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Elderly parents

MIL care costs

138 replies

NoHaudinMaWheest · 08/01/2025 14:32

As the title says this is about paying care costs for my MIL.

I feel the need to give a fair bit of background in order for the situation to be understood and also to get things clear in my own mind. That will make it quite long so advance warning if you are short of time or capacity.

MIL is now 90. She was widowed 30+ years ago and has lived alone in her own owned home since. Until she was 79 she was pretty independent, driving, doing voluntary work, visiting friends etc.
She then had to have a fairly minor operation to remove a melanoma from her leg. She was assured that it was the type that doesn't spread systematically and that it had all been removed so once her leg had healed she could go back to normal. However she developed a severe reactive depression and stopped eating and drinking and caring for herself. She ended up very ill in hospital. After a period in acute and rehab hospitals she was discharged home, physically fine but still very depressed.
When FIL died she had taken out an insurance policy which would provide care at home and so that was used to hire a live-in carer to persuade her to eat, drink, wash etc. She had quite a lot of psychiatric input but never improved.
A few years later she had a fall which resulted in much reduced mobility. Since then she has lived in one room - bed and commode in the sitting room, just moving to the kitchen for some meals. She doesn't do anything -watch TV, read, knit, sew or engage in conversation. She just worries endlessly and repetitively about eg if the heating is working properly.
She has had the live in carers all this time funded by the insurance policy and her savings. About 5 years ago her savings ran out. BIL has POA and does all her financial stuff as well as managing the carers and practial stuff for the house though no hands on care. He managed to get social services to agree to some financial support and that was enough for things to continue until about 2 years ago.
At that point the care company massively increased their fees which meant that there was a considerable shortfall. Again BIL did the negotiations which meant some increase in SS contributions but there was still not enough so he decided that he and SIL and DH and I would top up - £125 a week for each couple (increased to £150 from this month).
He and DH are adamant that their mother should not go into a home. They feel that as they will ultimately inherit her house they will get their money back.
Some years ago (at least 15) MIL sold a field adjacent to her house. BIL had done quite a lot to negotiate with the council and developers so she got quite a good amount for it, some of which she gave to us and to BIL and SIL. DH and BIL feel that that means that it is only fair for them to fund MIL now.

MIL is not exactly healthy but she doesn't have any life threatening conditions and this situation could go on for many years. DH and I are both in our later 60s and both have disabilities which we manage independently now but may not be able to in the future. In addition we have two children in their 20s with disabilities which require additional support and limit their earning capacity.

I feel that although we may inherit there is no guarantee. If MIL was to require 2 to 1 or overnight care in the future she would have to go into residential care and the house be sold anyway. We are paying this out of income and even if we don't absolutely need it for day to day living now, we have good reason to want to save what we can as well as living reasonably comfortably now.

I really resent being given no choice about this funding. I am not sure that living in isolation like this is really in MIL's best interests. And all this is skewed but the fact that I have never really liked MIL - the feeling is entirely mutual.

DH is quite passive and happy to go along with what BIL says. We live a lot further away and have the DCs to be responsible for while BIL and SIL are a bit younger, in good health and don't have children.

I don't even know what the figures are and am not sure that DH does either. Nor do I know for certain what MIL's will contains.

Saying no would cause a huge family rift but it is what I really want to do.

Any advice welcome (if you have managed to get to the end of this screed).

OP posts:
MissDoubleU · 08/01/2025 16:29

The whole inheritance discussion makes me feel very angry in general. Spending someone else’s money before they’re dead. No one is entitled to inheritance, from anyone. NO ONE. Your MIL’s money is there for her until she is here no longer. If there’s stuff leftover the brothers can fight over whatever scraps they want. It’s very, very poor taste for them to determine their sick mother’s care needs based solely on them wanting to pocket as much as possible after she’s gone. And that’s the fkn tea.

It doesn’t even to seek to be wanting to keep a family home as a legacy, which I could maybe understand. The home will be sold either way and the BIL seems to be making decisions to benefit his own pocket in that event.

harriethoyle · 08/01/2025 16:24

@NoHaudinMaWheest check that your MIL is claiming attendance allowance. Might help reduce the shortfall if not.

OnceMoreWithAttitude · 08/01/2025 16:23

Has anyone asked her what she would like to do? Whether she would like to look at a home?

A relative of mine got equity release when she was over 90 so there must be some schemes.

No ball park figure for the house value? Big difference between £130k and £400k, for e.g.

A proportion of her pension and any benefits will go towards her care fees - e.g Attendance Allowance.

maria2bela1 · 08/01/2025 16:21

It's all in the delivery of the questions. I think you and DH should ask BIL/SIL for a zoom chat online and perhaps suggest that there may be other support available so can we go through all the facts/figures together? Also, who is executor of your MILs will? It wouldn't be unreasonable for you (Your DH) to see that he is definitely going to be inheriting on paper which makes forking out now a bit more palatable. It is his mum at the end of the day, the elderly do need to be cared for in some way or another, so do your upmost best to not let your feelings slip out, keep it purely pragmatic and amicable.

Waterlooville · 08/01/2025 16:18

Personally, I'd have no issue paying until the equivalent of the £60k was given back. Then I might feel differently.

Calmhappyandhealthy · 08/01/2025 16:12

NoHaudinMaWheest · 08/01/2025 16:10

She does have 1 to 1 live in care. But yes that is very isolating as she doesn't really see anyone else except the carer with maybe twice weekly visits from BIL and very occasional ones from DH and a few friends who haven't been put off completely yet.
I think a care home would be a better option from her point of view and have done for a long time. If we get an inheritance that is a bonus but I don't think we should assume it never mind rely on it.

We paid £5000.00 a month for my Dad including Nursing care in a Nursing Home.

NoHaudinMaWheest · 08/01/2025 16:11

catofglory I think you are probably right re BIL and DH.

This thread is at least partly to vent my frustration.

OP posts:
NoHaudinMaWheest · 08/01/2025 16:10

She does have 1 to 1 live in care. But yes that is very isolating as she doesn't really see anyone else except the carer with maybe twice weekly visits from BIL and very occasional ones from DH and a few friends who haven't been put off completely yet.
I think a care home would be a better option from her point of view and have done for a long time. If we get an inheritance that is a bonus but I don't think we should assume it never mind rely on it.

OP posts:
catofglory · 08/01/2025 16:09

@NoHaudinMaWheest you said

they are convinced that if MIL goes into a home no-one will ensure that she eats and she will be dead within a month. While that is a possible scenario, I don't see how anyone can know that for sure.

I can assure you that IME they are wrong. My mother has been in a care home for 8 years. For more than two years has been completely immobile and dependent on carers who have to feed her and ensure she drinks. She is still alive so they seem to be doing a very efficient job.

I would never pay top up fees so I can see why you don't want to. IMO she would be fine in a care home, but really it makes no difference what any of us say, because your husband and BIL are unlikely to change their minds.

MissDoubleU · 08/01/2025 16:05

NoHaudinMaWheest · 08/01/2025 15:52

olderbutwiser they are convinced that if MIL goes into a home no-one will ensure that she eats and she will be dead within a month. While that is a possible scenario, I don't see how anyone can know that for sure.
BIL is very attached to the house which his father had built as his dream home. He was against MIL moving somewhere more suitable in size and location many years ago. SIL would never agree to live there though. I don't know how much of a factor this is in the current situation.

That is beyond ridiculous, what is more dangerous realistically? Logically? Severely depressed MIL being home alone besides one person checking on her here and there to hopefully make sure she eats, or MIL being in a care home with multiple levels of round the clock care/staff and other residents keeping an eye on her?

NowYouSee · 08/01/2025 16:03

I have to say I doubt the “won’t eat will die” line is true. Carers won’t be 1-1 24-7 for sure but they will be looking after her and her well-being. They are used to people coming in and making them feel comfortable and settled. What about her going in for respite care and seeing how she does?

NoHaudinMaWheest · 08/01/2025 16:03

My income is separate. But it is small and because of my caring duties DH's income has always paid for the majority of household expenses. He considers his state pension his money though. (And yes I do have something of a 'DH problem')

OP posts:
NowYouSee · 08/01/2025 16:01

I recently had to look at live in carers v residential home and found live in significantly more expensive. BIL might be attached to the home but it might be cheaper but also better for MIL to go into residential care.

NoHaudinMaWheest · 08/01/2025 16:01

unsync BIL has POA for finance. I am fairly sure that MIL still has capacity. She doesn't have dementia and in theory can make decisions though the depression makes it hard. She had a care needs assessment about 2 years ago when SS increased their contribution. BIL was heavily involved in that. I don't know how much his views could or did influence the decision to continue with home care.

OP posts:
NoHaudinMaWheest · 08/01/2025 15:57

OnceMoreWithAttitude BIL did look at equity release when the savings first ran out but then SS agreed to contribute and they didn't go ahead. That scheme had to be started before age 85. Are there newer ones without age limits?

OP posts:
NoHaudinMaWheest · 08/01/2025 15:52

olderbutwiser they are convinced that if MIL goes into a home no-one will ensure that she eats and she will be dead within a month. While that is a possible scenario, I don't see how anyone can know that for sure.
BIL is very attached to the house which his father had built as his dream home. He was against MIL moving somewhere more suitable in size and location many years ago. SIL would never agree to live there though. I don't know how much of a factor this is in the current situation.

OP posts:
NoHaudinMaWheest · 08/01/2025 15:48

TheGodWorm there are two siblings DH and BIL both married DH to me and BIL to SIL. If the will states equal splits in any inheritance (which is what we are all assuming but I don't know if anyone actually knows) can that be changed to reflect what each couple has put in?

OP posts:
Calmhappyandhealthy · 08/01/2025 15:48

You have choices

Persuade DH to think your way and withhold money for a lower inheritance

Keep all your money separate so it can't be used for MIL

Suck it up and hope you get a good pay out when she dies

NoHaudinMaWheest · 08/01/2025 15:45

autumnalmists yes all benefits are being claimed. Negotiating is probably the wrong word. He asked SS to update their care assessment and increase the amount they paid for care. They really suggested residential care so he had to persuade them that the current situation was a better option.

OP posts:
AsmallabodeIsallweWant · 08/01/2025 15:44

Your husband really has to do this. Also if you have your own income, stop paying into the joint account just in case he uses your money for these 125 a week

Findmeelf · 08/01/2025 15:42

As pp said perhaps one of the newer equity options so MIL could take over funding the 8k you are paying.

NoHaudinMaWheest · 08/01/2025 15:41

Dearg you are right we need the full facts from BIL. DH has already retired so we know exactly what his pensions are. I haven't been in paid employment because of caring for the DCs. I currently get carers's allowance and will get my state pension (and a really tiny employment one) this year.
DH's and my own health mean that we have no capacity to increase our income.

OP posts:
NoHaudinMaWheest · 08/01/2025 15:38

Thanks for all the replies.

find me elf I don't know the overall amount the field was sold for. We got about £60,000 I think.
Obviously MIL won't live for ever but anywhere from 5-10 is a realistic possibilty by which time we will be mid-late 70s.
I have no idea how much the house would sell for really. It is a good sized family home in a desirable commuter village. It would need a lot of updating but is in a good state of repair. I would think it would be easy enough to sell but how much would be left would obviously be dependent on the care home costs and how long they go on for.
Yes if we don't contribute BIL and SIL would have to pay more if they chose to. Frankly I prefer to keep the money we know we have rather than rely on an uncertain inheritance and if they did pay more now I would think it fair that they had more of whatever was left. Don't think DH would be happy about any of that though.

OP posts:
MissDoubleU · 08/01/2025 15:34

It doesn’t sound like your DH and BIL do have your MILs best interests at heart. They want to protect their inheritance. If she is struggling with serious depression then being alone in a big house, rather than a care home with round the clock care and company, doesn’t seem very fair to her. Of course she’s still depressed. Her life seems miserable.

I think you definitely have to see all the facts and figures and where this spending is going. You are also funding this, it is well within your right to know what you’re paying for.

unsync · 08/01/2025 15:34

I might have missed it, but does MiL still have capacity? Who has PoA for Finances and H&W? MiL has an asset that should be used to provide for her care. When did she last have a care needs assessment?

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