’m really not sure that the ultimate decision maker would be the Court of Protection @BlueandWhitePorcelain? I thought that would be the case only where LPoA wasnt in place and deputy ship was therefore needed, or perhaps where the different attorneys couldn’t agree, or am I wrong about that? Of course that might happen here, but I wouldnt underestimate the benefit of a true best interests meeting - it is amazing how getting into a room together can help thrash things out. I wonder about including the GP in that meeting - my experience is that GPs are nearly always helpful in these situations though I’m sure it isn’t always the case.

It sounds like they have already exhausted the normal Best Interests process though from what the OP has posted.

Ultimately the two LPOAs disagree, the OP feels the capacity assessments are flawed (perhaps on the informed decision part of the decision) and there also appears to be a dispute/disagreement about P's capacity relating to the decision.

'Off to court we should go' in the words of my most favourite local authority lawyer.

purplepie1 · 05/01/2026 22:05

Secondtonaan · 05/01/2026 17:49

Thank SO MUCH for replying and your advice, it means so.much.

I'm an only child so feel totally alone with this, the years I spent supporting them at home were horrible and I don't want to go back to that constant level of worry. I felt I was neglecting my DC and work and it was a nightmare.

I'm surprised at how passive the social worker is, she just goes along with whatever Dad says which is clearly a load of bollocks!!!

Keep fighting for what’s right for your mum and dad. The SW are keep to save money if people are cared for at home.

you know better than anyone how your dad will or will not cope.

it’s even harder when you are the only child and the only one to make these decisions. Im also an only one and have to make these decisions for my parent. It’s tough. The hospital have tried to send my parent home knowing I live nearby. I have fought this as they need more care than I can give and do not trust SW to provide a package of care that they need.

PermanentTemporary · 05/01/2026 22:05

I’m really not sure that the ultimate decision maker would be the Court of Protection @BlueandWhitePorcelain? I thought that would be the case only where LPoA wasnt in place and deputy ship was therefore needed, or perhaps where the different attorneys couldn’t agree, or am I wrong about that? Of course that might happen here, but I wouldnt underestimate the benefit of a true best interests meeting - it is amazing how getting into a room together can help thrash things out. I wonder about including the GP in that meeting - my experience is that GPs are nearly always helpful in these situations though I’m sure it isn’t always the case.

hatgirl · 05/01/2026 22:04

This is a dispute between two LPOAs, the local authority and the person who's capacity is disputed, and therefore should be referred to the Court of Protection for a decision.

You can make a section 16 welfare application to the COP- information about how to do that:

https://assets.publishing.service.gov.uk/media/5b17ef4be5274a18e5ea851b/cop-gn4-eng.pdf

https://assets.publishing.service.gov.uk/media/5b17ef4be5274a18e5ea851b/cop-gn4-eng.pdf

ChaliceinWonderland · 05/01/2026 21:45

Rictasmorticia · 05/01/2026 21:34

My mums husband was also abusive and plausible, She had a fall and instead of getting an ambulance he got the neighbour to carry her up to bed. Then he was boasting about lifting her on a saucepan to go to the toilet. Moving into a care home literally saved her life. Your mum only has you to advocate for her. I know it is hard to go against your dad and social services but you will be avoiding a disaster for your mum.

Yes my mums husband is like this, abusive awful.
Some great information here. Hope she can stay. Home would be completely unsuitable,

Secondtonaan · 05/01/2026 21:44

Rictasmorticia · 05/01/2026 21:34

My mums husband was also abusive and plausible, She had a fall and instead of getting an ambulance he got the neighbour to carry her up to bed. Then he was boasting about lifting her on a saucepan to go to the toilet. Moving into a care home literally saved her life. Your mum only has you to advocate for her. I know it is hard to go against your dad and social services but you will be avoiding a disaster for your mum.

Very true. She broke her neck last year as my Dad was rushing her to go out (she didn't want to go out as finds it too much now). Lots of other stuff. It's horrible.

OP posts:
Rictasmorticia · 05/01/2026 21:34

My mums husband was also abusive and plausible, She had a fall and instead of getting an ambulance he got the neighbour to carry her up to bed. Then he was boasting about lifting her on a saucepan to go to the toilet. Moving into a care home literally saved her life. Your mum only has you to advocate for her. I know it is hard to go against your dad and social services but you will be avoiding a disaster for your mum.

Secondtonaan · 05/01/2026 21:29

stichguru · 05/01/2026 21:25

Is there any way that you DF could go to the care home too? What is the classification of the care home? Would he meet it? We have a lovely elderly couple from church, both in their 80s. Wife (W) has several health problems to do with her heart and breathing and needs a lot of support with daily living tasks. Husband (H) is basically pretty fit and active and can do everything independently, but was finding being independent for himself, plus all the housework, plus seeing to W's needs between carers' visits, way too much.

They ended up both moving into a care home where they have rooms next to each other. In W's room they have a double bed, wardrobe, chest of drawers, and W's medical stuff + adaptations to the ensuite bathroom. In H's room they have a some comfy chairs, a desk and upright chairs, and some other home comforts. They spend their days together in their sitting room, or in the care home lounge, going for walks etc. While W sleeps, H can go off for a longish walk or help with gardening in the place, knowing that other people will look out for W. Or he can be in their sitting room and read etc. When she's awake, they do stuff together and the staff will help with pushing W into the grounds etc if H is tired.

This would be lovely and makes sense. I've suggested similar many times but he wouldn't have it on any level. Will never leave his house or accept he's in his late 80s.

OP posts:
PrincessofWells · 05/01/2026 21:28

Secondtonaan · 05/01/2026 14:54

DM is 88, has vascular dementia, I'd say middle stage. V bad osteoporosis and mobility, incontinent and very confused. My Dad was looking after her at home for 3 years with one carer visit a day but it was going terribly, she had a lot of falls and A&E dashes... his health was declining too as getting no sleep and struggled with household tasks he'd never had to do before. He clearly couldn't cope but refused any more help from carers or anything I set up - day care / lunch clubs / meals on wheels etc etc.

Start of 2025 she went into a lovely care home for respite care - although I thought this would be long term as it was clear she needed this level of care. She is very happy there, well looked after and thriving doiing the activities compared with being stuck in one room all day at home. My Dad had some health crisis and ended up in hospital for a few months so DM has stayed until now.

However my Dad is now home and "better" and is desperate to get DM home. He could not cope in any way and she is so much better off where she is. I'm terrified what would happen if she went home. It's all about what Dad wants - he is lonely and feels abandoned by DM and as she hasn't lived at home for a year is totally ignorant of her care needs and seemd to have totally forgotton the state they were both in when she lived at home.

My Dad is about to give notice to the home for DM to leave. She has been appointed a social worker but is telling her she wants to go home so the social worker is supporting this. DM has no idea what's involved or any concept of how to cope at home... I don't even think it's what she actually wants. My Dad goes into the care home 3 times a day and tells her she's coming home so this is what she's telling people. I'm at my wits end, trying to explain to social worker the disatster that would unfold but they are saying they have to support DMs choice.

I'm trying not to drip feed but also not make this too long! I have POA for both financial and health as does my Dad. DM had a DoLs assesment recently when they said she lacked capacity (the care home say she lacks capacity) but then it was reveiwed at the last minute and they changed their mind and didn't sign it so there is no DoLs in place which I cannot understand as she clearly has no idea what is going on.

What can I do to keep DM safe / in the home?

Op it's always worth consulting a solicitor who is fully conversant with capacity and community care issues. They are very good at cutting through the 'crap'.

stichguru · 05/01/2026 21:25

Is there any way that you DF could go to the care home too? What is the classification of the care home? Would he meet it? We have a lovely elderly couple from church, both in their 80s. Wife (W) has several health problems to do with her heart and breathing and needs a lot of support with daily living tasks. Husband (H) is basically pretty fit and active and can do everything independently, but was finding being independent for himself, plus all the housework, plus seeing to W's needs between carers' visits, way too much.

They ended up both moving into a care home where they have rooms next to each other. In W's room they have a double bed, wardrobe, chest of drawers, and W's medical stuff + adaptations to the ensuite bathroom. In H's room they have a some comfy chairs, a desk and upright chairs, and some other home comforts. They spend their days together in their sitting room, or in the care home lounge, going for walks etc. While W sleeps, H can go off for a longish walk or help with gardening in the place, knowing that other people will look out for W. Or he can be in their sitting room and read etc. When she's awake, they do stuff together and the staff will help with pushing W into the grounds etc if H is tired.

Secondtonaan · 05/01/2026 21:20

BlueandWhitePorcelain · 05/01/2026 21:18

Imo, if DM is found not to have capacity, then the ultimate decision maker would be the judge in the Court of Protection. DM would have the Official Solicitor acting for her (in reality a local firm of solicitors acts for DM, in consultation with the Official Solicitor) the LA would be another party to the case, DF another and OP - ie 4 parties. The care home might be asked if they want to join in the action. They can refuse. However, the care records would be required for the case.

OP could represent herself, she doesn’t have to have a lawyer. She can present her views, as expressed on here, as to what she considers to be DM’s best interests.

So useful to understand this so thanks x

OP posts:
BlueandWhitePorcelain · 05/01/2026 21:18

Madformaltesers · 05/01/2026 18:54

Request the care home convene a best interest meeting involving yourself/father etc so concerns can be raised by all and discussed. also ask to see the Dols assessment and who reviewed it, removed the Dols and why. Ask the home put in for another assessment particularly as they feel she lacks capacity.
Who is currently funding the care as ultimately they will be the decision maker

Imo, if DM is found not to have capacity, then the ultimate decision maker would be the judge in the Court of Protection. DM would have the Official Solicitor acting for her (in reality a local firm of solicitors acts for DM, in consultation with the Official Solicitor) the LA would be another party to the case, DF another and OP - ie 4 parties. The care home might be asked if they want to join in the action. They can refuse. However, the care records would be required for the case.

OP could represent herself, she doesn’t have to have a lawyer. She can present her views, as expressed on here, as to what she considers to be DM’s best interests.