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Elderly parents

DM going downhill fast but blood tests & investigations are coming up with nothing…

68 replies

Mini712 · 26/08/2025 19:34

In the last 6 months my 79 year old DM has gone from being reasonable well to now hardly eating, breathless and lethargic. She finds it difficult to stand or walk for more than a couple of minutes. She spends all day on the sofa & is sleeping a lot. She is also very disengaged with anything or anyone. 81 year old DF is now having to do all the chores and is struggling.

DM has had blood tests, a CT scan, colonoscopy & various heart scans but nothing life threatening has been discovered. She has atrial fibrillation & leaky heart valves but she has had this for years & the cardiologist says her condition is being well managed and her heart isn’t that bad.

Good news that nothing sinister has been found but where do we go from here? She is literally wasting away before our eyes.

I have also noticed that she has memory issues and may have early dementia.

Any advice would be much appreciated❤️.

OP posts:
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Clingingontosummer · 10/11/2025 22:13

I’m sorry for your loss OP and sorry the answers came too late.

Parksinyork · 10/11/2025 21:22

Fizzysticks · 10/11/2025 21:20

My FIL had rapid weight loss, severe back pain which made him virtually bed-ridden . After a very worrisome few months, he was diagnosed with Parkinson’s disease and doing much better now that’s he’s on the correct medication. He didn’t have any neurological symptoms, just weight loss and back pain. Have they considered Parkinson’s?

OP’s Mum has now passed away.

Fizzysticks · 10/11/2025 21:20

My FIL had rapid weight loss, severe back pain which made him virtually bed-ridden . After a very worrisome few months, he was diagnosed with Parkinson’s disease and doing much better now that’s he’s on the correct medication. He didn’t have any neurological symptoms, just weight loss and back pain. Have they considered Parkinson’s?

MrsLizzieDarcy · 10/11/2025 20:56

I'm so sorry for your loss OP. Take care of yourself Flowers

Ramblingaway · 10/11/2025 20:41

FieryA · 27/08/2025 09:56

Have you explored alternative medicine? Remedies in Ayurveda or Chinese medicine are very good for strength gain, increasing energy, and other mild symptoms. It is not a replacement for any tablets etc. but supplementary with no side effects.

Please don't start these types of supplements without consulting a doctor. They can interact with other medications, impact kidney or liver function and skew blood results.

SockFluffInTheBath · 10/11/2025 20:27

I’m sorry for your loss OP. I’m glad your DM was peaceful at the end.

temproasted · 10/11/2025 20:25

Fuckitydoodah · 09/11/2025 16:07

I'm sorry for your loss. It must have been hard to watch her decline and not have any answers, well at least until it was too late. I feel like people get written off medically after a certain age.

I found some of the replies on this thread depressing. Yes, 79 is old, but many people of this age and older are living well and enjoying life. The idea you should accept a loved has just got old and probably going to die soon is a bit sad. I could understand many of the replies if the OP mum had been 89.

Sorry for your loss op. And I agree with this

PoppySaidYesIKnow · 09/11/2025 17:15

Sorry for your loss OP, sounds like something pretty catastrophic which was undiagnosed, medicine isn’t an exact science. But answers always make it easier to accept. Thinking of you.

Fuckitydoodah · 09/11/2025 16:07

Mini712 · 09/11/2025 15:48

Mum passed away peacefully yesterday in ICU.
Although Mum didn’t get a formal diagnosis, the Neurologist believed that Mum was in the final stages of respiratory Motor Neurone Disease.
Hopefully, this information might help someone reading this thread in the future.

I'm sorry for your loss. It must have been hard to watch her decline and not have any answers, well at least until it was too late. I feel like people get written off medically after a certain age.

I found some of the replies on this thread depressing. Yes, 79 is old, but many people of this age and older are living well and enjoying life. The idea you should accept a loved has just got old and probably going to die soon is a bit sad. I could understand many of the replies if the OP mum had been 89.

Fuckitydoodah · 09/11/2025 16:07

Mini712 · 09/11/2025 15:48

Mum passed away peacefully yesterday in ICU.
Although Mum didn’t get a formal diagnosis, the Neurologist believed that Mum was in the final stages of respiratory Motor Neurone Disease.
Hopefully, this information might help someone reading this thread in the future.

I'm sorry for your loss. It must have been hard to watch her decline and not have any answers, well at least until it was too late. I feel like people get written off medically after a certain age.

I found some of the replies on this thread depressing. Yes, 79 is old, but many people of this age and older are living well and enjoying life. The idea you should accept a loved has just got old and probably going to die soon is a bit sad. I could understand many of the replies if the OP mum had been 89.

MrsSkylerWhite · 09/11/2025 15:54

Sorry for your loss X

MrsSkylerWhite · 09/11/2025 15:53

Q2C4 · 27/08/2025 07:32

@sidge so what is the cut off age where we should stop pushing for diagnosis & treatment? Should we just withdraw all medical treatment when people get to eg 80?!

If that’s what they want. OP is describing pretty much what happened with a very close friend’s mum. She was older but had just had enough and was ready, told my friend so several times and passed quietly, 2 weeks or so later.

catofglory · 09/11/2025 15:53

I'm so sorry for your loss @Mini712
❤️

Mini712 · 09/11/2025 15:48

Mum passed away peacefully yesterday in ICU.
Although Mum didn’t get a formal diagnosis, the Neurologist believed that Mum was in the final stages of respiratory Motor Neurone Disease.
Hopefully, this information might help someone reading this thread in the future.

OP posts:
Mini712 · 27/08/2025 21:48

@roobyred & @MrsLizzieDarcy thank you for the recommendation ❤️

OP posts:
MrsLizzieDarcy · 27/08/2025 20:49

Would second reading Kathryn Mannix, her books got me through my Dad's last months in relative sanity.

roobyred · 27/08/2025 20:39

If at all possible I would push your father into getting a cleaner and gardener now. My father is my mother’s carer and he is now absolutely exhausted and beginning to get unwell himself. My mum has been like yours for years now. It’s awful and I’m sorry you are going through this.
I found listening to Kathryn Mannix very insightful.

RoverReturn · 27/08/2025 20:15

My relative had similar symptoms- no appetite and very little energy and after a fair few months of investigations it was found to be leukaemia. He then had treatment for a another few months but it was sadly unsuccessful and he passed away.

Nousernamesavaliable · 27/08/2025 20:12

It sounds as though she is coming naturally to the end of her life, should that be now or a year down the line. Sometimes people dont need a "cause/reason". Apologies if this sounds harsh, sometimes families find it easier to have a cause/blame.

Tcateh · 27/08/2025 20:07

Have they checked her calcium levels

MrsLizzieDarcy · 27/08/2025 20:04

At 79, OP, I think I'd focus on making sure that she's well looked after and on only essential medication. I worked in elderly care for many years, and saw a fair few relatives desperately pushing for tests, answers and medications that rarely helped. Our bodies start slowing down at some point, and if the GP hasn't found anything, I would accept it for what it is and just focus on what's in front of you. I'd also add in that my DH has got AF and is on Bisoprolol - it makes him very very tired and sluggish at times.

I lost my Dad 2 years ago. The road to acceptance is a long and troubling journey.

FieryA · 27/08/2025 19:53

PermanentTemporary · 27/08/2025 14:27

@FieryA there are frequently terrible side effects from unregulated medicine, which is why there is regulation of medicine at all. High doses of unregulated steroids in those meds might result in appetite increases or other things you might want, but they’d come at a cost. I think it’s incredibly irreponsible to recommend that sort of stuff.

I don't know what you are talking about. I'm not asking OP to buy medicines from some dodgy online store. I suggested trying alternative medicine from certified doctors or practitioners. My own aged father has experienced great benefits from Ayurveda, after his cancer surgery. There are no steroids in it. If you don't know about something, don't unnecessarily spread misinformation.

PermanentTemporary · 27/08/2025 14:27

@FieryA there are frequently terrible side effects from unregulated medicine, which is why there is regulation of medicine at all. High doses of unregulated steroids in those meds might result in appetite increases or other things you might want, but they’d come at a cost. I think it’s incredibly irreponsible to recommend that sort of stuff.

dogcatkitten · 27/08/2025 14:10

Breathless does sound like heart or lungs, I assume BP is OK. Have they tried nebulisers to help her breathing?

Urinary tract infections can also be very debilitating and cause mental confusion in older people.

HelloPossible · 27/08/2025 14:02

I know everyone is different but from relatively well to hardly eating sounds like it might be depression. My experience of aging is there is a falling lots stage before real decline. It seems too early and sudden.

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