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Elderly parents

Gotta laugh - elderly relative. For elderly parents regulars modtly

32 replies

BeaTwix · 15/06/2025 09:47

I have had many previous threads. I care/am PoA for a slightly distant elderly relation. It’s a lot of work. I live 400 miles away from them. I travel to their home city every 4-6 weeks to sort stuff out.

I used to call them the oldie as there isn’t a suitable mumsnet acronym but have had a pasting on here for “appalling”, “insulting” and “demeaning” language. Henceforth they will the TEPICF (the elderly person I care for).

TEPICF has just been discharged from hospital. This was not perfect but better than previous discharges however they have a new care provider and no one thought to put the care coordinator and me in touch. Or in fact pass reciprocal contact details to each party.

So Day 1 post discharge TEPICF has no lunch as they have wildly over optimistically told the new carer they will make their own lunch. TEPICF is banned from the cooker after previous mishaps, can’t get their head around the new fangled (15yo) microwave so trying to resolve this takes multiple phone calls and me giving step by step instructions about decanting soup into a bowl and microwaving it. Or simply opening one of the prepackaged long life pasta salads we stocked in house for this purpose… Despite two such phone calls by 5pm they still haven’t eaten.

i then try to work out who new care company are. TEPICF tells me there is a folder. They look at (they aren’t daft, and reading comprehension isn’t usually an issue) but they fail to find the care company name, or contact details. Then they tell me “someone” came to visit them yesterday (discharge day) about their care.

TEPICF doesn’t know

  1. who it was
  2. who they worked for
  3. what their job role is - it swung from social worker, carer, care manager during conversation
  4. how I could contact them and no, TEPICF hadn’t mentioned that I existed and needed to be kept in the loop. Obviously the laminated sign about TEPICF’s support needs with my contact details hadn’t worked either.

I then made multiple calls to the hospital to try to find out which care company it was. Finally got the name, but no phone number. I then had to call the care company. Again. Multiple calls/emails. Good conversation with care coordinator, realise this is a re-ablement package not permanent so there will be yet another change in carers (why did no one at hospital think to tell me this?!?) , care coordinator realises after my retelling of lunch and their visit that perhaps TEPICF isn’t as sharp as they make out. I make point that if anyone had put us in touch I would have told them all of this. All good.

Then on post discharge day 3 new carer rings me. There is water coming through the hall ceiling. They provide photos. TEPICF is a hoarder. House is now mostly dehoarded but nothing except emergency repairs have been done on it for 50years so there are lots and lots of issues..,,,

I’m at work. I’m Busy (am anaesthetist). I ask my siblings who both work from home on a more flexible schedule if they can help and provide tradesmen details. Neither respond.

At 11:30 I get a break and practically beg a plumber to go out.

He does. Leak fixed by 2pm. And he phones me to tell me and sends photos. Yay!!!!

21:30 I send a text to wider family congratulating myself on being a repair ninja.

22:00 TEPICF phones me. The hall ceiling has fallen down……

seriously. Do I never get a break!!!!!

OP posts:
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Lightuptheroom · 04/07/2025 22:17

@Mum5net we've discovered mum has a fine vocabulary of swear words that we never imagined she knew. Plus she can talk to my husband about what a wonderful person 'I' am and then turn to me and call me filthy names! All fun and games

BeaTwix · 04/07/2025 21:54

Well EPICF is much more interactive with us while in the care home - she is engaging on WhatsApp. Seems to be managing to text/ email her friends and is loving the food. She is being snotty about some of the activities though - the music offerings are "too mainstream" (tbf she has sung classical music in various well regarded groups for the whole of her adult life so some snottiness is probably allowed) but the staff tell me everyone wants her to go along as she really can sing!

Meanwhile my second role as a project manager is coming along well possible just as well as my NHS job have just offered out voluntary redundancy packages.

I finally got her burglar alarm system to work so am less worried about everyone and their dog knowing the keysafe code. It's an amazing system - I can remotely set up access codes for tradesmen and the disable them when the job is finished. In extremis I can also disable the alarm remotely. So far only one person has set it off by accident.

We've started muttering about making the care home permanent but she isn't convinced and I'm struggling with whether or not she has capacity to make this decision. I'm pretty sure she will fail if I let her go home but maybe she needs to see that. I'm balancing this with the risk of something terrible (fire/ falling headfirst down the stairs) happens when she is at home.... In addition, the NHS staff all treated her as capax 10 days ago so am i really right to overrule her... Decision is deferred though as I've had to extend her stay as it's summer holidays and unsurprisingly lots of the tradesmen I need to finish the house are away.

The uncertainty makes planning hard - if she is going home I'll replace her bedroom carpet - at £900 it is only 2 days in the care home! However if she is staying there seems a waste as I'm sure the new owners won't really care....

EPICF also has no clue about interiors - as you may recall, she hoarded for years so has done fuck all in the house since 1979. She always meant to do things though so has had an interiors magazine subscription for years which has been the source of much amusement to everyone external as the house is in such a state.

Anyway I was optimistic she would have useful opinions. Nope! I asked her about what colours of paint she wants used. So far for her bedroom (currently a very wacky pale pink with green/ blue floral/ bird themed wallpaper that is bang on trend) she doesn't want pink, green, yellow or blue. Main reason given is "they are cold"....

When in desperation I asked what colour she did want as she seems to have excluded a good portion of the colour wheel I got no bloody answer.

So I'm just picking now and if she gets home and hates it tough (and obviously I'm trying to keep it appealing for a future purchaser).

As always the teenagers are a godsend. Two helped me move all the furniture out of the affected rooms last weekend so i actually got some of my Sunday back and could see friends while I was up there.

A different one is scheduled to move prescription drugs from pharmacy to the care home as she is now out of area for pharmacy delivery on Monday. He has also promised to pick up an M&S apple turnover on the way as she bloody loves an apple turnover. All pray to the altar of lovely teenage boys.

OP posts:
Mum5net · 26/06/2025 09:50

Lightuptheroom · 23/06/2025 23:59

Ah yes, last year things for my mum deteriorated rapidly. Anyone professional became 'the lady with the laptop' (took some working out whether that was social worker, housing officer, police officer, someone from the council....) Then, she decided that any kind of workmen were not coming in the house (just as the housing association decided they were stripping polystyrene tiles from the ceiling) and that anyone looking remotely like anything professional (including me and my siblings) could be told to f off loud and frequently. She was moved into a home last year after she took to standing outside the local High school and screaming 'tart' at all the girls in their short skirts... that's missing out the bit where the social worker went on leave unexpectedly and 'forgot' to file the care assessment.

@Lightuptheroom I am sorry to laugh but I just snorted my water reading your post. It took me back ten years ago to when we were in a similar position. Our stories are different but along the same lines .. telling the SW that DF was having sex with teenage boys in a car parked across the road... that kind of thing... looking back I think a younger on-the-ball DM would find all her antics and sayings hilarious. Time does heal. I can now look back fondly rather than with horror.

Lightuptheroom · 23/06/2025 23:59

Ah yes, last year things for my mum deteriorated rapidly. Anyone professional became 'the lady with the laptop' (took some working out whether that was social worker, housing officer, police officer, someone from the council....) Then, she decided that any kind of workmen were not coming in the house (just as the housing association decided they were stripping polystyrene tiles from the ceiling) and that anyone looking remotely like anything professional (including me and my siblings) could be told to f off loud and frequently. She was moved into a home last year after she took to standing outside the local High school and screaming 'tart' at all the girls in their short skirts... that's missing out the bit where the social worker went on leave unexpectedly and 'forgot' to file the care assessment.

WearyLady · 20/06/2025 14:41

BeaTwix · 19/06/2025 14:35

Not much relaxation. I need to mastermind the property repairs.

all from 400 miles away!

EPICF is totally sanguine. "Oh, it will just have to be fixed". No seeming thought to how much work "oh it will just have to be fixed" is going to be.

And of course once it's fixed it will have to be decorated. Huge fucking sigh.

And I also need to keep liberating the cash so I can pay the respite bills. Which are horrendous.

Edited

Don’t rush to get it sorted, assuming of course the money is there to cover EPICF’s care home costs. Give her time to settle in the home and get comfortable. My mum went into a care home for reablement following a fall. It was late in the Covid era so no longer loads of deaths in care homes but social services not as good as they could be. There were delays getting a social worker to sort out a care plan so, instead of being in for just 6 weeks, it took 12 weeks for a social worker to be assigned. By that time my mum had changed her mind from ‘when can I go home?’ to ‘I’m happy to stay here’. I think that once my mum had settled in, she started to feel secure and much less stressed. She made friends with residents and staff, there were people to talk to and things to do and a constant supply of meals and snacks. What’s not to like?

BeaTwix · 19/06/2025 14:35

Not much relaxation. I need to mastermind the property repairs.

all from 400 miles away!

EPICF is totally sanguine. "Oh, it will just have to be fixed". No seeming thought to how much work "oh it will just have to be fixed" is going to be.

And of course once it's fixed it will have to be decorated. Huge fucking sigh.

And I also need to keep liberating the cash so I can pay the respite bills. Which are horrendous.

OP posts:
ajandjjmum · 19/06/2025 09:21

Result!!!

Hope it all works out, and that you can start to relax knowing she's been properly cared for.

BeaTwix · 18/06/2025 23:03

And in the most spectacular unexpected way ever when presented with the options:

A - stay at home for now, as ceiling deemed safe, but move out to as yet undecided care home when repairs scheduled

vs

B - move out now to care home I really like, in a good location, close (ish) to her house for a period of respite while house repaired.

She chose B.

I was gobsmacked.

first sensible decision in a year.

Created havoc for me though. Emergency unpaid carers leave (which was really difficult for my colleagues), the quickest flight book/ pack/ trip to airport ever. Booked 18:15- walked into my brothers house 400 miles away at 21:30. But she is now in the home and tbh I think when the house is repaired she will opt to stay. Especially if a bigger room with a bit more space becomes available.

Should have preemptively packed my stuff as I didn’t bring several things that would have been useful. I did an emergency load of washing last night!!!

OP posts:
BeaTwix · 16/06/2025 12:14

Mum5net · 16/06/2025 11:18

DSis and I had emergency hospital bags for DM & DF stashed in their house.
We also kept knickers and toothbrushes and chargers in our own cars.
Eventually you see a pattern ...

I not only keep packed bag in her house but it has an AirTag in it so I can see if she actually takes it to hospital.

Because amazingly despite having a ready packed bag she has actually failed to take it in with her.

OP posts:
ThisIsMyYearToFindMyself · 16/06/2025 11:58

I then made multiple calls to the hospital to try to find out which care company it was. Finally got the name, but no phone number

Would making a serious complaint to the hospital work?

It kind of reminds me of the story about an elderly woman being dropped off at home by an ambulance crew in the middle of the night a few years ago.

Kind of well done for your siblings to make it clear she must cooperate with you, but also boo to them for not actually doing anything practical.

TonTonMacoute · 16/06/2025 11:24

It drives me crazy when people tut, and say 'Well, the families should look after their old people!'

I think a) who on earth do you think is doing it now?

And b) you haven't actually been in this situation, have you? If you had you would know that not all old people are grateful and cooperative.

Mum5net · 16/06/2025 11:18

DSis and I had emergency hospital bags for DM & DF stashed in their house.
We also kept knickers and toothbrushes and chargers in our own cars.
Eventually you see a pattern ...

Mum5net · 16/06/2025 11:10

Mrsbloggz · 15/06/2025 17:34

I know. I sometimes think it's a kind of automatic survival response, an instinct to grab whatever they can in an effort to stay in the game for as long as possible!

Absolutely this.
Staying in the game means they gamble with unrealistic choices or decisions which in itself is more evidence they are struggling.
It can't be any fun for them.
But they do wreak misery on everyone else.

BeaTwix · 16/06/2025 11:09

Well I've got an assessment of the ceiling booked in this evening and a provisional respite bed from tomorrow if house is deemed unsafe.

Just deliberating about whether or not I should preemptively pack a bag of my own stuff so if I do need to move her I can dash out to get the last flight from LHR (I hate getting up early so would prefer to fly tonight).

OP posts:
twilightcafe · 16/06/2025 10:21

Mrsbloggz · 15/06/2025 13:01

My other half has a diabetic parent in their mid 80s, they have decided to just wing it and not bother with insulin or measuring blood glucose anymore.
Needless to say that resulted in a trip to A&E.
I suspect it's part of a strategy designed to make my other half feel as if he has to move in to keep an eye on the parent 😶

I suspect this is my mother's game.
Make a hash of either living at home (which she clearly can't manage any more) or in her new sheltered flat (and there is no reason why she cannot manage here).
Therefore the only option (in her mind) is to move in with my sister.

BestIsWest · 16/06/2025 09:50

Honestly, it’s so hard. I feel for you. Look after yourself. I recognise much from what you say.
I’ve never struggled with my mental health as much as I have these last few years in a similar situation with my DM.

ajandjjmum · 16/06/2025 09:44

BeaTwix · 15/06/2025 22:15

@PermanentTemporary oh yes. And I’ve provided the PoA practically more times than I’ve had hot dinners.

Anyway care home is now looming. TEPICF is totally freaked out about the collapsing ceiling so I think they will go in for respite during the repairs (or earlier if it is deemed unsafe on formal assessment) and never come out.

It was touch and go if I sorted respite out starting this week. They are in a right old state.

The ceiling might be a blessing. A few weeks in respite while everything is sorted, and they may realise that they have a better life in an environment where care is provided full time.

Perhaps easier than making a permanent decision from the get go?

EmotionalBlackmail · 16/06/2025 07:47

Assuming the care home is local it doesn’t necessarily need to mean the end of her activities. I know one woman who lives in a CH, runs a car and uses it to get to choir rehearsals etc!

BeaTwix · 15/06/2025 22:15

@PermanentTemporary oh yes. And I’ve provided the PoA practically more times than I’ve had hot dinners.

Anyway care home is now looming. TEPICF is totally freaked out about the collapsing ceiling so I think they will go in for respite during the repairs (or earlier if it is deemed unsafe on formal assessment) and never come out.

It was touch and go if I sorted respite out starting this week. They are in a right old state.

OP posts:
PermanentTemporary · 15/06/2025 21:39

Oh good grief. Working now in a community team that picks up patients discharged from
hospital within 24 hours, I’m so struck by the difference in hospital teams - some are able to imagine what could go wrong at home, some just accept far too much at face value.

i assume you are on the hospital record as next of kin?

ajandjjmum · 15/06/2025 18:36

OP - I think you're wonderful looking after your 'oldie' as you do! I have three oldies and in no way is it a term of disrespect, it's a loving, jokey name that they prefer to being 'the pensioners' etc. They're not relatives so the choice is fairly limited!

NewsdeskJC · 15/06/2025 18:19

Oh I hear you. It's bloody endless.
Mine today is "the cooker doesn't work".
Yes it does. I would stake my life on it. You have forgotten how it works.

Mrsbloggz · 15/06/2025 17:34

BeaTwix · 15/06/2025 17:27

@Mrsbloggz they can be quite manipulative the older generation.

I know. I sometimes think it's a kind of automatic survival response, an instinct to grab whatever they can in an effort to stay in the game for as long as possible!

BeaTwix · 15/06/2025 17:27

@Mrsbloggz they can be quite manipulative the older generation.

OP posts:
Mrsbloggz · 15/06/2025 13:01

My other half has a diabetic parent in their mid 80s, they have decided to just wing it and not bother with insulin or measuring blood glucose anymore.
Needless to say that resulted in a trip to A&E.
I suspect it's part of a strategy designed to make my other half feel as if he has to move in to keep an eye on the parent 😶

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