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Elderly parents

But you’re my carer!

213 replies

Dormit · 17/08/2025 17:47

How do you respond to this? I’m just back off holiday and my mum has asked me to go up (a 30 min walk uphill-I don’t drive) to make her a cup of tea because she’s upset and a bit shakey. When I said no, I got the but you’re my carer retort as though that means drop everything and do what she wants. She’s quite capable of making a cup of tea and food. Hospital has just discharged her and deemed her medically fit and safe and she’s just been on holiday. I’ve explained I’m cooking dinner for my children and can’t get up for a couple of hours. I’ve not had lunch yet today due to being on the phone with her and the hospital and messaging family who have only given me grief. I’ve just come back off a week holiday and feel like I wasn’t supposed to have any time off. Family are saying I shouldn’t take any money for what I do for her (£2 an hour). I’m her official carer and barely get time to eat lunch on days I am there (4-6 days depending) and yet family (who do fuck all) are saying it’s only what any daughter would do. I put in around 40 hours a week and am on call constantly. I do her shopping, gardening, cleaning, cooking, banking and all admin, hospital and GP appointments, transport booking, holiday booking, gift and card buying, DIY, liaising with all professionals and lots and lots of emotional support. I was exhausted and needed that week away and have come back to being told by family that I abandoned her. I organised carers to be there in the days that I wasn’t and she told me she wouldn’t need carers today so I cancelled them. I’m so pissed off.

OP posts:
the5thgoldengirl · 29/08/2025 14:35

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Dormit · 29/08/2025 14:30

I have already stopped being her carer and accepting money.

OP posts:
AugustSlippedAwayIntoAMomentInTime · 29/08/2025 14:03

Resign your role as her Carer. Stop the allowance. Stop accepting money. And tell her and your siblings that you're done. They've all been so critical, you're sure they can sort it better amongst themselves.

Block them if you have to for a while.

DeliaOwens · 29/08/2025 13:04

Sorry OP, no advice but selfishly I’m hopping on here as I’m in a similar position and finding the advice illuminating.

Viviennemary · 29/08/2025 13:02

TomatoSandwiches · 17/08/2025 18:27

I would stop being an official carer for a mostly capable adult if I was treated like that.

I agree. She wants a servant not a carer.

the5thgoldengirl · 29/08/2025 13:00

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Dormit · 29/08/2025 11:34

There’s a camera for outside. There’s no way she’ll agree to cameras inside but our Alexa devices are connected so that’s something.
That’s a good idea about the garden. The last gardener wanted to do that and mum didn’t want her to because it looked ugly. We have a really good hardware store locally that delivers for free so I’ll look into that.
Gd is going tomorrow to clean so I’ve asked mum if that’s every week and long term ie what she was supposed to be checking yesterday. She said she didn’t realise she was supposed to ask her that and wasn’t sure it would be long term. Well, it needs doing weekly like I’ve been doing it for over 3 years so why wouldn’t you ask her that? I think she realises she’ll say no she doesn’t want to and her one day off cleaning for granny. She’s asked me what cleaners charge and the one quote so far is going to be just short of £200 a month maybe less if they can do it quickly like I did. Depends on how thorough they are. Then with the gardener, the physio she needs, the care she’ll need to pay towards etc she’s looking at around £1000 a month for the basics. I think she’s realising the bargain she got with me 😂 and isn’t happy about it especially as people don’t do things like I do. I might sound conceited but I think it’s the autism that demands I do things to a specific standard and mum now sees anything less as not good enough. She’s been spoilt really.
Im enjoying time with my children and catching up a bit at home. I’ve been returning a pair of sandals for the past two months and have finally got round to doing it today. Just having lazy mornings is doing me good.

OP posts:
OLDERME · 28/08/2025 22:30

Just as an aside to care issues. Re the garden....winter is coming. Personally, I would go around the garden and pin down areas where where weeds are growing with black bags or other weed suppressant fabric. I know you want it looking pristine, but just try to minimize as much as possible. Take care of yourself, please. You really can't do it all. To minimise your feelings of guilt, when you are with your Mum, do tiny little jobs without telling anyone, and ones that your Mum can't see. Please, take care of yourself. It is such an emotional situation. Xx

the5thgoldengirl · 28/08/2025 18:16

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Ohnobackagain · 28/08/2025 17:08

Dormit · 28/08/2025 16:46

I spoke to the care agency and they weren’t impressed with what I told them.

Priorites are certainly the thing. I’ve kept mum in a high standard these past few years and knowing that won’t be maintained will be hard for her. It look a lot of self restraint not to do jobs today but I stuck it out.
I mentioned about the granddaughter doing the cleaning weekly and she looked confused and said she hadn’t said that and that gd had just said to phone if she wanted anything doing. So that’s a cock up already. The house needs a good clean and Hoover. The bed needs changing. The bins need emptying. Laundry needs doing. The garden is a mass of mare’s tails.
The gardener who gave the quote is the one who does her hedges twice a year. I sent him videos. He said about putting weed killer down though and disagreed when I said that would kill the plants as well as the weeds. It’s a full days work for 2 people plus waste disposal.
Mum got annoyed with me and repeatedly said that she didn’t understand why I’d suddenly quit and why I’d never said it was getting too much. I explained again, three times, that it was the treatment of me by her sister and my sister that was the final straw. She says that didn’t mean I had to just drop her so I said she’s not been dropped because I sorted out SS to provide carers for her and she’s had other people go round. What she’s thinking is that it’s not the same as me who was so used to her needs that I could anticipate them before she knew herself.
She’s been able to sort out her medication issues with the pharmacy and that’s a positive. There were so many jobs I took in because I was going there for myself or passing when she could have done it herself.

Stick with it @Dormit do what others do, get a security camera if needed - my friend can make sure her mum is ok and when carers go in and out. Others have the allowance paid direct to the local authority’s chosen care provider but I know some where they engage their own choice of ‘care provider’ and they are paid from the allowance. Please don’t end up taking it on yourself to do the caring because you feel it is not up to standard - just leave it. Otherwise you will be back where you started.

Dormit · 28/08/2025 16:46

I spoke to the care agency and they weren’t impressed with what I told them.

Priorites are certainly the thing. I’ve kept mum in a high standard these past few years and knowing that won’t be maintained will be hard for her. It look a lot of self restraint not to do jobs today but I stuck it out.
I mentioned about the granddaughter doing the cleaning weekly and she looked confused and said she hadn’t said that and that gd had just said to phone if she wanted anything doing. So that’s a cock up already. The house needs a good clean and Hoover. The bed needs changing. The bins need emptying. Laundry needs doing. The garden is a mass of mare’s tails.
The gardener who gave the quote is the one who does her hedges twice a year. I sent him videos. He said about putting weed killer down though and disagreed when I said that would kill the plants as well as the weeds. It’s a full days work for 2 people plus waste disposal.
Mum got annoyed with me and repeatedly said that she didn’t understand why I’d suddenly quit and why I’d never said it was getting too much. I explained again, three times, that it was the treatment of me by her sister and my sister that was the final straw. She says that didn’t mean I had to just drop her so I said she’s not been dropped because I sorted out SS to provide carers for her and she’s had other people go round. What she’s thinking is that it’s not the same as me who was so used to her needs that I could anticipate them before she knew herself.
She’s been able to sort out her medication issues with the pharmacy and that’s a positive. There were so many jobs I took in because I was going there for myself or passing when she could have done it herself.

OP posts:
the5thgoldengirl · 28/08/2025 14:03

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the5thgoldengirl · 28/08/2025 14:00

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the5thgoldengirl · 28/08/2025 13:48

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Dormit · 28/08/2025 13:47

Oh and £650 to get the garden up to standard!

OP posts:
Dormit · 28/08/2025 13:44

Thank you. I will do that.
I’ve just met one of the carers and she’s bloody awful. Spent ten minutes talking about how the tea time call isn’t working and how all suggestions to make it work wouldn’t possibly work. She sounded bolshy and lazy and she was talking about care costs and how mum would need to pay and what we need to tell SS in front of my ten year old which is inappropriate. She talked about mum to me rather than to her which I didn’t like. She’s right here with us you know. Plus she talked to me like I was dense. She said she’d only got time to make a cup of tea. Yes because you’ve been talking office politics and shit for ten minutes. Then ate left 5 minutes early. Some carers are just awful.

OP posts:
the5thgoldengirl · 28/08/2025 11:45

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the5thgoldengirl · 28/08/2025 11:23

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the5thgoldengirl · 28/08/2025 11:20

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Dormit · 28/08/2025 11:07

I’m not familiar with pip and wouldn’t have thought I’d be eligible seeing as how much I was doing for my mum and I don’t need help myself.

OP posts:
the5thgoldengirl · 28/08/2025 10:50

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Dormit · 28/08/2025 10:00

I will have to get a job yes, but I’ve never done well with employment. I now know that’s the autism and adhd. I also have a few chronic physical conditions that saw my sickness record be a huge issue. I burn out very quickly. Working for my mum suited us both almost perfectly until it got too much and family said what they did. I think if she’d have stood up for me against her sister and my sister then things might have co tinned but with outside help taking some of the load off. I’m a single parent in a rented house and am worried about losing the carers element of universal credit. The money from my mum paid for my hobby and days out. I’ll work out my finances later but I will have to get some work. I’ve just no idea what.
Ds has woken up saying he doesn’t want to go up to see granny today which is unusual. He’s worried we will argue or that she will cry. I’ve reassured him on the arguing and I think now that she’s got help for meals there’ll be no crying. She was in a bad way last time we saw her and not managing and got upset. I’m not looking forward to it either to be honest and I hate feeling like that. I’m just worn out. I’m not sleeping well and am skint so it’s no surprise.
Im expecting some guilt tripping today but I’ll tell her straight to stop. I was going to get the garden up to standard but it wrecks my abreast knackered back so I’m not. It would take me around 15 hours to get it the way I’d be happy with it so about £300 of work by my estimate. It will be very interesting to see what the gardener comes back with.

OP posts:
rainbowstardrops · 28/08/2025 09:41

What a shame that you’ve been expected to take so much of the load on and that’s now changed your relationship with your mum. That’s really sad.
Would you consider going back to work now and getting some of ‘you’ back?

previewyourpost · 28/08/2025 07:59

Ah OP, it’s so hard when you’re the ‘default carer’. If she can’t manage alone and has mobility issues then she really should be assessed by Adult Social Services. If she has funds she might initially have to pay for help but when her funds dip below a certain level State support will kick in. As she has a chronic condition she can get help with small tasks like making meals etc (even if she doesn’t need help with personal care). You can then significantly cut back on what you do and just provide support where you feel able to

I oversee the care for my dad but he has carers three times a day. They help him get dressed, make a meal and do little jobs such as washing a few dishes, putting the bins out etc. I don’t live locally but I do all the ‘life admin’, online shopping, bills etc. He also has a cleaner and a lady who collects the washing and returns it next day washed and ironed. He doesn’t have much in the way of funds but with outside support, we make it work.

FloofyKat · 28/08/2025 01:09

Just stop. Step back. Don’t take any more money. Tell her you can’t be her carer any more as it’s burning you out, and she is taking advantage of you. Point out she has other children and it’s time they started playing a more active role. Tell your mum she has a choice - meals delivered, outside help, or she does everything herself. Don’t allow yourself to damage your own physical, emotional and mental health a minute longer. And tell your siblings the same!

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