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Elderly parents

What do I do if she won’t go to bed?

35 replies

Facecream24 · 26/09/2025 15:11

So to try and cut a long story short but still give enough information for advice! DM had an operation on her brain, its left her with impairment/disability. Social worker has assessed as not having capacity and done a DOLs. She is to be discharged from the rehab centre she’s spent 3 months at next week to home where social worker has deemed she needs care from being awake to going to sleep as she’s a risk to herself in the kitchen/if she goes outside on the road etc.

I have a million questions and concerns but honestly the one thing that is bothering me most is what if she refuses to go to bed? Obviously the care package has a time on it (9pm) as the worker has to go home! But the care package says they need to make sure she’s in bed before they leave - she’s stubborn and grumpy with the situation as it is - what if she just refuses to go to bed? What happens then? I’m an hour away, work full time, primary aged kids etc etc and feel panicked there will be some expectation that I drive down there at 10pm to try and sort it! I know it’s hypothetical and might not happen but I’m already so stressed with trying to sort out finance and a million other things that this single thing is really bothering me the most. Thanks!

edited to add. She doesn’t feel there’s a problem and she should be allowed to spill boiling water on herself if that’s what she wants to do. She’s not happy at the idea of having someone there all the time which is why I’m worried there might be issues.

OP posts:
Facecream24 · 26/09/2025 15:36

@PermanentTemporary she does have an alarm but forgets she has it as there is an issue with memory too. She is having a door sensor installed and they’ve spoken about maybe getting one for her bed too.

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Facecream24 · 26/09/2025 15:34

the original suggestion was a live in carer but she hated that idea. Even more than this one! The idea is that the care can hopefully be eventually stepped down. Although I don’t know how likely this is.

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PermanentTemporary · 26/09/2025 15:34

Based on her presentation so far it sounds as if they don’t think she has needs at night. I think you’re going to have to cross your fingers that the carers can persuade her.

Do they/you think she could or would use a pendant alarm? Does she have one?

zipadeedodah · 26/09/2025 15:32

Could you get a live in carer as opposed to an hourly carer who comes in the day. They can be very cost effective compared to hourly carers. If she's self funding you've got a lot more choice so thats a good thing.

Obviously she'd have to agree/have a spare bedroom.

Facecream24 · 26/09/2025 15:29

Apparently if she wakes at night she’s not thought to leave the house or use the kitchen she’s still got many faculties. It’s really hard to explain sorry.

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Facecream24 · 26/09/2025 15:27

We were at the best interest meeting and it honestly felt like the best option at the time. The professionals really sold it to us. She’s self funding so it’s not even about the money! We don’t actually have health POA that I can tell only finance so I don’t think I can disagree anyway!

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zipadeedodah · 26/09/2025 15:27

Even if she has a DOLS and doesn't have capacity she still has the right to make decisions for herself, even if they are unwise ones.

Make it clear to social services and the carer that you won't be leaving your children unattended to see to your mum at 10pm at night. Other than that, there isn't much you can do. Hopefully she'll settle into the routine after a week or two.

If she doesn't, and she hurts herself, she'll just end up in hospital again and be back to square one.

rickyrickygrimes · 26/09/2025 15:25

What’s meant to happen if she wakes and gets up at night?

A DOLS is quite significant, I’m surprised they haven’t suggested 24/7 care ie in a home 🤷‍♀️

did you have any input into the decision to send her home? Are they expecting you to be available?

Facecream24 · 26/09/2025 15:24

She’s always been very independent and I think this still comes across despite the problems she is now having so at the best interest meeting all the various professionals all agreed this was the right thing for her. It’s completely different to dementia and hard to explain without meeting her. She can still go to the toilet, eat herself, tie her shoelaces! But can’t really see where she’s at risk. I asked why not overnight but they said they felt the risk was significantly decreased and based on judgment/balanced with intrusiveness. They intend to reassess after 7 days to see how it’s working.

I’ve got a meeting with the care provider so will make it clear I can’t be there but I’m just struggling to see how it will all work!

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EmotionalBlackmail · 26/09/2025 15:19

If she’s under a DoLs I’m surprised she’s not in a care home.
What does the social worker say about what happens at night? Presumably you have made it very clear you aren’t available?